Re: Nursing issues with school (sorry-long)

[Guest guest]

- It is partly an issue of the Nurse Practice Act which determines what

nurses do - then it comes down to districts and their interpretation of it.

kim

> ,

> Just curious - why does it have to be a nurse to do the tube feedings? I'm

> just curious because here the TA's do it (teacher's assistants). There aren't

> any nurses in our schools. I work with a little fellow that needs tube feeds

> and suctioning and I do it all myself. Is it a US thing? Is there someone

> else that can do it so as not to compromise the feeding plan? I wouldn't have

> the school telling me how to feed my child - " I " set what her feeding times,

> etc are - THEY can accommodate.

> Let me know how it goes.

>

>

>

>

> Weir

> Home: lisaweir@...

> Work: lisa.weir@...

> Phone:

> Web: http://ca.geocities.com/weirfamilyrogers

>

>

>

>

>

>

>

>

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>

[Guest guest]

tube changing is easy as pie in my opinion just pop it in the hole

>

> - It is partly an issue of the Nurse Practice Act which determines

> what

> nurses do - then it comes down to districts and their interpretation of

> it.

> kim

>

>

>

>

> > ,

> > Just curious - why does it have to be a nurse to do the tube

> feedings? I'm

> > just curious because here the TA's do it (teacher's assistants). There

> aren't

> > any nurses in our schools. I work with a little fellow that needs tube

> feeds

> > and suctioning and I do it all myself. Is it a US thing? Is there

> someone

> > else that can do it so as not to compromise the feeding plan? I

> wouldn't have

> > the school telling me how to feed my child - " I " set what her feeding

> times,

> > etc are - THEY can accommodate.

> > Let me know how it goes.

> >

> >

> >

> >

> > Weir

> > Home: lisaweir@...

> > Work: lisa.weir@...

> > Phone:

> > Web: http://ca.geocities.com/weirfamilyrogers

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Ethan has a trach and a g-tube and started school last summer. Ethan is

required to have a nurse with him at school (because of the trach) and

thankfully, the school district allowed us to keep our home nurses as his school

nurses. And there is a full time nurse at Ethan's school (but she can't act as

his one on one nurse). And one day, I had to go to school with him since his

home nurse called in sick. This school is very flexible with that.

The sticky part about having a one on one nurse is that they wouldn't give him

his own " aid " in addition to the nurse. He goes to a deaf ed school and over

time they have realized the need for Ethan to have more assistance since the

nurse cannot act as the aid (and they aren't trained to do so). So for next

year with his IEP, we are asking for additional help in the classroom.

Jody - mom to Ethan (3.5 yrs ChARGE) and (6.5 yrs)

wrote:

Yuka, just curious--at what age did start school? Carmen will

be 2 in June and I'm trying to plan ahead. She has a trach but no

g-tube.

>

> Dear -

>

> was placed into school with a tracheotomy and a g-tube. I had

five

> large file boxes stashed in the school's nurses office in case of

emergency.

> There was an extra suction pump, connectors, catheters, oxygen, a

nebulizer

> for breathing treatments, extra formula, and replacement g-tubes and

trachs.

> There was even an ambu bag. We had five day packs of every medicine

> might possibly need on a " worst case " scenario. With earthquakes on

> everyone's mind (we are in Southern California) everyone wanted to be

> prepared for a five day emergency stay.

>

> Initially was placed in the orthopedically handicapped

classroom at a

> site where there is a full time nurse. He has a one-on-one health

aide to

> perform the suctioning and tube feeding who also doubled as his sign

> language interpreter (this was truly a one in a million find!) who I

> trained. When moved to the DHH classroom, it was on a regular ed

> campus with only a visiting nurse. I had to hold an " in-service "

for all

> teachers and aides in the DHH program. In the DHH class he had a

one-on-one

> health aide, who cared for him, his trach and his tube feedings.

>

> Because the school was so terrified of a five day emergency stay, our

> pediatrician and I had to sign off on at least two dozen medical

> procedures - from daily to the most emergency oriented. As far as

the tubes

> coming out, it was understood that if was coming home that

day, simply

> keeping the old tube in place to prevent the stoma from closing would be

> sufficient. I also left a foley catheter in the kit in case someone was

> intimidated by the Mic-Key.

>

> Basically the one-on-one health aide did all the feeding and suctioning.

> The nurse only came by twice a year to make sure she was wearing her

gloves,

> and that all was well, and that all the supplies were accounted for

and the

> procedures signed off. We never had a single emergency at school.

>

> I hope this helps-

>

> best-

>

> Yuka

>

>

> Nursing issues with school (sorry-long)

>

>

> > had her IEP for school and almost everything went well. It

was 3

> hours and we finished everything except for the nursing issues. She

is going

> to attend the school for the deaf / hard of hearing and everyone

agrees this

> is the best placement for her at this time. However, they do not have a

> nurse at that school and is tube fed.

> >

> > This is all new to us because we have just recently started

bolus feeds

> to get her off of night feeds. She sees a nutritionist and the

original plan

> was for her to get one can after lunch and one can after supper. We

tried

> and that does not work. She starts dumping with just 4 ounces, so we

started

> doing 6 small bolus feeds and working up to what she can tolerate

before she

> starts the dumping. We have managed to get her to 5 bolus and her

stomach

> just won't take anymore in after that.

> >

> > The nurse from one of the other schools called me and said that they

> could not get someone there 3 times a day for her feedings and

wanted me to

> put her on her pump when I send her to school and they would come

take her

> off at lunch time. I refused because I know that she will not want

to eat

> and the goal is to increase her oral intake to get her off the tube

at some

> point. I also pointed out that would not like to be

restricted to the

> pump and that she would pull the tube out frequently if we do that. They

> finally agreed that they could get someone there twice a day and we have

> worked her schedule out for that.

> >

> > Now, is going to start school on Tuesday and the nurse

called me

> on Friday to tell me that they have her emergency medical plan

written and

> would leave it at the school for me to look over and sign when she

comes for

> her first day. I mentioned that I would have a button kit to be kept at

> school and asked where they would like it kept. The nurse then told

me that

> they have me down as the only contact if the button should need

replaced. I

> told her that I would need to go back to work at some point and I

felt that

> they should be the first contact for this. She basically told me

that they

> could not get there any faster than me to put it back in if they

were busy

> with another student at another school.

> >

> > The way this came across to me was that her time is valuable and

mines

> not. I also know that is smart enough to realize after just

once that

> they will call me if the button comes out and then anytime she wants

Mommy,

> she will pull it out. My thought is that they should be the ones called

> first and I should be the last resort for this. I also live 30

minutes from

> the school and if I am in the middle of something with one of my

other kids,

> I am suppose to drop everything and this does not seem right to me.

I can

> understand it if she is sick, but not for this.

> >

> > I plan to talk with them on Tuesday and try to work something out. I

> think that they are not seeing the big picture here. The nurses have not

> seen and were not at her IEP so I think that they think she can't

> really do much. They only see her on paper and have read the labels and

> assume the deafblind means the other end of the spectrum. I know that

> doctors have seen her on paper and are amazed when they see her and

tell me

> that they did not expect her to be doing so much. I have tried to

look for

> information on what the law states for nursing in the school system

and I

> can't find anything. I want to talk to the nurses and see if we can work

> this out, but I also want to have the information on the law to back

me up

> if I need it.

> >

> > If anyone can tell me how it has been for your child's school or

where

> to find the information on what is required for nursing in the school

> system, I would appreciate it. Also, do you all agree with me that I

should

> not be the only contact person for this issue? I have thought about

this a

> lot and it just doesn't seem right to me.

> >

> >

> > Mom to 3 yrs old on Feb. 17th!!!!!!! I can't believe we

have made

> it to this point!!!!

>

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