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ur godo marion i knew there cant be jsut one charer in one country lol

>

> Bonni,

> I have been in contact with a parent in South Africa and have a doctor

> for your friend to contact. I will reply to you privately with the

> informaiton.

> n

>

> bcoetzer@... wrote:

>

> > This is excellent,wish more people in South Africa knew about this,who

> > knows

> > its now up to us to do that.

> > Just to let you know Cherise(nearly 2 months old) might go home next

> > week,mom had some training the past week to bath her with the

> trachy,sure

> > she will come right.

> > She is doing so well,the arterys in her heart also closed on its own.

> > Thank you for all the prayers and encouragement.

> > Please if there is anybody in South Africa on this mailing list please

> get

> > in contact with us.

> > Thank you

> > Kind regards

>

> --

>

> n A Norbury, Executive Director

> CHARGE Syndrome Foundation Inc

> 409 Vandiver Dr Ste 5-104

> Columbia MO 65202-1563

> voice/fax; families

> email: marion@...

>

>

>

>

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ur godo marion i knew there cant be jsut one charer in one country lol

>

> Bonni,

> I have been in contact with a parent in South Africa and have a doctor

> for your friend to contact. I will reply to you privately with the

> informaiton.

> n

>

> bcoetzer@... wrote:

>

> > This is excellent,wish more people in South Africa knew about this,who

> > knows

> > its now up to us to do that.

> > Just to let you know Cherise(nearly 2 months old) might go home next

> > week,mom had some training the past week to bath her with the

> trachy,sure

> > she will come right.

> > She is doing so well,the arterys in her heart also closed on its own.

> > Thank you for all the prayers and encouragement.

> > Please if there is anybody in South Africa on this mailing list please

> get

> > in contact with us.

> > Thank you

> > Kind regards

>

> --

>

> n A Norbury, Executive Director

> CHARGE Syndrome Foundation Inc

> 409 Vandiver Dr Ste 5-104

> Columbia MO 65202-1563

> voice/fax; families

> email: marion@...

>

>

>

>

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Thank you so much.

God bless.

Family in South Africa

Bonni,

I have been in contact with a parent in South Africa and have a doctor

for your friend to contact. I will reply to you privately with the

informaiton.

n

bcoetzer@... wrote:

> This is excellent,wish more people in South Africa knew about this,who

> knows

> its now up to us to do that.

> Just to let you know Cherise(nearly 2 months old) might go home next

> week,mom had some training the past week to bath her with the trachy,sure

> she will come right.

> She is doing so well,the arterys in her heart also closed on its own.

> Thank you for all the prayers and encouragement.

> Please if there is anybody in South Africa on this mailing list please get

> in contact with us.

> Thank you

> Kind regards

--

n A Norbury, Executive Director

CHARGE Syndrome Foundation Inc

409 Vandiver Dr Ste 5-104

Columbia MO 65202-1563

voice/fax; families

email: marion@...

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Share on other sites

Thank you so much.

God bless.

Family in South Africa

Bonni,

I have been in contact with a parent in South Africa and have a doctor

for your friend to contact. I will reply to you privately with the

informaiton.

n

bcoetzer@... wrote:

> This is excellent,wish more people in South Africa knew about this,who

> knows

> its now up to us to do that.

> Just to let you know Cherise(nearly 2 months old) might go home next

> week,mom had some training the past week to bath her with the trachy,sure

> she will come right.

> She is doing so well,the arterys in her heart also closed on its own.

> Thank you for all the prayers and encouragement.

> Please if there is anybody in South Africa on this mailing list please get

> in contact with us.

> Thank you

> Kind regards

--

n A Norbury, Executive Director

CHARGE Syndrome Foundation Inc

409 Vandiver Dr Ste 5-104

Columbia MO 65202-1563

voice/fax; families

email: marion@...

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Share on other sites

This message is especially for those who attended the 1999 Conference in

Houston. You may remember the family from South Africa who were there -

Theo, Antoinette, and -, who is now 8. This is the family I

contacted for Bonni. Theo reports that they are all doing well and they

have added two boys (5 & 3) to their family, both healthy!

n

ellen howe wrote:

> ur godo marion i knew there cant be jsut one charer in one country lol

>

>

> >

> > Bonni,

> > I have been in contact with a parent in South Africa and have a doctor

> > for your friend to contact. I will reply to you privately with the

> > informaiton.

> > n

> >

> > bcoetzer@... wrote:

> >

> > > This is excellent,wish more people in South Africa knew about this,who

> > > knows

> > > its now up to us to do that.

> > > Just to let you know Cherise(nearly 2 months old) might go home next

> > > week,mom had some training the past week to bath her with the

> > trachy,sure

> > > she will come right.

> > > She is doing so well,the arterys in her heart also closed on its own.

> > > Thank you for all the prayers and encouragement.

> > > Please if there is anybody in South Africa on this mailing list please

> > get

> > > in contact with us.

> > > Thank you

> > > Kind regards

> >

> > --

> >

> > n A Norbury, Executive Director

> > CHARGE Syndrome Foundation Inc

> > 409 Vandiver Dr Ste 5-104

> > Columbia MO 65202-1563

> > voice/fax; families

> > email: marion@...

> >

> >

> >

> >

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I remember them well and am glad they are all well. Kim

> This message is especially for those who attended the 1999 Conference in

> Houston. You may remember the family from South Africa who were there -

> Theo, Antoinette, and -, who is now 8. This is the family I

> contacted for Bonni. Theo reports that they are all doing well and they

> have added two boys (5 & 3) to their family, both healthy!

> n

>

> ellen howe wrote:

>

>> ur godo marion i knew there cant be jsut one charer in one country lol

>>

>>

>>>

>>> Bonni,

>>> I have been in contact with a parent in South Africa and have a doctor

>>> for your friend to contact. I will reply to you privately with the

>>> informaiton.

>>> n

>>>

>>> bcoetzer@... wrote:

>>>

>>>> This is excellent,wish more people in South Africa knew about this,who

>>>> knows

>>>> its now up to us to do that.

>>>> Just to let you know Cherise(nearly 2 months old) might go home next

>>>> week,mom had some training the past week to bath her with the

>>> trachy,sure

>>>> she will come right.

>>>> She is doing so well,the arterys in her heart also closed on its own.

>>>> Thank you for all the prayers and encouragement.

>>>> Please if there is anybody in South Africa on this mailing list please

>>> get

>>>> in contact with us.

>>>> Thank you

>>>> Kind regards

>>>

>>> --

>>>

>>> n A Norbury, Executive Director

>>> CHARGE Syndrome Foundation Inc

>>> 409 Vandiver Dr Ste 5-104

>>> Columbia MO 65202-1563

>>> voice/fax; families

>>> email: marion@...

>>>

>>>

>>>

>>>

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I think I do remember them. It's fun to hear an update and know that tbey

are well and expanded! It's especially awesome to know that the Foundation

can have such a far-reaching effect. It is profoundly helpful for a new

family to find someone near them -- especially in South Africa where they

were feeling entirely alone.

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

Re: Family in South Africa

This message is especially for those who attended the 1999 Conference in

Houston. You may remember the family from South Africa who were there -

Theo, Antoinette, and -, who is now 8. This is the family I

contacted for Bonni. Theo reports that they are all doing well and they

have added two boys (5 & 3) to their family, both healthy!

n

ellen howe wrote:

> ur godo marion i knew there cant be jsut one charer in one country lol

>

>

> >

> > Bonni,

> > I have been in contact with a parent in South Africa and have a doctor

> > for your friend to contact. I will reply to you privately with the

> > informaiton.

> > n

> >

> > bcoetzer@... wrote:

> >

> > > This is excellent,wish more people in South Africa knew about this,who

> > > knows

> > > its now up to us to do that.

> > > Just to let you know Cherise(nearly 2 months old) might go home next

> > > week,mom had some training the past week to bath her with the

> > trachy,sure

> > > she will come right.

> > > She is doing so well,the arterys in her heart also closed on its own.

> > > Thank you for all the prayers and encouragement.

> > > Please if there is anybody in South Africa on this mailing list please

> > get

> > > in contact with us.

> > > Thank you

> > > Kind regards

> >

> > --

> >

> > n A Norbury, Executive Director

> > CHARGE Syndrome Foundation Inc

> > 409 Vandiver Dr Ste 5-104

> > Columbia MO 65202-1563

> > voice/fax; families

> > email: marion@...

> >

> >

> >

> >

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i seem to remember another oen around there to

>

> I remember them well and am glad they are all well. Kim

>

>

>

>

> > This message is especially for those who attended the 1999 Conference in

> > Houston. You may remember the family from South Africa who were there -

> > Theo, Antoinette, and -, who is now 8. This is the family I

> > contacted for Bonni. Theo reports that they are all doing well and they

> > have added two boys (5 & 3) to their family, both healthy!

> > n

> >

> > ellen howe wrote:

> >

> >> ur godo marion i knew there cant be jsut one charer in one country lol

> >>

> >>

> >>>

> >>> Bonni,

> >>> I have been in contact with a parent in South Africa and have a doctor

> >>> for your friend to contact. I will reply to you privately with the

> >>> informaiton.

> >>> n

> >>>

> >>> bcoetzer@... wrote:

> >>>

> >>>> This is excellent,wish more people in South Africa knew about

> this,who

> >>>> knows

> >>>> its now up to us to do that.

> >>>> Just to let you know Cherise(nearly 2 months old) might go home next

> >>>> week,mom had some training the past week to bath her with the

> >>> trachy,sure

> >>>> she will come right.

> >>>> She is doing so well,the arterys in her heart also closed on its own.

> >>>> Thank you for all the prayers and encouragement.

> >>>> Please if there is anybody in South Africa on this mailing list

> please

> >>> get

> >>>> in contact with us.

> >>>> Thank you

> >>>> Kind regards

> >>>

> >>> --

> >>>

> >>> n A Norbury, Executive Director

> >>> CHARGE Syndrome Foundation Inc

> >>> 409 Vandiver Dr Ste 5-104

> >>> Columbia MO 65202-1563

> >>> voice/fax; families

> >>> email: marion@...

> >>>

> >>>

> >>>

> >>>

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please let me know if you remember who the others were,Lana did get in touch

with the Fereiras in pta,they will meet up soon.

Thank you so much

Re: Family in South Africa

i seem to remember another oen around there to

>

> I remember them well and am glad they are all well. Kim

>

>

>

>

> > This message is especially for those who attended the 1999 Conference in

> > Houston. You may remember the family from South Africa who were there -

> > Theo, Antoinette, and -, who is now 8. This is the family I

> > contacted for Bonni. Theo reports that they are all doing well and they

> > have added two boys (5 & 3) to their family, both healthy!

> > n

> >

> > ellen howe wrote:

> >

> >> ur godo marion i knew there cant be jsut one charer in one country lol

> >>

> >>

> >>>

> >>> Bonni,

> >>> I have been in contact with a parent in South Africa and have a doctor

> >>> for your friend to contact. I will reply to you privately with the

> >>> informaiton.

> >>> n

> >>>

> >>> bcoetzer@... wrote:

> >>>

> >>>> This is excellent,wish more people in South Africa knew about

> this,who

> >>>> knows

> >>>> its now up to us to do that.

> >>>> Just to let you know Cherise(nearly 2 months old) might go home next

> >>>> week,mom had some training the past week to bath her with the

> >>> trachy,sure

> >>>> she will come right.

> >>>> She is doing so well,the arterys in her heart also closed on its own.

> >>>> Thank you for all the prayers and encouragement.

> >>>> Please if there is anybody in South Africa on this mailing list

> please

> >>> get

> >>>> in contact with us.

> >>>> Thank you

> >>>> Kind regards

> >>>

> >>> --

> >>>

> >>> n A Norbury, Executive Director

> >>> CHARGE Syndrome Foundation Inc

> >>> 409 Vandiver Dr Ste 5-104

> >>> Columbia MO 65202-1563

> >>> voice/fax; families

> >>> email: marion@...

> >>>

> >>>

> >>>

> >>>

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i think it was a family dont remember thier names might of even been those

people just seen them on the list but there was another family i think and

their child died coz i remember seeing it in the archives once coz mum

talked to them on here hugs ellen

On 23/02/06, bcoetzer@...

wrote:

>

> please let me know if you remember who the others were,Lana did get in

> touch

> with the Fereiras in pta,they will meet up soon.

> Thank you so much

>

> Re: Family in South Africa

>

>

> i seem to remember another oen around there to

>

>

> >

> > I remember them well and am glad they are all well. Kim

> >

> >

> >

> >

> > > This message is especially for those who attended the 1999 Conference

> in

> > > Houston. You may remember the family from South Africa who were there

> -

> > > Theo, Antoinette, and -, who is now 8. This is the family

> I

> > > contacted for Bonni. Theo reports that they are all doing well and

> they

> > > have added two boys (5 & 3) to their family, both healthy!

> > > n

> > >

> > > ellen howe wrote:

> > >

> > >> ur godo marion i knew there cant be jsut one charer in one country

> lol

> > >>

> > >>

> > >>>

> > >>> Bonni,

> > >>> I have been in contact with a parent in South Africa and have a

> doctor

> > >>> for your friend to contact. I will reply to you privately with the

> > >>> informaiton.

> > >>> n

> > >>>

> > >>> bcoetzer@... wrote:

> > >>>

> > >>>> This is excellent,wish more people in South Africa knew about

> > this,who

> > >>>> knows

> > >>>> its now up to us to do that.

> > >>>> Just to let you know Cherise(nearly 2 months old) might go home

> next

> > >>>> week,mom had some training the past week to bath her with the

> > >>> trachy,sure

> > >>>> she will come right.

> > >>>> She is doing so well,the arterys in her heart also closed on its

> own.

> > >>>> Thank you for all the prayers and encouragement.

> > >>>> Please if there is anybody in South Africa on this mailing list

> > please

> > >>> get

> > >>>> in contact with us.

> > >>>> Thank you

> > >>>> Kind regards

> > >>>

> > >>> --

> > >>>

> > >>> n A Norbury, Executive Director

> > >>> CHARGE Syndrome Foundation Inc

> > >>> 409 Vandiver Dr Ste 5-104

> > >>> Columbia MO 65202-1563

> > >>> voice/fax; families

> > >>> email: marion@...

> > >>>

> > >>>

> > >>>

> > >>>

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i think it was a family dont remember thier names might of even been those

people just seen them on the list but there was another family i think and

their child died coz i remember seeing it in the archives once coz mum

talked to them on here hugs ellen

On 23/02/06, bcoetzer@...

wrote:

>

> please let me know if you remember who the others were,Lana did get in

> touch

> with the Fereiras in pta,they will meet up soon.

> Thank you so much

>

> Re: Family in South Africa

>

>

> i seem to remember another oen around there to

>

>

> >

> > I remember them well and am glad they are all well. Kim

> >

> >

> >

> >

> > > This message is especially for those who attended the 1999 Conference

> in

> > > Houston. You may remember the family from South Africa who were there

> -

> > > Theo, Antoinette, and -, who is now 8. This is the family

> I

> > > contacted for Bonni. Theo reports that they are all doing well and

> they

> > > have added two boys (5 & 3) to their family, both healthy!

> > > n

> > >

> > > ellen howe wrote:

> > >

> > >> ur godo marion i knew there cant be jsut one charer in one country

> lol

> > >>

> > >>

> > >>>

> > >>> Bonni,

> > >>> I have been in contact with a parent in South Africa and have a

> doctor

> > >>> for your friend to contact. I will reply to you privately with the

> > >>> informaiton.

> > >>> n

> > >>>

> > >>> bcoetzer@... wrote:

> > >>>

> > >>>> This is excellent,wish more people in South Africa knew about

> > this,who

> > >>>> knows

> > >>>> its now up to us to do that.

> > >>>> Just to let you know Cherise(nearly 2 months old) might go home

> next

> > >>>> week,mom had some training the past week to bath her with the

> > >>> trachy,sure

> > >>>> she will come right.

> > >>>> She is doing so well,the arterys in her heart also closed on its

> own.

> > >>>> Thank you for all the prayers and encouragement.

> > >>>> Please if there is anybody in South Africa on this mailing list

> > please

> > >>> get

> > >>>> in contact with us.

> > >>>> Thank you

> > >>>> Kind regards

> > >>>

> > >>> --

> > >>>

> > >>> n A Norbury, Executive Director

> > >>> CHARGE Syndrome Foundation Inc

> > >>> 409 Vandiver Dr Ste 5-104

> > >>> Columbia MO 65202-1563

> > >>> voice/fax; families

> > >>> email: marion@...

> > >>>

> > >>>

> > >>>

> > >>>

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i think it was a family dont remember thier names might of even been those

people just seen them on the list but there was another family i think and

their child died coz i remember seeing it in the archives once coz mum

talked to them on here hugs ellen

On 23/02/06, bcoetzer@...

wrote:

>

> please let me know if you remember who the others were,Lana did get in

> touch

> with the Fereiras in pta,they will meet up soon.

> Thank you so much

>

> Re: Family in South Africa

>

>

> i seem to remember another oen around there to

>

>

> >

> > I remember them well and am glad they are all well. Kim

> >

> >

> >

> >

> > > This message is especially for those who attended the 1999 Conference

> in

> > > Houston. You may remember the family from South Africa who were there

> -

> > > Theo, Antoinette, and -, who is now 8. This is the family

> I

> > > contacted for Bonni. Theo reports that they are all doing well and

> they

> > > have added two boys (5 & 3) to their family, both healthy!

> > > n

> > >

> > > ellen howe wrote:

> > >

> > >> ur godo marion i knew there cant be jsut one charer in one country

> lol

> > >>

> > >>

> > >>>

> > >>> Bonni,

> > >>> I have been in contact with a parent in South Africa and have a

> doctor

> > >>> for your friend to contact. I will reply to you privately with the

> > >>> informaiton.

> > >>> n

> > >>>

> > >>> bcoetzer@... wrote:

> > >>>

> > >>>> This is excellent,wish more people in South Africa knew about

> > this,who

> > >>>> knows

> > >>>> its now up to us to do that.

> > >>>> Just to let you know Cherise(nearly 2 months old) might go home

> next

> > >>>> week,mom had some training the past week to bath her with the

> > >>> trachy,sure

> > >>>> she will come right.

> > >>>> She is doing so well,the arterys in her heart also closed on its

> own.

> > >>>> Thank you for all the prayers and encouragement.

> > >>>> Please if there is anybody in South Africa on this mailing list

> > please

> > >>> get

> > >>>> in contact with us.

> > >>>> Thank you

> > >>>> Kind regards

> > >>>

> > >>> --

> > >>>

> > >>> n A Norbury, Executive Director

> > >>> CHARGE Syndrome Foundation Inc

> > >>> 409 Vandiver Dr Ste 5-104

> > >>> Columbia MO 65202-1563

> > >>> voice/fax; families

> > >>> email: marion@...

> > >>>

> > >>>

> > >>>

> > >>>

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Bonni,

I did try to reach another family but the email did not go through. I

will try to reach them by regular mail.

n

bcoetzer@... wrote:

> please let me know if you remember who the others were,Lana did get in

> touch

> with the Fereiras in pta,they will meet up soon.

> Thank you so much

>

> Re: Family in South Africa

>

>

> i seem to remember another oen around there to

>

>

> >

> > I remember them well and am glad they are all well. Kim

> >

> >

> >

> >

> > > This message is especially for those who attended the 1999

> Conference in

> > > Houston. You may remember the family from South Africa who were

> there -

> > > Theo, Antoinette, and -, who is now 8. This is the

> family I

> > > contacted for Bonni. Theo reports that they are all doing well and

> they

> > > have added two boys (5 & 3) to their family, both healthy!

> > > n

> > >

> > > ellen howe wrote:

> > >

> > >> ur godo marion i knew there cant be jsut one charer in one

> country lol

> > >>

> > >>

> > >>>

> > >>> Bonni,

> > >>> I have been in contact with a parent in South Africa and have a

> doctor

> > >>> for your friend to contact. I will reply to you privately with the

> > >>> informaiton.

> > >>> n

> > >>>

> > >>> bcoetzer@... wrote:

> > >>>

> > >>>> This is excellent,wish more people in South Africa knew about

> > this,who

> > >>>> knows

> > >>>> its now up to us to do that.

> > >>>> Just to let you know Cherise(nearly 2 months old) might go home

> next

> > >>>> week,mom had some training the past week to bath her with the

> > >>> trachy,sure

> > >>>> she will come right.

> > >>>> She is doing so well,the arterys in her heart also closed on

> its own.

> > >>>> Thank you for all the prayers and encouragement.

> > >>>> Please if there is anybody in South Africa on this mailing list

> > please

> > >>> get

> > >>>> in contact with us.

> > >>>> Thank you

> > >>>> Kind regards

> > >>>

> > >>> --

> > >>>

> > >>> n A Norbury, Executive Director

> > >>> CHARGE Syndrome Foundation Inc

> > >>> 409 Vandiver Dr Ste 5-104

> > >>> Columbia MO 65202-1563

> > >>> voice/fax; families

> > >>> email: marion@...

> > >>>

> > >>>

> > >>>

> > >>>

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Thank you or you can email me what youve got and I can mail them,wont it be

quicker in South Africa.

Regards

Re: Family in South Africa

>

>

> i seem to remember another oen around there to

>

>

> >

> > I remember them well and am glad they are all well. Kim

> >

> >

> >

> >

> > > This message is especially for those who attended the 1999

> Conference in

> > > Houston. You may remember the family from South Africa who were

> there -

> > > Theo, Antoinette, and -, who is now 8. This is the

> family I

> > > contacted for Bonni. Theo reports that they are all doing well and

> they

> > > have added two boys (5 & 3) to their family, both healthy!

> > > n

> > >

> > > ellen howe wrote:

> > >

> > >> ur godo marion i knew there cant be jsut one charer in one

> country lol

> > >>

> > >>

> > >>>

> > >>> Bonni,

> > >>> I have been in contact with a parent in South Africa and have a

> doctor

> > >>> for your friend to contact. I will reply to you privately with the

> > >>> informaiton.

> > >>> n

> > >>>

> > >>> bcoetzer@... wrote:

> > >>>

> > >>>> This is excellent,wish more people in South Africa knew about

> > this,who

> > >>>> knows

> > >>>> its now up to us to do that.

> > >>>> Just to let you know Cherise(nearly 2 months old) might go home

> next

> > >>>> week,mom had some training the past week to bath her with the

> > >>> trachy,sure

> > >>>> she will come right.

> > >>>> She is doing so well,the arterys in her heart also closed on

> its own.

> > >>>> Thank you for all the prayers and encouragement.

> > >>>> Please if there is anybody in South Africa on this mailing list

> > please

> > >>> get

> > >>>> in contact with us.

> > >>>> Thank you

> > >>>> Kind regards

> > >>>

> > >>> --

> > >>>

> > >>> n A Norbury, Executive Director

> > >>> CHARGE Syndrome Foundation Inc

> > >>> 409 Vandiver Dr Ste 5-104

> > >>> Columbia MO 65202-1563

> > >>> voice/fax; families

> > >>> email: marion@...

> > >>>

> > >>>

> > >>>

> > >>>

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Share on other sites

Thank you or you can email me what youve got and I can mail them,wont it be

quicker in South Africa.

Regards

Re: Family in South Africa

>

>

> i seem to remember another oen around there to

>

>

> >

> > I remember them well and am glad they are all well. Kim

> >

> >

> >

> >

> > > This message is especially for those who attended the 1999

> Conference in

> > > Houston. You may remember the family from South Africa who were

> there -

> > > Theo, Antoinette, and -, who is now 8. This is the

> family I

> > > contacted for Bonni. Theo reports that they are all doing well and

> they

> > > have added two boys (5 & 3) to their family, both healthy!

> > > n

> > >

> > > ellen howe wrote:

> > >

> > >> ur godo marion i knew there cant be jsut one charer in one

> country lol

> > >>

> > >>

> > >>>

> > >>> Bonni,

> > >>> I have been in contact with a parent in South Africa and have a

> doctor

> > >>> for your friend to contact. I will reply to you privately with the

> > >>> informaiton.

> > >>> n

> > >>>

> > >>> bcoetzer@... wrote:

> > >>>

> > >>>> This is excellent,wish more people in South Africa knew about

> > this,who

> > >>>> knows

> > >>>> its now up to us to do that.

> > >>>> Just to let you know Cherise(nearly 2 months old) might go home

> next

> > >>>> week,mom had some training the past week to bath her with the

> > >>> trachy,sure

> > >>>> she will come right.

> > >>>> She is doing so well,the arterys in her heart also closed on

> its own.

> > >>>> Thank you for all the prayers and encouragement.

> > >>>> Please if there is anybody in South Africa on this mailing list

> > please

> > >>> get

> > >>>> in contact with us.

> > >>>> Thank you

> > >>>> Kind regards

> > >>>

> > >>> --

> > >>>

> > >>> n A Norbury, Executive Director

> > >>> CHARGE Syndrome Foundation Inc

> > >>> 409 Vandiver Dr Ste 5-104

> > >>> Columbia MO 65202-1563

> > >>> voice/fax; families

> > >>> email: marion@...

> > >>>

> > >>>

> > >>>

> > >>>

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