Re: glucose testing/Joanne and all

[Guest guest]

Hi Joanne,

I'll let you know what I find out about Dr. Weil. The only other

things I tried from naturesflavors were the wild berry, strawberry,

etc. flavorings...no sweetener in them. They are good for ice cream,

etc., but I still need to use sweetener.

When we were testing blood sugars, I had been advised from others

on the group to test upon waking (especially if morning seizures are

a problem), right before a meal, and then again about 90 minutes

after a meal. I believe in theory blood sugars should be highest at

the 90 minute mark....everything hitting the bloodstream by then. If

readings are high just before a meal, it might mean not enough

calories and the body is burning muscle (releasing glucose). We also

did them when Macie was having cycles of seizures to see how it

compared to times when she was doing perfectly fine. Someone PLEASE

jump in if I'm mistaken about this! We did this solely on help from

the group as our center didn't believe it was necessary or helpful.

We bought the Freestyle kit because it requires the smallest amount

of blood of any other brands. It is marketed toward use with

children. We could do it on the forearm, thigh, etc., which is much

less painful than finger sticks (believe me, my husband and I

practiced on ourselves). I hated the thoughts of doing it to Macie,

but I had the belief that anything we could try that might help give

us some clues would be worth it. She did very well with the sticks

after the first couple of days. As I've mentioned before, her

readings were all over the place, so we didn't continue after about a

month.

There are others here that use glucose monitoring with the help

of their keto centers. Maybe they can offer some more helpful

information.

Good luck!

Glenna

> > > I spoke w/someone at Nature's Flavors.com, they sell that

liquid

> > > splenda that we really liked. The person there said they just

> > > stopped selling it as there are some licensing issues, I'm

> assuming

> > > with the splenda folks. She said that they have another

product

> > just

> > > like it that's called Sweet Drops but it's made with Acesulfame

> > > potassium instead of splenda. According to the website, Sweet

> > Drops

> > > is also no cal, no carb. I see that Acesulfame K+ is used in

many

> > of

> > > the Jello products. Is this a generally ok sweetener? Thanks

> > Joanne

[Guest guest]

Hi Glenna, The info you've given me so far re: blood sugars has been

extremely valuable. I'll continue to monitor. Jordan doesn't like

to be poked, like most kids of course, so I'll have to be selective

as to when I test him. Thanks again for helping me begin to figure

outanother piece of this complex puzzle. Joanne

> > > > I spoke w/someone at Nature's Flavors.com, they sell that

> liquid

> > > > splenda that we really liked. The person there said they

just

> > > > stopped selling it as there are some licensing issues, I'm

> > assuming

> > > > with the splenda folks. She said that they have another

> product

> > > just

> > > > like it that's called Sweet Drops but it's made with

Acesulfame

> > > > potassium instead of splenda. According to the website,

Sweet

> > > Drops

> > > > is also no cal, no carb. I see that Acesulfame K+ is used in

> many

> > > of

> > > > the Jello products. Is this a generally ok sweetener?

Thanks

> > > Joanne

[Guest guest]

Hi Glenna, The info you've given me so far re: blood sugars has been

extremely valuable. I'll continue to monitor. Jordan doesn't like

to be poked, like most kids of course, so I'll have to be selective

as to when I test him. Thanks again for helping me begin to figure

outanother piece of this complex puzzle. Joanne

> > > > I spoke w/someone at Nature's Flavors.com, they sell that

> liquid

> > > > splenda that we really liked. The person there said they

just

> > > > stopped selling it as there are some licensing issues, I'm

> > assuming

> > > > with the splenda folks. She said that they have another

> product

> > > just

> > > > like it that's called Sweet Drops but it's made with

Acesulfame

> > > > potassium instead of splenda. According to the website,

Sweet

> > > Drops

> > > > is also no cal, no carb. I see that Acesulfame K+ is used in

> many

> > > of

> > > > the Jello products. Is this a generally ok sweetener?

Thanks

> > > Joanne

[Guest guest]

Hi Glenna, The info you've given me so far re: blood sugars has been

extremely valuable. I'll continue to monitor. Jordan doesn't like

to be poked, like most kids of course, so I'll have to be selective

as to when I test him. Thanks again for helping me begin to figure

outanother piece of this complex puzzle. Joanne

> > > > I spoke w/someone at Nature's Flavors.com, they sell that

> liquid

> > > > splenda that we really liked. The person there said they

just

> > > > stopped selling it as there are some licensing issues, I'm

> > assuming

> > > > with the splenda folks. She said that they have another

> product

> > > just

> > > > like it that's called Sweet Drops but it's made with

Acesulfame

> > > > potassium instead of splenda. According to the website,

Sweet

> > > Drops

> > > > is also no cal, no carb. I see that Acesulfame K+ is used in

> many

> > > of

> > > > the Jello products. Is this a generally ok sweetener?

Thanks

> > > Joanne