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Re: Dawn--when at doctor

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Dawn,

Don't feel bad. It is a chore. I am in so much pain by the time I am cooking dinner, I literally have tears in my eyes sometimes. Brody has been playing video games for about 3 hours today (please no letters-LOL) because I am too tired to chase him around. And, can't take him out because it is 102 again today. I was outside for 10 minutes earlier to see if I could see the balloons at the school and I couldn't-bummer. Anyway, by the time I went in, I was ready to fall asleep from the effect the heat had on me. Last night, Kylie ate at the house she babysat at and Brody and I had nachos. I reheated leftovers for when he got home. Easy! I had a friend one time that said her ex-husband was bad dad because he only fed his kids top ramen for dinner one night! HUH??? What is wrong with that??? As long as they get nutrients from other sources. My kids eat fruit and vegetables all day long. Brody loves green peppers, tomatos, cukes, celery and carrots. So that one night that we all decided to skip dinner and make popcorn and watch a movie instead I don't think was a bad parenting choice. We weren't hungry for a big meal! We tell everyone 'we had popcorn for dinner one night! LOL'. I believe in making it easy too. Another friend won't let her son have noodles for breakfast because it isn't a breakfast food. Who cares. He was willing to eat them. We have had pizza, top ramen, nachos, steak, leftovers, whatever!! Make it easy. Oh, also when I make casseroles I make double sometimes and freeze the rest so I have a meal ready to go.

I am babbly today. My head hurts really bad.

Zanna

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I am with Marlee. Nothin' better that a big juicy pot roast and potatos and carrots......mmmmm. Drizzled in butter-real butter-not that margarine junk-won't even buy it for my house. Guess that is the Wisconsin girl in me. I never tasted margerine til I was out of the house. My dad wouldn't eat it either!! Still don't care for it. Nothing compares to the taste of real butter.

Zanna

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I am with Marlee. Nothin' better that a big juicy pot roast and potatos and carrots......mmmmm. Drizzled in butter-real butter-not that margarine junk-won't even buy it for my house. Guess that is the Wisconsin girl in me. I never tasted margerine til I was out of the house. My dad wouldn't eat it either!! Still don't care for it. Nothing compares to the taste of real butter.

Zanna

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I am with Marlee. Nothin' better that a big juicy pot roast and potatos and carrots......mmmmm. Drizzled in butter-real butter-not that margarine junk-won't even buy it for my house. Guess that is the Wisconsin girl in me. I never tasted margerine til I was out of the house. My dad wouldn't eat it either!! Still don't care for it. Nothing compares to the taste of real butter.

Zanna

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Thanks, Lelia. I agree about the job/family issue. And furthermore, tending to

my family now is an

absolute CHORE. I don't mean that to sound awful (although it really does), but

when every muscle in

your body hurts CONTINUOUSLY (and I don't make that up), it's a chore to take

care of everyone. I

should have said that too to that woman from CPP! Maybe I should start writing

these things down. LOL.

Dawn

Lelia wrote:

> You're right, Dawn, make sure the doctor(s) see every bit of disability that

you have and make them

> understand that you hardly have the energy to care for your family never mind

working. I sure don't

> see why a person has to choose: either family or job. Don't these people have

any common sense?

> For you to get a job then come home and not be able to attend to your family

as you are doing now

> (which is not what you used to be able to do either) is tantamount to making

you choose. Make sure

> to list what you used to do with your family and how much you are limited now.

>

> I for sure didn't mean that you would pretend but to add something that's not

there probably would

> be picked up by the doctor. Just use everything you need to of what you

already have for

> limitations. Can you hold your arms above your head to curl your hair for

long---I can't and I'm 5

> years down the road from DX. And further make sure the doctors state that it

is absolutely unknown

> when this disease could again become full blown--I don't believe that is

predicatable is it?

>

> And you have additional problems with the JO-1 antibody that is a potential

threat also.

>

> Keep going girl!

>

> Lelia

>

>

>

>

>

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I agree with everything you said. I most always get big meals (meat,

potatoes, veggies), but there are night's that I just don't have it in

me and we'll have grilled cheese or rice or pizza pockets, etc. My kids

get a wide variety of foods and nutrients, so it doesn't bother me in

the least. Marlee kinda makes me feel guilty on the nights that I do

that, as she'll look at me and whine " I wanted a BIG supper, mommy " .

LOL She just adores the meat & potatoes meals. That's so funny for a

kid.

Hey, I like your popcorn for supper idea. Maybe I'll try that some

night. We have a hot air popper and about 6 different popcorn

seasonings(barbecue chicken is the BEST) and my family would LOVE it.

Dawn

mrsxanadu@... wrote:

> Dawn,

> Don't feel bad. It is a chore. I am in so much pain by the time I am

> cooking dinner, I literally have tears in my eyes sometimes. Brody

> has been playing video games for about 3 hours today (please no

> letters-LOL) because I am too tired to chase him around. And, can't

> take him out because it is 102 again today. I was outside for 10

> minutes earlier to see if I could see the balloons at the school and I

> couldn't-bummer. Anyway, by the time I went in, I was ready to fall

> asleep from the effect the heat had on me. Last night, Kylie ate at

> the house she babysat at and Brody and I had nachos. I reheated

> leftovers for when he got home. Easy! I had a friend one time

> that said her ex-husband was bad dad because he only fed his kids top

> ramen for dinner one night! HUH??? What is wrong with that??? As

> long as they get nutrients from other sources. My kids eat fruit and

> vegetables all day long. Brody loves green peppers, tomatos, cukes,

> celery and carrots. So that one night that we all decided to skip

> dinner and make popcorn and watch a movie instead I don't think was a

> bad parenting choice. We weren't hungry for a big meal! We tell

> everyone 'we had popcorn for dinner one night! LOL'. I believe in

> making it easy too. Another friend won't let her son have noodles for

> breakfast because it isn't a breakfast food. Who cares. He was

> willing to eat them. We have had pizza, top ramen, nachos, steak,

> leftovers, whatever!! Make it easy. Oh, also when I make casseroles

> I make double sometimes and freeze the rest so I have a meal ready to

> go.

>

> I am babbly today. My head hurts really bad.

>

> Zanna

>

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I agree with everything you said. I most always get big meals (meat,

potatoes, veggies), but there are night's that I just don't have it in

me and we'll have grilled cheese or rice or pizza pockets, etc. My kids

get a wide variety of foods and nutrients, so it doesn't bother me in

the least. Marlee kinda makes me feel guilty on the nights that I do

that, as she'll look at me and whine " I wanted a BIG supper, mommy " .

LOL She just adores the meat & potatoes meals. That's so funny for a

kid.

Hey, I like your popcorn for supper idea. Maybe I'll try that some

night. We have a hot air popper and about 6 different popcorn

seasonings(barbecue chicken is the BEST) and my family would LOVE it.

Dawn

mrsxanadu@... wrote:

> Dawn,

> Don't feel bad. It is a chore. I am in so much pain by the time I am

> cooking dinner, I literally have tears in my eyes sometimes. Brody

> has been playing video games for about 3 hours today (please no

> letters-LOL) because I am too tired to chase him around. And, can't

> take him out because it is 102 again today. I was outside for 10

> minutes earlier to see if I could see the balloons at the school and I

> couldn't-bummer. Anyway, by the time I went in, I was ready to fall

> asleep from the effect the heat had on me. Last night, Kylie ate at

> the house she babysat at and Brody and I had nachos. I reheated

> leftovers for when he got home. Easy! I had a friend one time

> that said her ex-husband was bad dad because he only fed his kids top

> ramen for dinner one night! HUH??? What is wrong with that??? As

> long as they get nutrients from other sources. My kids eat fruit and

> vegetables all day long. Brody loves green peppers, tomatos, cukes,

> celery and carrots. So that one night that we all decided to skip

> dinner and make popcorn and watch a movie instead I don't think was a

> bad parenting choice. We weren't hungry for a big meal! We tell

> everyone 'we had popcorn for dinner one night! LOL'. I believe in

> making it easy too. Another friend won't let her son have noodles for

> breakfast because it isn't a breakfast food. Who cares. He was

> willing to eat them. We have had pizza, top ramen, nachos, steak,

> leftovers, whatever!! Make it easy. Oh, also when I make casseroles

> I make double sometimes and freeze the rest so I have a meal ready to

> go.

>

> I am babbly today. My head hurts really bad.

>

> Zanna

>

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My Aunt and Uncle are just like you. However, we buy margerine. Hubby

doesn't put butter or margerine on ANYTHING. Eats dry potatoes, bread,

popcorn, corn on the cob, you name it. BLECK!!

Dawn

PS....I'm starting to get quite freaked out here. This is the 2nd night

in a row that my right foot has been double or triple it's normal size.

It's the foot where I had the DVT in the leg. It just keeps getting

bigger and bigger. I've even taken 3 pictures of it, because I'm

amazed. Can barely wiggle my toes. I'm heading to bed and getting that

foot up.

Dawn

mrsxanadu@... wrote:

> I am with Marlee. Nothin' better that a big juicy pot roast and

> potatos and carrots......mmmmm. Drizzled in butter-real butter-not

> that margarine junk-won't even buy it for my house. Guess that is the

> Wisconsin girl in me. I never tasted margerine til I was out of the

> house. My dad wouldn't eat it either!! Still don't care for it.

> Nothing compares to the taste of real butter.

>

> Zanna

>

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