Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Hi Pam, If memory serves me right (questionable, even on good days!) I think we have talked about carpal tunnel in the past here and where it fits in with us. Try a search on the home page for group. If not here, I will try hard to remember where and when it was. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Does anyone know how long it takes for a change in ATD dosage to take full effect? On November 27th, I found out I was severely hypo from my meds, and the doc cut my dose in half. I went to see him again on the 17th of December, and the results showed still slightly hypo so he cut it again. Well, I had only been cut back for two weeks at that point. I'm wondering now since I'm feeling really hyper (my resting pulse was 105 today at lunch), if I was heading out of the hypo stage at the time I was tested, but just wasn't fully there yet. I think it's dangerous for me to wait on this since my heart rate is back up. The next step for me to go is back up to the dose I was at before he cut it back, because I've already been cheating by taking the extra 2.5. Is this crazy or what??? Nov. 27th -- I had been taking 10 mg methimazole 2 X day since mid-October. Test results : TSH -- 30.504; FT4 -- .40; FT3 -- 1.22 Dec. 17th -- I had been taking 5mg methimazole 2X day since Dec 3rd -- took nothing Nov. 28, 29 & 30. Test results: TSH -- 1.33; FT4 -- .65 I was told as of Dec 20th to cut back to 5 mg a day. I did that for a few days and couldn't sleep at all. I dropped 4 pounds immediately. So, I became a member of the pill shavers club, and added 2.5 in the morning. Obviously that's still not enough! Could my doc have jumped the gun a little when he cut me back? Holly Blood tests Holly, I never did get this stuff right until I made arrangements to have labs done anytime I need to. This does not require a office visit. I went up and down for years, waiting for the prescribed time to pass, till the next visit. I was always at least half sick. But figured the doctor must know what he's doing. WRONG ! ( and I have a very good endo). I find once a month to be best for me. This gives my body to do what ever changes it is going to, and have it show up. So maybe a test in the middle of Jan. would be a good idea. ? Also, I find when first making a change, it takes me a bit to adjust, so if I feel off for the first little bit, I stick with it, and give it a bit of time, before switching back to the old amount. Does that make sense? But then, I am the one that still can't tell hypo or hyper for sure, when I am just a tad off. But I have saved , and am studying Terry's post on the subject, hoping to make something of it. Thanks Terry. :-) I am thinking it must be figuring things like WHY my hand writing gets bad. Hypo: shaky from BP being off and weak...the carpal tunnel starts up. But hyper might be more just shaky, with BP up. Still not sure. I'm thinking how much pressure I am able to use when writing may be a key for me. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Pam, The handwriting thing--oh my, that's a big one for me! When I start getting hyper I have no control at all of my writing, looks like a doctors! I have put off getting a re-test and FT4 for a few weeks, just to see how I do w/o any ATD's for a bit, but so far feel good. Jody suggested getting them soon, as a " snapshot " of what numbers I'm at when feeling OK, which is compelling--I haven't had time to do it yet. Getting a bone density scan done this afternoon though. Terry > > Reply-To: graves_support > Date: Tue, 08 Jan 2002 10:31:08 -0800 > To: graves_support > Subject: Blood tests > > Thanks Terry. :-) I am thinking it must be figuring things like WHY my hand > writing gets > bad. Hypo: shaky from BP being off and weak...the carpal tunnel starts up. But > hyper might > be more just shaky, with BP up. Still not sure. I'm thinking how much pressure > I am able > to use when writing may be a key for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Holly, I've found that gradual changes are much, much better than abrupt ones like you've experienced. As I took my journey down from 15 mg. daily dose, I stopped at 12.5, 10, 7.5, 5, 2.5 and 1.25, spending a minimum of 2-3 weeks at each level. I felt much more in control of my body that way. I determined when my body moved a bit into the hypo symptoms, when I started needing to nap in the afternoon, woke up groggy in the morning, had my pulse down at the 60 level and started getting " brain fog " , and at that point dropped my dose a bit. Over the next couple of weeks things seemed to level off, and some of the dosage drops weren't enough so I'd do another. But some of them were, and I remained at that level for months until the next time I started getting my hypo symptoms. Then, and only then, did I drop dose again. My feeling was that the more in tune with my body I was, and the more responsive to what it told me, the better chance I'd have to achieve remission. My endo went along with me reluctantly, but last visit when I told him I'd been off for a few days entirely, he mumbled something about the test results being OK so I must know what I'm doing. I think swinging from drastically hypo with overmedication, to hyper, then back again would be very, very hard on your system. I'd start with a look at the symptom list, then identify what ones are yours (we all vary), then keep that list, on both sides, nearby to study on a daily basis. I know that when I " discovered " I was hypO for the first time, it was a shock--I hadn't looked at the list even though I'd developed it, and when I did, I realized like a light going on in my head, that that's what was happening. The hypo brain fog can make those kind of connections happen rather slowly. One other thing: Tapazole/methimazole has a much longer half-life than PTU, and you really don't have to take it 2x a day. I think you can make your life easier and just take it once, and experience the effect of it perhaps more thoroughly. Just a thought, I never have tried taking it in portions in the day. To answer, finally, your first question, yes it does take a few weeks for the drug to take full effect, but I think that once you're on it, the dosage adjustments seem to not take quite as long to experience. But to be safe, I've never changed any faster than 2 weeks. Except when in a misguided experiment, I tried taking 5 mg. one day and 2.5 the next, alternately. That didn't work at all, just put me on a mini-rollercoaster. Hope this helps, Terry > > Reply-To: graves_support > Date: Tue, 8 Jan 2002 16:10:26 -0500 > To: " 'graves_support ' " <graves_support > > Subject: RE: Blood tests > > Does anyone know how long it takes for a change in ATD dosage to take full > effect? On November 27th, I found out I was severely hypo from my meds, and > the doc cut my dose in half. I went to see him again on the 17th of > December, and the results showed still slightly hypo so he cut it again. > Well, I had only been cut back for two weeks at that point. I'm wondering > now since I'm feeling really hyper (my resting pulse was 105 today at > lunch), if I was heading out of the hypo stage at the time I was tested, but > just wasn't fully there yet. I think it's dangerous for me to wait on this > since my heart rate is back up. The next step for me to go is back up to > the dose I was at before he cut it back, because I've already been cheating > by taking the extra 2.5. Is this crazy or what??? > > Nov. 27th -- I had been taking 10 mg methimazole 2 X day since mid-October. > Test results : TSH -- 30.504; FT4 -- .40; FT3 -- 1.22 > Dec. 17th -- I had been taking 5mg methimazole 2X day since Dec 3rd -- took > nothing Nov. 28, 29 & 30. Test results: TSH -- 1.33; FT4 -- .65 > > I was told as of Dec 20th to cut back to 5 mg a day. I did that for a few > days and couldn't sleep at all. I dropped 4 pounds immediately. So, I > became a member of the pill shavers club, and added 2.5 in the morning. > Obviously that's still not enough! Could my doc have jumped the gun a > little when he cut me back? > > Holly > > Blood tests > > > Holly, > > I never did get this stuff right until I made arrangements to have labs > done anytime I > need to. This does not require a office visit. > I went up and down for years, waiting for the prescribed time to pass, > till the next > visit. I was always at least half sick. But figured the doctor must know > what he's doing. > WRONG ! ( and I have a very good endo). > I find once a month to be best for me. This gives my body to do what ever > changes it is > going to, and have it show up. > > So maybe a test in the middle of Jan. would be a good idea. ? > > Also, I find when first making a change, it takes me a bit to adjust, so > if I feel off > for the first little bit, I stick with it, and give it a bit of time, before > switching > back to the old amount. Does that make sense? > > But then, I am the one that still can't tell hypo or hyper for sure, when > I am just a > tad off. But I have saved , and am studying Terry's post on the subject, > hoping to make > something of it. > > Thanks Terry. :-) I am thinking it must be figuring things like WHY my > hand writing gets > bad. Hypo: shaky from BP being off and weak...the carpal tunnel starts up. > But hyper might > be more just shaky, with BP up. Still not sure. I'm thinking how much > pressure I am able > to use when writing may be a key for me. > > -Pam- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Holly, I've found that gradual changes are much, much better than abrupt ones like you've experienced. As I took my journey down from 15 mg. daily dose, I stopped at 12.5, 10, 7.5, 5, 2.5 and 1.25, spending a minimum of 2-3 weeks at each level. I felt much more in control of my body that way. I determined when my body moved a bit into the hypo symptoms, when I started needing to nap in the afternoon, woke up groggy in the morning, had my pulse down at the 60 level and started getting " brain fog " , and at that point dropped my dose a bit. Over the next couple of weeks things seemed to level off, and some of the dosage drops weren't enough so I'd do another. But some of them were, and I remained at that level for months until the next time I started getting my hypo symptoms. Then, and only then, did I drop dose again. My feeling was that the more in tune with my body I was, and the more responsive to what it told me, the better chance I'd have to achieve remission. My endo went along with me reluctantly, but last visit when I told him I'd been off for a few days entirely, he mumbled something about the test results being OK so I must know what I'm doing. I think swinging from drastically hypo with overmedication, to hyper, then back again would be very, very hard on your system. I'd start with a look at the symptom list, then identify what ones are yours (we all vary), then keep that list, on both sides, nearby to study on a daily basis. I know that when I " discovered " I was hypO for the first time, it was a shock--I hadn't looked at the list even though I'd developed it, and when I did, I realized like a light going on in my head, that that's what was happening. The hypo brain fog can make those kind of connections happen rather slowly. One other thing: Tapazole/methimazole has a much longer half-life than PTU, and you really don't have to take it 2x a day. I think you can make your life easier and just take it once, and experience the effect of it perhaps more thoroughly. Just a thought, I never have tried taking it in portions in the day. To answer, finally, your first question, yes it does take a few weeks for the drug to take full effect, but I think that once you're on it, the dosage adjustments seem to not take quite as long to experience. But to be safe, I've never changed any faster than 2 weeks. Except when in a misguided experiment, I tried taking 5 mg. one day and 2.5 the next, alternately. That didn't work at all, just put me on a mini-rollercoaster. Hope this helps, Terry > > Reply-To: graves_support > Date: Tue, 8 Jan 2002 16:10:26 -0500 > To: " 'graves_support ' " <graves_support > > Subject: RE: Blood tests > > Does anyone know how long it takes for a change in ATD dosage to take full > effect? On November 27th, I found out I was severely hypo from my meds, and > the doc cut my dose in half. I went to see him again on the 17th of > December, and the results showed still slightly hypo so he cut it again. > Well, I had only been cut back for two weeks at that point. I'm wondering > now since I'm feeling really hyper (my resting pulse was 105 today at > lunch), if I was heading out of the hypo stage at the time I was tested, but > just wasn't fully there yet. I think it's dangerous for me to wait on this > since my heart rate is back up. The next step for me to go is back up to > the dose I was at before he cut it back, because I've already been cheating > by taking the extra 2.5. Is this crazy or what??? > > Nov. 27th -- I had been taking 10 mg methimazole 2 X day since mid-October. > Test results : TSH -- 30.504; FT4 -- .40; FT3 -- 1.22 > Dec. 17th -- I had been taking 5mg methimazole 2X day since Dec 3rd -- took > nothing Nov. 28, 29 & 30. Test results: TSH -- 1.33; FT4 -- .65 > > I was told as of Dec 20th to cut back to 5 mg a day. I did that for a few > days and couldn't sleep at all. I dropped 4 pounds immediately. So, I > became a member of the pill shavers club, and added 2.5 in the morning. > Obviously that's still not enough! Could my doc have jumped the gun a > little when he cut me back? > > Holly > > Blood tests > > > Holly, > > I never did get this stuff right until I made arrangements to have labs > done anytime I > need to. This does not require a office visit. > I went up and down for years, waiting for the prescribed time to pass, > till the next > visit. I was always at least half sick. But figured the doctor must know > what he's doing. > WRONG ! ( and I have a very good endo). > I find once a month to be best for me. This gives my body to do what ever > changes it is > going to, and have it show up. > > So maybe a test in the middle of Jan. would be a good idea. ? > > Also, I find when first making a change, it takes me a bit to adjust, so > if I feel off > for the first little bit, I stick with it, and give it a bit of time, before > switching > back to the old amount. Does that make sense? > > But then, I am the one that still can't tell hypo or hyper for sure, when > I am just a > tad off. But I have saved , and am studying Terry's post on the subject, > hoping to make > something of it. > > Thanks Terry. :-) I am thinking it must be figuring things like WHY my > hand writing gets > bad. Hypo: shaky from BP being off and weak...the carpal tunnel starts up. > But hyper might > be more just shaky, with BP up. Still not sure. I'm thinking how much > pressure I am able > to use when writing may be a key for me. > > -Pam- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Holly, I've found that gradual changes are much, much better than abrupt ones like you've experienced. As I took my journey down from 15 mg. daily dose, I stopped at 12.5, 10, 7.5, 5, 2.5 and 1.25, spending a minimum of 2-3 weeks at each level. I felt much more in control of my body that way. I determined when my body moved a bit into the hypo symptoms, when I started needing to nap in the afternoon, woke up groggy in the morning, had my pulse down at the 60 level and started getting " brain fog " , and at that point dropped my dose a bit. Over the next couple of weeks things seemed to level off, and some of the dosage drops weren't enough so I'd do another. But some of them were, and I remained at that level for months until the next time I started getting my hypo symptoms. Then, and only then, did I drop dose again. My feeling was that the more in tune with my body I was, and the more responsive to what it told me, the better chance I'd have to achieve remission. My endo went along with me reluctantly, but last visit when I told him I'd been off for a few days entirely, he mumbled something about the test results being OK so I must know what I'm doing. I think swinging from drastically hypo with overmedication, to hyper, then back again would be very, very hard on your system. I'd start with a look at the symptom list, then identify what ones are yours (we all vary), then keep that list, on both sides, nearby to study on a daily basis. I know that when I " discovered " I was hypO for the first time, it was a shock--I hadn't looked at the list even though I'd developed it, and when I did, I realized like a light going on in my head, that that's what was happening. The hypo brain fog can make those kind of connections happen rather slowly. One other thing: Tapazole/methimazole has a much longer half-life than PTU, and you really don't have to take it 2x a day. I think you can make your life easier and just take it once, and experience the effect of it perhaps more thoroughly. Just a thought, I never have tried taking it in portions in the day. To answer, finally, your first question, yes it does take a few weeks for the drug to take full effect, but I think that once you're on it, the dosage adjustments seem to not take quite as long to experience. But to be safe, I've never changed any faster than 2 weeks. Except when in a misguided experiment, I tried taking 5 mg. one day and 2.5 the next, alternately. That didn't work at all, just put me on a mini-rollercoaster. Hope this helps, Terry > > Reply-To: graves_support > Date: Tue, 8 Jan 2002 16:10:26 -0500 > To: " 'graves_support ' " <graves_support > > Subject: RE: Blood tests > > Does anyone know how long it takes for a change in ATD dosage to take full > effect? On November 27th, I found out I was severely hypo from my meds, and > the doc cut my dose in half. I went to see him again on the 17th of > December, and the results showed still slightly hypo so he cut it again. > Well, I had only been cut back for two weeks at that point. I'm wondering > now since I'm feeling really hyper (my resting pulse was 105 today at > lunch), if I was heading out of the hypo stage at the time I was tested, but > just wasn't fully there yet. I think it's dangerous for me to wait on this > since my heart rate is back up. The next step for me to go is back up to > the dose I was at before he cut it back, because I've already been cheating > by taking the extra 2.5. Is this crazy or what??? > > Nov. 27th -- I had been taking 10 mg methimazole 2 X day since mid-October. > Test results : TSH -- 30.504; FT4 -- .40; FT3 -- 1.22 > Dec. 17th -- I had been taking 5mg methimazole 2X day since Dec 3rd -- took > nothing Nov. 28, 29 & 30. Test results: TSH -- 1.33; FT4 -- .65 > > I was told as of Dec 20th to cut back to 5 mg a day. I did that for a few > days and couldn't sleep at all. I dropped 4 pounds immediately. So, I > became a member of the pill shavers club, and added 2.5 in the morning. > Obviously that's still not enough! Could my doc have jumped the gun a > little when he cut me back? > > Holly > > Blood tests > > > Holly, > > I never did get this stuff right until I made arrangements to have labs > done anytime I > need to. This does not require a office visit. > I went up and down for years, waiting for the prescribed time to pass, > till the next > visit. I was always at least half sick. But figured the doctor must know > what he's doing. > WRONG ! ( and I have a very good endo). > I find once a month to be best for me. This gives my body to do what ever > changes it is > going to, and have it show up. > > So maybe a test in the middle of Jan. would be a good idea. ? > > Also, I find when first making a change, it takes me a bit to adjust, so > if I feel off > for the first little bit, I stick with it, and give it a bit of time, before > switching > back to the old amount. Does that make sense? > > But then, I am the one that still can't tell hypo or hyper for sure, when > I am just a > tad off. But I have saved , and am studying Terry's post on the subject, > hoping to make > something of it. > > Thanks Terry. :-) I am thinking it must be figuring things like WHY my > hand writing gets > bad. Hypo: shaky from BP being off and weak...the carpal tunnel starts up. > But hyper might > be more just shaky, with BP up. Still not sure. I'm thinking how much > pressure I am able > to use when writing may be a key for me. > > -Pam- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 a, If you don't want to be part of this group, simply unsubscribe at Yahoo Groups. Did you get here by mistake? Terry > > Reply-To: graves_support > Date: Sat, 6 Apr 2002 14:02:59 -0800 (PST) > To: graves_support > Subject: Re: Blood Tests > > > --- daisyelaine@... wrote: >> Hi Betsy, >> Once we're on meds for a while we should be >> steady-stated, that is, our blood >> levels should be stable all day long. There will be >> slight variations if >> we're on Armour or added T3, but on T4 levels should >> be stable throughout the >> day. this is the idea anyway. Take care, Elaine >> >> >> [Non-text portions of this message have been >> removed] >> >> PLEASE DO NOT SENT ME ANY OF YOUR E-MAILS - I DON'T > WANT THEM AS I DON'T HAVE ENOUGH SPACE FOR THEM - > > > THANKKS luisa7stars@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi I hope this makes you feel a bit better: One-quater to one-third of pregnancies miscarry, particularly 1st pregnancies. The VAST majority of women who miscarry go on to have perfectly healthy babies!! And so, I'd be willing to bet money that you'll have your own little one some day soon. Take care, ~~ -- In OSSG-pregnant@y..., " sylos2002 " <sylos2000@c...> wrote: > hello ladies > as may remember i took several pregnancy tests which were all > positive...however, 3 weeks into the pregnancy i missedcarried. > hubby and i were very sad and even cried. this was the first time in > our ten year marriage that we have been able to concieve. i had rny > may 2001 and i have lost 150 pounds....i am 5'5'' and presently weigh > 217. i would like to get to 170 b4 trying to get preg again. i hope > i can make it. hubby and i will try to hang in there until i lose > the last 27 pounds, but if it does not happen by nov 2002, we will go > ahead and start trying. just wanted to let you know what my ob is > doing to see what could have happened with the preg. and also to see > if it could be avoided in the future. he wants me to come in for > blood tests between the 3rd and the 5th day of the first day of my > cycle (this is the first day of my period), again on the 21st and > 23rd day, and once more on the 26th and 27th day. according to what > he said, he these blood test will reveal if my body is producing the > sufficient amount of hormones to support a pregnancy. if he finds > deficiencies, he will place me on meds. lets see what happens. even > though i misscarried, i feel like there is a light at the end of the > tunnel....i thought i would never be able to conceive and i did. so > this gives some hope. ladies, i will appreciate any input that u may > have regarding the blood tests.....as well as waiting to lose the > last 27 pounds.....by the way i am 30 years old. thank you all and > take good care.....kisses to all the new babies! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi! I know how you feel. Prior to weight loss surgery, I had several misscarrages trying to conceive my first child. I had the tests also. After 3 dr's I went to one who did a test around the 21st day, and he discovered that my progesterone level was low. progesterone is what makes the baby " stick " , so once i got pregnant again, all i had to do was go in twice a week for a progesterone shot until i was past 3 mos. I already know that I will have to do this again, because I have been charting and I can tell that my luetial ? phase is not long enough. Have you read the book Taking Charge of Your Fertiltiy? THis book is amazing. if you haven't I HIGHLY RECOMEND you pick it up. You will know your own answers with the charting system. By the way- I am 24 pounds away from my " conception Goal " and I plan to start trying in December. Keep me posted. > hello ladies > as may remember i took several pregnancy tests which were all > positive...however, 3 weeks into the pregnancy i missedcarried. > hubby and i were very sad and even cried. this was the first time in > our ten year marriage that we have been able to concieve. i had rny > may 2001 and i have lost 150 pounds....i am 5'5'' and presently weigh > 217. i would like to get to 170 b4 trying to get preg again. i hope > i can make it. hubby and i will try to hang in there until i lose > the last 27 pounds, but if it does not happen by nov 2002, we will go > ahead and start trying. just wanted to let you know what my ob is > doing to see what could have happened with the preg. and also to see > if it could be avoided in the future. he wants me to come in for > blood tests between the 3rd and the 5th day of the first day of my > cycle (this is the first day of my period), again on the 21st and > 23rd day, and once more on the 26th and 27th day. according to what > he said, he these blood test will reveal if my body is producing the > sufficient amount of hormones to support a pregnancy. if he finds > deficiencies, he will place me on meds. lets see what happens. even > though i misscarried, i feel like there is a light at the end of the > tunnel....i thought i would never be able to conceive and i did. so > this gives some hope. ladies, i will appreciate any input that u may > have regarding the blood tests.....as well as waiting to lose the > last 27 pounds.....by the way i am 30 years old. thank you all and > take good care.....kisses to all the new babies! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 I'm so sorry to hear of your miscarriage. I know how that hurts. It does sound, though, like your dr. is especiallysupportive. Since you are only 30 and your m/c was so early in your pregnancy, the vast majority of drs wouldn't test for cause without something to make them suspect something unusual is going on. I don't know if the good news would be that nothing is wrong (and there's no definite explanation) or that the hormones are off, but I certainly wish you well! --Darla > hello ladies > as may remember i took several pregnancy tests which were all > positive...however, 3 weeks into the pregnancy i missedcarried. > hubby and i were very sad and even cried. this was the first time in > our ten year marriage that we have been able to concieve. i had rny > may 2001 and i have lost 150 pounds....i am 5'5'' and presently weigh > 217. i would like to get to 170 b4 trying to get preg again. i hope > i can make it. hubby and i will try to hang in there until i lose > the last 27 pounds, but if it does not happen by nov 2002, we will go > ahead and start trying. just wanted to let you know what my ob is > doing to see what could have happened with the preg. and also to see > if it could be avoided in the future. he wants me to come in for > blood tests between the 3rd and the 5th day of the first day of my > cycle (this is the first day of my period), again on the 21st and > 23rd day, and once more on the 26th and 27th day. according to what > he said, he these blood test will reveal if my body is producing the > sufficient amount of hormones to support a pregnancy. if he finds > deficiencies, he will place me on meds. lets see what happens. even > though i misscarried, i feel like there is a light at the end of the > tunnel....i thought i would never be able to conceive and i did. so > this gives some hope. ladies, i will appreciate any input that u may > have regarding the blood tests.....as well as waiting to lose the > last 27 pounds.....by the way i am 30 years old. thank you all and > take good care.....kisses to all the new babies! Quote Link to comment Share on other sites More sharing options...
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