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Lelia

Still in the low & middle 90's here. We get a

day of 89 and think it is a cold wave.....LOL

I'm certainly ready for fall. There is a big

Arts & Crafts here this weekend but it's too

hot for me to go. drat

Teddi

mailto:teddifromok@...

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Lelia

Still in the low & middle 90's here. We get a

day of 89 and think it is a cold wave.....LOL

I'm certainly ready for fall. There is a big

Arts & Crafts here this weekend but it's too

hot for me to go. drat

Teddi

mailto:teddifromok@...

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Do you have something for your car so you can get your scooter in and out by yourself?? I wish I had something like that. I can only take my scooter with if I have someone to lift in the car for me....

Zanna

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Do you have something for your car so you can get your scooter in and out by yourself?? I wish I had something like that. I can only take my scooter with if I have someone to lift in the car for me....

Zanna

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Do you have something for your car so you can get your scooter in and out by yourself?? I wish I had something like that. I can only take my scooter with if I have someone to lift in the car for me....

Zanna

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I have an electric hoist. The only problem

is that my trunk is small and it is a tight fit

which means I have to tug to get it over

the edge of the trunk so the hoist can

lower it to the ground. Also you have to

take the seat off and put it in the back seat

of the car. That means luggng it to the

scooter and getting it centered on the

holder. After sitting on it the seat settles

so it means yanking trying to get it off.

It's a real job and wears me out.

Had hopes of getting an outside lift but

found out my car isn't heavy enough to

take the type of hitch it needs. I need

a mini van but can't afford it. Owe too

much on my car to trade it in yet.

Teddi

mailto:teddifromok@...

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I have an electric hoist. The only problem

is that my trunk is small and it is a tight fit

which means I have to tug to get it over

the edge of the trunk so the hoist can

lower it to the ground. Also you have to

take the seat off and put it in the back seat

of the car. That means luggng it to the

scooter and getting it centered on the

holder. After sitting on it the seat settles

so it means yanking trying to get it off.

It's a real job and wears me out.

Had hopes of getting an outside lift but

found out my car isn't heavy enough to

take the type of hitch it needs. I need

a mini van but can't afford it. Owe too

much on my car to trade it in yet.

Teddi

mailto:teddifromok@...

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I have an electric hoist. The only problem

is that my trunk is small and it is a tight fit

which means I have to tug to get it over

the edge of the trunk so the hoist can

lower it to the ground. Also you have to

take the seat off and put it in the back seat

of the car. That means luggng it to the

scooter and getting it centered on the

holder. After sitting on it the seat settles

so it means yanking trying to get it off.

It's a real job and wears me out.

Had hopes of getting an outside lift but

found out my car isn't heavy enough to

take the type of hitch it needs. I need

a mini van but can't afford it. Owe too

much on my car to trade it in yet.

Teddi

mailto:teddifromok@...

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Either type would probably work in your

blazer. I don't know about your insurance

but mine doesn't care if you ever leave the

house........they don't pay a cent.

Teddi

mailto:teddifromok@...

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I am thinking that will be what my insurance says. They had no hesitations paying for this 12,000,00 infusion of IVIg but they are not paying a 300.00 bill for my chest CT because they need a letter of necessity after paying for the hundreds of x-rays and PFTs, they still won't pay for this without yet another letter from my doctor which no doubt, I will have to pay for too......can't win!!! I have been tracking all my medical costs right down to mileage. It is unbelievable what we have spent. Can't imagine not having my hubby's income as well. I say a lot of 'thank God's' every day!!!!

Zanna

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Hi Teddi, you haven't been getting any/much rain in the city? It was

raining yesterday morn when we got up and rained until around 1:00pm.

It started again sometime in the night. beck got up at 3am and it was

raining then and at 5am when I got up it was really raining hard. It

rained here until around 10am. I was glad to see the rain but it

still seems very humid. It makes it hard for me to breath when the

humitity is up. I hope you got some rain. Beck talked to her mom

today, in Edmond they didn't get as much rain as we did either. Hope

your feeling well. Lem

> Hey Lem

>

> ........A little cooler today, just 98. It started raining a while

ago,

> its coming down pretty good, hope it rains for a while. Hope it

doesn't

> just make it hotter with humidity........

>

> Hey, no fair!!! How come you get rain and I

> don't?

>

>

> ......Whats my favorite ice cream? Lemon of course, LOL No, I am

> kidding. Do they make lemon flavor?.........

>

> Yes, Virginia, there is a Santa Clause.....

> Braum's makes a Lemon Custard ice cream

> that is sooooooo good...Ya gotta try it!

>

>

> Teddi

> mailto:teddifromok@w...

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Hi Teddi, you haven't been getting any/much rain in the city? It was

raining yesterday morn when we got up and rained until around 1:00pm.

It started again sometime in the night. beck got up at 3am and it was

raining then and at 5am when I got up it was really raining hard. It

rained here until around 10am. I was glad to see the rain but it

still seems very humid. It makes it hard for me to breath when the

humitity is up. I hope you got some rain. Beck talked to her mom

today, in Edmond they didn't get as much rain as we did either. Hope

your feeling well. Lem

> Hey Lem

>

> ........A little cooler today, just 98. It started raining a while

ago,

> its coming down pretty good, hope it rains for a while. Hope it

doesn't

> just make it hotter with humidity........

>

> Hey, no fair!!! How come you get rain and I

> don't?

>

>

> ......Whats my favorite ice cream? Lemon of course, LOL No, I am

> kidding. Do they make lemon flavor?.........

>

> Yes, Virginia, there is a Santa Clause.....

> Braum's makes a Lemon Custard ice cream

> that is sooooooo good...Ya gotta try it!

>

>

> Teddi

> mailto:teddifromok@w...

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Hi Teddi, you haven't been getting any/much rain in the city? It was

raining yesterday morn when we got up and rained until around 1:00pm.

It started again sometime in the night. beck got up at 3am and it was

raining then and at 5am when I got up it was really raining hard. It

rained here until around 10am. I was glad to see the rain but it

still seems very humid. It makes it hard for me to breath when the

humitity is up. I hope you got some rain. Beck talked to her mom

today, in Edmond they didn't get as much rain as we did either. Hope

your feeling well. Lem

> Hey Lem

>

> ........A little cooler today, just 98. It started raining a while

ago,

> its coming down pretty good, hope it rains for a while. Hope it

doesn't

> just make it hotter with humidity........

>

> Hey, no fair!!! How come you get rain and I

> don't?

>

>

> ......Whats my favorite ice cream? Lemon of course, LOL No, I am

> kidding. Do they make lemon flavor?.........

>

> Yes, Virginia, there is a Santa Clause.....

> Braum's makes a Lemon Custard ice cream

> that is sooooooo good...Ya gotta try it!

>

>

> Teddi

> mailto:teddifromok@w...

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Lem

We finally got some rain last night. Still

raining lightly this morning. Weird how it

goes isn't it? My granddaughter lives west

of Council Road and they get a lot more

violent weather than we do here.

Have you sent Beck out to Braums for some

lemon custard ice cream yet? <vbg>

Teddi

mailto:teddifromok@...

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Lem

We finally got some rain last night. Still

raining lightly this morning. Weird how it

goes isn't it? My granddaughter lives west

of Council Road and they get a lot more

violent weather than we do here.

Have you sent Beck out to Braums for some

lemon custard ice cream yet? <vbg>

Teddi

mailto:teddifromok@...

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  • 2 weeks later...

Oh Teddi, what a horrible experience. I hate having IV's put in.

I was hospitalized for a week once and they had to change the IV's and take blood every 2 hours. It just burned after a while to have a needle inserted. For a long time I had to have them use butterfly syringes but now for the past few years it hasn't bothered me so much.

Don't blame you, though, only give 'em one chance!! LOL

Zanna

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Oh Teddi, what a horrible experience. I hate having IV's put in.

I was hospitalized for a week once and they had to change the IV's and take blood every 2 hours. It just burned after a while to have a needle inserted. For a long time I had to have them use butterfly syringes but now for the past few years it hasn't bothered me so much.

Don't blame you, though, only give 'em one chance!! LOL

Zanna

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Oh Teddi, what a horrible experience. I hate having IV's put in.

I was hospitalized for a week once and they had to change the IV's and take blood every 2 hours. It just burned after a while to have a needle inserted. For a long time I had to have them use butterfly syringes but now for the past few years it hasn't bothered me so much.

Don't blame you, though, only give 'em one chance!! LOL

Zanna

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When I was in the hospital last Jan. for 5 weeks, they had to change my

IV every 5 days or so. One day after the nurse changed it, I was having

my lunch and glanced down at my arm and it was as purple as a plum and

looked like it had been blown up like a balloon. There was one part of

my lower arm that literally had this huge air pocket blown into it. I

immediately buzzed the nurse and was screaming and crying for someone to

come quick. The nurse came in and removed the IV and explained that the

IV had gotten dis-located and ended up in the tissue and muscle instead

of the vein. I was never so scared in my life. The purple bruise

covered my entire lower arm and remained that lovely hue for about 3

weeks. Scary....

Dawn

mrsxanadu@... wrote:

> Oh Teddi, what a horrible experience. I hate having IV's put in.

>

> I was hospitalized for a week once and they had to change the IV's and

> take blood every 2 hours. It just burned after a while to have a

> needle inserted. For a long time I had to have them use butterfly

> syringes but now for the past few years it hasn't bothered me so much.

>

> Don't blame you, though, only give 'em one chance!! LOL

>

> Zanna

>

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  • 2 weeks later...

Hi Teddi, we passed through Teddi town today. Beck went to see her

neuro. She had a good check up.

Teddi, what is your drs. name? I need a doctor that knows about DM

and is interested about my well being. I did get my papers sent in to

the MDA. There is a MDA clinic at Childrens hospital in OKC. I hope

to be able to see a dr. there but they told me it would take 4-6

weeks to get a appt. I am totally sick and disgusted with the whole

business.

Glad to hear you are feeling well and able to do your beading. I am

still working on phs camero and I think we will have it done this

week. Lem

> Lem

>

> Get another doctor NOW!!! That jerk either

> doesn't know anything about DM or he is

> nuts. Do NOT go down on your pred 1 mg

> a week. Especially when you get to the

> lower doses you have to be careful. My

> dr took me from 10 to 8 for a month then

> down 2 more the next month. Now I am

> down to 5mg and I will be going down 1 mg

> every 2 months. I am so sorry this dr

> didn't work out.......it is so hard to find

> anyone who really knows anything about DM.

>

>

> Teddi

> mailto:teddifromok@w...

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Hi Teddi, we passed through Teddi town today. Beck went to see her

neuro. She had a good check up.

Teddi, what is your drs. name? I need a doctor that knows about DM

and is interested about my well being. I did get my papers sent in to

the MDA. There is a MDA clinic at Childrens hospital in OKC. I hope

to be able to see a dr. there but they told me it would take 4-6

weeks to get a appt. I am totally sick and disgusted with the whole

business.

Glad to hear you are feeling well and able to do your beading. I am

still working on phs camero and I think we will have it done this

week. Lem

> Lem

>

> Get another doctor NOW!!! That jerk either

> doesn't know anything about DM or he is

> nuts. Do NOT go down on your pred 1 mg

> a week. Especially when you get to the

> lower doses you have to be careful. My

> dr took me from 10 to 8 for a month then

> down 2 more the next month. Now I am

> down to 5mg and I will be going down 1 mg

> every 2 months. I am so sorry this dr

> didn't work out.......it is so hard to find

> anyone who really knows anything about DM.

>

>

> Teddi

> mailto:teddifromok@w...

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