Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 ur godo marion i knew there cant be jsut one charer in one country lol > > Bonni, > I have been in contact with a parent in South Africa and have a doctor > for your friend to contact. I will reply to you privately with the > informaiton. > n > > bcoetzer@... wrote: > > > This is excellent,wish more people in South Africa knew about this,who > > knows > > its now up to us to do that. > > Just to let you know Cherise(nearly 2 months old) might go home next > > week,mom had some training the past week to bath her with the > trachy,sure > > she will come right. > > She is doing so well,the arterys in her heart also closed on its own. > > Thank you for all the prayers and encouragement. > > Please if there is anybody in South Africa on this mailing list please > get > > in contact with us. > > Thank you > > Kind regards > > -- > > n A Norbury, Executive Director > CHARGE Syndrome Foundation Inc > 409 Vandiver Dr Ste 5-104 > Columbia MO 65202-1563 > voice/fax; families > email: marion@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 ur godo marion i knew there cant be jsut one charer in one country lol > > Bonni, > I have been in contact with a parent in South Africa and have a doctor > for your friend to contact. I will reply to you privately with the > informaiton. > n > > bcoetzer@... wrote: > > > This is excellent,wish more people in South Africa knew about this,who > > knows > > its now up to us to do that. > > Just to let you know Cherise(nearly 2 months old) might go home next > > week,mom had some training the past week to bath her with the > trachy,sure > > she will come right. > > She is doing so well,the arterys in her heart also closed on its own. > > Thank you for all the prayers and encouragement. > > Please if there is anybody in South Africa on this mailing list please > get > > in contact with us. > > Thank you > > Kind regards > > -- > > n A Norbury, Executive Director > CHARGE Syndrome Foundation Inc > 409 Vandiver Dr Ste 5-104 > Columbia MO 65202-1563 > voice/fax; families > email: marion@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Thank you so much. God bless. Family in South Africa Bonni, I have been in contact with a parent in South Africa and have a doctor for your friend to contact. I will reply to you privately with the informaiton. n bcoetzer@... wrote: > This is excellent,wish more people in South Africa knew about this,who > knows > its now up to us to do that. > Just to let you know Cherise(nearly 2 months old) might go home next > week,mom had some training the past week to bath her with the trachy,sure > she will come right. > She is doing so well,the arterys in her heart also closed on its own. > Thank you for all the prayers and encouragement. > Please if there is anybody in South Africa on this mailing list please get > in contact with us. > Thank you > Kind regards -- n A Norbury, Executive Director CHARGE Syndrome Foundation Inc 409 Vandiver Dr Ste 5-104 Columbia MO 65202-1563 voice/fax; families email: marion@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Thank you so much. God bless. Family in South Africa Bonni, I have been in contact with a parent in South Africa and have a doctor for your friend to contact. I will reply to you privately with the informaiton. n bcoetzer@... wrote: > This is excellent,wish more people in South Africa knew about this,who > knows > its now up to us to do that. > Just to let you know Cherise(nearly 2 months old) might go home next > week,mom had some training the past week to bath her with the trachy,sure > she will come right. > She is doing so well,the arterys in her heart also closed on its own. > Thank you for all the prayers and encouragement. > Please if there is anybody in South Africa on this mailing list please get > in contact with us. > Thank you > Kind regards -- n A Norbury, Executive Director CHARGE Syndrome Foundation Inc 409 Vandiver Dr Ste 5-104 Columbia MO 65202-1563 voice/fax; families email: marion@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 This message is especially for those who attended the 1999 Conference in Houston. You may remember the family from South Africa who were there - Theo, Antoinette, and -, who is now 8. This is the family I contacted for Bonni. Theo reports that they are all doing well and they have added two boys (5 & 3) to their family, both healthy! n ellen howe wrote: > ur godo marion i knew there cant be jsut one charer in one country lol > > > > > > Bonni, > > I have been in contact with a parent in South Africa and have a doctor > > for your friend to contact. I will reply to you privately with the > > informaiton. > > n > > > > bcoetzer@... wrote: > > > > > This is excellent,wish more people in South Africa knew about this,who > > > knows > > > its now up to us to do that. > > > Just to let you know Cherise(nearly 2 months old) might go home next > > > week,mom had some training the past week to bath her with the > > trachy,sure > > > she will come right. > > > She is doing so well,the arterys in her heart also closed on its own. > > > Thank you for all the prayers and encouragement. > > > Please if there is anybody in South Africa on this mailing list please > > get > > > in contact with us. > > > Thank you > > > Kind regards > > > > -- > > > > n A Norbury, Executive Director > > CHARGE Syndrome Foundation Inc > > 409 Vandiver Dr Ste 5-104 > > Columbia MO 65202-1563 > > voice/fax; families > > email: marion@... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I remember them well and am glad they are all well. Kim > This message is especially for those who attended the 1999 Conference in > Houston. You may remember the family from South Africa who were there - > Theo, Antoinette, and -, who is now 8. This is the family I > contacted for Bonni. Theo reports that they are all doing well and they > have added two boys (5 & 3) to their family, both healthy! > n > > ellen howe wrote: > >> ur godo marion i knew there cant be jsut one charer in one country lol >> >> >>> >>> Bonni, >>> I have been in contact with a parent in South Africa and have a doctor >>> for your friend to contact. I will reply to you privately with the >>> informaiton. >>> n >>> >>> bcoetzer@... wrote: >>> >>>> This is excellent,wish more people in South Africa knew about this,who >>>> knows >>>> its now up to us to do that. >>>> Just to let you know Cherise(nearly 2 months old) might go home next >>>> week,mom had some training the past week to bath her with the >>> trachy,sure >>>> she will come right. >>>> She is doing so well,the arterys in her heart also closed on its own. >>>> Thank you for all the prayers and encouragement. >>>> Please if there is anybody in South Africa on this mailing list please >>> get >>>> in contact with us. >>>> Thank you >>>> Kind regards >>> >>> -- >>> >>> n A Norbury, Executive Director >>> CHARGE Syndrome Foundation Inc >>> 409 Vandiver Dr Ste 5-104 >>> Columbia MO 65202-1563 >>> voice/fax; families >>> email: marion@... >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Hey! I remember them; I still have their picture. They were so sweet - thanks for the update! Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I think I do remember them. It's fun to hear an update and know that tbey are well and expanded! It's especially awesome to know that the Foundation can have such a far-reaching effect. It is profoundly helpful for a new family to find someone near them -- especially in South Africa where they were feeling entirely alone. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Re: Family in South Africa This message is especially for those who attended the 1999 Conference in Houston. You may remember the family from South Africa who were there - Theo, Antoinette, and -, who is now 8. This is the family I contacted for Bonni. Theo reports that they are all doing well and they have added two boys (5 & 3) to their family, both healthy! n ellen howe wrote: > ur godo marion i knew there cant be jsut one charer in one country lol > > > > > > Bonni, > > I have been in contact with a parent in South Africa and have a doctor > > for your friend to contact. I will reply to you privately with the > > informaiton. > > n > > > > bcoetzer@... wrote: > > > > > This is excellent,wish more people in South Africa knew about this,who > > > knows > > > its now up to us to do that. > > > Just to let you know Cherise(nearly 2 months old) might go home next > > > week,mom had some training the past week to bath her with the > > trachy,sure > > > she will come right. > > > She is doing so well,the arterys in her heart also closed on its own. > > > Thank you for all the prayers and encouragement. > > > Please if there is anybody in South Africa on this mailing list please > > get > > > in contact with us. > > > Thank you > > > Kind regards > > > > -- > > > > n A Norbury, Executive Director > > CHARGE Syndrome Foundation Inc > > 409 Vandiver Dr Ste 5-104 > > Columbia MO 65202-1563 > > voice/fax; families > > email: marion@... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 i seem to remember another oen around there to > > I remember them well and am glad they are all well. Kim > > > > > > This message is especially for those who attended the 1999 Conference in > > Houston. You may remember the family from South Africa who were there - > > Theo, Antoinette, and -, who is now 8. This is the family I > > contacted for Bonni. Theo reports that they are all doing well and they > > have added two boys (5 & 3) to their family, both healthy! > > n > > > > ellen howe wrote: > > > >> ur godo marion i knew there cant be jsut one charer in one country lol > >> > >> > >>> > >>> Bonni, > >>> I have been in contact with a parent in South Africa and have a doctor > >>> for your friend to contact. I will reply to you privately with the > >>> informaiton. > >>> n > >>> > >>> bcoetzer@... wrote: > >>> > >>>> This is excellent,wish more people in South Africa knew about > this,who > >>>> knows > >>>> its now up to us to do that. > >>>> Just to let you know Cherise(nearly 2 months old) might go home next > >>>> week,mom had some training the past week to bath her with the > >>> trachy,sure > >>>> she will come right. > >>>> She is doing so well,the arterys in her heart also closed on its own. > >>>> Thank you for all the prayers and encouragement. > >>>> Please if there is anybody in South Africa on this mailing list > please > >>> get > >>>> in contact with us. > >>>> Thank you > >>>> Kind regards > >>> > >>> -- > >>> > >>> n A Norbury, Executive Director > >>> CHARGE Syndrome Foundation Inc > >>> 409 Vandiver Dr Ste 5-104 > >>> Columbia MO 65202-1563 > >>> voice/fax; families > >>> email: marion@... > >>> > >>> > >>> > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 please let me know if you remember who the others were,Lana did get in touch with the Fereiras in pta,they will meet up soon. Thank you so much Re: Family in South Africa i seem to remember another oen around there to > > I remember them well and am glad they are all well. Kim > > > > > > This message is especially for those who attended the 1999 Conference in > > Houston. You may remember the family from South Africa who were there - > > Theo, Antoinette, and -, who is now 8. This is the family I > > contacted for Bonni. Theo reports that they are all doing well and they > > have added two boys (5 & 3) to their family, both healthy! > > n > > > > ellen howe wrote: > > > >> ur godo marion i knew there cant be jsut one charer in one country lol > >> > >> > >>> > >>> Bonni, > >>> I have been in contact with a parent in South Africa and have a doctor > >>> for your friend to contact. I will reply to you privately with the > >>> informaiton. > >>> n > >>> > >>> bcoetzer@... wrote: > >>> > >>>> This is excellent,wish more people in South Africa knew about > this,who > >>>> knows > >>>> its now up to us to do that. > >>>> Just to let you know Cherise(nearly 2 months old) might go home next > >>>> week,mom had some training the past week to bath her with the > >>> trachy,sure > >>>> she will come right. > >>>> She is doing so well,the arterys in her heart also closed on its own. > >>>> Thank you for all the prayers and encouragement. > >>>> Please if there is anybody in South Africa on this mailing list > please > >>> get > >>>> in contact with us. > >>>> Thank you > >>>> Kind regards > >>> > >>> -- > >>> > >>> n A Norbury, Executive Director > >>> CHARGE Syndrome Foundation Inc > >>> 409 Vandiver Dr Ste 5-104 > >>> Columbia MO 65202-1563 > >>> voice/fax; families > >>> email: marion@... > >>> > >>> > >>> > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 i think it was a family dont remember thier names might of even been those people just seen them on the list but there was another family i think and their child died coz i remember seeing it in the archives once coz mum talked to them on here hugs ellen On 23/02/06, bcoetzer@... wrote: > > please let me know if you remember who the others were,Lana did get in > touch > with the Fereiras in pta,they will meet up soon. > Thank you so much > > Re: Family in South Africa > > > i seem to remember another oen around there to > > > > > > I remember them well and am glad they are all well. Kim > > > > > > > > > > > This message is especially for those who attended the 1999 Conference > in > > > Houston. You may remember the family from South Africa who were there > - > > > Theo, Antoinette, and -, who is now 8. This is the family > I > > > contacted for Bonni. Theo reports that they are all doing well and > they > > > have added two boys (5 & 3) to their family, both healthy! > > > n > > > > > > ellen howe wrote: > > > > > >> ur godo marion i knew there cant be jsut one charer in one country > lol > > >> > > >> > > >>> > > >>> Bonni, > > >>> I have been in contact with a parent in South Africa and have a > doctor > > >>> for your friend to contact. I will reply to you privately with the > > >>> informaiton. > > >>> n > > >>> > > >>> bcoetzer@... wrote: > > >>> > > >>>> This is excellent,wish more people in South Africa knew about > > this,who > > >>>> knows > > >>>> its now up to us to do that. > > >>>> Just to let you know Cherise(nearly 2 months old) might go home > next > > >>>> week,mom had some training the past week to bath her with the > > >>> trachy,sure > > >>>> she will come right. > > >>>> She is doing so well,the arterys in her heart also closed on its > own. > > >>>> Thank you for all the prayers and encouragement. > > >>>> Please if there is anybody in South Africa on this mailing list > > please > > >>> get > > >>>> in contact with us. > > >>>> Thank you > > >>>> Kind regards > > >>> > > >>> -- > > >>> > > >>> n A Norbury, Executive Director > > >>> CHARGE Syndrome Foundation Inc > > >>> 409 Vandiver Dr Ste 5-104 > > >>> Columbia MO 65202-1563 > > >>> voice/fax; families > > >>> email: marion@... > > >>> > > >>> > > >>> > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 i think it was a family dont remember thier names might of even been those people just seen them on the list but there was another family i think and their child died coz i remember seeing it in the archives once coz mum talked to them on here hugs ellen On 23/02/06, bcoetzer@... wrote: > > please let me know if you remember who the others were,Lana did get in > touch > with the Fereiras in pta,they will meet up soon. > Thank you so much > > Re: Family in South Africa > > > i seem to remember another oen around there to > > > > > > I remember them well and am glad they are all well. Kim > > > > > > > > > > > This message is especially for those who attended the 1999 Conference > in > > > Houston. You may remember the family from South Africa who were there > - > > > Theo, Antoinette, and -, who is now 8. This is the family > I > > > contacted for Bonni. Theo reports that they are all doing well and > they > > > have added two boys (5 & 3) to their family, both healthy! > > > n > > > > > > ellen howe wrote: > > > > > >> ur godo marion i knew there cant be jsut one charer in one country > lol > > >> > > >> > > >>> > > >>> Bonni, > > >>> I have been in contact with a parent in South Africa and have a > doctor > > >>> for your friend to contact. I will reply to you privately with the > > >>> informaiton. > > >>> n > > >>> > > >>> bcoetzer@... wrote: > > >>> > > >>>> This is excellent,wish more people in South Africa knew about > > this,who > > >>>> knows > > >>>> its now up to us to do that. > > >>>> Just to let you know Cherise(nearly 2 months old) might go home > next > > >>>> week,mom had some training the past week to bath her with the > > >>> trachy,sure > > >>>> she will come right. > > >>>> She is doing so well,the arterys in her heart also closed on its > own. > > >>>> Thank you for all the prayers and encouragement. > > >>>> Please if there is anybody in South Africa on this mailing list > > please > > >>> get > > >>>> in contact with us. > > >>>> Thank you > > >>>> Kind regards > > >>> > > >>> -- > > >>> > > >>> n A Norbury, Executive Director > > >>> CHARGE Syndrome Foundation Inc > > >>> 409 Vandiver Dr Ste 5-104 > > >>> Columbia MO 65202-1563 > > >>> voice/fax; families > > >>> email: marion@... > > >>> > > >>> > > >>> > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 i think it was a family dont remember thier names might of even been those people just seen them on the list but there was another family i think and their child died coz i remember seeing it in the archives once coz mum talked to them on here hugs ellen On 23/02/06, bcoetzer@... wrote: > > please let me know if you remember who the others were,Lana did get in > touch > with the Fereiras in pta,they will meet up soon. > Thank you so much > > Re: Family in South Africa > > > i seem to remember another oen around there to > > > > > > I remember them well and am glad they are all well. Kim > > > > > > > > > > > This message is especially for those who attended the 1999 Conference > in > > > Houston. You may remember the family from South Africa who were there > - > > > Theo, Antoinette, and -, who is now 8. This is the family > I > > > contacted for Bonni. Theo reports that they are all doing well and > they > > > have added two boys (5 & 3) to their family, both healthy! > > > n > > > > > > ellen howe wrote: > > > > > >> ur godo marion i knew there cant be jsut one charer in one country > lol > > >> > > >> > > >>> > > >>> Bonni, > > >>> I have been in contact with a parent in South Africa and have a > doctor > > >>> for your friend to contact. I will reply to you privately with the > > >>> informaiton. > > >>> n > > >>> > > >>> bcoetzer@... wrote: > > >>> > > >>>> This is excellent,wish more people in South Africa knew about > > this,who > > >>>> knows > > >>>> its now up to us to do that. > > >>>> Just to let you know Cherise(nearly 2 months old) might go home > next > > >>>> week,mom had some training the past week to bath her with the > > >>> trachy,sure > > >>>> she will come right. > > >>>> She is doing so well,the arterys in her heart also closed on its > own. > > >>>> Thank you for all the prayers and encouragement. > > >>>> Please if there is anybody in South Africa on this mailing list > > please > > >>> get > > >>>> in contact with us. > > >>>> Thank you > > >>>> Kind regards > > >>> > > >>> -- > > >>> > > >>> n A Norbury, Executive Director > > >>> CHARGE Syndrome Foundation Inc > > >>> 409 Vandiver Dr Ste 5-104 > > >>> Columbia MO 65202-1563 > > >>> voice/fax; families > > >>> email: marion@... > > >>> > > >>> > > >>> > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Bonni, I did try to reach another family but the email did not go through. I will try to reach them by regular mail. n bcoetzer@... wrote: > please let me know if you remember who the others were,Lana did get in > touch > with the Fereiras in pta,they will meet up soon. > Thank you so much > > Re: Family in South Africa > > > i seem to remember another oen around there to > > > > > > I remember them well and am glad they are all well. Kim > > > > > > > > > > > This message is especially for those who attended the 1999 > Conference in > > > Houston. You may remember the family from South Africa who were > there - > > > Theo, Antoinette, and -, who is now 8. This is the > family I > > > contacted for Bonni. Theo reports that they are all doing well and > they > > > have added two boys (5 & 3) to their family, both healthy! > > > n > > > > > > ellen howe wrote: > > > > > >> ur godo marion i knew there cant be jsut one charer in one > country lol > > >> > > >> > > >>> > > >>> Bonni, > > >>> I have been in contact with a parent in South Africa and have a > doctor > > >>> for your friend to contact. I will reply to you privately with the > > >>> informaiton. > > >>> n > > >>> > > >>> bcoetzer@... wrote: > > >>> > > >>>> This is excellent,wish more people in South Africa knew about > > this,who > > >>>> knows > > >>>> its now up to us to do that. > > >>>> Just to let you know Cherise(nearly 2 months old) might go home > next > > >>>> week,mom had some training the past week to bath her with the > > >>> trachy,sure > > >>>> she will come right. > > >>>> She is doing so well,the arterys in her heart also closed on > its own. > > >>>> Thank you for all the prayers and encouragement. > > >>>> Please if there is anybody in South Africa on this mailing list > > please > > >>> get > > >>>> in contact with us. > > >>>> Thank you > > >>>> Kind regards > > >>> > > >>> -- > > >>> > > >>> n A Norbury, Executive Director > > >>> CHARGE Syndrome Foundation Inc > > >>> 409 Vandiver Dr Ste 5-104 > > >>> Columbia MO 65202-1563 > > >>> voice/fax; families > > >>> email: marion@... > > >>> > > >>> > > >>> > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Thank you or you can email me what youve got and I can mail them,wont it be quicker in South Africa. Regards Re: Family in South Africa > > > i seem to remember another oen around there to > > > > > > I remember them well and am glad they are all well. Kim > > > > > > > > > > > This message is especially for those who attended the 1999 > Conference in > > > Houston. You may remember the family from South Africa who were > there - > > > Theo, Antoinette, and -, who is now 8. This is the > family I > > > contacted for Bonni. Theo reports that they are all doing well and > they > > > have added two boys (5 & 3) to their family, both healthy! > > > n > > > > > > ellen howe wrote: > > > > > >> ur godo marion i knew there cant be jsut one charer in one > country lol > > >> > > >> > > >>> > > >>> Bonni, > > >>> I have been in contact with a parent in South Africa and have a > doctor > > >>> for your friend to contact. I will reply to you privately with the > > >>> informaiton. > > >>> n > > >>> > > >>> bcoetzer@... wrote: > > >>> > > >>>> This is excellent,wish more people in South Africa knew about > > this,who > > >>>> knows > > >>>> its now up to us to do that. > > >>>> Just to let you know Cherise(nearly 2 months old) might go home > next > > >>>> week,mom had some training the past week to bath her with the > > >>> trachy,sure > > >>>> she will come right. > > >>>> She is doing so well,the arterys in her heart also closed on > its own. > > >>>> Thank you for all the prayers and encouragement. > > >>>> Please if there is anybody in South Africa on this mailing list > > please > > >>> get > > >>>> in contact with us. > > >>>> Thank you > > >>>> Kind regards > > >>> > > >>> -- > > >>> > > >>> n A Norbury, Executive Director > > >>> CHARGE Syndrome Foundation Inc > > >>> 409 Vandiver Dr Ste 5-104 > > >>> Columbia MO 65202-1563 > > >>> voice/fax; families > > >>> email: marion@... > > >>> > > >>> > > >>> > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Thank you or you can email me what youve got and I can mail them,wont it be quicker in South Africa. Regards Re: Family in South Africa > > > i seem to remember another oen around there to > > > > > > I remember them well and am glad they are all well. Kim > > > > > > > > > > > This message is especially for those who attended the 1999 > Conference in > > > Houston. You may remember the family from South Africa who were > there - > > > Theo, Antoinette, and -, who is now 8. This is the > family I > > > contacted for Bonni. Theo reports that they are all doing well and > they > > > have added two boys (5 & 3) to their family, both healthy! > > > n > > > > > > ellen howe wrote: > > > > > >> ur godo marion i knew there cant be jsut one charer in one > country lol > > >> > > >> > > >>> > > >>> Bonni, > > >>> I have been in contact with a parent in South Africa and have a > doctor > > >>> for your friend to contact. I will reply to you privately with the > > >>> informaiton. > > >>> n > > >>> > > >>> bcoetzer@... wrote: > > >>> > > >>>> This is excellent,wish more people in South Africa knew about > > this,who > > >>>> knows > > >>>> its now up to us to do that. > > >>>> Just to let you know Cherise(nearly 2 months old) might go home > next > > >>>> week,mom had some training the past week to bath her with the > > >>> trachy,sure > > >>>> she will come right. > > >>>> She is doing so well,the arterys in her heart also closed on > its own. > > >>>> Thank you for all the prayers and encouragement. > > >>>> Please if there is anybody in South Africa on this mailing list > > please > > >>> get > > >>>> in contact with us. > > >>>> Thank you > > >>>> Kind regards > > >>> > > >>> -- > > >>> > > >>> n A Norbury, Executive Director > > >>> CHARGE Syndrome Foundation Inc > > >>> 409 Vandiver Dr Ste 5-104 > > >>> Columbia MO 65202-1563 > > >>> voice/fax; families > > >>> email: marion@... > > >>> > > >>> > > >>> > > >>> Quote Link to comment Share on other sites More sharing options...
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