Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Helen Where are you being treated? Ian > Hi everyone, > I have been a member of this group for quite a while and had my > thyroid removed nearly four year ago. I have not been reading the > post for quite a while, this was partly due to the fact that you guys > made me doubt the treatment i am receiving and i havent read anything > on the board for some time. > > Well now im back and as usual I have questions, some of which you > guys have probably answered loads of time but im going to ask all the > same. > > I have an appointment with my oncologist on thrusday and i was > hopeing someone would be able to answer the following: > > I have been on thryoid replacement for about 3 1/2 years (thryoxine) > and have never been on the same dose for more than 6 months. My dose > has gone up and down. The most i have been on was 8 months ago and i > was on 500mg per day this has nothing to do with weight, this was > because they have not been able to supress my tsh levels. Well sice > then ive gone down to 400mg, 350mg, 300mg and 250mg and at this point > my doctor told me for a normal person i would be slightly ober > medicated but she was frightened to drop my does any lower as my TSH > level would rise. Then the other day i had to take my son to see my > gp and she said she was glad i had taken him as she needed to see me > she had sent my results throught to my oncologist and she had told my > GP to riase my thyroxine again as my YSH levels were not suppressed > enough. So im now back on 300mg per day. OK guys im so sorry this is > so long winded but im so confused. What should my TSH and T4 level > be??? and what effect are all these tablets having on my body. Im > not sure if i was slightly over medicated according to my Gp on 250mg > per day why am i now on 300mg per day. How long did it take you guys > to get you medication levels right as i think 4 years is a bit too > long. > > 2nd question.... I live in the UK and im not sure if all thyroid > cancer patients here a treated the same way but as i said I was > suppose to have had a total thyroidectomy done and my surgeon decided > during the op that things looked better than he had hoped (good news > right...) well unfortunately not two weeks later when my labv results > came back it turned out that i did indeed have folicular cancer and > they decided they could remove the rest with radioactive iodine (this > all seems fairly normal right?) well my surgeon told me they would do > the iodine thing and then i would have to have a body scan to see if > they could trace anything else. I have never had this scan. Well to > this day this is all the treatment i have had apart from the messing > about with my medication and they feel my neck and take my blood > every 6 months (the blood thing has been done every 8 weeks by my GP > this year as they have been trying to get the medication right) sorry > im rambling on and on but you all talk about doing the lid and scans > and ive never had them is it just me or is this normal??????? > > As i said i had a 4cm folicular tumour which they did removed or at > least i hope they did. > > |Please help. Maybe its normal and if there was a problem then this > would show up in my blood test right???? or maybe not as my blood > tests were normal and showed no problems thyroid or other even with > the tumour. > > As you can see im desperate and need advice anyhing anyone wants to > comment on would be much apreciated. > > Many thanks for taking the time to read this novel > > Helen (34 years old), thyroid cancer removed 1998 december, > Pseudotumour cerebri diagnosed October 1999, 5 surgeries in 4 years > and still trying to get myself sorted out. Im a medical marvel :-) Ian Adam Radiation Safety Officer The Institute of Cancer Research Cotswold Road Sutton Surrey SM2 5NG Tel: 020 8722 4250 Fax: 020 8722 4300 EMail: iana@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Helen Where are you being treated? Ian > Hi everyone, > I have been a member of this group for quite a while and had my > thyroid removed nearly four year ago. I have not been reading the > post for quite a while, this was partly due to the fact that you guys > made me doubt the treatment i am receiving and i havent read anything > on the board for some time. > > Well now im back and as usual I have questions, some of which you > guys have probably answered loads of time but im going to ask all the > same. > > I have an appointment with my oncologist on thrusday and i was > hopeing someone would be able to answer the following: > > I have been on thryoid replacement for about 3 1/2 years (thryoxine) > and have never been on the same dose for more than 6 months. My dose > has gone up and down. The most i have been on was 8 months ago and i > was on 500mg per day this has nothing to do with weight, this was > because they have not been able to supress my tsh levels. Well sice > then ive gone down to 400mg, 350mg, 300mg and 250mg and at this point > my doctor told me for a normal person i would be slightly ober > medicated but she was frightened to drop my does any lower as my TSH > level would rise. Then the other day i had to take my son to see my > gp and she said she was glad i had taken him as she needed to see me > she had sent my results throught to my oncologist and she had told my > GP to riase my thyroxine again as my YSH levels were not suppressed > enough. So im now back on 300mg per day. OK guys im so sorry this is > so long winded but im so confused. What should my TSH and T4 level > be??? and what effect are all these tablets having on my body. Im > not sure if i was slightly over medicated according to my Gp on 250mg > per day why am i now on 300mg per day. How long did it take you guys > to get you medication levels right as i think 4 years is a bit too > long. > > 2nd question.... I live in the UK and im not sure if all thyroid > cancer patients here a treated the same way but as i said I was > suppose to have had a total thyroidectomy done and my surgeon decided > during the op that things looked better than he had hoped (good news > right...) well unfortunately not two weeks later when my labv results > came back it turned out that i did indeed have folicular cancer and > they decided they could remove the rest with radioactive iodine (this > all seems fairly normal right?) well my surgeon told me they would do > the iodine thing and then i would have to have a body scan to see if > they could trace anything else. I have never had this scan. Well to > this day this is all the treatment i have had apart from the messing > about with my medication and they feel my neck and take my blood > every 6 months (the blood thing has been done every 8 weeks by my GP > this year as they have been trying to get the medication right) sorry > im rambling on and on but you all talk about doing the lid and scans > and ive never had them is it just me or is this normal??????? > > As i said i had a 4cm folicular tumour which they did removed or at > least i hope they did. > > |Please help. Maybe its normal and if there was a problem then this > would show up in my blood test right???? or maybe not as my blood > tests were normal and showed no problems thyroid or other even with > the tumour. > > As you can see im desperate and need advice anyhing anyone wants to > comment on would be much apreciated. > > Many thanks for taking the time to read this novel > > Helen (34 years old), thyroid cancer removed 1998 december, > Pseudotumour cerebri diagnosed October 1999, 5 surgeries in 4 years > and still trying to get myself sorted out. Im a medical marvel :-) Ian Adam Radiation Safety Officer The Institute of Cancer Research Cotswold Road Sutton Surrey SM2 5NG Tel: 020 8722 4250 Fax: 020 8722 4300 EMail: iana@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Hello Helen, Greetings - I'm from the UK too, although I live/work most of the time in Holland. I had half my thyroid removed in London and the other half in Holland! > (snip) > I live in the UK and im not sure if all thyroid > cancer patients here a treated the same way but as i said I was > suppose to have had a total thyroidectomy done and my surgeon > decided during the op that things looked better than he had hoped > (good news right...) well unfortunately not two weeks later when my > labv results came back it turned out that i did indeed have > folicular cancer and they decided they could remove the rest with > radioactive iodine (this all seems fairly normal right?) well my > surgeon told me they would do the iodine thing and then i would have > to have a body scan to see if they could trace anything else. I have > never had this scan. Well to this day this is all the treatment i > have had apart from the messing about with my medication and they > feel my neck and take my blood every 6 months (the blood thing has > been done every 8 weeks by my GP this year as they have been trying > to get the medication right) There are aspects of your treatment that do look unusual to me. Although not all doctors agree about some aspects of how to treat thyroid cancer, it sounds incredibly sloppy that you were told that you would have a scan after your radioiodine treatment (RAI) and yet this hasn't been done. I would recommend that you put it high on the list of things to talk about with your specialist, and preferably get him to arrange this, or explain why not - perhaps there's some reason that we can't figure out through this list why it hasn't been done. I'm not a doctor, but from all that I have read and been told it is crucial to remove all functioning thyroid tissue in order to be able to follow you properly, either by scans or thyroglobulin measurements or a combination of these. I am sorry to learn it is taking so long to get your thyroxine dose stabilised. Others have already explained about the level of TSH to aim at. The other thing I'm wondering about is whether you're taking other medication at the same time, or taking the thyroxine too close to meal times? This can affect whether they absorb properly. The tablets can also lose potency if they're stored too long or in a warm place. > sorry im rambling on and on but you all talk about doing the lid and > scans and ive never had them is it just me or is this normal??????? These questions are very sensible ones it seems to me. LID = Low Iodine Diet. It is usually recommended before an RAI scan or treatment in order to starve the thyroid cells of iodine and improve the uptake of RAI. As I understand it the LID is recommended in the UK. Don't worry if it wasn't mentioned to you at the time of your RAI treatment, but I would recommend you do follow it if you are able to arrange a scan. Re scans - this is a subject that not all thyca specialists agree on. Although the *gold standard* in the United States is for patients to undergo an annual RAI scan at least twice after having a clean scan, and many patients carry on having periodic scans after that, this is unusual in the UK and in Europe. Many doctors here only scan " low risk " patients if and when there is suspicion of recurrence, for example, when the thyroglobulin (Tg) rises. In my case, I had a single ablative dose of RAI and a clean scan several months later, and that was 20 years ago. Since then I have been followed on blood tests (Tg, Free T4, TSH) and neck palpation. It is difficult to read the posts on this listserv about people undergoing their scans and not feel to a certain extent *deprived*, but in my own case, there is no evidence of disease, and from what I have read of the results in European centres this approach seems to have some arguments going for it always provided that you continue having regular check-ups by an appropriate specialist. If you would like more information you might be interested to know that the British Thyroid Association issued very comprehensive guidelines for the treatment of thyroid cancer earlier this year. There is also a shorter version for GP's. You can read or download the guidelines at the following site: http://www.british-thyroid-association.org There is also a British Thyroid Foundation for thyroid patients of all types, including thyroid cancer. The BTF has support groups throughout England and there might be one near you perhaps? If you're not already aware of this and would like details, let me know. I'm a member, but I don't have the details to hand right now. Hope this helps, and good luck and best wishes for your appointment later this week, Judith (British living in Holland) dx 1965 pap thyca T4-N1-M0 pt 1965 / tt/rai 1982 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Hello Helen, Greetings - I'm from the UK too, although I live/work most of the time in Holland. I had half my thyroid removed in London and the other half in Holland! > (snip) > I live in the UK and im not sure if all thyroid > cancer patients here a treated the same way but as i said I was > suppose to have had a total thyroidectomy done and my surgeon > decided during the op that things looked better than he had hoped > (good news right...) well unfortunately not two weeks later when my > labv results came back it turned out that i did indeed have > folicular cancer and they decided they could remove the rest with > radioactive iodine (this all seems fairly normal right?) well my > surgeon told me they would do the iodine thing and then i would have > to have a body scan to see if they could trace anything else. I have > never had this scan. Well to this day this is all the treatment i > have had apart from the messing about with my medication and they > feel my neck and take my blood every 6 months (the blood thing has > been done every 8 weeks by my GP this year as they have been trying > to get the medication right) There are aspects of your treatment that do look unusual to me. Although not all doctors agree about some aspects of how to treat thyroid cancer, it sounds incredibly sloppy that you were told that you would have a scan after your radioiodine treatment (RAI) and yet this hasn't been done. I would recommend that you put it high on the list of things to talk about with your specialist, and preferably get him to arrange this, or explain why not - perhaps there's some reason that we can't figure out through this list why it hasn't been done. I'm not a doctor, but from all that I have read and been told it is crucial to remove all functioning thyroid tissue in order to be able to follow you properly, either by scans or thyroglobulin measurements or a combination of these. I am sorry to learn it is taking so long to get your thyroxine dose stabilised. Others have already explained about the level of TSH to aim at. The other thing I'm wondering about is whether you're taking other medication at the same time, or taking the thyroxine too close to meal times? This can affect whether they absorb properly. The tablets can also lose potency if they're stored too long or in a warm place. > sorry im rambling on and on but you all talk about doing the lid and > scans and ive never had them is it just me or is this normal??????? These questions are very sensible ones it seems to me. LID = Low Iodine Diet. It is usually recommended before an RAI scan or treatment in order to starve the thyroid cells of iodine and improve the uptake of RAI. As I understand it the LID is recommended in the UK. Don't worry if it wasn't mentioned to you at the time of your RAI treatment, but I would recommend you do follow it if you are able to arrange a scan. Re scans - this is a subject that not all thyca specialists agree on. Although the *gold standard* in the United States is for patients to undergo an annual RAI scan at least twice after having a clean scan, and many patients carry on having periodic scans after that, this is unusual in the UK and in Europe. Many doctors here only scan " low risk " patients if and when there is suspicion of recurrence, for example, when the thyroglobulin (Tg) rises. In my case, I had a single ablative dose of RAI and a clean scan several months later, and that was 20 years ago. Since then I have been followed on blood tests (Tg, Free T4, TSH) and neck palpation. It is difficult to read the posts on this listserv about people undergoing their scans and not feel to a certain extent *deprived*, but in my own case, there is no evidence of disease, and from what I have read of the results in European centres this approach seems to have some arguments going for it always provided that you continue having regular check-ups by an appropriate specialist. If you would like more information you might be interested to know that the British Thyroid Association issued very comprehensive guidelines for the treatment of thyroid cancer earlier this year. There is also a shorter version for GP's. You can read or download the guidelines at the following site: http://www.british-thyroid-association.org There is also a British Thyroid Foundation for thyroid patients of all types, including thyroid cancer. The BTF has support groups throughout England and there might be one near you perhaps? If you're not already aware of this and would like details, let me know. I'm a member, but I don't have the details to hand right now. Hope this helps, and good luck and best wishes for your appointment later this week, Judith (British living in Holland) dx 1965 pap thyca T4-N1-M0 pt 1965 / tt/rai 1982 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Hi Helen Welcome back to the list. I am from the UK but now live in Dublin. I was treated in Nottingham for 10 years but now have follow up in Ireland. I didn't see an endocrinologist for the first 10 years after pt ( for follicular cancer, vascular invasion) - I was told that my remaining half of thyroid would make up the thyroxine that I needed so I was never prescribed any medication When my consultant retired I was then referred to an Endo who decided that I should have a completion tt - I had that last year in Nottingham, started taking thyroxine but haven't really felt the same since! I am now with an Endo here in Dublin (long story) who is treating me by the book but I can't say that I feel as good as I did before my last op. I' m currently taking 250mcg thyroxine and am well suppressed but my Endo will consider increasing the dose if I feel it's necessary. My blood results show much too much thyroxine in my system but it's what I need to function. Good luck and best wishes in Dublin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Hi Helen Welcome back to the list. I am from the UK but now live in Dublin. I was treated in Nottingham for 10 years but now have follow up in Ireland. I didn't see an endocrinologist for the first 10 years after pt ( for follicular cancer, vascular invasion) - I was told that my remaining half of thyroid would make up the thyroxine that I needed so I was never prescribed any medication When my consultant retired I was then referred to an Endo who decided that I should have a completion tt - I had that last year in Nottingham, started taking thyroxine but haven't really felt the same since! I am now with an Endo here in Dublin (long story) who is treating me by the book but I can't say that I feel as good as I did before my last op. I' m currently taking 250mcg thyroxine and am well suppressed but my Endo will consider increasing the dose if I feel it's necessary. My blood results show much too much thyroxine in my system but it's what I need to function. Good luck and best wishes in Dublin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Kat wrote: <<am currently on Xanax and trying paxil which I don't think works and gives me palps>> I use Xanax (generic) when the prematures start up. Since I know that prematures lead to AF, I naturally get strung up over them, which of course leads to more of them which in turn makes it all the more likely that I will get AF. Xanax does not prevent prematures, but it breaks the chain of anxiety producing more of them than I would otherwise have. Paxil, on the other hand, can cause tension as a side effect, which I don't think would be helpful. No doctor has ever suggested Paxil to me. <<not being able to have an ablation because of too much generalization of the AF>> I'm not sure what you mean by this one. People who have been in chronic AF for years can develop fibrosis that rules out ablation. Other than that, " generalization " would need to be established, I think, by an EP mapping the various focal points, and that would have been done, usually, just prior to an ablation itself. Have you been through this? <<basically all over the place>> That's a pretty good description of how AF feels. <<having symptoms more in the evenings>> That's me except I have even more when asleep, which is when 75% of my episodes start. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/1/04 7:06:19 PM Pacific Daylight Time, hppy1kat@... writes: > 2. going from AF to SVT, basically all over the place. Well, that one is me. And it's scary as hell when it happens. The SVT is more reassuring as it's hard but regular, then it'll switch to a-fib and then back to SVT. An ER doc told me this was impossible by the way. NOT a cardiologist who said it is entirely possible. Give me great faith in medical personnel. I also can't take meds for the a-fib due to damage to my heart from the SVT ablation I had a year ago (which also didn't work). Other " stress " meds don't work well on me either. I've gotten into meditating and doing deep " belly breathing " and such things ... it sounds silly, but it truly does help. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/1/04 7:06:19 PM Pacific Daylight Time, hppy1kat@... writes: > 2. going from AF to SVT, basically all over the place. Well, that one is me. And it's scary as hell when it happens. The SVT is more reassuring as it's hard but regular, then it'll switch to a-fib and then back to SVT. An ER doc told me this was impossible by the way. NOT a cardiologist who said it is entirely possible. Give me great faith in medical personnel. I also can't take meds for the a-fib due to damage to my heart from the SVT ablation I had a year ago (which also didn't work). Other " stress " meds don't work well on me either. I've gotten into meditating and doing deep " belly breathing " and such things ... it sounds silly, but it truly does help. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/1/04 7:06:19 PM Pacific Daylight Time, hppy1kat@... writes: > 2. going from AF to SVT, basically all over the place. Well, that one is me. And it's scary as hell when it happens. The SVT is more reassuring as it's hard but regular, then it'll switch to a-fib and then back to SVT. An ER doc told me this was impossible by the way. NOT a cardiologist who said it is entirely possible. Give me great faith in medical personnel. I also can't take meds for the a-fib due to damage to my heart from the SVT ablation I had a year ago (which also didn't work). Other " stress " meds don't work well on me either. I've gotten into meditating and doing deep " belly breathing " and such things ... it sounds silly, but it truly does help. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 >I keep telling my GP that Xanax works and Paxil does not! That is why I wanted something to begin with. I felt like I was crawling out of my skin and I had this tingling, warming sensation up both arms. Being on the Xanax really has helped that. Kathy, Xanax kicks in quite quickly, Paxil can take weeks. However, you want to be careful not to take Xanax except when you really need it. If you wind up taking it every day, even at a low dose, it is addictive. The tingling warming sensation on your arms is anxiety-produced. I can have that happen when I'm anxious. When I'm really flamed out it feels almost like burning and can extend to the back, legs, etc. Just thought you might want to know, so you don't start imagining something is physically wrong :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 >I keep telling my GP that Xanax works and Paxil does not! That is why I wanted something to begin with. I felt like I was crawling out of my skin and I had this tingling, warming sensation up both arms. Being on the Xanax really has helped that. Kathy, Xanax kicks in quite quickly, Paxil can take weeks. However, you want to be careful not to take Xanax except when you really need it. If you wind up taking it every day, even at a low dose, it is addictive. The tingling warming sensation on your arms is anxiety-produced. I can have that happen when I'm anxious. When I'm really flamed out it feels almost like burning and can extend to the back, legs, etc. Just thought you might want to know, so you don't start imagining something is physically wrong :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 >I keep telling my GP that Xanax works and Paxil does not! That is why I wanted something to begin with. I felt like I was crawling out of my skin and I had this tingling, warming sensation up both arms. Being on the Xanax really has helped that. Kathy, Xanax kicks in quite quickly, Paxil can take weeks. However, you want to be careful not to take Xanax except when you really need it. If you wind up taking it every day, even at a low dose, it is addictive. The tingling warming sensation on your arms is anxiety-produced. I can have that happen when I'm anxious. When I'm really flamed out it feels almost like burning and can extend to the back, legs, etc. Just thought you might want to know, so you don't start imagining something is physically wrong :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/2/04 7:57:48 AM Eastern Daylight Time, hppy1kat@... writes: > Could not find the right spots to do the ablation. It is like it is all > over the place and no one path causing the problem. > Kat, Where did you have your heart work up done? Who was your electophysiologist (EP)? Thanks Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/2/04 7:57:48 AM Eastern Daylight Time, hppy1kat@... writes: > Could not find the right spots to do the ablation. It is like it is all > over the place and no one path causing the problem. > Kat, Where did you have your heart work up done? Who was your electophysiologist (EP)? Thanks Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/2/04 7:57:48 AM Eastern Daylight Time, hppy1kat@... writes: > Could not find the right spots to do the ablation. It is like it is all > over the place and no one path causing the problem. > Kat, Where did you have your heart work up done? Who was your electophysiologist (EP)? Thanks Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 I took Xanax during my Afib episode to help me sleep, but it definitely did not help the Afib. Larry > >I keep telling my GP that > Xanax works and Paxil does not! That is why I wanted something to > begin with. > I felt like I was crawling out of my skin and I had this tingling, > warming > sensation up both arms. Being on the Xanax really has helped that. > > > Kathy, Xanax kicks in quite quickly, Paxil can take weeks. However, > you want to be careful not to take Xanax except when you really need > it. If you wind up taking it every day, even at a low dose, it is > addictive. > > The tingling warming sensation on your arms is anxiety-produced. I > can have that happen when I'm anxious. When I'm really flamed out it > feels almost like burning and can extend to the back, legs, etc. > Just thought you might want to know, so you don't start imagining > something is physically wrong :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 I took Xanax during my Afib episode to help me sleep, but it definitely did not help the Afib. Larry > >I keep telling my GP that > Xanax works and Paxil does not! That is why I wanted something to > begin with. > I felt like I was crawling out of my skin and I had this tingling, > warming > sensation up both arms. Being on the Xanax really has helped that. > > > Kathy, Xanax kicks in quite quickly, Paxil can take weeks. However, > you want to be careful not to take Xanax except when you really need > it. If you wind up taking it every day, even at a low dose, it is > addictive. > > The tingling warming sensation on your arms is anxiety-produced. I > can have that happen when I'm anxious. When I'm really flamed out it > feels almost like burning and can extend to the back, legs, etc. > Just thought you might want to know, so you don't start imagining > something is physically wrong :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 I took Xanax during my Afib episode to help me sleep, but it definitely did not help the Afib. Larry > >I keep telling my GP that > Xanax works and Paxil does not! That is why I wanted something to > begin with. > I felt like I was crawling out of my skin and I had this tingling, > warming > sensation up both arms. Being on the Xanax really has helped that. > > > Kathy, Xanax kicks in quite quickly, Paxil can take weeks. However, > you want to be careful not to take Xanax except when you really need > it. If you wind up taking it every day, even at a low dose, it is > addictive. > > The tingling warming sensation on your arms is anxiety-produced. I > can have that happen when I'm anxious. When I'm really flamed out it > feels almost like burning and can extend to the back, legs, etc. > Just thought you might want to know, so you don't start imagining > something is physically wrong :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 > In a message dated 5/2/04 7:57:48 AM Eastern Daylight Time, > hppy1kat@... writes: > > > Could not find the right spots to do the ablation. It is like it is all > > over the place and no one path causing the problem. ******************************************** Kat, maybe they only mapped the right side of your heart, I had that done in 1996 and " There was nothing found to ablate " I was 3 hours on the table. Most Afib starts in the left atrium around the pulmonary veins. Ella PS: BTW that's called a EPS study Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 > In a message dated 5/2/04 7:57:48 AM Eastern Daylight Time, > hppy1kat@... writes: > > > Could not find the right spots to do the ablation. It is like it is all > > over the place and no one path causing the problem. ******************************************** Kat, maybe they only mapped the right side of your heart, I had that done in 1996 and " There was nothing found to ablate " I was 3 hours on the table. Most Afib starts in the left atrium around the pulmonary veins. Ella PS: BTW that's called a EPS study Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 In a message dated 5/2/04 6:20:26 PM Eastern Daylight Time, hppy1kat@... writes: > Toledo, OH Hi Kat, Thanks for the information. You may or may not know, that the #1 heart hospital in the US and possibly the world, is the Cleveland Clinic. Two hours from you! Their top EP specializing in AF and pulmonary vein ablations is a Dr. Natale. Several on this board have him as their EP. If your EP had a difficult read on your heart electrical system, ask him if a visit to the Cleveland Clinic and seeing Dr. Natale is warranted. He will know Dr. Natale. Have a great day. Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 In a message dated 5/2/04 6:20:26 PM Eastern Daylight Time, hppy1kat@... writes: > Toledo, OH Hi Kat, Thanks for the information. You may or may not know, that the #1 heart hospital in the US and possibly the world, is the Cleveland Clinic. Two hours from you! Their top EP specializing in AF and pulmonary vein ablations is a Dr. Natale. Several on this board have him as their EP. If your EP had a difficult read on your heart electrical system, ask him if a visit to the Cleveland Clinic and seeing Dr. Natale is warranted. He will know Dr. Natale. Have a great day. Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 I agree -- a doctor who is available via email is definitely a keeper -- you're right! When I said I worked my way up slowly, I meant that I started on 1/4 grain (15 mg) and waited about 2 weeks to increase by 1/4 grains up until 1 whole grain. Then it's best to wait 4-6 weeks between increases ... Some say to wait 4-6 weeks in the beginning too -- so there's no rule to it but it is important to know that you won't feel the full effects of the T4 in the thyroid med for 3-6 weeks approximately ... that's why it's so important to go slow ... plus it's a big adjustment for the body. Have you already posted your lab results? I can't remember, if not, get them and post them as we are up on current ranges plus how to interpret them ... not all doctors are good about it. Marlena --- hsinthecountry wrote: > > > Hi , > > Is this 60mg of Armour? If so, yes, usually this > is > > too high a dose to start at right away. I started > at > > 15mg and worked my way up slowly -- it is gentler > on > > the body ... however if you are tolerating it ok > ... > > I'm not sure ... > > It is generic Armour. When you say " worked your way > up slowly " , how > slowly? > > > > what concerns me is that your doctor > > called you and changed his mind -- that signals to > me > > that he might not be that experienced with > > hypothyroidism. It is a complex disorder and > treatment > > can be even more complex -- make sure he really > knows > > what he's doing. > > At this point, he is willing to work with me. When > he did the blood > test, he said that the TSH was within the normal > range. While doing > some research into my husband's health problems, I > learned that the > ranges had changes and that borderline high TSH with > symptoms should > be treated as hypo. > > I really like that he's so accessible - send an > email, get a reply > within an hour or so, sometimes within minutes. So > for now I'll > continue educating both of us. (hehe) > > > Thanks! > > > > > ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 i have symptoms too and my tsh is over 2.0 it is 2.035. but i need a new dr cause he is telling me that we need no more testing to be done im fine Quote Link to comment Share on other sites More sharing options...
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