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Re: Re: upcoming CT scan

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Somer-

Hi my name is Carisa and I also have a 6 month old daughter who has been

diagnosed with mild hearing loss. She was scheduled for her CT scan in

December, but got a cold so we had to reschedule. She will also be getting hers

done in January. I would love to keep in contact since it seems we are going

through exactly the same things at the same time. This is also all new to me.

My husbands family has hearing loss, so he has lived with this his whole life. I

am learning everything as I go.

Barbara.T.Mellert@... wrote:

Hi Somer - this is Barbara also in NH - glad to see you on the list!

My older son, Tommy, had a CT scan after he was diagnosed. They do a CT scan to

rule out any structural problems in the ears or the head - so they often can see

if there's something wrong physically that way.

Tommy was a little older than 4 years when he had his CT done. He went through

the first set well and without medication but kept yawning during the second set

(of course yawning moves the ears!) so they sedated him for the second part.

For us, it was helpful to get the news that they could see no abnormalities from

that perspective. Tom (and my younger son, Sam's) hearing loss is a

sensorineural loss and is genetic. We're participating in a genetic study

sponsored by Gallaudet University and Medical College of Virginia. They believe

our loss to be x-linked recessive but so far haven't identified the gene

responsible.

Welcome to the list!

Barbara

Somer wrote---

Hi! My name is Somer and I have a 6 month old daughter who was recently

diagnosed with mild-moderate hearing loss. She will be having a CT scan on

January 12 and I was wondering what information the ENT will be able to gleen

from this test. This is all so new to me, so any information would be

wonderful!

Thank you!

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