Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Hi , welcome to the list. Our daughter Kennedy, who is eight, has been down the choanal atresia highway many times. She's had a bunch of surgeries for it and still has chronic green runny nose at age eight. We use a nasal rinse: http://www.neilmed.com/ 2 times a day which kind of " blows everything out of there " and decreases the ongoing nose-wiping, runny nose look. We feel like we own stock in Kleenex - we always have a box wherever we go. It's just become a reality for us. She can wipe her own nose and look after it so it's not too bad. The Nasal rinse has helped a lot; sometimes her nose just runs clear but often it gets green & icky. Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Thanks for replying . Do any of your doctors have an explaination for this? We also have kleenex's everywhere. I do use saline and then suction as much out as I can. Im concerned because I think he doesnt eat enough, because his nose is always stuffed and its hard for him to finish his bottles. > > Hi , > welcome to the list. Our daughter Kennedy, who is eight, has been down the choanal atresia highway many times. She's had a bunch of surgeries for it and still has chronic green runny nose at age eight. We use a nasal rinse: > http://www.neilmed.com/ > 2 times a day which kind of " blows everything out of there " and decreases the ongoing nose-wiping, runny nose look. We feel like we own stock in Kleenex - we always have a box wherever we go. It's just become a reality for us. She can wipe her own nose and look after it so it's not too bad. The Nasal rinse has helped a lot; sometimes her nose just runs clear but often it gets green & icky. > > > > > Weir > Home: lisaweir@... > Work: lisa.weir@... > Phone: > Web: http://ca.geocities.com/weirfamily@... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 My baby also has had the surgery but has not experienced this issue. Hmmm...have you talked with your ENT about it? He might have more insight than your PCP. I am so happy for you that your baby gets to have a bottle...how wonderful! I know of very few CHARGErs that feed orally that early on Sorry I can't be of much help...but again congrats on the feeding. I know it's not perfect but wow, that is pretty great! wrote: Thanks for replying . Do any of your doctors have an explaination for this? We also have kleenex's everywhere. I do use saline and then suction as much out as I can. Im concerned because I think he doesnt eat enough, because his nose is always stuffed and its hard for him to finish his bottles. > > Hi , > welcome to the list. Our daughter Kennedy, who is eight, has been down the choanal atresia highway many times. She's had a bunch of surgeries for it and still has chronic green runny nose at age eight. We use a nasal rinse: > http://www.neilmed.com/ > 2 times a day which kind of " blows everything out of there " and decreases the ongoing nose-wiping, runny nose look. We feel like we own stock in Kleenex - we always have a box wherever we go. It's just become a reality for us. She can wipe her own nose and look after it so it's not too bad. The Nasal rinse has helped a lot; sometimes her nose just runs clear but often it gets green & icky. > > > > > Weir > Home: lisaweir@... > Work: lisa.weir@... > Phone: > Web: http://ca.geocities.com/weirfamily@... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 well nothings perfect is it > > My baby also has had the surgery but has not experienced this > issue. Hmmm...have you talked with your ENT about it? He might have more > insight than your PCP. > > I am so happy for you that your baby gets to have a bottle...how > wonderful! I know of very few CHARGErs that feed orally that early on > > Sorry I can't be of much help...but again congrats on the feeding. I know > it's not perfect but wow, that is pretty great! > > wrote: > Thanks for replying . Do any of your doctors have an > explaination for this? We also have kleenex's everywhere. I do use > saline and then suction as much out as I can. Im concerned because I > think he doesnt eat enough, because his nose is always stuffed and > its hard for him to finish his bottles. > > > > > > > > Hi , > > welcome to the list. Our daughter Kennedy, who is eight, has > been down the choanal atresia highway many times. She's had a bunch > of surgeries for it and still has chronic green runny nose at age > eight. We use a nasal rinse: > > http://www.neilmed.com/ > > 2 times a day which kind of " blows everything out of there " and > decreases the ongoing nose-wiping, runny nose look. We feel like we > own stock in Kleenex - we always have a box wherever we go. It's > just become a reality for us. She can wipe her own nose and look > after it so it's not too bad. The Nasal rinse has helped a lot; > sometimes her nose just runs clear but often it gets green & icky. > > > > > > > > > > Weir > > Home: lisaweir@... > > Work: lisa.weir@... > > Phone: > > Web: http://ca.geocities.com/weirfamily@... > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 well nothings perfect is it > > My baby also has had the surgery but has not experienced this > issue. Hmmm...have you talked with your ENT about it? He might have more > insight than your PCP. > > I am so happy for you that your baby gets to have a bottle...how > wonderful! I know of very few CHARGErs that feed orally that early on > > Sorry I can't be of much help...but again congrats on the feeding. I know > it's not perfect but wow, that is pretty great! > > wrote: > Thanks for replying . Do any of your doctors have an > explaination for this? We also have kleenex's everywhere. I do use > saline and then suction as much out as I can. Im concerned because I > think he doesnt eat enough, because his nose is always stuffed and > its hard for him to finish his bottles. > > > > > > > > Hi , > > welcome to the list. Our daughter Kennedy, who is eight, has > been down the choanal atresia highway many times. She's had a bunch > of surgeries for it and still has chronic green runny nose at age > eight. We use a nasal rinse: > > http://www.neilmed.com/ > > 2 times a day which kind of " blows everything out of there " and > decreases the ongoing nose-wiping, runny nose look. We feel like we > own stock in Kleenex - we always have a box wherever we go. It's > just become a reality for us. She can wipe her own nose and look > after it so it's not too bad. The Nasal rinse has helped a lot; > sometimes her nose just runs clear but often it gets green & icky. > > > > > > > > > > Weir > > Home: lisaweir@... > > Work: lisa.weir@... > > Phone: > > Web: http://ca.geocities.com/weirfamily@... > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Thanks for replying. I will probably talk to his ENT about it. And yes I know we are very fortunate that he has no eating problems, besides gaining weight. Not every thing is perfect, but my son sure is! ellen howe wrote: well nothings perfect is it > > My baby also has had the surgery but has not experienced this > issue. Hmmm...have you talked with your ENT about it? He might have more > insight than your PCP. > > I am so happy for you that your baby gets to have a bottle...how > wonderful! I know of very few CHARGErs that feed orally that early on > > Sorry I can't be of much help...but again congrats on the feeding. I know > it's not perfect but wow, that is pretty great! > > wrote: > Thanks for replying . Do any of your doctors have an > explaination for this? We also have kleenex's everywhere. I do use > saline and then suction as much out as I can. Im concerned because I > think he doesnt eat enough, because his nose is always stuffed and > its hard for him to finish his bottles. > > > > > > > > Hi , > > welcome to the list. Our daughter Kennedy, who is eight, has > been down the choanal atresia highway many times. She's had a bunch > of surgeries for it and still has chronic green runny nose at age > eight. We use a nasal rinse: > > http://www.neilmed.com/ > > 2 times a day which kind of " blows everything out of there " and > decreases the ongoing nose-wiping, runny nose look. We feel like we > own stock in Kleenex - we always have a box wherever we go. It's > just become a reality for us. She can wipe her own nose and look > after it so it's not too bad. The Nasal rinse has helped a lot; > sometimes her nose just runs clear but often it gets green & icky. > > > > > > > > > > Weir > > Home: lisaweir@... > > Work: lisa.weir@... > > Phone: > > Web: http://ca.geocities.com/weirfamily@... > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Thanks for replying. I will probably talk to his ENT about it. And yes I know we are very fortunate that he has no eating problems, besides gaining weight. Not every thing is perfect, but my son sure is! ellen howe wrote: well nothings perfect is it > > My baby also has had the surgery but has not experienced this > issue. Hmmm...have you talked with your ENT about it? He might have more > insight than your PCP. > > I am so happy for you that your baby gets to have a bottle...how > wonderful! I know of very few CHARGErs that feed orally that early on > > Sorry I can't be of much help...but again congrats on the feeding. I know > it's not perfect but wow, that is pretty great! > > wrote: > Thanks for replying . Do any of your doctors have an > explaination for this? We also have kleenex's everywhere. I do use > saline and then suction as much out as I can. Im concerned because I > think he doesnt eat enough, because his nose is always stuffed and > its hard for him to finish his bottles. > > > > > > > > Hi , > > welcome to the list. Our daughter Kennedy, who is eight, has > been down the choanal atresia highway many times. She's had a bunch > of surgeries for it and still has chronic green runny nose at age > eight. We use a nasal rinse: > > http://www.neilmed.com/ > > 2 times a day which kind of " blows everything out of there " and > decreases the ongoing nose-wiping, runny nose look. We feel like we > own stock in Kleenex - we always have a box wherever we go. It's > just become a reality for us. She can wipe her own nose and look > after it so it's not too bad. The Nasal rinse has helped a lot; > sometimes her nose just runs clear but often it gets green & icky. > > > > > > > > > > Weir > > Home: lisaweir@... > > Work: lisa.weir@... > > Phone: > > Web: http://ca.geocities.com/weirfamily@... > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Oh gee, I used to joke about wishing I had stock in Kleenex too! (at age 3 months) I'd be wealthy by now! ( being 20 yrs-and still using them up!) Some things are around for the duration, I guess.(lol) Quote Link to comment Share on other sites More sharing options...
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