Re: Still Recharging & Recuperating

[Guest guest]

God Bless all of you. What a wonderful marvelous family you are. How you

manage

to do all the things you accomplish amazes me. You must have a deep faith,

love and be loved in return and to get people to stand in for you,you must be

extra special.

This is the time for miracles. We are praying hard that one will occur. May

all the

blessing of Easter flow into both f you and may your spirit be refreshed and

renewed.

With Him,in Him and through Him all things are possible. Faith is a gift,you

have it.

Hpe is a beacon,you have lit it,and clearly you are doing all that can

possibly be done

to help your husband. Higs and prayers Nick & Jane

[Guest guest]

Becky,

You might want to ask your Onc or Gastro doctor about Miralax. I

have a very lazy colon and can not take laxatives because they make

me have spasms and nauseated.

You take the Miralax powder in any hot or cold liquid. It dissolves

instantly and has NO taste and does not thicken up. Its taken every

evening and my Gastro doc told me to supplement it with Milk of

Magnesea. Milk of Magnesea has NO stimulants in it and easy on the

system.

You might want to tell Jeff that Xeloda very rarely causes side

effects. took it for 6 weeks and will probably be put back

on it this next visit. They are going to include Avastin to it this

time. The only side effect has was fatigue. No nausea, hair

loss or hand and foot problems. He used Aquaphor on his hands and

feet every night. The worse thing about it is the pills are quite

large and had to take 5 of them twice a day. It sure beats

the drip and the trips into the doctors office.

Best wishes,

Joyce-- In colon_cancer_support , " Becky Beach "

<becbeach@y...> wrote:

> Hi Kaye,

>

> Was wondering how you were doing. Hope things are going great for

> you.

>

> Jeff is still ok. He went back to his original onc. (when first

> diagnosed) Dr. Prajapati out of Owensboro, Ky. Talked with him

about

> taking Xeloda and about treatments available for pain as the

> oxycontin 80mg 2x a day and percocets are not keeping him very

> comfortable. The onc. said that some people do not do well on

Xeloda

> and that just because it is a pill not to expect that he would

have

> no side effects (which I tried to explain to Jeff before we went)

> Jeff was immediately put off by the suggestion of side effects.

He

> said he would think about it and get back to the onc on his

> decision. He had a ct scan in mid March but he doesn't seem to

want

> to know what or if anything has changed.

>

> Jeff decided after his liver stent to try the xeloda BUT every

time

> he was supposed to go to the onc he would come up with a new

excuse.

> I told him to make up his mind. He said that he really didn't

want

> to be sick with chemo when he was dealing with so much pain and

> gastro intestinal problems. He is on so much pain killers that

his

> colon has to be helped along every other day with 3 dulcolax to

help

> him clean out. It wears him out and is alot of cramping and

running

> to the bathroom.

>

> I guess he is holding his own right now. He seems like his pain

is

> increasing, he can't stand up or walk for longer than a couple of

> minutes at a time. It is very hard on him just to stand long

enough

> to shave and take a shower. He got a wheelchair about a month ago

> but doesn't like to go out in it. I guess because I am around him

> 24/7 I don't see him progressively getting worse, but when his

family

> or mine comes over after not seeing him for a few weeks they

notice

> and ask me about it. It is so hard to watch him slowly become

more

> disabilitated and frail.

>

> It is spring break for our oldest so we went to the Louisville Zoo

> today. We had a great time. He managed to go with us, but was

> extremely tired and in alot of pain by the time we left.

>

> We are all just enjoying every moment and trying to make it a

> memorable time in the boys lives.

>

> I pray you are doing great. Have a great Easter weekend!!!

>

> Becky Beach

>

>

>

> > Becky, I have not been on much lately..lots going on here....I

am

> still hanging in but was wondering how your husband is doing and

> where he is going to the dr. now...hope he is doing

> better...hugs,kaye in bowling green.

> >

> >

> >

[Guest guest]

Becky,

You might want to ask your Onc or Gastro doctor about Miralax. I

have a very lazy colon and can not take laxatives because they make

me have spasms and nauseated.

You take the Miralax powder in any hot or cold liquid. It dissolves

instantly and has NO taste and does not thicken up. Its taken every

evening and my Gastro doc told me to supplement it with Milk of

Magnesea. Milk of Magnesea has NO stimulants in it and easy on the

system.

You might want to tell Jeff that Xeloda very rarely causes side

effects. took it for 6 weeks and will probably be put back

on it this next visit. They are going to include Avastin to it this

time. The only side effect has was fatigue. No nausea, hair

loss or hand and foot problems. He used Aquaphor on his hands and

feet every night. The worse thing about it is the pills are quite

large and had to take 5 of them twice a day. It sure beats

the drip and the trips into the doctors office.

Best wishes,

Joyce-- In colon_cancer_support , " Becky Beach "

<becbeach@y...> wrote:

> Hi Kaye,

>

> Was wondering how you were doing. Hope things are going great for

> you.

>

> Jeff is still ok. He went back to his original onc. (when first

> diagnosed) Dr. Prajapati out of Owensboro, Ky. Talked with him

about

> taking Xeloda and about treatments available for pain as the

> oxycontin 80mg 2x a day and percocets are not keeping him very

> comfortable. The onc. said that some people do not do well on

Xeloda

> and that just because it is a pill not to expect that he would

have

> no side effects (which I tried to explain to Jeff before we went)

> Jeff was immediately put off by the suggestion of side effects.

He

> said he would think about it and get back to the onc on his

> decision. He had a ct scan in mid March but he doesn't seem to

want

> to know what or if anything has changed.

>

> Jeff decided after his liver stent to try the xeloda BUT every

time

> he was supposed to go to the onc he would come up with a new

excuse.

> I told him to make up his mind. He said that he really didn't

want

> to be sick with chemo when he was dealing with so much pain and

> gastro intestinal problems. He is on so much pain killers that

his

> colon has to be helped along every other day with 3 dulcolax to

help

> him clean out. It wears him out and is alot of cramping and

running

> to the bathroom.

>

> I guess he is holding his own right now. He seems like his pain

is

> increasing, he can't stand up or walk for longer than a couple of

> minutes at a time. It is very hard on him just to stand long

enough

> to shave and take a shower. He got a wheelchair about a month ago

> but doesn't like to go out in it. I guess because I am around him

> 24/7 I don't see him progressively getting worse, but when his

family

> or mine comes over after not seeing him for a few weeks they

notice

> and ask me about it. It is so hard to watch him slowly become

more

> disabilitated and frail.

>

> It is spring break for our oldest so we went to the Louisville Zoo

> today. We had a great time. He managed to go with us, but was

> extremely tired and in alot of pain by the time we left.

>

> We are all just enjoying every moment and trying to make it a

> memorable time in the boys lives.

>

> I pray you are doing great. Have a great Easter weekend!!!

>

> Becky Beach

>

>

>

> > Becky, I have not been on much lately..lots going on here....I

am

> still hanging in but was wondering how your husband is doing and

> where he is going to the dr. now...hope he is doing

> better...hugs,kaye in bowling green.

> >

> >

> >