Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Hi all: Now that I've been regular with my periods, it seems that my hyper symptoms have abated quite abit this time around. Does it mean I'm slowly getting normal and going into a remission? I feel much better and so relaxed instead of being jittery all the time. I don't think I am 100% better yet. I just read the archives where hyper symptoms have gotten worst for some people. I supposed it can work both ways depending the hormones of the person, right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi , It sounds like you are moving to euthyroid, a more normal level of thyroid hormones. It very well could mean you are moving to remission, it will take monitoring labs to see if you are getting there and for keeping you there. I am glad to hear you are feeling so much better. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi , It sounds like you are moving to euthyroid, a more normal level of thyroid hormones. It very well could mean you are moving to remission, it will take monitoring labs to see if you are getting there and for keeping you there. I am glad to hear you are feeling so much better. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi , It sounds like you are moving to euthyroid, a more normal level of thyroid hormones. It very well could mean you are moving to remission, it will take monitoring labs to see if you are getting there and for keeping you there. I am glad to hear you are feeling so much better. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi Jody: I can't wait to see what the results are in about three weeks. :-) Jody Spitale wrote: > Hi , > It sounds like you are moving to euthyroid, a more normal > level of thyroid > hormones. It very well could mean you are moving to > remission, it will take > monitoring labs to see if you are getting there and for > keeping you there. > > I am glad to hear you are feeling so much better. > Jody > > > > _ > _______________________________________________________________ > > Send and receive Hotmail on your mobile device: > http://mobile.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi Jody: I can't wait to see what the results are in about three weeks. :-) Jody Spitale wrote: > Hi , > It sounds like you are moving to euthyroid, a more normal > level of thyroid > hormones. It very well could mean you are moving to > remission, it will take > monitoring labs to see if you are getting there and for > keeping you there. > > I am glad to hear you are feeling so much better. > Jody > > > > _ > _______________________________________________________________ > > Send and receive Hotmail on your mobile device: > http://mobile.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi Jody: I can't wait to see what the results are in about three weeks. :-) Jody Spitale wrote: > Hi , > It sounds like you are moving to euthyroid, a more normal > level of thyroid > hormones. It very well could mean you are moving to > remission, it will take > monitoring labs to see if you are getting there and for > keeping you there. > > I am glad to hear you are feeling so much better. > Jody > > > > _ > _______________________________________________________________ > > Send and receive Hotmail on your mobile device: > http://mobile.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 - If you end up going to Dr De Smet you will not be sorry. I am so happy that I am a Belgium hippy. After research he was/is my first and only choice. Good luck. Jude PS Recovery time is quicker. Do you expect to be with the same employer for any length of time? Revision- more common with a THR- and costs involved there are also something to consider. Questions Greetings All; I was denied coverage from UHC on my second appeal yesterday. I am scheduled for my third and final appeal in front of my company's Human Realtions board in about two weeks. Since my company is " self insured " there may be a slight chance that the board could overide the investigative surgery restriction in our policy. In that light, I have some questions you all may be able to help with. 1) Is the cost of resurfacing here in the US more, less, or equal to conventional THR? 2) Is there a difference in recovery time? Specifically, will I get back to work in a significally less amount of time versus THR? (I sit in front a computer 75% of the time at work) 3) Is it true that the femoral component of the C+ device is OK'd by the FDA? If there are any other other ideas that might appeal to my employers pocketbook, they would be greatly appreciated. At this point I don't really think that there is much of a chance winning this appeal either so yesterday I asked Dr. Grecula's office to send copies of my x-rays and history to Dr. De Smet in Belgium. I really am ready to do SOMETHING besides fight with UHC. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 - If you end up going to Dr De Smet you will not be sorry. I am so happy that I am a Belgium hippy. After research he was/is my first and only choice. Good luck. Jude PS Recovery time is quicker. Do you expect to be with the same employer for any length of time? Revision- more common with a THR- and costs involved there are also something to consider. Questions Greetings All; I was denied coverage from UHC on my second appeal yesterday. I am scheduled for my third and final appeal in front of my company's Human Realtions board in about two weeks. Since my company is " self insured " there may be a slight chance that the board could overide the investigative surgery restriction in our policy. In that light, I have some questions you all may be able to help with. 1) Is the cost of resurfacing here in the US more, less, or equal to conventional THR? 2) Is there a difference in recovery time? Specifically, will I get back to work in a significally less amount of time versus THR? (I sit in front a computer 75% of the time at work) 3) Is it true that the femoral component of the C+ device is OK'd by the FDA? If there are any other other ideas that might appeal to my employers pocketbook, they would be greatly appreciated. At this point I don't really think that there is much of a chance winning this appeal either so yesterday I asked Dr. Grecula's office to send copies of my x-rays and history to Dr. De Smet in Belgium. I really am ready to do SOMETHING besides fight with UHC. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 - If you end up going to Dr De Smet you will not be sorry. I am so happy that I am a Belgium hippy. After research he was/is my first and only choice. Good luck. Jude PS Recovery time is quicker. Do you expect to be with the same employer for any length of time? Revision- more common with a THR- and costs involved there are also something to consider. Questions Greetings All; I was denied coverage from UHC on my second appeal yesterday. I am scheduled for my third and final appeal in front of my company's Human Realtions board in about two weeks. Since my company is " self insured " there may be a slight chance that the board could overide the investigative surgery restriction in our policy. In that light, I have some questions you all may be able to help with. 1) Is the cost of resurfacing here in the US more, less, or equal to conventional THR? 2) Is there a difference in recovery time? Specifically, will I get back to work in a significally less amount of time versus THR? (I sit in front a computer 75% of the time at work) 3) Is it true that the femoral component of the C+ device is OK'd by the FDA? If there are any other other ideas that might appeal to my employers pocketbook, they would be greatly appreciated. At this point I don't really think that there is much of a chance winning this appeal either so yesterday I asked Dr. Grecula's office to send copies of my x-rays and history to Dr. De Smet in Belgium. I really am ready to do SOMETHING besides fight with UHC. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Hi , I had a resurfacing by Dr. Mont on July 25th and I could have gone back to work in 1 week if my job was mostly computer work. Yes, the femoral component of the device is FDA approved. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Hi , I had a resurfacing by Dr. Mont on July 25th and I could have gone back to work in 1 week if my job was mostly computer work. Yes, the femoral component of the device is FDA approved. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Hi , I had a resurfacing by Dr. Mont on July 25th and I could have gone back to work in 1 week if my job was mostly computer work. Yes, the femoral component of the device is FDA approved. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 > 1) Are there two different types of amnio tests where the second is more > dangerous to the fetus than the first type? Not that I know of. There is amniocentesis, which samples amniotic fluid. Then there's CVS, which is chorionic villus sampling, which takes a sample of tissue at a particular spot called the chorionic villi (you'd have to check some website somewhere to find out just where that is, I have no idea). At any rate, they both have the risk of causing miscarriage, although the risk is fairly low. > > 2) Do female WLS patients experience pregnancies with a higher rate of > problems ranging from chromosomal to miscarriages? There haven't been any wide-ranging studies concerning this that I'm aware of, but I can't imagine that there's any difference in the rate between post-WLS moms and non-WLS moms. This is a pretty large group, really (over 700 members currently), so whatever you read here is quite likely where even WLS surgeons lurk to find out what they can about post-WLS pregnancy. The only statistical evidence I've ever seen was on Alvarado's website. I've linked to their PDF document about post-bypass pregnancy on our home page. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 > 1) Are there two different types of amnio tests where the second is more > dangerous to the fetus than the first type? Not that I know of. There is amniocentesis, which samples amniotic fluid. Then there's CVS, which is chorionic villus sampling, which takes a sample of tissue at a particular spot called the chorionic villi (you'd have to check some website somewhere to find out just where that is, I have no idea). At any rate, they both have the risk of causing miscarriage, although the risk is fairly low. > > 2) Do female WLS patients experience pregnancies with a higher rate of > problems ranging from chromosomal to miscarriages? There haven't been any wide-ranging studies concerning this that I'm aware of, but I can't imagine that there's any difference in the rate between post-WLS moms and non-WLS moms. This is a pretty large group, really (over 700 members currently), so whatever you read here is quite likely where even WLS surgeons lurk to find out what they can about post-WLS pregnancy. The only statistical evidence I've ever seen was on Alvarado's website. I've linked to their PDF document about post-bypass pregnancy on our home page. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 have you e-mailed pictures to Dr. Ponseti? My son's right foot looked like turning in also but we sent pictures showing the dorsiflexion to Dr. Ponseti and Marcuende. They said the dorsiflexion looked Ok but we have and appointment for Feb. will be in the brace 23hrs for 3 months then. Dessi ( bilateral CF 9-17-02) Questions My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had casting done by Ponseti until she was 8 months old. Then she had the brace 24 hours a day for 3 months. Now it is just at night, and we have noticed that her foot is really turning in again. We really try hard to have the brace every night. That can be a challenge sometimes. Has anyone heard of someone having a relapse? I am really concerned and have scheduled another appointment for her. I also have noticed that she is really starting to run funny. Like she doesn't want to put pressure on the clubfoot. I am just really concerned and scared. Has anyone had or having a experience like this? Abdulrahman Abdulrahmans@... Aliyah Rose 7-4-99 cast 3-2000 brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I notice in your post you say " we really TRY hard to have the brace, that can be a challenge sometimes " . Considering this, I would say it is very likely that your daughter is relapsing. You must think of the brace much like any medicine. If your child has an ear infection and the Dr prescribes an antibiotic to be used EVERY day for 10 days......it will only work if it used EVERY day. I am sorry if this comes across sounding harsh, but the DBB in my opinion is just as important as the intial casting. I wish you luck in your appointment...for your daughters sake. I am sure someone here will give you the statistics on relapses that occur in children who do not use the DBB as prescribe. Maybe that will be more helpful than my post. > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > casting done by Ponseti until she was 8 months old. Then she had > the brace 24 hours a day for 3 months. Now it is just at night, and > we have noticed that her foot is really turning in again. We really > try hard to have the brace every night. That can be a challenge > sometimes. Has anyone heard of someone having a relapse? I am > really concerned and have scheduled another appointment for her. I > also have noticed that she is really starting to run funny. Like > she doesn't want to put pressure on the clubfoot. I am just really > concerned and scared. Has anyone had or having a experience like > this? > > Abdulrahman > Abdulrahmans@y... > Aliyah Rose 7-4-99 > cast 3-2000 > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I notice in your post you say " we really TRY hard to have the brace, that can be a challenge sometimes " . Considering this, I would say it is very likely that your daughter is relapsing. You must think of the brace much like any medicine. If your child has an ear infection and the Dr prescribes an antibiotic to be used EVERY day for 10 days......it will only work if it used EVERY day. I am sorry if this comes across sounding harsh, but the DBB in my opinion is just as important as the intial casting. I wish you luck in your appointment...for your daughters sake. I am sure someone here will give you the statistics on relapses that occur in children who do not use the DBB as prescribe. Maybe that will be more helpful than my post. > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > casting done by Ponseti until she was 8 months old. Then she had > the brace 24 hours a day for 3 months. Now it is just at night, and > we have noticed that her foot is really turning in again. We really > try hard to have the brace every night. That can be a challenge > sometimes. Has anyone heard of someone having a relapse? I am > really concerned and have scheduled another appointment for her. I > also have noticed that she is really starting to run funny. Like > she doesn't want to put pressure on the clubfoot. I am just really > concerned and scared. Has anyone had or having a experience like > this? > > Abdulrahman > Abdulrahmans@y... > Aliyah Rose 7-4-99 > cast 3-2000 > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I notice in your post you say " we really TRY hard to have the brace, that can be a challenge sometimes " . Considering this, I would say it is very likely that your daughter is relapsing. You must think of the brace much like any medicine. If your child has an ear infection and the Dr prescribes an antibiotic to be used EVERY day for 10 days......it will only work if it used EVERY day. I am sorry if this comes across sounding harsh, but the DBB in my opinion is just as important as the intial casting. I wish you luck in your appointment...for your daughters sake. I am sure someone here will give you the statistics on relapses that occur in children who do not use the DBB as prescribe. Maybe that will be more helpful than my post. > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > casting done by Ponseti until she was 8 months old. Then she had > the brace 24 hours a day for 3 months. Now it is just at night, and > we have noticed that her foot is really turning in again. We really > try hard to have the brace every night. That can be a challenge > sometimes. Has anyone heard of someone having a relapse? I am > really concerned and have scheduled another appointment for her. I > also have noticed that she is really starting to run funny. Like > she doesn't want to put pressure on the clubfoot. I am just really > concerned and scared. Has anyone had or having a experience like > this? > > Abdulrahman > Abdulrahmans@y... > Aliyah Rose 7-4-99 > cast 3-2000 > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I don't think that you sound harsh. I agree with you. In the past 2 years she has maybe not had the brace on a total of 4-5 nights. So we are very consist. It just is a fight every night. BUT WE ALWAYS put it on. That is why I am so concerned. We have done everything that Dr. Ponseti has asked us to. I am just wondering if he will start having her wear during the day again. Thanks, > I notice in your post you say " we really TRY hard to have the brace, > that can be a challenge sometimes " . > Considering this, I would say it is very likely that your daughter > is relapsing. You must think of the brace much like any medicine. > If your child has an ear infection and the Dr prescribes an > antibiotic to be used EVERY day for 10 days......it will only work > if it used EVERY day. I am sorry if this comes across sounding > harsh, but the DBB in my opinion is just as important as the intial > casting. I wish you luck in your appointment...for your daughters > sake. I am sure someone here will give you the statistics on > relapses that occur in children who do not use the DBB as > prescribe. Maybe that will be more helpful than my post. > > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > > casting done by Ponseti until she was 8 months old. Then she had > > the brace 24 hours a day for 3 months. Now it is just at night, > and > > we have noticed that her foot is really turning in again. We > really > > try hard to have the brace every night. That can be a challenge > > sometimes. Has anyone heard of someone having a relapse? I am > > really concerned and have scheduled another appointment for her. > I > > also have noticed that she is really starting to run funny. Like > > she doesn't want to put pressure on the clubfoot. I am just > really > > concerned and scared. Has anyone had or having a experience like > > this? > > > > Abdulrahman > > Abdulrahmans@y... > > Aliyah Rose 7-4-99 > > cast 3-2000 > > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I don't think that you sound harsh. I agree with you. In the past 2 years she has maybe not had the brace on a total of 4-5 nights. So we are very consist. It just is a fight every night. BUT WE ALWAYS put it on. That is why I am so concerned. We have done everything that Dr. Ponseti has asked us to. I am just wondering if he will start having her wear during the day again. Thanks, > I notice in your post you say " we really TRY hard to have the brace, > that can be a challenge sometimes " . > Considering this, I would say it is very likely that your daughter > is relapsing. You must think of the brace much like any medicine. > If your child has an ear infection and the Dr prescribes an > antibiotic to be used EVERY day for 10 days......it will only work > if it used EVERY day. I am sorry if this comes across sounding > harsh, but the DBB in my opinion is just as important as the intial > casting. I wish you luck in your appointment...for your daughters > sake. I am sure someone here will give you the statistics on > relapses that occur in children who do not use the DBB as > prescribe. Maybe that will be more helpful than my post. > > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > > casting done by Ponseti until she was 8 months old. Then she had > > the brace 24 hours a day for 3 months. Now it is just at night, > and > > we have noticed that her foot is really turning in again. We > really > > try hard to have the brace every night. That can be a challenge > > sometimes. Has anyone heard of someone having a relapse? I am > > really concerned and have scheduled another appointment for her. > I > > also have noticed that she is really starting to run funny. Like > > she doesn't want to put pressure on the clubfoot. I am just > really > > concerned and scared. Has anyone had or having a experience like > > this? > > > > Abdulrahman > > Abdulrahmans@y... > > Aliyah Rose 7-4-99 > > cast 3-2000 > > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 I don't think that you sound harsh. I agree with you. In the past 2 years she has maybe not had the brace on a total of 4-5 nights. So we are very consist. It just is a fight every night. BUT WE ALWAYS put it on. That is why I am so concerned. We have done everything that Dr. Ponseti has asked us to. I am just wondering if he will start having her wear during the day again. Thanks, > I notice in your post you say " we really TRY hard to have the brace, > that can be a challenge sometimes " . > Considering this, I would say it is very likely that your daughter > is relapsing. You must think of the brace much like any medicine. > If your child has an ear infection and the Dr prescribes an > antibiotic to be used EVERY day for 10 days......it will only work > if it used EVERY day. I am sorry if this comes across sounding > harsh, but the DBB in my opinion is just as important as the intial > casting. I wish you luck in your appointment...for your daughters > sake. I am sure someone here will give you the statistics on > relapses that occur in children who do not use the DBB as > prescribe. Maybe that will be more helpful than my post. > > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > > casting done by Ponseti until she was 8 months old. Then she had > > the brace 24 hours a day for 3 months. Now it is just at night, > and > > we have noticed that her foot is really turning in again. We > really > > try hard to have the brace every night. That can be a challenge > > sometimes. Has anyone heard of someone having a relapse? I am > > really concerned and have scheduled another appointment for her. > I > > also have noticed that she is really starting to run funny. Like > > she doesn't want to put pressure on the clubfoot. I am just > really > > concerned and scared. Has anyone had or having a experience like > > this? > > > > Abdulrahman > > Abdulrahmans@y... > > Aliyah Rose 7-4-99 > > cast 3-2000 > > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 , Here is a link to a article that Dr. Ponseti wrote on relapsing. http://groups.yahoo.com/group/nosurgery4clubfoot/message/13223 I hope that this helps to give you some information. and (3-17-99) > My daugther Aliyah(7-4-99), has a bilateral clubfoot. She had > casting done by Ponseti until she was 8 months old. Then she had > the brace 24 hours a day for 3 months. Now it is just at night, and > we have noticed that her foot is really turning in again. We really > try hard to have the brace every night. That can be a challenge > sometimes. Has anyone heard of someone having a relapse? I am > really concerned and have scheduled another appointment for her. I > also have noticed that she is really starting to run funny. Like > she doesn't want to put pressure on the clubfoot. I am just really > concerned and scared. Has anyone had or having a experience like > this? > > Abdulrahman > Abdulrahmans@y... > Aliyah Rose 7-4-99 > cast 3-2000 > brace 3-2000 to current Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi Sharon, Here's the list of major cancer centers again: http://www3.cancer.gov/cancercenters/centerslist.html#L10 From this list, Duke Comprehensive Cancer Center telephone no. is: 919/684-5613 I don't think you will need a referral, and if you call them I think they will answer all your questions. Hope this helps Best Regards, Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Sharon, Like Ed said,you can usually make an appointment or even just get info, without the referral.You may want to check your insurance policy though.Ours requires a referral from our PCC(primary care clinic)before they will pay.Our local doc has been very helpful about doing this for us and also in transferring records,lab repts, etc.He also stays in touch with the onc at the cancer center so he knows what's going on. Our cancer center is about a 5 hr. drive(one way)so this enables us to still call/see our local family doc in an emergency (like a fever in the middle of the night or running low on a prescription)and to get some regular bloodwork done here(they just fax the results to the onc directly and he calls us back with instructions)The referral can sometimes get you a faster appointment also.So,I do recommend getting a referral if you can,but don't let it stop you from getting the help you need. > Hi Sharon, > Here's the list of major cancer centers again: > http://www3.cancer.gov/cancercenters/centerslist.html#L10 > > From this list, Duke Comprehensive Cancer Center telephone no. > is: 919/684-5613 > > I don't think you will need a referral, and if you call them I > think they will answer all your questions. Hope this helps > > Best Regards, > Ed Quote Link to comment Share on other sites More sharing options...
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