Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 You should stay at your original dose of MTX and pred if your on that and start weaning slowly after a few months on antibiotics. Many people do it this way. AP doesnt work well if your flaring. On Monday 26 November 2001 09:06, Lety wrote: > BlankDear Group, > > I've been off metho for a week now in preparation for AP. I am really > missing it. All my joints are inflammed and it was hard to blow dry my > hair this morning and its tough to walk. I don't know if I can do this. > Any thoughts on this? I have several tests to go over and I don't see > starting therapy for at least another 4-5 weeks. i think I am chickening > out already! Gotta run to work! Lety ---------------------------------------- Content-Type: text/html; charset= " windows-1252 " ; name= " Attachment: 1 " Content-Transfer-Encoding: 7bit Content-Description: ---------------------------------------- ---------------------------------------- Content-Type: image/gif; charset= " windows-1252 " ; name= " Blank Bkgrd.gif " Content-Transfer-Encoding: base64 Content-Description: ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 When acting as an antibiotic the Mino has trouble getting to the bacteria if your flaring. Plus, if you add in the herximer reaction while dropping your other meds it might be too much all at once to take from a pain standpoint. As an anti-inflammatory thats another story. I know when I started mino 20 advil a day didnt touch my pain and inflammation, doubt mino would have either as an anti-inflammatory. I had more pain and inflammation the first couple months with noticable herximer reactions every 30 - 60 days for the first year or so. After that they eased off and I havent had one in 6 months, labs are normal now too and I have no sign of RA except for previous damage. Mark, sounds like you never had the herximer reaction which could be a clue as to why it didnt work for you. On Monday 26 November 2001 12:44, Mark Holmes wrote: > > > You should stay at your original dose of MTX and pred if your on > > that and > > > start weaning slowly after a few months on antibiotics. Many people > > do it > > > this way. AP doesnt work well if your flaring. > > > > > > Then why did my doctor add minocycline as a 2nd line agent? It can > also have anti-inflammatory properties so I would think it would be > helpful in reducing the flare. But I'm no more of a scientist than > anyone else here, so I suspect it is anyone's guess as to how it > works during flares. I will say that when I initially started AP > before I had been on any other drugs, I was flaring and it was for > that reason that I started the AP. And the AP reduced the flaring > dramatically over the next 3-4 months. > > Mark > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Dear Group, I've been off metho for a week now in preparation for AP. I am really missing it. All my joints are inflammed and it was hard to blow dry my hair this morning and its tough to walk. I don't know if I can do this. Any thoughts on this? I have several tests to go over and I don't see starting therapy for at least another 4-5 weeks. i think I am chickening out already! Gotta run to work! Lety Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 > BlankDear Group, > > I've been off metho for a week now in preparation for AP. I am really missing it. All my joints are inflammed and it was hard to blow dry my hair this morning and its tough to walk. I don't know if I can do this. Any thoughts on this? I have several tests to go over and I don't see starting therapy for at least another 4-5 weeks. i think I am chickening out already! Gotta run to work! Lety I am curious as to how you reduced your dosage and over what period. I dropped from 15mg to 7.5mg for 1 month, then went off of it. I am now in a whole body flare for the last month which is unlike anything i've ever experienced. It is now making me appreciate some of the stories of pain I have read here. I have gone back on metho at 15mg (started 5 weeks ago)but nothing is happening so far. I have added mino 100mg bid 7 days a few days back. We shall see - today I woke up with both hands swollen throughout the entire hand, something I have never seen before. Usually I would get a wrist and fingers, but this time the whole damn hand is swollen. Did your doctor warn you that you would flare like this? My doctor gave me no indications of the severity of the flare that would occur. Had I know, there is no way I would have gone off metho in that fashion. I think I would have adhered to the - " if it ain't broke, don't fix it " . I am finding that Ultram taken at night(100mg) before I go to sleep is finally letting me get some sleep. Mark RA 4/98 Metho 15mg mino 100mg bid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 > You should stay at your original dose of MTX and pred if your on that and > start weaning slowly after a few months on antibiotics. Many people do it > this way. AP doesnt work well if your flaring. > > Then why did my doctor add minocycline as a 2nd line agent? It can also have anti-inflammatory properties so I would think it would be helpful in reducing the flare. But I'm no more of a scientist than anyone else here, so I suspect it is anyone's guess as to how it works during flares. I will say that when I initially started AP before I had been on any other drugs, I was flaring and it was for that reason that I started the AP. And the AP reduced the flaring dramatically over the next 3-4 months. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 > > > You should stay at your original dose of MTX and pred if your on > > > > that and > > > > > start weaning slowly after a few months on antibiotics. Many people > > > > do it > > > > > this way. AP doesnt work well if your flaring. > > > > > > > > > > Then why did my doctor add minocycline as a 2nd line agent? It can > > also have anti-inflammatory properties so I would think it would be > > helpful in reducing the flare. But I'm no more of a scientist than > > anyone else here, so I suspect it is anyone's guess as to how it > > works during flares. I will say that when I initially started AP > > before I had been on any other drugs, I was flaring and it was for > > that reason that I started the AP. And the AP reduced the flaring > > dramatically over the next 3-4 months. > > > > Mark > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Mark, I have similar experience, stated AP on May '99 and doing well after 3months till next Spring when big flare came. I asked doctor to prescribe Azithromycin but doctor insists to take MTX which is some trade-off between doctor and patient. <g> I thought it's dangerous to take two toxic drugs at the same time, so I took MTX and after some struggle flare was stopped and my lab was improved (CRP, ESR, RAfactor). Doctor always try to abandon minocycline but I firmly insist to continue. Now I'm happy with Minocycline and low dose of MTX -- 6mg/week. Norio your friend in Japan Mark Holmes wrote: > Well, I wouldn't know a herx from a flare - never did when I was on > mino full time - wouldn't know it now either. However, I got > significantly better on mino initially, so not sure how you explain > that. Why it stopped working may have had more to do with the > seasons as it stopped in the Springtime which Dr. Brown suggested was > a time when people flare. It was quite a flare though and I had to > try something else in order to keep working. > > Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 In a message dated 11/26/2001 9:46:37 AM Pacific Standard Time, mholmes@... writes: > And the AP reduced the flaring > dramatically over the next 3-4 month Hany in there Marc. I have seen flares and gone through them and they are no fun. However One day I wake up and they are gone. so life is good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Lety: Dr. Trentham weaned me slowly off Mtx. and onto Minocin and it worked very well for me. I don't understand why you can't do the same? I wouldn't wait! For that matter, I don't understand why some drs. aren't doing this (example, Mark's current state) since it makes sense. Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 In a message dated 11/26/2001 1:27:11 PM Eastern Standard Time, higgy@... writes: Mark, sounds like you never had the herximer reaction which could be a clue as to why it didnt work for you. I thought not everyone gets a herx? I didn't when weaning from Mtx. to Minocin. Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 >> Date: Mon, 26 Nov 2001 07:06:35 -0700 From: " Lety " <lhaynes@...> Subject: weaning off I've been off metho for a week now in preparation for AP. I am really missing it. All my joints are inflammed and it was hard to blow dry my hair this morning and its tough to walk. I don't know if I can do this. Any thoughts on this? << Letty, Please go here for information on weaning, helpful aids, etc. http://www.healingyou.org/cgi-bin/showme.pl?p=../pred_wean.html Geoff Soli Deo gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Lety, I was only off MTX for about a week before I started taking minocin and I didn't notice any problems at all. -- Ron > BlankDear Group, > > I've been off metho for a week now in preparation for AP. I am really missing it. All my joints are inflammed and it was hard to blow dry my hair this morning and its tough to walk. I don't know if I can do this. Any thoughts on this? I have several tests to go over and I don't see starting therapy for at least another 4-5 weeks. i think I am chickening out already! Gotta run to work! Lety Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 I was on MTX for about six months after I started the AP...I've been on the AP for a little over two years now and doing fairly well...still have a few joints that give me some trouble but I am doing well overall. Tony On Wed, 28 November 2001, " Ron S Dotson " wrote: > > Lety, > > I was only off MTX for about a week before I started taking minocin > and I didn't notice any problems at all. > > -- Ron > > > > > BlankDear Group, > > > > I've been off metho for a week now in preparation for AP. I am > really missing it. All my joints are inflammed and it was hard to > blow dry my hair this morning and its tough to walk. I don't know if > I can do this. Any thoughts on this? I have several tests to go > over and I don't see starting therapy for at least another 4-5 > weeks. i think I am chickening out already! Gotta run to work! Lety > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
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