Re: Approved for CCRS

January 6, 2004

In a message dated 1/6/2004 2:47:19 PM Eastern Standard Time,

design@... writes:

> >Can anyone tell me if this is true?

> >I was under the impression that they had aids that only amplify the high

> >frequencies, and you don't have to have a low frequency loss to wear them.

> >I think she is thinking standard aids and not specifically high frequency

> >ones. I don't know, and most on here aren't dealing with a low dB loss

> like

> >we are. She also said they start aiding usually at 30 dB, but not in this

> >case, but I questioned her on this about how kids show adverse effects

> >educationally with a 16 dB loss, and she was like yes but they don't aid

> >them. Well maybe they don't but many people do, and I am a little anoyd

> >that they don't.

>

When our son was initially diagnosed, his loses were 25-30 db in his right

ear and 15-20 in his left. The audiologist told us that the 15 db loss should be

aided as well. He was rather adamant about it, but our son was not at all

thrilled with the idea of 2 aides. However, Ian did want one. So we compromised

and at first we aided his " bad " ear, the right. He got so much help from that

one aide that he asked for the second one even before our aggreed " testing

time " was up. Unlike other kids we'd heard about, Ian LOVED his aides and has

never fought them.

We were also fighting with the school district, trying to force them to

recognize Ian's hearing loss as being educationally significant and to classify

him. The audiologist pointed us to several studies which showed that a 15 db

loss

can have significant adverse affects on education. He also mapped Ian's

audiograms onto a chart that contained a pale blue banana shape and little

labels

as to where spoken sounds are heard in standard conversation. We took that with

us to the next IEP as documentation proving just how our son's loss was

impacting his ability to access the information/education in the classroom. I

don't

remember where the studies were done, and I cannot lay my hands on that file

right now. It was about 5 years ago, so I don't know where I've filed it.

So, you are correct in thinking that a 15 db loss is important. Ian's loss

now drops down to 50-55 db loss in both ears for all the mid-range frequencies.

In retrospect, I wish we'd aided that other ear sooner -- the sooner he would

have had access to more language. But we followed his lead and did it the

right way for him.

Best of luck - Jill

January 6, 2004

In a message dated 1/6/2004 2:47:19 PM Eastern Standard Time,

design@... writes:

> >Can anyone tell me if this is true?

> >I was under the impression that they had aids that only amplify the high

> >frequencies, and you don't have to have a low frequency loss to wear them.

> >I think she is thinking standard aids and not specifically high frequency

> >ones. I don't know, and most on here aren't dealing with a low dB loss

> like

> >we are. She also said they start aiding usually at 30 dB, but not in this

> >case, but I questioned her on this about how kids show adverse effects

> >educationally with a 16 dB loss, and she was like yes but they don't aid

> >them. Well maybe they don't but many people do, and I am a little anoyd

> >that they don't.

>

When our son was initially diagnosed, his loses were 25-30 db in his right

ear and 15-20 in his left. The audiologist told us that the 15 db loss should be

aided as well. He was rather adamant about it, but our son was not at all

thrilled with the idea of 2 aides. However, Ian did want one. So we compromised

and at first we aided his " bad " ear, the right. He got so much help from that

one aide that he asked for the second one even before our aggreed " testing

time " was up. Unlike other kids we'd heard about, Ian LOVED his aides and has

never fought them.

We were also fighting with the school district, trying to force them to

recognize Ian's hearing loss as being educationally significant and to classify

him. The audiologist pointed us to several studies which showed that a 15 db

loss

can have significant adverse affects on education. He also mapped Ian's

audiograms onto a chart that contained a pale blue banana shape and little

labels

as to where spoken sounds are heard in standard conversation. We took that with

us to the next IEP as documentation proving just how our son's loss was

impacting his ability to access the information/education in the classroom. I

don't

remember where the studies were done, and I cannot lay my hands on that file

right now. It was about 5 years ago, so I don't know where I've filed it.

So, you are correct in thinking that a 15 db loss is important. Ian's loss

now drops down to 50-55 db loss in both ears for all the mid-range frequencies.

In retrospect, I wish we'd aided that other ear sooner -- the sooner he would

have had access to more language. But we followed his lead and did it the

right way for him.

Best of luck - Jill

January 6, 2004

In a message dated 1/6/2004 2:47:19 PM Eastern Standard Time,

design@... writes:

> >Can anyone tell me if this is true?

> >I was under the impression that they had aids that only amplify the high

> >frequencies, and you don't have to have a low frequency loss to wear them.

> >I think she is thinking standard aids and not specifically high frequency

> >ones. I don't know, and most on here aren't dealing with a low dB loss

> like

> >we are. She also said they start aiding usually at 30 dB, but not in this

> >case, but I questioned her on this about how kids show adverse effects

> >educationally with a 16 dB loss, and she was like yes but they don't aid

> >them. Well maybe they don't but many people do, and I am a little anoyd

> >that they don't.

>

When our son was initially diagnosed, his loses were 25-30 db in his right

ear and 15-20 in his left. The audiologist told us that the 15 db loss should be

aided as well. He was rather adamant about it, but our son was not at all

thrilled with the idea of 2 aides. However, Ian did want one. So we compromised

and at first we aided his " bad " ear, the right. He got so much help from that

one aide that he asked for the second one even before our aggreed " testing

time " was up. Unlike other kids we'd heard about, Ian LOVED his aides and has

never fought them.

We were also fighting with the school district, trying to force them to

recognize Ian's hearing loss as being educationally significant and to classify

him. The audiologist pointed us to several studies which showed that a 15 db

loss

can have significant adverse affects on education. He also mapped Ian's

audiograms onto a chart that contained a pale blue banana shape and little

labels

as to where spoken sounds are heard in standard conversation. We took that with

us to the next IEP as documentation proving just how our son's loss was

impacting his ability to access the information/education in the classroom. I

don't

remember where the studies were done, and I cannot lay my hands on that file

right now. It was about 5 years ago, so I don't know where I've filed it.

So, you are correct in thinking that a 15 db loss is important. Ian's loss

now drops down to 50-55 db loss in both ears for all the mid-range frequencies.

In retrospect, I wish we'd aided that other ear sooner -- the sooner he would

have had access to more language. But we followed his lead and did it the

right way for him.

Best of luck - Jill

January 6, 2004

In a message dated 1/6/2004 2:34:38 PM Eastern Standard Time,

enriquez16@... writes:

I would really like to know what LE means

Perhaps it means " left ear " I'm guessing. I don't know the specifics on the

hearing aid question but I assumed the programmables were suited to adjust

for low and high frequency. My son has the Phonic Ear Sono Forte programmables

and the audi adjusts those specifically to his hearing loss in the different

frequencies.

's mom, 3yrs, CI 7/30/02

January 6, 2004

In a message dated 1/6/2004 2:34:38 PM Eastern Standard Time,

enriquez16@... writes:

I would really like to know what LE means

Perhaps it means " left ear " I'm guessing. I don't know the specifics on the

hearing aid question but I assumed the programmables were suited to adjust

for low and high frequency. My son has the Phonic Ear Sono Forte programmables

and the audi adjusts those specifically to his hearing loss in the different

frequencies.

's mom, 3yrs, CI 7/30/02

January 6, 2004

In a message dated 1/6/2004 2:34:38 PM Eastern Standard Time,

enriquez16@... writes:

I would really like to know what LE means

Perhaps it means " left ear " I'm guessing. I don't know the specifics on the

hearing aid question but I assumed the programmables were suited to adjust

for low and high frequency. My son has the Phonic Ear Sono Forte programmables

and the audi adjusts those specifically to his hearing loss in the different

frequencies.

's mom, 3yrs, CI 7/30/02

January 6, 2004

HI ,

My daughter's hearing loss is worse in the low freq. She has a

moderate rising to mild loss. We were discussing hearing aids today and are

going

with digital. I asked about being able to program each freq. and increasing the

low freq. Her audi told me that they do not like to amplify the low freq to

much because they can easily be overamplified and actually make speech

recognition worse if they are overamplified. I don't know if this is what you

audi

meant or not but I thought I would mention it.

January 6, 2004

HI ,

My daughter's hearing loss is worse in the low freq. She has a

moderate rising to mild loss. We were discussing hearing aids today and are

going

with digital. I asked about being able to program each freq. and increasing the

low freq. Her audi told me that they do not like to amplify the low freq to

much because they can easily be overamplified and actually make speech

recognition worse if they are overamplified. I don't know if this is what you

audi

meant or not but I thought I would mention it.

January 6, 2004

-

PDHH has audiologists on that list that can answer these audiology

questions. Not only are they audiologists - they also have children who are

deaf. I know that one of the audiologists has children with other needs

besides being deaf.

Have your doctors looked into having auditory neuropathy?

Or CAPD?

>

_________________________________________________________________

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January 6, 2004

-

PDHH has audiologists on that list that can answer these audiology

questions. Not only are they audiologists - they also have children who are

deaf. I know that one of the audiologists has children with other needs

besides being deaf.

Have your doctors looked into having auditory neuropathy?

Or CAPD?

>

_________________________________________________________________

Get reliable dial-up Internet access now with our limited-time introductory

offer. http://join.msn.com/?page=dept/dialup

January 6, 2004

-

PDHH has audiologists on that list that can answer these audiology

questions. Not only are they audiologists - they also have children who are

deaf. I know that one of the audiologists has children with other needs

besides being deaf.

Have your doctors looked into having auditory neuropathy?

Or CAPD?

>

_________________________________________________________________

Get reliable dial-up Internet access now with our limited-time introductory

offer. http://join.msn.com/?page=dept/dialup

January 6, 2004

Just wanted to let you know , that my son Ian wears digital aids for

high frequency loss ONLY.. they can program the digital aids to amplify only

what your son needs. ALSO, on the school issue... get the book " NO CHILD

LEFT BEHIND " , that comes from a Mom of a child with Angelman's Syndrome who

had to fight for her son's rights to get a public funded education.

--

Thanks,

Tillery

Birmingham, AL

Ian (3-1/2 yrs HI Moderate/Severe - Aids)

Emma (7 yrs Hearing)

on 1/6/04 1:11 PM, Joe & at enriquez16@... wrote:

> Can anyone tell me if this is true?

> I was under the impression that they had aids that only amplify the high

> frequencies, and you don't have to have a low frequency loss to wear them.

> I think she is thinking standard aids and not specifically high frequency

> ones. I don't know, and most on here aren't dealing with a low dB loss like

> we are. She also said they start aiding usually at 30 dB, but not in this

> case, but I questioned her on this about how kids show adverse effects

> educationally with a 16 dB loss, and she was like yes but they don't aid

> them. Well maybe they don't but many people do, and I am a little anoyd

> that they don't.

January 6, 2004