Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Hi everybody - I had my appt. with Dr. Trentham yesterday. He spent more time with me than my first 15 min appt., and seemed very nice. I was surprised, however, when he told me that his diagnosis is strictly FMS, not RA with FMS, as my previous Dr had diagnosed. I was surprised, to say the least. He is also sending me back to my primary care for treatment (I've tried everything under the sun for the FMS, with no alleviation of the pain or swelling in my hands. Now I know that he has a terrific reputation, and is very educated in his field. I need some opinions, though. Does anyone think that a Dr - even a well respected Dr - can make a diagnosis without examining a patient??? He checked the records that I brought with me, and he said that the blood work didn't indicate RA. He does know (and respect) the first Dr I saw who gave me the first diagnosis of just FMS alone - I am hoping the psychology of not wanting to oppose a collegue isn't playing a part in diagnosis. So here I am... I can't try the AP because he says I don't have RA (don't get me wrong, I would prefer not to have the destruction action of RA), but I worry that this is the right diagnosis. And he says I don't have Familial Mediterranian Fever, either. When I pressed him to explain the why of his statement, he told me I just dont' have it. You know, I don't care how long a dr goes to school, and how many papers they write, I STILL deserve an explanation why... this is MY body that is in torment, no one else.At least he did agree with me that the cortisone shots the other dr gave me was not recommended. (he also told me one my first [15 min] visit that I also did not have Lyme disease, when I questioned him about that....) I am so sick of pointless dr visits!!! I did make progress with a gastroenterologist I saw last wk. After my former primary care diagnosed H. Pylori in May, I finally found someone who is treating it. Plus he wants me to have the dreaded colonoscopy to rule out any serious problems in my colon. I hate the thought of going through it, but I do have colon cancer in my family, so I agree with him. He was shocked that I've been given a diagnosis of umbilica hernia w/out any tests. Sorry for the long note.... I'm feeling so confused. I don't know what to do... Lyn _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Lynn Years ago the drs. at first told me my blood didn't show it and I was in very bad shape, so if you need to get a biopsy of your tissues, I had RA and FMA. but it didn't show up for years until I couldn't walk then they checked the tissues and found it sometimes the blood tests aren't enough. FMA can be as bad as the RA, so just try to get to the bottom of it, and don't give up if you don't get better right away. from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Hi Lyn: Just a few thoughts. Based on prior personal experience, I agree with Pierre that sometimes bringing a lot of records from prior drs. can be counterproductive at times. Did Dr. Trentham order any bloodwork for you himself? (In past illnesses, I've had hosp. lab screw ups several times and other dr's retests proved it.) Anyway, Dr. Trentham is my RA dr. and I did bring in all the prior blood work/drs. records but then again, I already had positive RF factor which took 9 months to show up - I just wanted the AP rather than the methotrexate, prednisone, etc. Rhode Island drs. were pushing on me. I know your frustration, believe me. Do try to keep focused and not get frustrated (hard, I know). I think a great part of the frustration is " am I being correctly diagnosed " ? That in itself can be maddening but stay the course, follow through with dr. after dr. if you have to. I've done it for THREE diseases, two were rare and took 3 yrs. to diagnose. The RA took 9 months and 9 drs. which, in light of my prior experience, was not so bad...in retrospect. During the search for dx., I was angry, weepy, pissed off, depressed but I knew if I kept researching, going through the visits, getting tested, etc. I'd get there. You will too. Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Dear Lynn, If you use the link below, you can contact the researchers at NIH (the National Institute of Health) to test your blood for free to see if you have FMF. They are listed at the end of the article. felicidades, Felicia www.backrescue.com/Melungeon.html Everything you need to know about your back pain (but your doctor was too busy to explain!) PS I know docs are a pain...for all the wrong reasons, too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Dear Lyn, I've just realised that I've written to you twice about the diet. I am still finding my way on the net. Anyhow, the diet has helped so many people. I have been on hundreds of diets but this one makes sense. used to recommend all raw but found that people could not stick to it.So now he suggests 85% raw and 15% cooked. People are getting great results on this. I must admit we probably have more cooked than 15% but we have not had any animal products for 15 months. The other thing he recommends is Barley Green. We found it very expensive to buy through the multi-level marketing company so we grow our own and juice it with our carrot juice. It is cheap and fresh. If you can get to one of his free seminars you will understand why this diet works. He has a video called " How to Eliminate Sickness. " It was such an eye-opener to us. Every time we watch it we learn more. We had the pleasure of meeting him when he came to Australia last year. We found him to be very humble and honest. He has also been very quick to answer any queries we have had despite his hectic schedule. I hope this helps, Wishing you health, Rosemary. Re: rheumatic Not RA? > > > > > > > Hi everybody - > > > > > > I had my appt. with Dr. Trentham yesterday. He spent more time with me > >than > > > my first 15 min appt., and seemed very nice. I was surprised, however, > >when > > > he told me that his diagnosis is strictly FMS, not RA with FMS, as my > > > previous Dr had diagnosed. > > > > > > I was surprised, to say the least. He is also sending me back to my > >primary > > > care for treatment (I've tried everything under the sun for the FMS, > >with > >no > > > alleviation of the pain or swelling in my hands. > > > > > > Now I know that he has a terrific reputation, and is very educated in > >his > > > field. I need some opinions, though. Does anyone think that a Dr - even > >a > > > well respected Dr - can make a diagnosis without examining a patient??? > >He > > > checked the records that I brought with me, and he said that the blood > >work > > > didn't indicate RA. He does know (and respect) the first Dr I saw who > >gave > > > me the first diagnosis of just FMS alone - I am hoping the psychology of > >not > > > wanting to oppose a collegue isn't playing a part in diagnosis. > > > > > > So here I am... I can't try the AP because he says I don't have RA > >(don't > > > get me wrong, I would prefer not to have the destruction action of RA), > >but > > > I worry that this is the right diagnosis. And he says I don't have > >Familial > > > Mediterranian Fever, either. When I pressed him to explain the why of > >his > > > statement, he told me I just dont' have it. You know, I don't care how > >long > > > a dr goes to school, and how many papers they write, I STILL deserve an > > > explanation why... this is MY body that is in torment, no one else.At > >least > > > he did agree with me that the cortisone shots the other dr gave me was > >not > > > recommended. (he also told me one my first [15 min] visit that I also > >did > > > not have Lyme disease, when I questioned him about that....) > > > > > > I am so sick of pointless dr visits!!! > > > > > > I did make progress with a gastroenterologist I saw last wk. After my > >former > > > primary care diagnosed H. Pylori in May, I finally found someone who is > > > treating it. Plus he wants me to have the dreaded colonoscopy to rule > >out > > > any serious problems in my colon. I hate the thought of going through > >it, > > > but I do have colon cancer in my family, so I agree with him. He was > >shocked > > > that I've been given a diagnosis of umbilica hernia w/out any tests. > > > > > > Sorry for the long note.... I'm feeling so confused. I don't know what > >to > > > do... > > > > > > Lyn > ============================== > > > Dear Lyn, > >I suffer from Fibromyalgia and Chronic Fatigue Syndrome.(22 years of it!) I > >have done a lot of research into this and beleive the antibiotic protocol > >will work for me. I have been on it for 3 months and have had some strong > > " herx " reactions which is a confirmation that I am on the right track. I > >have heard of others with FMS who have recovered on this treatment. I spoke > >on the phone to Dr. Byron in Texas who lost his medical > >practice because of his FMS. He is now in remission and back at work due to > >the antibiotic therapy. He is also treating others with C.F.S and FMS and > >getting excellent results. If I were you I would find a doctor who will > >prescribe it and persevere with it. Another thing that has helped me a lot > >is the Hallelujah diet. For more info look up www.hacres.com I have been on > >the diet for 15 months and my migraines have mostly dissappeared along with > >many other horrible symptoms. As for your concerns about the colonoscopy > >and > >bowel cancer, please check out the diet. Many people have recovered fully > >from bowel cancer on this diet. > >And finally, I don't want to sound preachy, but I have foud that Jesus is > >the only one who loves you and knows your situation. He is the one who has > >the answers for you. When you get confused and scared, call on Him. > >Hope this helps, > >Rosemary. > >allrosy@... > > > > > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 Who authored " How to Eliminate Sickness " . I am really interested. Thanks, Carol Quote Link to comment Share on other sites More sharing options...
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