Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 I am HOH and have been wearing aids since I was 2 yrs old. I have always struggled to understand what was being said on the radio. I constantly read lips and am very dependent on it. I would never want to have a CI done. I just dont agree with that since it is not 100% affective. (If I am wrong pls correct me.) Turning the radio or tv extra loud does not help at all it just amplifies the noise that is not understood. I have closed caption on all my tv's in the house. Does ur tv have closed caption option available? That would help her alot! Cammy I was just wondering if other HOH people have the same problems and if the CI would clear up these problems. Thanks a Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 I also have severe loss in both ears and am diagnosed with AN. I have severe nerve damage which causes me to hear sounds but not able to comprehend it unless i see where it is coming from or reading the person's lips. On the other hand about CC my daughter is gonna be 4 in Feb. and has hearing loss also. She wears aids in both ears and must have the CC on the tv. When we go visit someone she always asks for 'black on tv' which i know she means the CC, so dont take for granted that ur daughter cant read yet. I totally have the same fears as u do about my own child. I have lived thru those fears and hope my daughter will overcome those same fears too. Good luck. Cammy On Tue, 30 Dec 2003 19:15:56 -0800 (PST) Ms p sours wrote: Auditory Neuropathy (AN) Her AN is very mild but I did wonder if that was the cause of her not understanding the TV Thanks for your reply. a Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Ok I have to say I have never been diagnosed with hearing loss but know that my hearing does sometimes fluctuate, but even when things are sounding normal to me, I have trouble hearing everything on tv and often when watching a movie turn on subtitles. My husband hates this, he finds it distracting, but if I don't have it on there is a lot I feel like I am missing. Like someone else said turning it up doesn't usually help it just makes it louder but I still don't understand. This coming from a person with normal hearing. So I can imagine people with hearing loss would have a much harder time than I do. Re: TV/Radio Question I also have severe loss in both ears and am diagnosed with AN. I have severe nerve damage which causes me to hear sounds but not able to comprehend it unless i see where it is coming from or reading the person's lips. On the other hand about CC my daughter is gonna be 4 in Feb. and has hearing loss also. She wears aids in both ears and must have the CC on the tv. When we go visit someone she always asks for 'black on tv' which i know she means the CC, so dont take for granted that ur daughter cant read yet. I totally have the same fears as u do about my own child. I have lived thru those fears and hope my daughter will overcome those same fears too. Good luck. Cammy On Tue, 30 Dec 2003 19:15:56 -0800 (PST) Ms p sours wrote: Auditory Neuropathy (AN) Her AN is very mild but I did wonder if that was the cause of her not understanding the TV Thanks for your reply. a Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 <<She can use the phone some but struggles with that also.>> a, You may or may not be familiar with T-coil technology but many hearing aids now are equipped with it and many telephones are made to work with it. When my son uses the phone, we switch his aids to the T-coil and the sound feeds directly into his aids, just like his FM does. You may want to check this out. If you have an FM system, or are considering one, this would also help a lot with the TV as they can be connected directly to the TV's headphone jack and feed right into the hearing aid. As for television, we've used CC for years...since was diagnosed at age 4 1/2. Even though he can " hear " the television, we know that without the CC, he misses a lot. This would be true for any of us if we didn't have the listening experience that we hearing people don't have to even think about. Think about carrying on a conversation in a noisy restaurant. You probably only hear one word in three, even without a hearing loss, but your mind can fill in the rest because of your experience with language. This is what our HOH kids are catching up on. doesn't like to admit when he doesn't hear everything on a show but more recently he's been noticing if the CC isn't on. (We always have it turned on but some of the old shows he watches--like Mr. Ed and Leave it to Beaver--aren't encoded...sigh.) By the way, is only 7 and 1/2 but he's reading at almost the same level as his 10-year-old sister and he had to be advanced two grades in spelling because his tests were too easy. There is definitely an " up " side to all of this! :-) Carol - mom to , 7.8, mod to profound, LVAS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 In a message dated 12/31/2003 2:16:50 PM Eastern Standard Time, debbaugher@... writes: Those of you with very young children, when did you put CC on your TV? We played around with it as early as 12 months I think. We just wanted to see what it was like. Now we use it on and off but I'll tell you we actually have gotten used to it. We sometimes use it just for ourselves. Actually when the CC is on I end up reading everything and not really listening. I tend to favor the print. It just happens that way for me. has never said anything about the CC whether it's on or not so I don't think he really gets what it's for, but it's good for him to get used to being on the screen. mom to , 3yrs, CI 7/30/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 I never said my daughter has AN. I do. I dont know what type of loss my daughter has. I have not been able to get it looked into due to financial reasons. I would love to be able to identify how this came about and serveral more questions I have to ask but right now we just cant afford it. Her father is DEAF and I am HOH, so in my opinion I think it is genetic. Cammy On Wed, 31 Dec 2003 06:42:40 -0800 (PST) Ms p sours wrote: Hi Cammy My daugher watches my lips some (not all the time).. I wish I had lived thru this so I could at least have some idea what to expect for her, ways to protect her and help her with her education.. I didn't realize a mother and child could have AN. That is interesting. I've read of genetic cases (I'm assuming yours is genetic) but thought it skipped a generation. I've learned something new.... a Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 I never said my daughter has AN. I do. I dont know what type of loss my daughter has. I have not been able to get it looked into due to financial reasons. I would love to be able to identify how this came about and serveral more questions I have to ask but right now we just cant afford it. Her father is DEAF and I am HOH, so in my opinion I think it is genetic. Cammy On Wed, 31 Dec 2003 06:42:40 -0800 (PST) Ms p sours wrote: Hi Cammy My daugher watches my lips some (not all the time).. I wish I had lived thru this so I could at least have some idea what to expect for her, ways to protect her and help her with her education.. I didn't realize a mother and child could have AN. That is interesting. I've read of genetic cases (I'm assuming yours is genetic) but thought it skipped a generation. I've learned something new.... a Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Cammy, How old were you when you were diagnosed with AN. I have a teenager with a newly diagnosed and fluctuating hearing loss, that they want to rule AN out on. She will be having ABR's next month. Smetimes she hears fine, othertimes I notice problems. So just wondering how old you were and what your symptoms were. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Brings me to my question. My 19 month old daughter rarely sits still long enough to watch any type of show or video. She has just recently been aided for a moderate loss. She's extremely visual & her speech therapist believes that she will be a very good lip reader. She already depends heavily on visual cues around her. Those of you with very young children, when did you put CC on your TV? Lip reading has got to be an impossible task when you're watching cartoons or muppet type programs. Regards, Debby Mom to Lindsi (19 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 I agree, but since was only 4 months old he loved certain movies. He is only 3 and obviously doesn't read, he doesn't sign a whole lot either and doesn't understand any speech, but yet he still loves tv and movies. I think it is the colors and the action. He likes sword fight movies also. So I think young children can enjoy the tv without knowing what it is saying. Start using the captions when they can read I would think. Re: TV/Radio Question Brings me to my question. My 19 month old daughter rarely sits still long enough to watch any type of show or video. She has just recently been aided for a moderate loss. She's extremely visual & her speech therapist believes that she will be a very good lip reader. She already depends heavily on visual cues around her. Those of you with very young children, when did you put CC on your TV? Lip reading has got to be an impossible task when you're watching cartoons or muppet type programs. Regards, Debby Mom to Lindsi (19 months) All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 <<Those of you with very young children, when did you put CC on your TV?>> Because my son was not diagnosed until he was 4, his language skills were severely delayed and we weren't sure he truly understood the whole concept of language. I think that,for him, the CC helped him to understand that there were symbolic representations of communication and it made a difference. With your daughter's moderate loss, this may not be an issue and, in fact, her aids may give her enough benefit to hear the TV in a meaningful way. With that said, there are other good reasons for beginning to use CC early. For one thing, just getting used to having it on the screen is a good idea, for both your daughter and other friends and family who may be watching the shows. I would love it if CC wasn't a big deal for anyone because then wouldn't think twice about reminding his teachers and friends when he needs it away from home. Also, even though 19 months is too early for formal reading instruction, it can only benefit your child to see the words associated with what's on the screen. (Most reading programs use a combination of phonics and " whole language " instruction and watching with CC is very much a whole language presentation.) Many of our friends whose children are Deaf or HOH have reported that their kids all read very early when they've used CC from early on, even though " pushing " them was the last thing on their minds. It was just a natural thing, kind of like learning sign language--also symbolic representations of words and actions. By the way, I often find myself relying on the CC myself...when watching TV from the kitchen across the room or whatever, and I miss a word or sentence. I'm hooked! LOL! Carol - mom to , 7.8, mod to profound, LVAS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 I think captioning is an important first exposure to print, almost like being read to, and that all kids should have captioning long before they can read. Ours is always on; we appreciate it too. My kids didn't have much of an attention span at that age. There's just too much that needs to be explored. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Debby, In my opinion it is never to early to put the CC on the tv. My daughter has been exposed to it since she laid her eyes on the tv. She must have the CC on anytime she is watching tv. She will be 4 yrs old in Feb. I am HOH and read lips myself so I totally hate to watch shows with muppets or cartoons bec of not being able to understand them. But thank GOD for CC. Cammy Brings me to my question. My 19 month old daughter rarely sits still long enough to watch any type of show or video. She has just recently been aided for a moderate loss. She's extremely visual & her speech therapist believes that she will be a very good lip reader. She already depends heavily on visual cues around her. Those of you with very young children, when did you put CC on your TV? Lip reading has got to be an impossible task when you're watching cartoons or muppet type programs. Regards, Debby Mom to Lindsi (19 months) Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 If I recall correctly I was about 2 yrs old or a little older when they diagnosed my hearing loss. I dont know how long afterwards that they were able to pinpoint the type of loss I had. I am totally the same that sometimes I hear fine and other times I totally blow the whole converstation out of portion. It is very frustrating growing up with this type of disability. But everything happens for a reason and we just gotta live with it. Now I am trying my best to do what I can for my daughter with her hearing loss. So good luck on finding the answers u need. Cammy Cammy, How old were you when you were diagnosed with AN. I have a teenager with a newly diagnosed and fluctuating hearing loss, that they want to rule AN out on. She will be having ABR's next month. Smetimes she hears fine, othertimes I notice problems. So just wondering how old you were and what your symptoms were. Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Now she tries to watch > tv when she is supposed to be sleeping and following along with the CC.>>>>>>> Do you have my child at your house? Sometimes at like 2AM I see the light downstairs and he has the TV on, volume off, no CI and is watching with the CC on! Drives me crazy but is good that he is reading it and not just looking at the pictures! Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 > I didn't realize a mother and child could have AN. >>>> There are some cases like Charcot Marie Tooth Syndrome that it doesn't skip generations. The study the Dr. Starr did on the cochlea of the deceased man was a family with this type of syndrome. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi - re: captioning - we put captions on our televisions early on - pre-reading. I think it helps kids make the connection from what's being spoken and printed word. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 In a message dated 12/31/2003 2:16:58 PM Eastern Standard Time, debbaugher@... writes: > Those of you with very young children, when did you put CC on your TV? > We didn't learn about our son's HL until he was in 2nd grade, but we put the captioning on immediately and have had it on ever since. We always have it on whether he was watching or not ... the rest of us miss it when it's not on. At the time my daughter was very young -- not yet 3, and I am somewhat convinced that she is such a wonderful reader because it was always on. We read to her, the tv read to her, we surrounded our son Ian with language and it had a good effect on our daughter as well. Best - Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 In a message dated 1/2/2004 1:22:06 AM Eastern Standard Time, babydewe2@... writes: > I am also worried about K for her next year. She is > in preschool now at the school she will attend for K, > so I'm hoping that I can " pick " her teacher next year > and " train " her. > > Debbie > Put it in writing ... send a note to the school requesting that she have a specific teacher. I know that whenever I made a teacher request, I did so in writing and it is taken quiote seriously. I requested taht our son have the same TOD throughout middle school because the consistency would be best for him. I was recently told that they have to honor my request unless it is impossible. He's had the same TOD for all three years. I sent a request into the school for my (not HOH) daughter's kindergarten teacher. The choice was an older, experienced teacher or a young one who'd been fresh out of college the year before. I knew my daughter would eat the young one for lunch, so I requested the other one. In writing. And that was where she was placed. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 " She does have an FM but when I plug it into the TV the entire TV sound is mute for my 2 yo son. He hears but can't when I plug the FM into the TV for her. ... " a, Have you tried putting the FM mike in front of the TV speakers rather than plugging it in, so the sound still goes to her FM receiver, without blocking it for your son? Just a thought. Kerryn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 " She does have an FM but when I plug it into the TV the entire TV sound is mute for my 2 yo son. He hears but can't when I plug the FM into the TV for her. ... " a, Have you tried putting the FM mike in front of the TV speakers rather than plugging it in, so the sound still goes to her FM receiver, without blocking it for your son? Just a thought. Kerryn Quote Link to comment Share on other sites More sharing options...
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