Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 So this is my bad. I've been skimming through all the cyclic vomiting/gtube/fundo emails--and deleting them because I didn't think it applied to us. And it just dawned on me that it is probably what is going on with Evan. Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, because he had bad reflux (he would throw-up if you looked at him the wrong way) and wasn't gaining weight at all really. He also had frequent desats, and this improved dramatically after the Nissen was done. For the past 3 months or so, he wakes up like clock-work between 4:30 and 5:00 am. He will make grunting and gagging noises. At first we thought it was related to his pooping, because that happens around 6 am most of the time. We vent his g-tube, (usually there is gas bubbles) and after that he will calm down--not go back to sleep, but just lay there quietly. I hadn't really thought of it as vomiting, because he can't really. Does this sound like cyclic vomiting to all the experts? (mom to Evan, 8 mos w/ CHARGE) --------------------------------- Relax. Yahoo! Mail virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 - When Dylan has it, the retching and venting of the tube occur in waves, along with extreme paleness, cold, clammy skin, slow heart rate (when it is monitored) then going limp until the next wave. Does that fit with what Evan is doing? His was not cyclical about time of day when it occurred, although I think 's was. Dylan has had a fundo, has not, so go figure. Kim > So this is my bad. I've been skimming through all the cyclic > vomiting/gtube/fundo emails--and deleting them because I didn't think it > applied to us. And it just dawned on me that it is probably what is going on > with Evan. > > Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > because he had bad reflux (he would throw-up if you looked at him the wrong > way) and wasn't gaining weight at all really. He also had frequent desats, > and this improved dramatically after the Nissen was done. > > For the past 3 months or so, he wakes up like clock-work between 4:30 and > 5:00 am. He will make grunting and gagging noises. At first we thought it > was related to his pooping, because that happens around 6 am most of the time. > We vent his g-tube, (usually there is gas bubbles) and after that he will calm > down--not go back to sleep, but just lay there quietly. I hadn't really > thought of it as vomiting, because he can't really. > > Does this sound like cyclic vomiting to all the experts? > > > > > (mom to Evan, 8 mos w/ CHARGE) > > --------------------------------- > Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 - When Dylan has it, the retching and venting of the tube occur in waves, along with extreme paleness, cold, clammy skin, slow heart rate (when it is monitored) then going limp until the next wave. Does that fit with what Evan is doing? His was not cyclical about time of day when it occurred, although I think 's was. Dylan has had a fundo, has not, so go figure. Kim > So this is my bad. I've been skimming through all the cyclic > vomiting/gtube/fundo emails--and deleting them because I didn't think it > applied to us. And it just dawned on me that it is probably what is going on > with Evan. > > Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > because he had bad reflux (he would throw-up if you looked at him the wrong > way) and wasn't gaining weight at all really. He also had frequent desats, > and this improved dramatically after the Nissen was done. > > For the past 3 months or so, he wakes up like clock-work between 4:30 and > 5:00 am. He will make grunting and gagging noises. At first we thought it > was related to his pooping, because that happens around 6 am most of the time. > We vent his g-tube, (usually there is gas bubbles) and after that he will calm > down--not go back to sleep, but just lay there quietly. I hadn't really > thought of it as vomiting, because he can't really. > > Does this sound like cyclic vomiting to all the experts? > > > > > (mom to Evan, 8 mos w/ CHARGE) > > --------------------------------- > Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 woke up at 6:30 am wretching and/or vomiting.....every morning no matter what we did. Imipramine (medicine) prescribed by the neurologist has saved her! She also had 7-10 day vomiting cycles as well. I'll try to forward you a detailed e-mail tomorrow. Strange huh! Lori Myers -------------- Original message -------------- - When Dylan has it, the retching and venting of the tube occur in waves, along with extreme paleness, cold, clammy skin, slow heart rate (when it is monitored) then going limp until the next wave. Does that fit with what Evan is doing? His was not cyclical about time of day when it occurred, although I think 's was. Dylan has had a fundo, has not, so go figure. Kim > So this is my bad. I've been skimming through all the cyclic > vomiting/gtube/fundo emails--and deleting them because I didn't think it > applied to us. And it just dawned on me that it is probably what is going on > with Evan. > > Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > because he had bad reflux (he would throw-up if you looked at him the wrong > way) and wasn't gaining weight at all really. He also had frequent desats, > and this improved dramatically after the Nissen was done. > > For the past 3 months or so, he wakes up like clock-work between 4:30 and > 5:00 am. He will make grunting and gagging noises. At first we thought it > was related to his pooping, because that happens around 6 am most of the time. > We vent his g-tube, (usually there is gas bubbles) and after that he will calm > down--not go back to sleep, but just lay there quietly. I hadn't really > thought of it as vomiting, because he can't really. > > Does this sound like cyclic vomiting to all the experts? > > > > > (mom to Evan, 8 mos w/ CHARGE) > > --------------------------------- > Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 woke up at 6:30 am wretching and/or vomiting.....every morning no matter what we did. Imipramine (medicine) prescribed by the neurologist has saved her! She also had 7-10 day vomiting cycles as well. I'll try to forward you a detailed e-mail tomorrow. Strange huh! Lori Myers -------------- Original message -------------- - When Dylan has it, the retching and venting of the tube occur in waves, along with extreme paleness, cold, clammy skin, slow heart rate (when it is monitored) then going limp until the next wave. Does that fit with what Evan is doing? His was not cyclical about time of day when it occurred, although I think 's was. Dylan has had a fundo, has not, so go figure. Kim > So this is my bad. I've been skimming through all the cyclic > vomiting/gtube/fundo emails--and deleting them because I didn't think it > applied to us. And it just dawned on me that it is probably what is going on > with Evan. > > Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > because he had bad reflux (he would throw-up if you looked at him the wrong > way) and wasn't gaining weight at all really. He also had frequent desats, > and this improved dramatically after the Nissen was done. > > For the past 3 months or so, he wakes up like clock-work between 4:30 and > 5:00 am. He will make grunting and gagging noises. At first we thought it > was related to his pooping, because that happens around 6 am most of the time. > We vent his g-tube, (usually there is gas bubbles) and after that he will calm > down--not go back to sleep, but just lay there quietly. I hadn't really > thought of it as vomiting, because he can't really. > > Does this sound like cyclic vomiting to all the experts? > > > > > (mom to Evan, 8 mos w/ CHARGE) > > --------------------------------- > Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 same here > > - When Dylan has it, the retching and venting of the tube occur in > waves, along with extreme paleness, cold, clammy skin, slow heart rate > (when > it is monitored) then going limp until the next wave. Does that fit with > what Evan is doing? His was not cyclical about time of day when it > occurred, although I think 's was. Dylan has had a fundo, has > not, so go figure. > > Kim > > > > > > So this is my bad. I've been skimming through all the cyclic > > vomiting/gtube/fundo emails--and deleting them because I didn't think it > > applied to us. And it just dawned on me that it is probably what is > going on > > with Evan. > > > > Evan has a g-tube/fundo done at 2 months. The procedures were a > God-send, > > because he had bad reflux (he would throw-up if you looked at him the > wrong > > way) and wasn't gaining weight at all really. He also had frequent > desats, > > and this improved dramatically after the Nissen was done. > > > > For the past 3 months or so, he wakes up like clock-work between 4:30 > and > > 5:00 am. He will make grunting and gagging noises. At first we thought > it > > was related to his pooping, because that happens around 6 am most of the > time. > > We vent his g-tube, (usually there is gas bubbles) and after that he > will calm > > down--not go back to sleep, but just lay there quietly. I hadn't really > > thought of it as vomiting, because he can't really. > > > > Does this sound like cyclic vomiting to all the experts? > > > > > > > > > > (mom to Evan, 8 mos w/ CHARGE) > > > > --------------------------------- > > Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 That is a really yucky way to wake up every day! Kim > > woke up at 6:30 am wretching and/or vomiting.....every morning no matter > what we did. Imipramine (medicine) prescribed by the neurologist has saved > her! She also had 7-10 day vomiting cycles as well. I'll try to forward you > a detailed e-mail tomorrow. > > Strange huh! > > Lori Myers > > > -------------- Original message -------------- > > - When Dylan has it, the retching and venting of the tube occur in > waves, along with extreme paleness, cold, clammy skin, slow heart rate (when > it is monitored) then going limp until the next wave. Does that fit with > what Evan is doing? His was not cyclical about time of day when it > occurred, although I think 's was. Dylan has had a fundo, has > not, so go figure. > > Kim > > > > >> So this is my bad. I've been skimming through all the cyclic >> vomiting/gtube/fundo emails--and deleting them because I didn't think it >> applied to us. And it just dawned on me that it is probably what is going on >> with Evan. >> >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, >> because he had bad reflux (he would throw-up if you looked at him the wrong >> way) and wasn't gaining weight at all really. He also had frequent desats, >> and this improved dramatically after the Nissen was done. >> >> For the past 3 months or so, he wakes up like clock-work between 4:30 and >> 5:00 am. He will make grunting and gagging noises. At first we thought it >> was related to his pooping, because that happens around 6 am most of the >> time. >> We vent his g-tube, (usually there is gas bubbles) and after that he will >> calm >> down--not go back to sleep, but just lay there quietly. I hadn't really >> thought of it as vomiting, because he can't really. >> >> Does this sound like cyclic vomiting to all the experts? >> >> >> >> >> (mom to Evan, 8 mos w/ CHARGE) >> >> --------------------------------- >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 That is a really yucky way to wake up every day! Kim > > woke up at 6:30 am wretching and/or vomiting.....every morning no matter > what we did. Imipramine (medicine) prescribed by the neurologist has saved > her! She also had 7-10 day vomiting cycles as well. I'll try to forward you > a detailed e-mail tomorrow. > > Strange huh! > > Lori Myers > > > -------------- Original message -------------- > > - When Dylan has it, the retching and venting of the tube occur in > waves, along with extreme paleness, cold, clammy skin, slow heart rate (when > it is monitored) then going limp until the next wave. Does that fit with > what Evan is doing? His was not cyclical about time of day when it > occurred, although I think 's was. Dylan has had a fundo, has > not, so go figure. > > Kim > > > > >> So this is my bad. I've been skimming through all the cyclic >> vomiting/gtube/fundo emails--and deleting them because I didn't think it >> applied to us. And it just dawned on me that it is probably what is going on >> with Evan. >> >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, >> because he had bad reflux (he would throw-up if you looked at him the wrong >> way) and wasn't gaining weight at all really. He also had frequent desats, >> and this improved dramatically after the Nissen was done. >> >> For the past 3 months or so, he wakes up like clock-work between 4:30 and >> 5:00 am. He will make grunting and gagging noises. At first we thought it >> was related to his pooping, because that happens around 6 am most of the >> time. >> We vent his g-tube, (usually there is gas bubbles) and after that he will >> calm >> down--not go back to sleep, but just lay there quietly. I hadn't really >> thought of it as vomiting, because he can't really. >> >> Does this sound like cyclic vomiting to all the experts? >> >> >> >> >> (mom to Evan, 8 mos w/ CHARGE) >> >> --------------------------------- >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 That doesn't so much fit with Evan. He will get real red in the face, along with the gagging (and sometimes choking). We try to suction what the gagging brings up, and this triggers a whole other wave of the gagging...a viscous cycle. Our pediatrician recommended giving him some apple-pear juice to thin out his BM. I couldn't find apple-pear, so we gave him 1 1/2 oz of 100% apple juice. That worked to make him less constipated, and this morning he didn't wake up at an ungodly hour grunting and gagging (he actually slept through to 6 am!). So maybe it was related to pooping and is not cyclic vomiting. Thanks for the information though--I will still keep it in the back of my mind. Kim Lauger wrote: - When Dylan has it, the retching and venting of the tube occur in waves, along with extreme paleness, cold, clammy skin, slow heart rate (when it is monitored) then going limp until the next wave. Does that fit with what Evan is doing? His was not cyclical about time of day when it occurred, although I think 's was. Dylan has had a fundo, has not, so go figure. Kim > So this is my bad. I've been skimming through all the cyclic > vomiting/gtube/fundo emails--and deleting them because I didn't think it > applied to us. And it just dawned on me that it is probably what is going on > with Evan. > > Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > because he had bad reflux (he would throw-up if you looked at him the wrong > way) and wasn't gaining weight at all really. He also had frequent desats, > and this improved dramatically after the Nissen was done. > > For the past 3 months or so, he wakes up like clock-work between 4:30 and > 5:00 am. He will make grunting and gagging noises. At first we thought it > was related to his pooping, because that happens around 6 am most of the time. > We vent his g-tube, (usually there is gas bubbles) and after that he will calm > down--not go back to sleep, but just lay there quietly. I hadn't really > thought of it as vomiting, because he can't really. > > Does this sound like cyclic vomiting to all the experts? > > > > > (mom to Evan, 8 mos w/ CHARGE) > > --------------------------------- > Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 It really is--not that it sounds like the rest of the day is much better. Is it the same every single day? I've decided that Evan's gagging and barfing is just karma getting me back. I have (or I should say " had " because I've toughened up over the past 8 months) a huge vomiting phobia. I actually ran out on one of my patients one time that started throwing-up (if you are wondering what an optometrist could possibly do to a patient to make them sick...it's not a typical procedure)...there was another Dr. in the room so the patient still had some moral support. I was teased for months about that! My mom used to laugh and say it was going to be the true test of my marriage if ever got sick (knock on wood--we've know each other for almost 4 years and it hasn't happened yet). Anyhow, should just count her blessings that you are her mother and not me! Kim Lauger wrote: That is a really yucky way to wake up every day! Kim > > woke up at 6:30 am wretching and/or vomiting.....every morning no matter > what we did. Imipramine (medicine) prescribed by the neurologist has saved > her! She also had 7-10 day vomiting cycles as well. I'll try to forward you > a detailed e-mail tomorrow. > > Strange huh! > > Lori Myers > > > -------------- Original message -------------- > > - When Dylan has it, the retching and venting of the tube occur in > waves, along with extreme paleness, cold, clammy skin, slow heart rate (when > it is monitored) then going limp until the next wave. Does that fit with > what Evan is doing? His was not cyclical about time of day when it > occurred, although I think 's was. Dylan has had a fundo, has > not, so go figure. > > Kim > > > > >> So this is my bad. I've been skimming through all the cyclic >> vomiting/gtube/fundo emails--and deleting them because I didn't think it >> applied to us. And it just dawned on me that it is probably what is going on >> with Evan. >> >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, >> because he had bad reflux (he would throw-up if you looked at him the wrong >> way) and wasn't gaining weight at all really. He also had frequent desats, >> and this improved dramatically after the Nissen was done. >> >> For the past 3 months or so, he wakes up like clock-work between 4:30 and >> 5:00 am. He will make grunting and gagging noises. At first we thought it >> was related to his pooping, because that happens around 6 am most of the >> time. >> We vent his g-tube, (usually there is gas bubbles) and after that he will >> calm >> down--not go back to sleep, but just lay there quietly. I hadn't really >> thought of it as vomiting, because he can't really. >> >> Does this sound like cyclic vomiting to all the experts? >> >> >> >> >> (mom to Evan, 8 mos w/ CHARGE) >> >> --------------------------------- >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 That is so funny that you say that about the vomiting! I have (or had!) horrible " nose " nausea - I was always the one with the Kleenex wiping every kid's nose - I even threw up after wiping my nephew's nose when I was pregnant. has choanal atresia and had a trach - she has horrible nose ick and it is a more than daily job for me to flush, wipe, monitor, etc.! My friend teases me about it! Lori Myers Re: Re: Cyclic Vomiting It really is--not that it sounds like the rest of the day is much better. Is it the same every single day? I've decided that Evan's gagging and barfing is just karma getting me back. I have (or I should say " had " because I've toughened up over the past 8 months) a huge vomiting phobia. I actually ran out on one of my patients one time that started throwing-up (if you are wondering what an optometrist could possibly do to a patient to make them sick...it's not a typical procedure)...there was another Dr. in the room so the patient still had some moral support. I was teased for months about that! My mom used to laugh and say it was going to be the true test of my marriage if ever got sick (knock on wood--we've know each other for almost 4 years and it hasn't happened yet). Anyhow, should just count her blessings that you are her mother and not me! Kim Lauger wrote: That is a really yucky way to wake up every day! Kim > > woke up at 6:30 am wretching and/or vomiting.....every morning no matter > what we did. Imipramine (medicine) prescribed by the neurologist has saved > her! She also had 7-10 day vomiting cycles as well. I'll try to forward you > a detailed e-mail tomorrow. > > Strange huh! > > Lori Myers > > > -------------- Original message -------------- > > - When Dylan has it, the retching and venting of the tube occur in > waves, along with extreme paleness, cold, clammy skin, slow heart rate (when > it is monitored) then going limp until the next wave. Does that fit with > what Evan is doing? His was not cyclical about time of day when it > occurred, although I think 's was. Dylan has had a fundo, has > not, so go figure. > > Kim > > > > >> So this is my bad. I've been skimming through all the cyclic >> vomiting/gtube/fundo emails--and deleting them because I didn't think it >> applied to us. And it just dawned on me that it is probably what is going on >> with Evan. >> >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, >> because he had bad reflux (he would throw-up if you looked at him the wrong >> way) and wasn't gaining weight at all really. He also had frequent desats, >> and this improved dramatically after the Nissen was done. >> >> For the past 3 months or so, he wakes up like clock-work between 4:30 and >> 5:00 am. He will make grunting and gagging noises. At first we thought it >> was related to his pooping, because that happens around 6 am most of the >> time. >> We vent his g-tube, (usually there is gas bubbles) and after that he will >> calm >> down--not go back to sleep, but just lay there quietly. I hadn't really >> thought of it as vomiting, because he can't really. >> >> Does this sound like cyclic vomiting to all the experts? >> >> >> >> >> (mom to Evan, 8 mos w/ CHARGE) >> >> --------------------------------- >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I'm just wondering for those of you who have kids with this issue, when did it start? Is this something that they've always had or did it begin at a certain age/stage? Just curious. Sounds like a very tough thing to endure for you and your little ones! B. > > > >> So this is my bad. I've been skimming through all the cyclic > >> vomiting/gtube/fundo emails--and deleting them because I didn't think it > >> applied to us. And it just dawned on me that it is probably what is going on > >> with Evan. > >> > >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > >> because he had bad reflux (he would throw-up if you looked at him the wrong > >> way) and wasn't gaining weight at all really. He also had frequent desats, > >> and this improved dramatically after the Nissen was done. > >> > >> For the past 3 months or so, he wakes up like clock-work between 4:30 and > >> 5:00 am. He will make grunting and gagging noises. At first we thought it > >> was related to his pooping, because that happens around 6 am most of the > >> time. > >> We vent his g-tube, (usually there is gas bubbles) and after that he will > >> calm > >> down--not go back to sleep, but just lay there quietly. I hadn't really > >> thought of it as vomiting, because he can't really. > >> > >> Does this sound like cyclic vomiting to all the experts? > >> > >> > >> > >> > >> (mom to Evan, 8 mos w/ CHARGE) > >> > >> --------------------------------- > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I'm just wondering for those of you who have kids with this issue, when did it start? Is this something that they've always had or did it begin at a certain age/stage? Just curious. Sounds like a very tough thing to endure for you and your little ones! B. > > > >> So this is my bad. I've been skimming through all the cyclic > >> vomiting/gtube/fundo emails--and deleting them because I didn't think it > >> applied to us. And it just dawned on me that it is probably what is going on > >> with Evan. > >> > >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > >> because he had bad reflux (he would throw-up if you looked at him the wrong > >> way) and wasn't gaining weight at all really. He also had frequent desats, > >> and this improved dramatically after the Nissen was done. > >> > >> For the past 3 months or so, he wakes up like clock-work between 4:30 and > >> 5:00 am. He will make grunting and gagging noises. At first we thought it > >> was related to his pooping, because that happens around 6 am most of the > >> time. > >> We vent his g-tube, (usually there is gas bubbles) and after that he will > >> calm > >> down--not go back to sleep, but just lay there quietly. I hadn't really > >> thought of it as vomiting, because he can't really. > >> > >> Does this sound like cyclic vomiting to all the experts? > >> > >> > >> > >> > >> (mom to Evan, 8 mos w/ CHARGE) > >> > >> --------------------------------- > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I'm just wondering for those of you who have kids with this issue, when did it start? Is this something that they've always had or did it begin at a certain age/stage? Just curious. Sounds like a very tough thing to endure for you and your little ones! B. > > > >> So this is my bad. I've been skimming through all the cyclic > >> vomiting/gtube/fundo emails--and deleting them because I didn't think it > >> applied to us. And it just dawned on me that it is probably what is going on > >> with Evan. > >> > >> Evan has a g-tube/fundo done at 2 months. The procedures were a God-send, > >> because he had bad reflux (he would throw-up if you looked at him the wrong > >> way) and wasn't gaining weight at all really. He also had frequent desats, > >> and this improved dramatically after the Nissen was done. > >> > >> For the past 3 months or so, he wakes up like clock-work between 4:30 and > >> 5:00 am. He will make grunting and gagging noises. At first we thought it > >> was related to his pooping, because that happens around 6 am most of the > >> time. > >> We vent his g-tube, (usually there is gas bubbles) and after that he will > >> calm > >> down--not go back to sleep, but just lay there quietly. I hadn't really > >> thought of it as vomiting, because he can't really. > >> > >> Does this sound like cyclic vomiting to all the experts? > >> > >> > >> > >> > >> (mom to Evan, 8 mos w/ CHARGE) > >> > >> --------------------------------- > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 ive allwasy had mine > > I'm just wondering for those of you who have kids with this issue, > when did it start? Is this something that they've always had or did > it begin at a certain age/stage? Just curious. Sounds like a very > tough thing to endure for you and your little ones! > > B. > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > think it > > >> applied to us. And it just dawned on me that it is probably > what is going on > > >> with Evan. > > >> > > >> Evan has a g-tube/fundo done at 2 months. The procedures > were a God-send, > > >> because he had bad reflux (he would throw-up if you looked at > him the wrong > > >> way) and wasn't gaining weight at all really. He also had > frequent desats, > > >> and this improved dramatically after the Nissen was done. > > >> > > >> For the past 3 months or so, he wakes up like clock-work > between 4:30 and > > >> 5:00 am. He will make grunting and gagging noises. At first > we thought it > > >> was related to his pooping, because that happens around 6 am > most of the > > >> time. > > >> We vent his g-tube, (usually there is gas bubbles) and after > that he will > > >> calm > > >> down--not go back to sleep, but just lay there quietly. I > hadn't really > > >> thought of it as vomiting, because he can't really. > > >> > > >> Does this sound like cyclic vomiting to all the experts? > > >> > > >> > > >> > > >> > > >> (mom to Evan, 8 mos w/ CHARGE) > > >> > > >> --------------------------------- > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 ive allwasy had mine > > I'm just wondering for those of you who have kids with this issue, > when did it start? Is this something that they've always had or did > it begin at a certain age/stage? Just curious. Sounds like a very > tough thing to endure for you and your little ones! > > B. > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > think it > > >> applied to us. And it just dawned on me that it is probably > what is going on > > >> with Evan. > > >> > > >> Evan has a g-tube/fundo done at 2 months. The procedures > were a God-send, > > >> because he had bad reflux (he would throw-up if you looked at > him the wrong > > >> way) and wasn't gaining weight at all really. He also had > frequent desats, > > >> and this improved dramatically after the Nissen was done. > > >> > > >> For the past 3 months or so, he wakes up like clock-work > between 4:30 and > > >> 5:00 am. He will make grunting and gagging noises. At first > we thought it > > >> was related to his pooping, because that happens around 6 am > most of the > > >> time. > > >> We vent his g-tube, (usually there is gas bubbles) and after > that he will > > >> calm > > >> down--not go back to sleep, but just lay there quietly. I > hadn't really > > >> thought of it as vomiting, because he can't really. > > >> > > >> Does this sound like cyclic vomiting to all the experts? > > >> > > >> > > >> > > >> > > >> (mom to Evan, 8 mos w/ CHARGE) > > >> > > >> --------------------------------- > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Ellen, Has it always been the same or has it gotten better/worse over the years? B > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > > think it > > > >> applied to us. And it just dawned on me that it is probably > > what is going on > > > >> with Evan. > > > >> > > > >> Evan has a g-tube/fundo done at 2 months. The procedures > > were a God-send, > > > >> because he had bad reflux (he would throw-up if you looked at > > him the wrong > > > >> way) and wasn't gaining weight at all really. He also had > > frequent desats, > > > >> and this improved dramatically after the Nissen was done. > > > >> > > > >> For the past 3 months or so, he wakes up like clock-work > > between 4:30 and > > > >> 5:00 am. He will make grunting and gagging noises. At first > > we thought it > > > >> was related to his pooping, because that happens around 6 am > > most of the > > > >> time. > > > >> We vent his g-tube, (usually there is gas bubbles) and after > > that he will > > > >> calm > > > >> down--not go back to sleep, but just lay there quietly. I > > hadn't really > > > >> thought of it as vomiting, because he can't really. > > > >> > > > >> Does this sound like cyclic vomiting to all the experts? > > > >> > > > >> > > > >> > > > >> > > > >> (mom to Evan, 8 mos w/ CHARGE) > > > >> > > > >> --------------------------------- > > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Ellen, Has it always been the same or has it gotten better/worse over the years? B > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > > think it > > > >> applied to us. And it just dawned on me that it is probably > > what is going on > > > >> with Evan. > > > >> > > > >> Evan has a g-tube/fundo done at 2 months. The procedures > > were a God-send, > > > >> because he had bad reflux (he would throw-up if you looked at > > him the wrong > > > >> way) and wasn't gaining weight at all really. He also had > > frequent desats, > > > >> and this improved dramatically after the Nissen was done. > > > >> > > > >> For the past 3 months or so, he wakes up like clock-work > > between 4:30 and > > > >> 5:00 am. He will make grunting and gagging noises. At first > > we thought it > > > >> was related to his pooping, because that happens around 6 am > > most of the > > > >> time. > > > >> We vent his g-tube, (usually there is gas bubbles) and after > > that he will > > > >> calm > > > >> down--not go back to sleep, but just lay there quietly. I > > hadn't really > > > >> thought of it as vomiting, because he can't really. > > > >> > > > >> Does this sound like cyclic vomiting to all the experts? > > > >> > > > >> > > > >> > > > >> > > > >> (mom to Evan, 8 mos w/ CHARGE) > > > >> > > > >> --------------------------------- > > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Ellen, Has it always been the same or has it gotten better/worse over the years? B > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > > think it > > > >> applied to us. And it just dawned on me that it is probably > > what is going on > > > >> with Evan. > > > >> > > > >> Evan has a g-tube/fundo done at 2 months. The procedures > > were a God-send, > > > >> because he had bad reflux (he would throw-up if you looked at > > him the wrong > > > >> way) and wasn't gaining weight at all really. He also had > > frequent desats, > > > >> and this improved dramatically after the Nissen was done. > > > >> > > > >> For the past 3 months or so, he wakes up like clock-work > > between 4:30 and > > > >> 5:00 am. He will make grunting and gagging noises. At first > > we thought it > > > >> was related to his pooping, because that happens around 6 am > > most of the > > > >> time. > > > >> We vent his g-tube, (usually there is gas bubbles) and after > > that he will > > > >> calm > > > >> down--not go back to sleep, but just lay there quietly. I > > hadn't really > > > >> thought of it as vomiting, because he can't really. > > > >> > > > >> Does this sound like cyclic vomiting to all the experts? > > > >> > > > >> > > > >> > > > >> > > > >> (mom to Evan, 8 mos w/ CHARGE) > > > >> > > > >> --------------------------------- > > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 its always been the same it did get alot worse then they took my gall bladder out i was acutaly on home tpn for a long while but now its better but it will coem back if i push feeds to much or eat soemthing ro on a real hot day hugs ellen > > Ellen, Has it always been the same or has it gotten better/worse over > the years? > > B > > > > > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > > > think it > > > > >> applied to us. And it just dawned on me that it is probably > > > what is going on > > > > >> with Evan. > > > > >> > > > > >> Evan has a g-tube/fundo done at 2 months. The procedures > > > were a God-send, > > > > >> because he had bad reflux (he would throw-up if you looked at > > > him the wrong > > > > >> way) and wasn't gaining weight at all really. He also had > > > frequent desats, > > > > >> and this improved dramatically after the Nissen was done. > > > > >> > > > > >> For the past 3 months or so, he wakes up like clock-work > > > between 4:30 and > > > > >> 5:00 am. He will make grunting and gagging noises. At first > > > we thought it > > > > >> was related to his pooping, because that happens around 6 am > > > most of the > > > > >> time. > > > > >> We vent his g-tube, (usually there is gas bubbles) and after > > > that he will > > > > >> calm > > > > >> down--not go back to sleep, but just lay there quietly. I > > > hadn't really > > > > >> thought of it as vomiting, because he can't really. > > > > >> > > > > >> Does this sound like cyclic vomiting to all the experts? > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> (mom to Evan, 8 mos w/ CHARGE) > > > > >> > > > > >> --------------------------------- > > > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > > >> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 My throws up if she is too hot - like at night when she has too many blankets on! Lori Myers Spouse - Trent, Children - (8), (5, CHARGE Syndrome, Congenital Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of 12/22/04!, and Emma (3) Dallas, Texas Re: Re: Cyclic Vomiting its always been the same it did get alot worse then they took my gall bladder out i was acutaly on home tpn for a long while but now its better but it will coem back if i push feeds to much or eat soemthing ro on a real hot day hugs ellen > > Ellen, Has it always been the same or has it gotten better/worse over > the years? > > B > > > > > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > > > >> vomiting/gtube/fundo emails--and deleting them because I didn't > > > think it > > > > >> applied to us. And it just dawned on me that it is probably > > > what is going on > > > > >> with Evan. > > > > >> > > > > >> Evan has a g-tube/fundo done at 2 months. The procedures > > > were a God-send, > > > > >> because he had bad reflux (he would throw-up if you looked at > > > him the wrong > > > > >> way) and wasn't gaining weight at all really. He also had > > > frequent desats, > > > > >> and this improved dramatically after the Nissen was done. > > > > >> > > > > >> For the past 3 months or so, he wakes up like clock-work > > > between 4:30 and > > > > >> 5:00 am. He will make grunting and gagging noises. At first > > > we thought it > > > > >> was related to his pooping, because that happens around 6 am > > > most of the > > > > >> time. > > > > >> We vent his g-tube, (usually there is gas bubbles) and after > > > that he will > > > > >> calm > > > > >> down--not go back to sleep, but just lay there quietly. I > > > hadn't really > > > > >> thought of it as vomiting, because he can't really. > > > > >> > > > > >> Does this sound like cyclic vomiting to all the experts? > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> (mom to Evan, 8 mos w/ CHARGE) > > > > >> > > > > >> --------------------------------- > > > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > > >> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 we all tollirate things different > > My throws up if she is too hot - like at night when she has too many > blankets on! > > Lori Myers > Spouse - Trent, Children - (8), (5, CHARGE Syndrome, > Congenital Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, > Bi-lateral Choanal Atresia, Decanullated Trach, G-button, partial hearing > loss, walking as of 12/22/04!, and Emma (3) > > Dallas, Texas > > Re: Re: Cyclic Vomiting > > > its always been the same it did get alot worse then they took my gall > bladder out i was acutaly on home tpn for a long while but now its better > but it will coem back if i push feeds to much or eat soemthing ro on a > real > hot day hugs ellen > > > > > > Ellen, Has it always been the same or has it gotten better/worse over > > the years? > > > > B > > > > > > > > > > > > > > > >> So this is my bad. I've been skimming through all the cyclic > > > > > >> vomiting/gtube/fundo emails--and deleting them because I > didn't > > > > think it > > > > > >> applied to us. And it just dawned on me that it is probably > > > > what is going on > > > > > >> with Evan. > > > > > >> > > > > > >> Evan has a g-tube/fundo done at 2 months. The procedures > > > > were a God-send, > > > > > >> because he had bad reflux (he would throw-up if you looked at > > > > him the wrong > > > > > >> way) and wasn't gaining weight at all really. He also had > > > > frequent desats, > > > > > >> and this improved dramatically after the Nissen was done. > > > > > >> > > > > > >> For the past 3 months or so, he wakes up like clock-work > > > > between 4:30 and > > > > > >> 5:00 am. He will make grunting and gagging noises. At first > > > > we thought it > > > > > >> was related to his pooping, because that happens around 6 am > > > > most of the > > > > > >> time. > > > > > >> We vent his g-tube, (usually there is gas bubbles) and after > > > > that he will > > > > > >> calm > > > > > >> down--not go back to sleep, but just lay there quietly. I > > > > hadn't really > > > > > >> thought of it as vomiting, because he can't really. > > > > > >> > > > > > >> Does this sound like cyclic vomiting to all the experts? > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> (mom to Evan, 8 mos w/ CHARGE) > > > > > >> > > > > > >> --------------------------------- > > > > > >> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! > > > > > >> > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 , Dylan had his first episode at age 3 months. Kim > I'm just wondering for those of you who have kids with this issue, > when did it start? Is this something that they've always had or did > it begin at a certain age/stage? Just curious. Sounds like a very > tough thing to endure for you and your little ones! > > B. > > >>> >>>> So this is my bad. I've been skimming through all the cyclic >>>> vomiting/gtube/fundo emails--and deleting them because I didn't > think it >>>> applied to us. And it just dawned on me that it is probably > what is going on >>>> with Evan. >>>> >>>> Evan has a g-tube/fundo done at 2 months. The procedures > were a God-send, >>>> because he had bad reflux (he would throw-up if you looked at > him the wrong >>>> way) and wasn't gaining weight at all really. He also had > frequent desats, >>>> and this improved dramatically after the Nissen was done. >>>> >>>> For the past 3 months or so, he wakes up like clock-work > between 4:30 and >>>> 5:00 am. He will make grunting and gagging noises. At first > we thought it >>>> was related to his pooping, because that happens around 6 am > most of the >>>> time. >>>> We vent his g-tube, (usually there is gas bubbles) and after > that he will >>>> calm >>>> down--not go back to sleep, but just lay there quietly. I > hadn't really >>>> thought of it as vomiting, because he can't really. >>>> >>>> Does this sound like cyclic vomiting to all the experts? >>>> >>>> >>>> >>>> >>>> (mom to Evan, 8 mos w/ CHARGE) >>>> >>>> --------------------------------- >>>> Relax. Yahoo! Mail virus scanning helps detect nasty viruses! >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.