Re: Brittney Deskins mom.....

[Guest guest]

well i dont want to have chargelol glad shes doing well eleln in aus

>

> Hello everyone,

> How are you all? Brittney is doing well, she has her hearing aids

> now and she just got braces for her feet and a walker and put on

> bolus feeds instead of continous. The reason that I am writing

> everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> diabetes research foundation) we will be walking on May 6th at

> warriors path state park in Kingsport Tn. Cody was diagnosed with

> type 1 juvenile diabetes before he even turned 2 years old. He is

> now 5 and it has been a struggle trying to keep his sugar under

> control, a few hospitalizations and scares. It has been rough. He is

> in school now and has to be pulled out of class 2-3 times a day to

> have his sugar checked and get shots. I know that it is nothing like

> charge kids but it could lead to many problems when they get older..

> as many may know if you know anyone with this disease. there are 18

> million kids out there and more are diagnosed every day. Alot of

> times Cody has said " mommy I dont wanna have diabetes anymore. " and

> with your possible donation there can be so much research done to

> help find a cure in our lifetime so that he does not have to say

> those words anymore. It is hard sometimes dealing with the problems

> that brittney has and on top of that cody's diabetes. All donations

> are tax deducible and greatly appreciated. If you would like to make

> a donation you can make a check to JDRF and send it to me...

> Tina Deskins

> 208 Cory Lee Circle

> Bristol, TN 37620

> attn: Cody's Racers if you would like to confirm you can

> contact Jill Moreland at toll free

> 1-. Cody's racers is our

> team name and I am team captain.

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Thats great you are doing all that to help make money to help

others. I know, we are walking in the March Of Dimes walk next

month. I hope everything goes well and god bless you and your family!

Crystal and Eva (10 month charger)

>

> Hello everyone,

> How are you all? Brittney is doing well, she has her hearing

aids

> now and she just got braces for her feet and a walker and put on

> bolus feeds instead of continous. The reason that I am writing

> everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> diabetes research foundation) we will be walking on May 6th at

> warriors path state park in Kingsport Tn. Cody was diagnosed with

> type 1 juvenile diabetes before he even turned 2 years old. He is

> now 5 and it has been a struggle trying to keep his sugar under

> control, a few hospitalizations and scares. It has been rough. He

is

> in school now and has to be pulled out of class 2-3 times a day to

> have his sugar checked and get shots. I know that it is nothing

like

> charge kids but it could lead to many problems when they get

older..

> as many may know if you know anyone with this disease. there are

18

> million kids out there and more are diagnosed every day. Alot of

> times Cody has said " mommy I dont wanna have diabetes anymore. "

and

> with your possible donation there can be so much research done to

> help find a cure in our lifetime so that he does not have to say

> those words anymore. It is hard sometimes dealing with the

problems

> that brittney has and on top of that cody's diabetes. All

donations

> are tax deducible and greatly appreciated. If you would like to

make

> a donation you can make a check to JDRF and send it to me...

> Tina Deskins

> 208 Cory Lee Circle

> Bristol, TN 37620

> attn: Cody's Racers if you would like to confirm you can

> contact Jill Moreland at toll free

> 1-. Cody's racers is

our

> team name and I am team captain.

>

[Guest guest]

Thats great you are doing all that to help make money to help

others. I know, we are walking in the March Of Dimes walk next

month. I hope everything goes well and god bless you and your family!

Crystal and Eva (10 month charger)

>

> Hello everyone,

> How are you all? Brittney is doing well, she has her hearing

aids

> now and she just got braces for her feet and a walker and put on

> bolus feeds instead of continous. The reason that I am writing

> everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> diabetes research foundation) we will be walking on May 6th at

> warriors path state park in Kingsport Tn. Cody was diagnosed with

> type 1 juvenile diabetes before he even turned 2 years old. He is

> now 5 and it has been a struggle trying to keep his sugar under

> control, a few hospitalizations and scares. It has been rough. He

is

> in school now and has to be pulled out of class 2-3 times a day to

> have his sugar checked and get shots. I know that it is nothing

like

> charge kids but it could lead to many problems when they get

older..

> as many may know if you know anyone with this disease. there are

18

> million kids out there and more are diagnosed every day. Alot of

> times Cody has said " mommy I dont wanna have diabetes anymore. "

and

> with your possible donation there can be so much research done to

> help find a cure in our lifetime so that he does not have to say

> those words anymore. It is hard sometimes dealing with the

problems

> that brittney has and on top of that cody's diabetes. All

donations

> are tax deducible and greatly appreciated. If you would like to

make

> a donation you can make a check to JDRF and send it to me...

> Tina Deskins

> 208 Cory Lee Circle

> Bristol, TN 37620

> attn: Cody's Racers if you would like to confirm you can

> contact Jill Moreland at toll free

> 1-. Cody's racers is

our

> team name and I am team captain.

>

[Guest guest]

mabye ull al.l see each other thatd be cool

>

> Thats great you are doing all that to help make money to help

> others. I know, we are walking in the March Of Dimes walk next

> month. I hope everything goes well and god bless you and your family!

>

> Crystal and Eva (10 month charger)

>

>

> >

> > Hello everyone,

> > How are you all? Brittney is doing well, she has her hearing

> aids

> > now and she just got braces for her feet and a walker and put on

> > bolus feeds instead of continous. The reason that I am writing

> > everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> > diabetes research foundation) we will be walking on May 6th at

> > warriors path state park in Kingsport Tn. Cody was diagnosed with

> > type 1 juvenile diabetes before he even turned 2 years old. He is

> > now 5 and it has been a struggle trying to keep his sugar under

> > control, a few hospitalizations and scares. It has been rough. He

> is

> > in school now and has to be pulled out of class 2-3 times a day to

> > have his sugar checked and get shots. I know that it is nothing

> like

> > charge kids but it could lead to many problems when they get

> older..

> > as many may know if you know anyone with this disease. there are

> 18

> > million kids out there and more are diagnosed every day. Alot of

> > times Cody has said " mommy I dont wanna have diabetes anymore. "

> and

> > with your possible donation there can be so much research done to

> > help find a cure in our lifetime so that he does not have to say

> > those words anymore. It is hard sometimes dealing with the

> problems

> > that brittney has and on top of that cody's diabetes. All

> donations

> > are tax deducible and greatly appreciated. If you would like to

> make

> > a donation you can make a check to JDRF and send it to me...

> > Tina Deskins

> > 208 Cory Lee Circle

> > Bristol, TN 37620

> > attn: Cody's Racers if you would like to confirm you can

> > contact Jill Moreland at toll free

> > 1-. Cody's racers is

> our

> > team name and I am team captain.

> >

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

mabye ull al.l see each other thatd be cool

>

> Thats great you are doing all that to help make money to help

> others. I know, we are walking in the March Of Dimes walk next

> month. I hope everything goes well and god bless you and your family!

>

> Crystal and Eva (10 month charger)

>

>

> >

> > Hello everyone,

> > How are you all? Brittney is doing well, she has her hearing

> aids

> > now and she just got braces for her feet and a walker and put on

> > bolus feeds instead of continous. The reason that I am writing

> > everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> > diabetes research foundation) we will be walking on May 6th at

> > warriors path state park in Kingsport Tn. Cody was diagnosed with

> > type 1 juvenile diabetes before he even turned 2 years old. He is

> > now 5 and it has been a struggle trying to keep his sugar under

> > control, a few hospitalizations and scares. It has been rough. He

> is

> > in school now and has to be pulled out of class 2-3 times a day to

> > have his sugar checked and get shots. I know that it is nothing

> like

> > charge kids but it could lead to many problems when they get

> older..

> > as many may know if you know anyone with this disease. there are

> 18

> > million kids out there and more are diagnosed every day. Alot of

> > times Cody has said " mommy I dont wanna have diabetes anymore. "

> and

> > with your possible donation there can be so much research done to

> > help find a cure in our lifetime so that he does not have to say

> > those words anymore. It is hard sometimes dealing with the

> problems

> > that brittney has and on top of that cody's diabetes. All

> donations

> > are tax deducible and greatly appreciated. If you would like to

> make

> > a donation you can make a check to JDRF and send it to me...

> > Tina Deskins

> > 208 Cory Lee Circle

> > Bristol, TN 37620

> > attn: Cody's Racers if you would like to confirm you can

> > contact Jill Moreland at toll free

> > 1-. Cody's racers is

> our

> > team name and I am team captain.

> >

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

mabye ull al.l see each other thatd be cool

>

> Thats great you are doing all that to help make money to help

> others. I know, we are walking in the March Of Dimes walk next

> month. I hope everything goes well and god bless you and your family!

>

> Crystal and Eva (10 month charger)

>

>

> >

> > Hello everyone,

> > How are you all? Brittney is doing well, she has her hearing

> aids

> > now and she just got braces for her feet and a walker and put on

> > bolus feeds instead of continous. The reason that I am writing

> > everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> > diabetes research foundation) we will be walking on May 6th at

> > warriors path state park in Kingsport Tn. Cody was diagnosed with

> > type 1 juvenile diabetes before he even turned 2 years old. He is

> > now 5 and it has been a struggle trying to keep his sugar under

> > control, a few hospitalizations and scares. It has been rough. He

> is

> > in school now and has to be pulled out of class 2-3 times a day to

> > have his sugar checked and get shots. I know that it is nothing

> like

> > charge kids but it could lead to many problems when they get

> older..

> > as many may know if you know anyone with this disease. there are

> 18

> > million kids out there and more are diagnosed every day. Alot of

> > times Cody has said " mommy I dont wanna have diabetes anymore. "

> and

> > with your possible donation there can be so much research done to

> > help find a cure in our lifetime so that he does not have to say

> > those words anymore. It is hard sometimes dealing with the

> problems

> > that brittney has and on top of that cody's diabetes. All

> donations

> > are tax deducible and greatly appreciated. If you would like to

> make

> > a donation you can make a check to JDRF and send it to me...

> > Tina Deskins

> > 208 Cory Lee Circle

> > Bristol, TN 37620

> > attn: Cody's Racers if you would like to confirm you can

> > contact Jill Moreland at toll free

> > 1-. Cody's racers is

> our

> > team name and I am team captain.

> >

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Tina

My brother Joe was diagnosed with juvenile diabetes at age 14.

He paid very close attention to the work of the various diabetes groups -

JDRF was his solid preference, one because of the focus of their research,

but second because such a high rate of the donations went to the actual

research and not to overhead. When he died at age 45 (motorcycle accident

not diabetes) supporting JDRF was his wish!

How hard it must be for your son (and you) to have been diagnosed so young.

Diabetes may not lead to children being born with problems with every other

organ system like in CHARGE, but the diabetes itself can lead to problems

with every other organ system throughout life, so it is a big challenge to

manage.

What many may not recognize is just as our CHARGE kids are so affected by

changes, an increase in wind, an increase or decrease in activity at school,

stress of a test and we see behaviors, with diabetes it shows up in changes

in blood sugar levels. We can try externally to keep everything managed,

but there are so many subtle things that influence the body's physiological

responses to life that we do not have total control even when we do

everything " right " .

I do hope as your son matures that he will learn some form of mediation, or

centering movement activity that helps him learn to self-regulate these

subtle changes.

Kim L

> Hello everyone,

> How are you all? Brittney is doing well, she has her hearing aids

> now and she just got braces for her feet and a walker and put on

> bolus feeds instead of continous. The reason that I am writing

> everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> diabetes research foundation) we will be walking on May 6th at

> warriors path state park in Kingsport Tn. Cody was diagnosed with

> type 1 juvenile diabetes before he even turned 2 years old. He is

> now 5 and it has been a struggle trying to keep his sugar under

> control, a few hospitalizations and scares. It has been rough. He is

> in school now and has to be pulled out of class 2-3 times a day to

> have his sugar checked and get shots. I know that it is nothing like

> charge kids but it could lead to many problems when they get older..

> as many may know if you know anyone with this disease. there are 18

> million kids out there and more are diagnosed every day. Alot of

> times Cody has said " mommy I dont wanna have diabetes anymore. " and

> with your possible donation there can be so much research done to

> help find a cure in our lifetime so that he does not have to say

> those words anymore. It is hard sometimes dealing with the problems

> that brittney has and on top of that cody's diabetes. All donations

> are tax deducible and greatly appreciated. If you would like to make

> a donation you can make a check to JDRF and send it to me...

> Tina Deskins

> 208 Cory Lee Circle

> Bristol, TN 37620

> attn: Cody's Racers if you would like to confirm you can

> contact Jill Moreland at toll free

> 1-. Cody's racers is our

> team name and I am team captain.

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Tina

My brother Joe was diagnosed with juvenile diabetes at age 14.

He paid very close attention to the work of the various diabetes groups -

JDRF was his solid preference, one because of the focus of their research,

but second because such a high rate of the donations went to the actual

research and not to overhead. When he died at age 45 (motorcycle accident

not diabetes) supporting JDRF was his wish!

How hard it must be for your son (and you) to have been diagnosed so young.

Diabetes may not lead to children being born with problems with every other

organ system like in CHARGE, but the diabetes itself can lead to problems

with every other organ system throughout life, so it is a big challenge to

manage.

What many may not recognize is just as our CHARGE kids are so affected by

changes, an increase in wind, an increase or decrease in activity at school,

stress of a test and we see behaviors, with diabetes it shows up in changes

in blood sugar levels. We can try externally to keep everything managed,

but there are so many subtle things that influence the body's physiological

responses to life that we do not have total control even when we do

everything " right " .

I do hope as your son matures that he will learn some form of mediation, or

centering movement activity that helps him learn to self-regulate these

subtle changes.

Kim L

> Hello everyone,

> How are you all? Brittney is doing well, she has her hearing aids

> now and she just got braces for her feet and a walker and put on

> bolus feeds instead of continous. The reason that I am writing

> everyone is on behalf of Brittneys brother Cody and JDRF (juvenile

> diabetes research foundation) we will be walking on May 6th at

> warriors path state park in Kingsport Tn. Cody was diagnosed with

> type 1 juvenile diabetes before he even turned 2 years old. He is

> now 5 and it has been a struggle trying to keep his sugar under

> control, a few hospitalizations and scares. It has been rough. He is

> in school now and has to be pulled out of class 2-3 times a day to

> have his sugar checked and get shots. I know that it is nothing like

> charge kids but it could lead to many problems when they get older..

> as many may know if you know anyone with this disease. there are 18

> million kids out there and more are diagnosed every day. Alot of

> times Cody has said " mommy I dont wanna have diabetes anymore. " and

> with your possible donation there can be so much research done to

> help find a cure in our lifetime so that he does not have to say

> those words anymore. It is hard sometimes dealing with the problems

> that brittney has and on top of that cody's diabetes. All donations

> are tax deducible and greatly appreciated. If you would like to make

> a donation you can make a check to JDRF and send it to me...

> Tina Deskins

> 208 Cory Lee Circle

> Bristol, TN 37620

> attn: Cody's Racers if you would like to confirm you can

> contact Jill Moreland at toll free

> 1-. Cody's racers is our

> team name and I am team captain.

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Tina,

How in the world do you do it?

I have a few cousins and those whose children have type 1 diabetes. It was

harder when they were young but it seems easier now. It is the donations that

are helping some the things that have happened to them NOT happen to others.

My husband has type 2 diabetes. It can totally stink sometimes. It was a

struggle for him (and us) to accept at first so I can't imagine what it is like

for a child to accept. And then they have to continually accept it as they

grow and change. It can be hard! Diabetes controls almost everything life. It

is surprising what food, exercise, stress, seasons, and just about everything

else has to do with it all. Find a way to listen to Kim's advice and learn

meditation to do with your child. It centers many things.

is doing really well right now. I mean REALLY well.

We do the donations through our family.

Bonnie, mom to a 23, Patty CHARGE 21, and wife to