OT-prayers please

[Guest guest]

Hi guys,

I know this is off topic here, but I could really use some prayers, for my older

son Andy. He has spina bifida and has already had a spinal surgery and leg

surgery this year and is scheduled for another leg surgery in Feb. This is one

of the things we need prayers for. Andy has started having problems with his

foot pulling up really hard and pushing his ankle bone in causing it to rub hard

on his braces and leaving pressure sores which if they open could take weeks or

even months to heal and in severe cases don't heal and require surgery. This is

why he is having surgery, they are going to sever the tendons in his foot, one

on the side of his heal (not the akilies) and one on the front side. He has no

functional ankle movement, his ankle only moves up and it is causing many

problems, he can't walk without his braces anyway so this is a good solution.

Anyway he is having an MRI though on Jan 12 to see if there is a neurological

reason for this sudden complication, such as tethered cord (which he already had

surgery for this year and is way too dangerous and risky to do again just to fix

his foot) or a syrinx, which is a cyst inside the spinal colmn which I just

found out is actually very common with kids who just had TC surgery. If it is a

syrinx, we will cancel the surgery and see his neurosurgeon to probably schedule

another very risky very painful back surgery for that. So I really want it to

show nothing so we can go ahead with the foot surgery and that be it, that

option is the lesser of two evils, in my opinion. Either way something is going

to be done and I would rather it be on his foot where he has very little feeling

and will recover from much faster and won't threaten his mobility.

Now as I said about the pressure sore on his ankle since that has been going on

we have been leaving his braces off more and more and Andy has been scooting

around on his butt around the house and recently has developed a pressure sore

on his butt which is seconds away from becoming an open sore and taking forever

to go away. It is very raw skin and does have very little bit of scabbing, but

is not quite open yet. I can't leave his braces on more to keep him off his

butt because that will compromise his ankle but I have to keep him off his butt

and we are talking about an active 5 year old, who can't remember what you told

him two seconds ago. Anyway I could really use some prayers right now, All this

is starting to really wear me down. Thanks for the thoughts.