Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi, We found the name Brooklyn in the baby name book. We loved it too. Are you expecting or just planning for the future? I wasn't sure if I missed something. Unfortunately, we didn't put Brooklyn in her crib last night. My husband fell asleep on the couch with Brooklyn in her bouncy seat. Of course she slept through the night again. I am determined that tonight she is going in her crib or we are going to be stuck in a bad habit that will be hard to break. Joanne Walton wrote: Good luck tonight with Brooklyn sleeping in the crib! It's just something she has to adjust to. Often, I think my daughter's night wakings are due more to teething than the brace, except when her shoes are too small. If she is really crying and can't get back to sleep within 15 minutes or so, I give her some children's ibuprofen (it lasts six hours). If we have another daughter, my husband wants to call her Brook Lynn (Lynn is a family middle name). My husband used to live in Brooklyn and has fond memories of when we met in NYC. We would call her Brooklyn as if it was one word. Anyway, I digress. Sorry! Love the name. Joanne Fairfax VA >From: >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Brooklyn is wearing AFO/DBB braces. >(Joanne) >Date: Sun, 28 Jul 2002 07:36:17 -0700 (PDT) > > > Hi Joanne, >Thanks for the tips. I was just telling Holly that last night we put >Brooklyn in her bouncy seat and she actually slept through the night. >Tonight she has to go back in the crib and learn to sleep. I guess I feel >guilty that I was the cause of her club feet so I feel that I should do >what it takes to make her comfortable. But then I think if I am sleep >deprived then I am not being a good mother for my 3 year old daughter. I >was born with a dislocated hip and my moms cousin was born with club feet. >My aunt was born with feet that turned in but they corrected on their own. >I need to stop feeling guilty but it is hard. Brooklyn was also born with >a heart murmur. We had to see a pediatric cardiologist when she was a week >old. They did a heart ultrasound and found extra tissue in her pulmonary >valve. She has to have heart ultrasounds every so often to make sure the >tissue isn't growing bigger and blocking her artery. Her next ultrasound >is in December. They said if it hasn't grown by then it probably won't so >she won't have to have another one for a year. I actually had someone ask >me what I did to her while I was pregnant. It made me feel horrible. My >3 year old was born perfectly healthy and during both pregnancies I did >everything I was supposed to. I didn't even drink caffeine. I can't >believe some people. >Sorry I got rambling on. Thanks again. It helps so much to have everyone >to talk to. > > > Joanne Walton wrote: By the time I tried >putting a pillow under Zoe's legs, it was too late, she >got very upset by this change. > >When she got a cold, I put a thin, regular sized pillow in her crib to >elevate her head a bit. Practically her whole upper body fits on the >pillow. >This seemed to help a great deal. > >Lately, she even likes sleeping on her stomach on the pillow with the brace >kind of sideways. She has lots of interesting positions. At one point, she >was sleeping hunched forward. It looked extremely uncomfortable. > >Hope this helps, >Joanne >Fairfax, VA >mom to Zoe (3-25-01, right clubfoot) > > > >From: n > > >Reply-To: nosurgery4clubfoot > >To: clubfootchat > >Subject: Brooklyn is wearing AFO/DBB braces. > >Date: Sat, 27 Jul 2002 10:16:54 -0700 (PDT) > > > > > >Hi everyone, > > > >We headed to Chicago on Tuesday to see Dr. Abraham and get Brooklyn's > >AFO/DBB braces. She didn't seem to mind the AFO's until they hooked the >bar > >on then she started screaming. They took a computer xray image of her > >foot in the AFO to make sure her foot was sitting in the corrected > >position. The brace specialist wanted to make a new set of AFO's to bring > >the angle of her foot up a bit more. We went back Thursday morning and >got > >the new pair of AFO's. The AFO's are made with a softer plastic and they > >are molded to the shape of her feet like the casts were. They are held on > >with 3 velcro straps. One at the top, one at the ankle and one over the > >top of the foot. She is able to move her knees. The bar is the actual > >DBB used on the shoes. The AFO's are set at a 70 degree angle on the bar. > >The braces are very easy to get on and off with the velcro. We marked on > >the straps where they should be pulled to so we don't have to spend time > >adjusting them. The velcro is very strong. We have to pull hard to get it > >undone. There is no way these braces are coming off unless we take them > >off. My husband and I will get some pictures posted tomorrow. I am >anxious > >to hear everyones input on these new braces. Do you think I should send a > >picture to Dr. Ponsetti and get his opinion? Dr. Abraham told me he likes > >to use the AFO because it keeps the achilles stretched out and the bar is > >important to keep the feet turned out. So he put the two together. > > > >Brooklyn is now waking up at night. I put a full size pillow under her > >legs and feet which she really likes. In the middle of the night she >wakes > >up crying because she has wiggled herself off of the pillow. I get up > >often to adjust the pillow. Has anyone else had this problem? Brooklyn >had > >been sleeping through the night until we got the braces. She has been > >adjusting pretty well otherwise. She tends to get frustrated when trying > >to lift her legs and roll over. She did actually roll over once. I was > >very suprised that she was able to with the bar. > > > >I have to catch up on the emails. I have been off the computer all week > >helping Brooklyn adjust. Thanks for listening. > > > > and Brooklyn (bilateral cf 3/21/02) > > > > > > > >--------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi, We found the name Brooklyn in the baby name book. We loved it too. Are you expecting or just planning for the future? I wasn't sure if I missed something. Unfortunately, we didn't put Brooklyn in her crib last night. My husband fell asleep on the couch with Brooklyn in her bouncy seat. Of course she slept through the night again. I am determined that tonight she is going in her crib or we are going to be stuck in a bad habit that will be hard to break. Joanne Walton wrote: Good luck tonight with Brooklyn sleeping in the crib! It's just something she has to adjust to. Often, I think my daughter's night wakings are due more to teething than the brace, except when her shoes are too small. If she is really crying and can't get back to sleep within 15 minutes or so, I give her some children's ibuprofen (it lasts six hours). If we have another daughter, my husband wants to call her Brook Lynn (Lynn is a family middle name). My husband used to live in Brooklyn and has fond memories of when we met in NYC. We would call her Brooklyn as if it was one word. Anyway, I digress. Sorry! Love the name. Joanne Fairfax VA >From: >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Brooklyn is wearing AFO/DBB braces. >(Joanne) >Date: Sun, 28 Jul 2002 07:36:17 -0700 (PDT) > > > Hi Joanne, >Thanks for the tips. I was just telling Holly that last night we put >Brooklyn in her bouncy seat and she actually slept through the night. >Tonight she has to go back in the crib and learn to sleep. I guess I feel >guilty that I was the cause of her club feet so I feel that I should do >what it takes to make her comfortable. But then I think if I am sleep >deprived then I am not being a good mother for my 3 year old daughter. I >was born with a dislocated hip and my moms cousin was born with club feet. >My aunt was born with feet that turned in but they corrected on their own. >I need to stop feeling guilty but it is hard. Brooklyn was also born with >a heart murmur. We had to see a pediatric cardiologist when she was a week >old. They did a heart ultrasound and found extra tissue in her pulmonary >valve. She has to have heart ultrasounds every so often to make sure the >tissue isn't growing bigger and blocking her artery. Her next ultrasound >is in December. They said if it hasn't grown by then it probably won't so >she won't have to have another one for a year. I actually had someone ask >me what I did to her while I was pregnant. It made me feel horrible. My >3 year old was born perfectly healthy and during both pregnancies I did >everything I was supposed to. I didn't even drink caffeine. I can't >believe some people. >Sorry I got rambling on. Thanks again. It helps so much to have everyone >to talk to. > > > Joanne Walton wrote: By the time I tried >putting a pillow under Zoe's legs, it was too late, she >got very upset by this change. > >When she got a cold, I put a thin, regular sized pillow in her crib to >elevate her head a bit. Practically her whole upper body fits on the >pillow. >This seemed to help a great deal. > >Lately, she even likes sleeping on her stomach on the pillow with the brace >kind of sideways. She has lots of interesting positions. At one point, she >was sleeping hunched forward. It looked extremely uncomfortable. > >Hope this helps, >Joanne >Fairfax, VA >mom to Zoe (3-25-01, right clubfoot) > > > >From: n > > >Reply-To: nosurgery4clubfoot > >To: clubfootchat > >Subject: Brooklyn is wearing AFO/DBB braces. > >Date: Sat, 27 Jul 2002 10:16:54 -0700 (PDT) > > > > > >Hi everyone, > > > >We headed to Chicago on Tuesday to see Dr. Abraham and get Brooklyn's > >AFO/DBB braces. She didn't seem to mind the AFO's until they hooked the >bar > >on then she started screaming. They took a computer xray image of her > >foot in the AFO to make sure her foot was sitting in the corrected > >position. The brace specialist wanted to make a new set of AFO's to bring > >the angle of her foot up a bit more. We went back Thursday morning and >got > >the new pair of AFO's. The AFO's are made with a softer plastic and they > >are molded to the shape of her feet like the casts were. They are held on > >with 3 velcro straps. One at the top, one at the ankle and one over the > >top of the foot. She is able to move her knees. The bar is the actual > >DBB used on the shoes. The AFO's are set at a 70 degree angle on the bar. > >The braces are very easy to get on and off with the velcro. We marked on > >the straps where they should be pulled to so we don't have to spend time > >adjusting them. The velcro is very strong. We have to pull hard to get it > >undone. There is no way these braces are coming off unless we take them > >off. My husband and I will get some pictures posted tomorrow. I am >anxious > >to hear everyones input on these new braces. Do you think I should send a > >picture to Dr. Ponsetti and get his opinion? Dr. Abraham told me he likes > >to use the AFO because it keeps the achilles stretched out and the bar is > >important to keep the feet turned out. So he put the two together. > > > >Brooklyn is now waking up at night. I put a full size pillow under her > >legs and feet which she really likes. In the middle of the night she >wakes > >up crying because she has wiggled herself off of the pillow. I get up > >often to adjust the pillow. Has anyone else had this problem? Brooklyn >had > >been sleeping through the night until we got the braces. She has been > >adjusting pretty well otherwise. She tends to get frustrated when trying > >to lift her legs and roll over. She did actually roll over once. I was > >very suprised that she was able to with the bar. > > > >I have to catch up on the emails. I have been off the computer all week > >helping Brooklyn adjust. Thanks for listening. > > > > and Brooklyn (bilateral cf 3/21/02) > > > > > > > >--------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi, We found the name Brooklyn in the baby name book. We loved it too. Are you expecting or just planning for the future? I wasn't sure if I missed something. Unfortunately, we didn't put Brooklyn in her crib last night. My husband fell asleep on the couch with Brooklyn in her bouncy seat. Of course she slept through the night again. I am determined that tonight she is going in her crib or we are going to be stuck in a bad habit that will be hard to break. Joanne Walton wrote: Good luck tonight with Brooklyn sleeping in the crib! It's just something she has to adjust to. Often, I think my daughter's night wakings are due more to teething than the brace, except when her shoes are too small. If she is really crying and can't get back to sleep within 15 minutes or so, I give her some children's ibuprofen (it lasts six hours). If we have another daughter, my husband wants to call her Brook Lynn (Lynn is a family middle name). My husband used to live in Brooklyn and has fond memories of when we met in NYC. We would call her Brooklyn as if it was one word. Anyway, I digress. Sorry! Love the name. Joanne Fairfax VA >From: >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Brooklyn is wearing AFO/DBB braces. >(Joanne) >Date: Sun, 28 Jul 2002 07:36:17 -0700 (PDT) > > > Hi Joanne, >Thanks for the tips. I was just telling Holly that last night we put >Brooklyn in her bouncy seat and she actually slept through the night. >Tonight she has to go back in the crib and learn to sleep. I guess I feel >guilty that I was the cause of her club feet so I feel that I should do >what it takes to make her comfortable. But then I think if I am sleep >deprived then I am not being a good mother for my 3 year old daughter. I >was born with a dislocated hip and my moms cousin was born with club feet. >My aunt was born with feet that turned in but they corrected on their own. >I need to stop feeling guilty but it is hard. Brooklyn was also born with >a heart murmur. We had to see a pediatric cardiologist when she was a week >old. They did a heart ultrasound and found extra tissue in her pulmonary >valve. She has to have heart ultrasounds every so often to make sure the >tissue isn't growing bigger and blocking her artery. Her next ultrasound >is in December. They said if it hasn't grown by then it probably won't so >she won't have to have another one for a year. I actually had someone ask >me what I did to her while I was pregnant. It made me feel horrible. My >3 year old was born perfectly healthy and during both pregnancies I did >everything I was supposed to. I didn't even drink caffeine. I can't >believe some people. >Sorry I got rambling on. Thanks again. It helps so much to have everyone >to talk to. > > > Joanne Walton wrote: By the time I tried >putting a pillow under Zoe's legs, it was too late, she >got very upset by this change. > >When she got a cold, I put a thin, regular sized pillow in her crib to >elevate her head a bit. Practically her whole upper body fits on the >pillow. >This seemed to help a great deal. > >Lately, she even likes sleeping on her stomach on the pillow with the brace >kind of sideways. She has lots of interesting positions. At one point, she >was sleeping hunched forward. It looked extremely uncomfortable. > >Hope this helps, >Joanne >Fairfax, VA >mom to Zoe (3-25-01, right clubfoot) > > > >From: n > > >Reply-To: nosurgery4clubfoot > >To: clubfootchat > >Subject: Brooklyn is wearing AFO/DBB braces. > >Date: Sat, 27 Jul 2002 10:16:54 -0700 (PDT) > > > > > >Hi everyone, > > > >We headed to Chicago on Tuesday to see Dr. Abraham and get Brooklyn's > >AFO/DBB braces. She didn't seem to mind the AFO's until they hooked the >bar > >on then she started screaming. They took a computer xray image of her > >foot in the AFO to make sure her foot was sitting in the corrected > >position. The brace specialist wanted to make a new set of AFO's to bring > >the angle of her foot up a bit more. We went back Thursday morning and >got > >the new pair of AFO's. The AFO's are made with a softer plastic and they > >are molded to the shape of her feet like the casts were. They are held on > >with 3 velcro straps. One at the top, one at the ankle and one over the > >top of the foot. She is able to move her knees. The bar is the actual > >DBB used on the shoes. The AFO's are set at a 70 degree angle on the bar. > >The braces are very easy to get on and off with the velcro. We marked on > >the straps where they should be pulled to so we don't have to spend time > >adjusting them. The velcro is very strong. We have to pull hard to get it > >undone. There is no way these braces are coming off unless we take them > >off. My husband and I will get some pictures posted tomorrow. I am >anxious > >to hear everyones input on these new braces. Do you think I should send a > >picture to Dr. Ponsetti and get his opinion? Dr. Abraham told me he likes > >to use the AFO because it keeps the achilles stretched out and the bar is > >important to keep the feet turned out. So he put the two together. > > > >Brooklyn is now waking up at night. I put a full size pillow under her > >legs and feet which she really likes. In the middle of the night she >wakes > >up crying because she has wiggled herself off of the pillow. I get up > >often to adjust the pillow. Has anyone else had this problem? Brooklyn >had > >been sleeping through the night until we got the braces. She has been > >adjusting pretty well otherwise. She tends to get frustrated when trying > >to lift her legs and roll over. She did actually roll over once. I was > >very suprised that she was able to with the bar. > > > >I have to catch up on the emails. I have been off the computer all week > >helping Brooklyn adjust. Thanks for listening. > > > > and Brooklyn (bilateral cf 3/21/02) > > > > > > > >--------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Very well put our children are worth all the time and effort we have to put into getting their treatment. It is so true that clubfoot is not the worst thing in the world I realized this when my son was 7 years old and went to the Shrine Hospital in Minn. for his operation some of the kids there had far worse problems. And now with the Ponseti Method clubfoot is much easier to correct. My Grandson Dylan is eight months old and his feet are beautiful already Dr. P is not only fixing clubfeet he is making a BIG difference in these childrens lifes. Leora, (9-16-81) Dylan (3-3-02) both bilateral c/f kwitkos862@... wrote:What you wrote about keeping the shoes on and the reminder of if you do not stick to keeping the shoes on was written great- Shoes with the Bar vs operation keep saying that over and you will teach our baby that all things in life are not easy but somethings are much better to try first before operations that might have to be repeated. I remember reading an e-mail three years ago when a mother from Florida wrote to say being born with clubfoot was not bad compared to other things. Her son was born with bilateral clubfoot and had fourteen operations ( yes 14) on his feet because the first doctor did not do a good job and then the relaspes followed. She also wrote that her son played a lot of sports and she did not think the operations where that bad after seeing her baby the first time after and the baby all swollen she said the was the worst part.... She did not know of the Ponseti Method as we do. I am daily grateful to all here that helped inform me of the Ponseti Method and Dr. Ponseti for the years of hard work on teaching other doctors to treat clubfoot. Hope and Pray that a relapes does not happen and that all babies born with clubfoot can have the opportunity to know that there are choices for how to treat clubfoot which ever way thier parents deside. Useing the Ponseti Method has time involved and some parents just want to have operations done and some do not understand as an adult they may have complications from the operation (s).... I do not regrete any sacrifices that our family has made to get Zachary to New York Hospital for Bone and Joint Diseases to treat with the Ponseti Method by Dr. van Bosse and Dr. Feldman. Zachary is worth it! Take care, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Very well put our children are worth all the time and effort we have to put into getting their treatment. It is so true that clubfoot is not the worst thing in the world I realized this when my son was 7 years old and went to the Shrine Hospital in Minn. for his operation some of the kids there had far worse problems. And now with the Ponseti Method clubfoot is much easier to correct. My Grandson Dylan is eight months old and his feet are beautiful already Dr. P is not only fixing clubfeet he is making a BIG difference in these childrens lifes. Leora, (9-16-81) Dylan (3-3-02) both bilateral c/f kwitkos862@... wrote:What you wrote about keeping the shoes on and the reminder of if you do not stick to keeping the shoes on was written great- Shoes with the Bar vs operation keep saying that over and you will teach our baby that all things in life are not easy but somethings are much better to try first before operations that might have to be repeated. I remember reading an e-mail three years ago when a mother from Florida wrote to say being born with clubfoot was not bad compared to other things. Her son was born with bilateral clubfoot and had fourteen operations ( yes 14) on his feet because the first doctor did not do a good job and then the relaspes followed. She also wrote that her son played a lot of sports and she did not think the operations where that bad after seeing her baby the first time after and the baby all swollen she said the was the worst part.... She did not know of the Ponseti Method as we do. I am daily grateful to all here that helped inform me of the Ponseti Method and Dr. Ponseti for the years of hard work on teaching other doctors to treat clubfoot. Hope and Pray that a relapes does not happen and that all babies born with clubfoot can have the opportunity to know that there are choices for how to treat clubfoot which ever way thier parents deside. Useing the Ponseti Method has time involved and some parents just want to have operations done and some do not understand as an adult they may have complications from the operation (s).... I do not regrete any sacrifices that our family has made to get Zachary to New York Hospital for Bone and Joint Diseases to treat with the Ponseti Method by Dr. van Bosse and Dr. Feldman. Zachary is worth it! Take care, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Very well put our children are worth all the time and effort we have to put into getting their treatment. It is so true that clubfoot is not the worst thing in the world I realized this when my son was 7 years old and went to the Shrine Hospital in Minn. for his operation some of the kids there had far worse problems. And now with the Ponseti Method clubfoot is much easier to correct. My Grandson Dylan is eight months old and his feet are beautiful already Dr. P is not only fixing clubfeet he is making a BIG difference in these childrens lifes. Leora, (9-16-81) Dylan (3-3-02) both bilateral c/f kwitkos862@... wrote:What you wrote about keeping the shoes on and the reminder of if you do not stick to keeping the shoes on was written great- Shoes with the Bar vs operation keep saying that over and you will teach our baby that all things in life are not easy but somethings are much better to try first before operations that might have to be repeated. I remember reading an e-mail three years ago when a mother from Florida wrote to say being born with clubfoot was not bad compared to other things. Her son was born with bilateral clubfoot and had fourteen operations ( yes 14) on his feet because the first doctor did not do a good job and then the relaspes followed. She also wrote that her son played a lot of sports and she did not think the operations where that bad after seeing her baby the first time after and the baby all swollen she said the was the worst part.... She did not know of the Ponseti Method as we do. I am daily grateful to all here that helped inform me of the Ponseti Method and Dr. Ponseti for the years of hard work on teaching other doctors to treat clubfoot. Hope and Pray that a relapes does not happen and that all babies born with clubfoot can have the opportunity to know that there are choices for how to treat clubfoot which ever way thier parents deside. Useing the Ponseti Method has time involved and some parents just want to have operations done and some do not understand as an adult they may have complications from the operation (s).... I do not regrete any sacrifices that our family has made to get Zachary to New York Hospital for Bone and Joint Diseases to treat with the Ponseti Method by Dr. van Bosse and Dr. Feldman. Zachary is worth it! Take care, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Well said Kathy. I remember thinking that 2-4 years in the brace was a really long time. We are at 14 months of age and she may only have to be in it for 10 more months. It has really gone so fast. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Well said Kathy. I remember thinking that 2-4 years in the brace was a really long time. We are at 14 months of age and she may only have to be in it for 10 more months. It has really gone so fast. Joanne Quote Link to comment Share on other sites More sharing options...
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