Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn, This is wonderful news. I am so happy for you!! I wish you were coming to Ontario, CA. It is only about 20 miles from me. There is an airport there too. I would be glad to pick you up!!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn, This is wonderful news. I am so happy for you!! I wish you were coming to Ontario, CA. It is only about 20 miles from me. There is an airport there too. I would be glad to pick you up!!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I am all for Mt. Sinai. Did you see that the gift shop has Godiva Chocolates???? Go, go, go!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I am all for Mt. Sinai. Did you see that the gift shop has Godiva Chocolates???? Go, go, go!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I am all for Mt. Sinai. Did you see that the gift shop has Godiva Chocolates???? Go, go, go!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I think people should not hire customer service jobs (waitress, sales, cashier, etc...) on experience alone. I used to occasionally help with hiring at Home Depot and my theory is this: it is much easier to train someone to do a job than it is to train someone to be nice......so I stress-be nice-it matters.... Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I think it is Cedars Sinai that you are thinking about....I know there is a Mt. Sinai somewhere else though. I have lived so many places and traveled a lot of the US though so I could have just seen it somewhere!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I think it is Cedars Sinai that you are thinking about....I know there is a Mt. Sinai somewhere else though. I have lived so many places and traveled a lot of the US though so I could have just seen it somewhere!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I think it is Cedars Sinai that you are thinking about....I know there is a Mt. Sinai somewhere else though. I have lived so many places and traveled a lot of the US though so I could have just seen it somewhere!! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 LOL.....Sorry, no such luck. Check out this site. This is where I want to go BIG TIME!!! http://www.mtsinai.on.ca/rheumatology/ It's in Toronto, Ontario. Sounds like just what the Dr. ordered (at least I hope she'll " order " it.) LOL. Dawn mrsxanadu@... wrote: > Dawn, > This is wonderful news. I am so happy for you!! I wish you were > coming to Ontario, CA. It is only about 20 miles from me. There is > an airport there too. I would be glad to pick you up!!! > > Zanna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn... What a difference a day makes, huh???? That is just terrific news. Annette -----Original Message-----From: Dawn Sent: Tuesday, September 10, 2002 10:37 AMTo: OurMyositis Subject: OH MY GOSH!!!I finally have some good news to report!!!! So, I took up Mike's adviceand called the MDAC to see if perhaps they had a list of specialists whotreat PM. I spoke to a woman there a couple months ago and she was agem and sent me a bunch of info. on PM (nothing I didn't know fromresearch and this group) and also some info. on the MDAC. When I calledher this morning, she remembered me and I told her my predicament. Shesaid to me "you do know there's no specialists in this part of ourcountry don't you?" and I said, "yeah, I figured as much" and wasextremely bummed. She said it would most likely be Ontario where I'dhave to go. She said to get a referral from my family Dr. (who I go seetomorrow) and the MDACWILL FLY Kirk and I out for my appointment. We would have to pay forour own hotel accomodations, but they have air miles that they save forcases just like mine!! I couldn't believe it. I started crying rightthere. She said there will most likely be a wait (perhaps even 6mths.), but at least I'll be on the waiting list. She's going to sendme a registration form to register with the MDAC (I think I threw outthe other one I had.....OOPS!!) and they'll immediately set aside theair miles it takes to fly us out. Isn't that awesome news??????Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn... What a difference a day makes, huh???? That is just terrific news. Annette -----Original Message-----From: Dawn Sent: Tuesday, September 10, 2002 10:37 AMTo: OurMyositis Subject: OH MY GOSH!!!I finally have some good news to report!!!! So, I took up Mike's adviceand called the MDAC to see if perhaps they had a list of specialists whotreat PM. I spoke to a woman there a couple months ago and she was agem and sent me a bunch of info. on PM (nothing I didn't know fromresearch and this group) and also some info. on the MDAC. When I calledher this morning, she remembered me and I told her my predicament. Shesaid to me "you do know there's no specialists in this part of ourcountry don't you?" and I said, "yeah, I figured as much" and wasextremely bummed. She said it would most likely be Ontario where I'dhave to go. She said to get a referral from my family Dr. (who I go seetomorrow) and the MDACWILL FLY Kirk and I out for my appointment. We would have to pay forour own hotel accomodations, but they have air miles that they save forcases just like mine!! I couldn't believe it. I started crying rightthere. She said there will most likely be a wait (perhaps even 6mths.), but at least I'll be on the waiting list. She's going to sendme a registration form to register with the MDAC (I think I threw outthe other one I had.....OOPS!!) and they'll immediately set aside theair miles it takes to fly us out. Isn't that awesome news??????Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn... What a difference a day makes, huh???? That is just terrific news. Annette -----Original Message-----From: Dawn Sent: Tuesday, September 10, 2002 10:37 AMTo: OurMyositis Subject: OH MY GOSH!!!I finally have some good news to report!!!! So, I took up Mike's adviceand called the MDAC to see if perhaps they had a list of specialists whotreat PM. I spoke to a woman there a couple months ago and she was agem and sent me a bunch of info. on PM (nothing I didn't know fromresearch and this group) and also some info. on the MDAC. When I calledher this morning, she remembered me and I told her my predicament. Shesaid to me "you do know there's no specialists in this part of ourcountry don't you?" and I said, "yeah, I figured as much" and wasextremely bummed. She said it would most likely be Ontario where I'dhave to go. She said to get a referral from my family Dr. (who I go seetomorrow) and the MDACWILL FLY Kirk and I out for my appointment. We would have to pay forour own hotel accomodations, but they have air miles that they save forcases just like mine!! I couldn't believe it. I started crying rightthere. She said there will most likely be a wait (perhaps even 6mths.), but at least I'll be on the waiting list. She's going to sendme a registration form to register with the MDAC (I think I threw outthe other one I had.....OOPS!!) and they'll immediately set aside theair miles it takes to fly us out. Isn't that awesome news??????Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn, I read your posts and was so upset that you were denied. I know how desperate you must feel but you must know that you have to keep fighting. Congratulations on the specialists. This may just be what you need to get approved as you now know that your current Rheumy will be no help to you. Hopefully until you get your appointment your husband will be able to get a permanent job to take some of the pressure off. This is a sure sign that things will start to look up for you. I am always praying for you and your family. Venita > I finally have some good news to report!!!! So, I took up Mike's advice > and called the MDAC to see if perhaps they had a list of specialists who > treat PM. I spoke to a woman there a couple months ago and she was a > gem and sent me a bunch of info. on PM (nothing I didn't know from > research and this group) and also some info. on the MDAC. When I called > her this morning, she remembered me and I told her my predicament. She > said to me " you do know there's no specialists in this part of our > country don't you? " and I said, " yeah, I figured as much " and was > extremely bummed. She said it would most likely be Ontario where I'd > have to go. She said to get a referral from my family Dr. (who I go see > tomorrow) and the MDAC > WILL FLY Kirk and I out for my appointment. We would have to pay for > our own hotel accomodations, but they have air miles that they save for > cases just like mine!! I couldn't believe it. I started crying right > there. She said there will most likely be a wait (perhaps even 6 > mths.), but at least I'll be on the waiting list. She's going to send > me a registration form to register with the MDAC (I think I threw out > the other one I had.....OOPS!!) and they'll immediately set aside the > air miles it takes to fly us out. Isn't that awesome news?????? > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn, I read your posts and was so upset that you were denied. I know how desperate you must feel but you must know that you have to keep fighting. Congratulations on the specialists. This may just be what you need to get approved as you now know that your current Rheumy will be no help to you. Hopefully until you get your appointment your husband will be able to get a permanent job to take some of the pressure off. This is a sure sign that things will start to look up for you. I am always praying for you and your family. Venita > I finally have some good news to report!!!! So, I took up Mike's advice > and called the MDAC to see if perhaps they had a list of specialists who > treat PM. I spoke to a woman there a couple months ago and she was a > gem and sent me a bunch of info. on PM (nothing I didn't know from > research and this group) and also some info. on the MDAC. When I called > her this morning, she remembered me and I told her my predicament. She > said to me " you do know there's no specialists in this part of our > country don't you? " and I said, " yeah, I figured as much " and was > extremely bummed. She said it would most likely be Ontario where I'd > have to go. She said to get a referral from my family Dr. (who I go see > tomorrow) and the MDAC > WILL FLY Kirk and I out for my appointment. We would have to pay for > our own hotel accomodations, but they have air miles that they save for > cases just like mine!! I couldn't believe it. I started crying right > there. She said there will most likely be a wait (perhaps even 6 > mths.), but at least I'll be on the waiting list. She's going to send > me a registration form to register with the MDAC (I think I threw out > the other one I had.....OOPS!!) and they'll immediately set aside the > air miles it takes to fly us out. Isn't that awesome news?????? > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn, I read your posts and was so upset that you were denied. I know how desperate you must feel but you must know that you have to keep fighting. Congratulations on the specialists. This may just be what you need to get approved as you now know that your current Rheumy will be no help to you. Hopefully until you get your appointment your husband will be able to get a permanent job to take some of the pressure off. This is a sure sign that things will start to look up for you. I am always praying for you and your family. Venita > I finally have some good news to report!!!! So, I took up Mike's advice > and called the MDAC to see if perhaps they had a list of specialists who > treat PM. I spoke to a woman there a couple months ago and she was a > gem and sent me a bunch of info. on PM (nothing I didn't know from > research and this group) and also some info. on the MDAC. When I called > her this morning, she remembered me and I told her my predicament. She > said to me " you do know there's no specialists in this part of our > country don't you? " and I said, " yeah, I figured as much " and was > extremely bummed. She said it would most likely be Ontario where I'd > have to go. She said to get a referral from my family Dr. (who I go see > tomorrow) and the MDAC > WILL FLY Kirk and I out for my appointment. We would have to pay for > our own hotel accomodations, but they have air miles that they save for > cases just like mine!! I couldn't believe it. I started crying right > there. She said there will most likely be a wait (perhaps even 6 > mths.), but at least I'll be on the waiting list. She's going to send > me a registration form to register with the MDAC (I think I threw out > the other one I had.....OOPS!!) and they'll immediately set aside the > air miles it takes to fly us out. Isn't that awesome news?????? > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Amen to that, Annette!! Here's hoping everything falls into place. My appt. with my GP is tomorrow at 10:45 so I'll fill you all in when I get home. Dawn Annette Flamand wrote: > Dawn... What a difference a day makes, huh???? That is just > terrific news. Annette > > OH MY GOSH!!! > > I finally have some good news to report!!!! So, I took up > Mike's advice > and called the MDAC to see if perhaps they had a list of > specialists who > treat PM. I spoke to a woman there a couple months ago and > she was a > gem and sent me a bunch of info. on PM (nothing I didn't > know from > research and this group) and also some info. on the MDAC. > When I called > her this morning, she remembered me and I told her my > predicament. She > said to me " you do know there's no specialists in this part > of our > country don't you? " and I said, " yeah, I figured as much " > and was > extremely bummed. She said it would most likely be Ontario > where I'd > have to go. She said to get a referral from my family Dr. > (who I go see > tomorrow) and the MDAC > WILL FLY Kirk and I out for my appointment. We would have > to pay for > our own hotel accomodations, but they have air miles that > they save for > cases just like mine!! I couldn't believe it. I started > crying right > there. She said there will most likely be a wait (perhaps > even 6 > mths.), but at least I'll be on the waiting list. She's > going to send > me a registration form to register with the MDAC (I think I > threw out > the other one I had.....OOPS!!) and they'll immediately set > aside the > air miles it takes to fly us out. Isn't that awesome > news?????? > > Dawn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Amen to that, Annette!! Here's hoping everything falls into place. My appt. with my GP is tomorrow at 10:45 so I'll fill you all in when I get home. Dawn Annette Flamand wrote: > Dawn... What a difference a day makes, huh???? That is just > terrific news. Annette > > OH MY GOSH!!! > > I finally have some good news to report!!!! So, I took up > Mike's advice > and called the MDAC to see if perhaps they had a list of > specialists who > treat PM. I spoke to a woman there a couple months ago and > she was a > gem and sent me a bunch of info. on PM (nothing I didn't > know from > research and this group) and also some info. on the MDAC. > When I called > her this morning, she remembered me and I told her my > predicament. She > said to me " you do know there's no specialists in this part > of our > country don't you? " and I said, " yeah, I figured as much " > and was > extremely bummed. She said it would most likely be Ontario > where I'd > have to go. She said to get a referral from my family Dr. > (who I go see > tomorrow) and the MDAC > WILL FLY Kirk and I out for my appointment. We would have > to pay for > our own hotel accomodations, but they have air miles that > they save for > cases just like mine!! I couldn't believe it. I started > crying right > there. She said there will most likely be a wait (perhaps > even 6 > mths.), but at least I'll be on the waiting list. She's > going to send > me a registration form to register with the MDAC (I think I > threw out > the other one I had.....OOPS!!) and they'll immediately set > aside the > air miles it takes to fly us out. Isn't that awesome > news?????? > > Dawn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Amen to that, Annette!! Here's hoping everything falls into place. My appt. with my GP is tomorrow at 10:45 so I'll fill you all in when I get home. Dawn Annette Flamand wrote: > Dawn... What a difference a day makes, huh???? That is just > terrific news. Annette > > OH MY GOSH!!! > > I finally have some good news to report!!!! So, I took up > Mike's advice > and called the MDAC to see if perhaps they had a list of > specialists who > treat PM. I spoke to a woman there a couple months ago and > she was a > gem and sent me a bunch of info. on PM (nothing I didn't > know from > research and this group) and also some info. on the MDAC. > When I called > her this morning, she remembered me and I told her my > predicament. She > said to me " you do know there's no specialists in this part > of our > country don't you? " and I said, " yeah, I figured as much " > and was > extremely bummed. She said it would most likely be Ontario > where I'd > have to go. She said to get a referral from my family Dr. > (who I go see > tomorrow) and the MDAC > WILL FLY Kirk and I out for my appointment. We would have > to pay for > our own hotel accomodations, but they have air miles that > they save for > cases just like mine!! I couldn't believe it. I started > crying right > there. She said there will most likely be a wait (perhaps > even 6 > mths.), but at least I'll be on the waiting list. She's > going to send > me a registration form to register with the MDAC (I think I > threw out > the other one I had.....OOPS!!) and they'll immediately set > aside the > air miles it takes to fly us out. Isn't that awesome > news?????? > > Dawn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Thankyou, Venita. Kirk has to call Radio Shack on Thurs. to see what the owner has to say. He gave him a resume last week and was told to call him on Thurs. They've just moved into a new location and it's twice the size of their previous location, so they definately need the help. The only thing against my hubby could be that he has no sales experience, but there are some young kids employed there (fresh out of school) who I'm sure don't have selling exp. either. Although it would be a cut in pay, it would be full time with benefits, so I would be so happy. I'll keep you posted. Thanks for your kind words. ) Hugs, Dawn vsjsas3 wrote: > Dawn, > > I read your posts and was so upset that you were denied. I know how > desperate you must feel but you must know that you have to keep > fighting. > > Congratulations on the specialists. This may just be what you need > to get approved as you now know that your current Rheumy will be no > help to you. > > Hopefully until you get your appointment your husband will be able > to get a permanent job to take some of the pressure off. This is a > sure sign that things will start to look up for you. I am always > praying for you and your family. > > Venita > > > > I finally have some good news to report!!!! So, I took up Mike's > advice > > and called the MDAC to see if perhaps they had a list of > specialists who > > treat PM. I spoke to a woman there a couple months ago and she was > a > > gem and sent me a bunch of info. on PM (nothing I didn't know from > > research and this group) and also some info. on the MDAC. When I > called > > her this morning, she remembered me and I told her my predicament. > She > > said to me " you do know there's no specialists in this part of our > > country don't you? " and I said, " yeah, I figured as much " and was > > extremely bummed. She said it would most likely be Ontario where > I'd > > have to go. She said to get a referral from my family Dr. (who I > go see > > tomorrow) and the MDAC > > WILL FLY Kirk and I out for my appointment. We would have to pay > for > > our own hotel accomodations, but they have air miles that they save > for > > cases just like mine!! I couldn't believe it. I started crying > right > > there. She said there will most likely be a wait (perhaps even 6 > > mths.), but at least I'll be on the waiting list. She's going to > send > > me a registration form to register with the MDAC (I think I threw > out > > the other one I had.....OOPS!!) and they'll immediately set aside > the > > air miles it takes to fly us out. Isn't that awesome news?????? > > > > Dawn > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 No, I missed that one. LOL. Isn't there a Mt. Sinai in California where all the celebrities go or am I thinking of something else. I'm trying to find a couple others in case I can't get in there, but can't come up with anything. ARGH!! Maybe my Dr. will know. Dawn mrsxanadu@... wrote: > I am all for Mt. Sinai. Did you see that the gift shop has Godiva > Chocolates???? Go, go, go!! > > Zanna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 No, I missed that one. LOL. Isn't there a Mt. Sinai in California where all the celebrities go or am I thinking of something else. I'm trying to find a couple others in case I can't get in there, but can't come up with anything. ARGH!! Maybe my Dr. will know. Dawn mrsxanadu@... wrote: > I am all for Mt. Sinai. Did you see that the gift shop has Godiva > Chocolates???? Go, go, go!! > > Zanna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 No, I missed that one. LOL. Isn't there a Mt. Sinai in California where all the celebrities go or am I thinking of something else. I'm trying to find a couple others in case I can't get in there, but can't come up with anything. ARGH!! Maybe my Dr. will know. Dawn mrsxanadu@... wrote: > I am all for Mt. Sinai. Did you see that the gift shop has Godiva > Chocolates???? Go, go, go!! > > Zanna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hi Dawn, That is good news. Last night I was laying in bed thinking over your problem and thought that I would suggest you contact MDA to see if they can be of any help. It is good that Mike beat me to it. I hope you are successful and finally get your disability. When I was dx i 93 I still worked until Feb 96. I was on massive doses of Prednisone for the first year then was tapered down to maintainence dosage. The PM didn't get any better but it became more difficult for me to work as a painter in the hospital in Howell where I worked for 24 yrs. I also had my rheumy fill out that i couldn't walk but about a block before it became difficult, couldn't climb strairs as easily as before and many other problems. I hope you and your husband have a safe trip and come back with good news. Ed #2 > >Reply-To: OurMyositis >To: " OurMyositis " <OurMyositis > >Subject: OH MY GOSH!!! >Date: Tue, 10 Sep 2002 11:36:38 -0300 > >I finally have some good news to report!!!! So, I took up Mike's advice >and called the MDAC to see if perhaps they had a list of specialists who >treat PM. I spoke to a woman there a couple months ago and she was a >gem and sent me a bunch of info. on PM (nothing I didn't know from >research and this group) and also some info. on the MDAC. When I called >her this morning, she remembered me and I told her my predicament. She >said to me " you do know there's no specialists in this part of our >country don't you? " and I said, " yeah, I figured as much " and was >extremely bummed. She said it would most likely be Ontario where I'd >have to go. She said to get a referral from my family Dr. (who I go see >tomorrow) and the MDAC >WILL FLY Kirk and I out for my appointment. We would have to pay for >our own hotel accomodations, but they have air miles that they save for >cases just like mine!! I couldn't believe it. I started crying right >there. She said there will most likely be a wait (perhaps even 6 >mths.), but at least I'll be on the waiting list. She's going to send >me a registration form to register with the MDAC (I think I threw out >the other one I had.....OOPS!!) and they'll immediately set aside the >air miles it takes to fly us out. Isn't that awesome news?????? > >Dawn > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hi Dawn, That is good news. Last night I was laying in bed thinking over your problem and thought that I would suggest you contact MDA to see if they can be of any help. It is good that Mike beat me to it. I hope you are successful and finally get your disability. When I was dx i 93 I still worked until Feb 96. I was on massive doses of Prednisone for the first year then was tapered down to maintainence dosage. The PM didn't get any better but it became more difficult for me to work as a painter in the hospital in Howell where I worked for 24 yrs. I also had my rheumy fill out that i couldn't walk but about a block before it became difficult, couldn't climb strairs as easily as before and many other problems. I hope you and your husband have a safe trip and come back with good news. Ed #2 > >Reply-To: OurMyositis >To: " OurMyositis " <OurMyositis > >Subject: OH MY GOSH!!! >Date: Tue, 10 Sep 2002 11:36:38 -0300 > >I finally have some good news to report!!!! So, I took up Mike's advice >and called the MDAC to see if perhaps they had a list of specialists who >treat PM. I spoke to a woman there a couple months ago and she was a >gem and sent me a bunch of info. on PM (nothing I didn't know from >research and this group) and also some info. on the MDAC. When I called >her this morning, she remembered me and I told her my predicament. She >said to me " you do know there's no specialists in this part of our >country don't you? " and I said, " yeah, I figured as much " and was >extremely bummed. She said it would most likely be Ontario where I'd >have to go. She said to get a referral from my family Dr. (who I go see >tomorrow) and the MDAC >WILL FLY Kirk and I out for my appointment. We would have to pay for >our own hotel accomodations, but they have air miles that they save for >cases just like mine!! I couldn't believe it. I started crying right >there. She said there will most likely be a wait (perhaps even 6 >mths.), but at least I'll be on the waiting list. She's going to send >me a registration form to register with the MDAC (I think I threw out >the other one I had.....OOPS!!) and they'll immediately set aside the >air miles it takes to fly us out. Isn't that awesome news?????? > >Dawn > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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