Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Kate, you're going to be going right past me!!!! Especially when you go to Hershey! Reading is about midway between Philly and Hershey!!! A bit N, bit not much...if you can find the time to swing by that would be AWESOME!!! Check your schedule and see? ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) I LOVE when you do update time, Sharon. Gives us each a chance to share, and also to hear what is going on in each of our lives.As for me...here goes...my MS is fairly stabilized with the Tysabri, although I do still have trouble with depression, intense fatigue and the trigeminal neuralgia. Sometimes my balance is a bit off; but nothing too extreme.Life here is a bit chaotic, what with kids being...well...disobedient and rebellious. We have our hands full with trying to deal with and correct this behaviour. Coupled with that the 3 of them doing travel hockey, we often use hockey as leverage for behaviour.This weekend there are 6 hockey games, but I've learned to try and carpool with other parents, so I think I have it whittled down to 3 for this weekend. Next weekend I have to travel all the way to land; about 5 hours away. The following weekend is Syracuse/Cicero, and that is a bit over 5 hours as well. Yikes! Then there is Thanksgiving....oy vey! We are going down to Philly area to celebrate with my family; leaving on Thanksgiving day to drive down there. We'll stay in a hotel there. Then, we (my son, husband and I), need to drive another 2 hours to Hershey, PA for a hockey tournament. We'll need to get up about 4:30 in the am, so that we can be at the rink for an 8:15 game. (You have to be there at least an hour prior to game). So much for visiting with my 2 girls home from college. At least they'll drive home in my daughter's car, and have a nice visit among the 4 of them.For the most part, that is what is going on here and with me...Sorry if this was too long for folks to 'wade through'.love to all, Kate update time:)To: Group > Okay everyone! It's time for an update. I would like to know > what's happening in your l ife, how is MS treating you, how's the > weather, etc. > > hugs))> > > Sharon> This email is a natural hand made product. The slight variations > in spelling and grammar enhance its individual character and > beauty and in no way are to be considered flaws or defects.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 I don't know if it's a good thing or not. Maybe, the notice will come next week. I've had a housekeeping inspection ever 2 weeks for the last several weeks. Previously, I would get a failure notice hanging on my door by the Friday following the inspection. The last inspection was on Tuesday, November 3rd. If the pattern had continued, I would have found a notice hanging on my door yesterday. But, there was no notice. I still am not sure if it is legal for the housing authority to be so nit picky. Before the last inspection, I rearranged some things on the book case which acts as the dvd and game case. Also, I moved some tools. Of course, I vacuumed the rug and mopped the floors, made sure nothing was sitting on the counters, all the dishes that still needed washed were in the dishwasher. I did find out that our city codes do not include a definition of what " clutter " is. My friend said that we have to find out what HUD's definition is, because HUD, being a federal agency, would have rules that supercede our city rules. When I did a search on the HUD web site for a definition of clutter, I kept getting results for integrated pest management. I have a referral to see Dr. Gilmore. He's a neurologist in Yakima. But, the appointment isn't until the 24th. The referral clerk said that she would have to wait until Monday to call Dr. Sloop's office to see if they could see me sooner. I told her that I had seen Dr. Gilmore in the past and I was not impressed with him. I have a friend who sees Dr. Sloop for her Parkinsons. She likes him and says that he is really thorough. From my personal experience with Dr. Gilmore, I'm not sure he really gives a rip about me. At least, that's how he comes across. I hope you all are having a good weekend. Donna in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 I don't know if it's a good thing or not. Maybe, the notice will come next week. I've had a housekeeping inspection ever 2 weeks for the last several weeks. Previously, I would get a failure notice hanging on my door by the Friday following the inspection. The last inspection was on Tuesday, November 3rd. If the pattern had continued, I would have found a notice hanging on my door yesterday. But, there was no notice. I still am not sure if it is legal for the housing authority to be so nit picky. Before the last inspection, I rearranged some things on the book case which acts as the dvd and game case. Also, I moved some tools. Of course, I vacuumed the rug and mopped the floors, made sure nothing was sitting on the counters, all the dishes that still needed washed were in the dishwasher. I did find out that our city codes do not include a definition of what " clutter " is. My friend said that we have to find out what HUD's definition is, because HUD, being a federal agency, would have rules that supercede our city rules. When I did a search on the HUD web site for a definition of clutter, I kept getting results for integrated pest management. I have a referral to see Dr. Gilmore. He's a neurologist in Yakima. But, the appointment isn't until the 24th. The referral clerk said that she would have to wait until Monday to call Dr. Sloop's office to see if they could see me sooner. I told her that I had seen Dr. Gilmore in the past and I was not impressed with him. I have a friend who sees Dr. Sloop for her Parkinsons. She likes him and says that he is really thorough. From my personal experience with Dr. Gilmore, I'm not sure he really gives a rip about me. At least, that's how he comes across. I hope you all are having a good weekend. Donna in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Donna I hope this is an indication that you passed inspection. Continued prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: djnova50@...Sent: Sat, 07 Nov 2009 21:40:17 -0000To: mserslife Subject: Re: update time:) I don't know if it's a good thing or not. Maybe, the notice will come next week. I've had a housekeeping inspection ever 2 weeks for the last several weeks. Previously, I would get a failure notice hanging on my door by the Friday following the inspection. The last inspection was on Tuesday, November 3rd. If the pattern had continued, I would have found a notice hanging on my door yesterday. But, there was no notice. I still am not sure if it is legal for the housing authority to be so nit picky. Before the last inspection, I rearranged some things on the book case which acts as the dvd and game case. Also, I moved some tools. Of course, I vacuumed the rug and mopped the floors, made sure nothing was sitting on the counters, all the dishes that still needed washed were in the dishwasher. I did find out that our city codes do not include a definition of what "clutter" is. My friend said that we have to find out what HUD's definition is, because HUD, being a federal agency, would have rules that supercede our city rules. When I did a search on the HUD web site for a definition of clutter, I kept getting results for integrated pest management. I have a referral to see Dr. Gilmore. He's a neurologist in Yakima. But, the appointment isn't until the 24th. The referral clerk said that she would have to wait until Monday to call Dr. Sloop's office to see if they could see me sooner. I told her that I had seen Dr. Gilmore in the past and I was not impressed with him. I have a friend who sees Dr. Sloop for her Parkinsons. She likes him and says that he is really thorough. From my personal experience with Dr. Gilmore, I'm not sure he really gives a rip about me. At least, that's how he comes across. I hope you all are having a good weekend. Donna in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 I'm also hoping this means you passed nitpick's inspection  Cait  I don't know if it's a good thing or not. Maybe, the notice will come next week. I've had a housekeeping inspection ever 2 weeks for the last several weeks. Previously, I would get a failure notice hanging on my door by the Friday following the inspection. The last inspection was on Tuesday, November 3rd. If the pattern had continued, I would have found a notice hanging on my door yesterday. But, there was no notice. I still am not sure if it is legal for the housing authority to be so nit picky. Before the last inspection, I rearranged some things on the book case which acts as the dvd and game case. Also, I moved some tools. Of course, I vacuumed the rug and mopped the floors, made sure nothing was sitting on the counters, all the dishes that still needed washed were in the dishwasher. I did find out that our city codes do not include a definition of what " clutter " is. My friend said that we have to find out what HUD's definition is, because HUD, being a federal agency, would have rules that supercede our city rules. When I did a search on the HUD web site for a definition of clutter, I kept getting results for integrated pest management. I have a referral to see Dr. Gilmore. He's a neurologist in Yakima. But, the appointment isn't until the 24th. The referral clerk said that she would have to wait until Monday to call Dr. Sloop's office to see if they could see me sooner. I told her that I had seen Dr. Gilmore in the past and I was not impressed with him. I have a friend who sees Dr. Sloop for her Parkinsons. She likes him and says that he is really thorough. From my personal experience with Dr. Gilmore, I'm not sure he really gives a rip about me. At least, that's how he comes across. I hope you all are having a good weekend. Donna in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating.  I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon.  Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 you never depress me sweetie. my accupuncturist told me to drink 1lime squeezed w/a few drops of water every morning. it totally reduced my spasms. apparently it does something t your liver which triggers spasms. im not a reccommend type person--but im a witness after about 2wks i noticed difference. big hugs!! LONDA "There are many things that will catch your eye...but few things that will catch your heart. Which one will you go after....." Subject: Re: update time:)To: MSersLife Date: Saturday, November 7, 2009, 11:17 PM Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 I am so sorry Hun. Hopefully it will get better. What MS meds are you on, if any? ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Meds for ms, absolutely nothing . I don't have a neurologist. The dr that diagnosed me is internal medicine and he's also the one who took care of me 30 years ago when I had my first major attack. I read everything I could about my symptoms and point blank asked if I had ms. In those days they did some other kind of tomography and another test in the nuclear medicine unit. Before CAT scans, at least here. My brain wasn't functioning at its best but at least I could talk again by that point. Anyway all these years I thought he had said it was some kind of encephalomeningitis (duh!) and it was too late to culture a virus. What he did state was encephalomylitis (sp?) which ex understood and poohooed me thru several exacerbations throught the years. Yes another Rob like Akiba's.  As for meds he gave me the baby 10mgs of amitryptiline to help me sleep (it doesn't) saying that after a few good nights sleep I'd have my energy back. As for the interferons, they would take too long to work on me, have side-effects, etc. And since I had done so well in the past 30 yrs, hopefully I'd continue that way. Well I " m not.  So no meds ... nothing for the spasms, pain or fatigue. Yes I am on prozac and meds for my blood pressure. I'd be willing to try Tysabri except I have no coverage and doubt I could afford it. Canada's universal health care is not as great as it sounds. Anyway I try to exercise(bit of yoga and those recommended by the ms society), eat right and exercise my brain. If I could afford to go for acupuncture, that I'd definitely do. But at this point I'm doing all I can and trying to keep a positive outlook. I fail on the sleep tho.  I guess I'm kind of like re doctors. I hate going to see them. A few years ago I asked my PCP for a bone density test ... I'm small boned, past menopause, etc. His response why do you need that? So I paid $35 for the test and I've got 25% bone loss. See doc, that's why I wanted the test!  Enough ranting, but thanks everyone for putting up with me and caring. I'm so glad I found you all  Cait  I am so sorry Hun. Hopefully it will get better. What MS meds are you on, if any?  ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now   -- Re: update time:)   Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating.  I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon.  Cait  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 sleep...try magnesium, 5-HTP and/or melatonin. All relatively cheap, all over the counter (since they aren't "meds"). I take LDN for the MS, I wish I could get some to you. Or you could get SOMEONE to prescribe it... ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Dear Cait,Don't worry about bringing anyone down. We are here for you. I'm sorry you have to endure the pain you are having. Good for you that you are still continuing your gluten free diet. That is tricky to maintain; I know 'cause I tried it once. Difficult for me. You should feel good about yourself sticking with it.love and gentle hugs to you, Kate Re: update time:)To: MSersLife > Don't want to be a downer but I'm feeling depressed lately. > Lately I notice> how my balance has gotten much worse and the pain really hurts > especially in> my back and legs. If I had the $ I'd go to a large city to see a> neurologist. On the upside I haven't broken my gluten free eating.> > I sure hope this doesn't depress any of you and I know I'll > manage to snap> out of it soon.> > Cait> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Akiba, I did not know you were taking LDN. I have been on it for about 6 months and I can honesty say that no pain medication has ever helped me but the LDN has worked wonders. I have less pain, sleep better, better cognition and a host of other benefits. Anyone with MS should try it.Debi I am so sorry Hun. Hopefully it will get better. What MS meds are you on, if any? ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Akiba, I did not know you were taking LDN. I have been on it for about 6 months and I can honesty say that no pain medication has ever helped me but the LDN has worked wonders. I have less pain, sleep better, better cognition and a host of other benefits. Anyone with MS should try it.Debi I am so sorry Hun. Hopefully it will get better. What MS meds are you on, if any? ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Akiba, I did not know you were taking LDN. I have been on it for about 6 months and I can honesty say that no pain medication has ever helped me but the LDN has worked wonders. I have less pain, sleep better, better cognition and a host of other benefits. Anyone with MS should try it.Debi I am so sorry Hun. Hopefully it will get better. What MS meds are you on, if any? ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Hi CaitDon't worry, honey, we know how it feels to be depressed.. I think some of us are just trying to hide it. I know I am, most of the time. Now why do you think I'm so silly all the time. I hope you feel better soon, I know it's tough to handle the chronic pain in the back and legs. And when you bump in everything, it's not funny at all. So hang in there. We love to hear from you.LoveTo: MSersLife Sent: Sun, November 8, 2009 6:17:10 AMSubject: Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Hi CaitDon't worry, honey, we know how it feels to be depressed.. I think some of us are just trying to hide it. I know I am, most of the time. Now why do you think I'm so silly all the time. I hope you feel better soon, I know it's tough to handle the chronic pain in the back and legs. And when you bump in everything, it's not funny at all. So hang in there. We love to hear from you.LoveTo: MSersLife Sent: Sun, November 8, 2009 6:17:10 AMSubject: Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Hi CaitDon't worry, honey, we know how it feels to be depressed.. I think some of us are just trying to hide it. I know I am, most of the time. Now why do you think I'm so silly all the time. I hope you feel better soon, I know it's tough to handle the chronic pain in the back and legs. And when you bump in everything, it's not funny at all. So hang in there. We love to hear from you.LoveTo: MSersLife Sent: Sun, November 8, 2009 6:17:10 AMSubject: Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 marijuana is pretty much the only thing that helps with pain for me. The " pills " make me feel like a zombie. It helps me be able to sleep too...and not be depressed. > Hi Cait > Don't worry, honey, we know how it feels to be depressed. I think some of us > are just trying to hide it. I know I am, most of the time. Now why do you > think I'm so silly all the time. I hope you feel better soon, I know it's > tough to handle the chronic pain in the back and legs. And when you bump in > everything, it's not funny at all. So hang in there. We love to hear from > you. > Love > > > > > > ________________________________ > > To: MSersLife > Sent: Sun, November 8, 2009 6:17:10 AM > Subject: Re: update time:) > > > Don't want to be a downer but I'm feeling depressed lately. Lately I notice > how my balance has gotten much worse and the pain really hurts especially in > my back and legs. If I had the $ I'd go to a large city to see a > neurologist. On the upside I haven't broken my gluten free eating. > > I sure hope this doesn't depress any of you and I know I'll manage to snap > out of it soon. > > Cait > > > > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 marijuana is pretty much the only thing that helps with pain for me. The " pills " make me feel like a zombie. It helps me be able to sleep too...and not be depressed. > Hi Cait > Don't worry, honey, we know how it feels to be depressed. I think some of us > are just trying to hide it. I know I am, most of the time. Now why do you > think I'm so silly all the time. I hope you feel better soon, I know it's > tough to handle the chronic pain in the back and legs. And when you bump in > everything, it's not funny at all. So hang in there. We love to hear from > you. > Love > > > > > > ________________________________ > > To: MSersLife > Sent: Sun, November 8, 2009 6:17:10 AM > Subject: Re: update time:) > > > Don't want to be a downer but I'm feeling depressed lately. Lately I notice > how my balance has gotten much worse and the pain really hurts especially in > my back and legs. If I had the $ I'd go to a large city to see a > neurologist. On the upside I haven't broken my gluten free eating. > > I sure hope this doesn't depress any of you and I know I'll manage to snap > out of it soon. > > Cait > > > > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 marijuana is pretty much the only thing that helps with pain for me. The " pills " make me feel like a zombie. It helps me be able to sleep too...and not be depressed. > Hi Cait > Don't worry, honey, we know how it feels to be depressed. I think some of us > are just trying to hide it. I know I am, most of the time. Now why do you > think I'm so silly all the time. I hope you feel better soon, I know it's > tough to handle the chronic pain in the back and legs. And when you bump in > everything, it's not funny at all. So hang in there. We love to hear from > you. > Love > > > > > > ________________________________ > > To: MSersLife > Sent: Sun, November 8, 2009 6:17:10 AM > Subject: Re: update time:) > > > Don't want to be a downer but I'm feeling depressed lately. Lately I notice > how my balance has gotten much worse and the pain really hurts especially in > my back and legs. If I had the $ I'd go to a large city to see a > neurologist. On the upside I haven't broken my gluten free eating. > > I sure hope this doesn't depress any of you and I know I'll manage to snap > out of it soon. > > Cait > > > > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 I have taken it for about 2 years now. Before I took it, when I'd be standing in the kitchen cooking, my toes would vanish. It wasn't like they went numb, it was like they weren't there at all, from about midway through the ball of the foot out. And I would wake up with 1/2 of my hand, sometimes the left, sometimes the right, sometimes both, tingling and numb, the 1/2 was from the fingers to the wrist, or lengthwise. So it would be the ring finger & pinky finger. All of that had gone away. LDN has been a life saver for me. ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 I have taken it for about 2 years now. Before I took it, when I'd be standing in the kitchen cooking, my toes would vanish. It wasn't like they went numb, it was like they weren't there at all, from about midway through the ball of the foot out. And I would wake up with 1/2 of my hand, sometimes the left, sometimes the right, sometimes both, tingling and numb, the 1/2 was from the fingers to the wrist, or lengthwise. So it would be the ring finger & pinky finger. All of that had gone away. LDN has been a life saver for me. ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 I think I have been on LDN for about 4 and a half years now and refuse to use anything else. I have always said that if it weren't for the LDN I would be in a wheelchair by now. Love to all, (from OK) To: MSersLife Sent: Sun, November 8, 2009 2:11:44 PMSubject: Re: update time:) I have taken it for about 2 years now. Before I took it, when I'd be standing in the kitchen cooking, my toes would vanish. It wasn't like they went numb, it was like they weren't there at all, from about midway through the ball of the foot out. And I would wake up with 1/2 of my hand, sometimes the left, sometimes the right, sometimes both, tingling and numb, the 1/2 was from the fingers to the wrist, or lengthwise. So it would be the ring finger & pinky finger. All of that had gone away. LDN has been a life saver for me. ~*~ Akiba~*~ Pragmatic Visionary The World Revolves around The Sun MY World Revolves around MY Son That which does not kill us Only serves to make us stronger I must be pretty damned strong by now -- Re: update time:) Don't want to be a downer but I'm feeling depressed lately. Lately I notice how my balance has gotten much worse and the pain really hurts especially in my back and legs. If I had the $ I'd go to a large city to see a neurologist. On the upside I haven't broken my gluten free eating. I sure hope this doesn't depress any of you and I know I'll manage to snap out of it soon. Cait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 I am still around, I dont get on much as my satilite internet SUCKS big time. I am well and doing good. My sister thinks she has MS and is having a hard time getting a doc to do the tests to Dx her.... I don't have the girls things happened and its just to much to go into on the group..so if you really want to know you can e-mail direct. I have had a time with this new house and now we are thinking about moving just to get away from it. Long story tooo e-mail me if you want to details. The weather is cool but not cold yet for this time of year. I hope we have a mild winter but I don't think thats what we are in for. I love you all and WELCOME to all of our newbies, Love to allllllllll (from OK) > Okay everyone! It's time for an update. I would like to know > what's happening in your life, how is MS treating you, how's the > weather, etc. > > hugs))> > > Sharon> This email is a natural hand made product. The slight variations > in spelling and grammar enhance its individual character and > beauty and in no way are to be considered flaws or defects.> > > Quote Link to comment Share on other sites More sharing options...
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