Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 Grp: I hurt in the pelvic area/butt bone. I think I hurt everywhere- throat tendons, collar bone and upper arms--- its getting more weird as time goes on (had RA 6 years now) I have much stiffness in muscles ( I sleep with ice paks everywhere) and the doc said RA gets into muscles as much as joints. I am always sore to the touch everywhere. Guess this is part of the RA also. Carol* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 on 10/27/01 10:35 AM, Mark Holmes wrote: > I'm curious as to whether some of you when you're flaring develop > pelvic pain? Since I have gone off of metho, I'm in the flare of all > flares and even the bones in my butt hurt! When I bend over to pick > up something, it's excruciating in those bones or if I sit on a hard > chair - impossible. I used to get it with ReA: you're sounding like you need to switch diagnosis? Have you been checked for HLA B27? Do you have heel pain? Iritis? I used to walk along and feel like I was being shot in the tail bone. Also pubic synthesis. Glad I don't have that any more. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 on 10/27/01 11:50 AM, Probert wrote: > pubic synthesis Sorry, make that symphysis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 > I'm curious as to whether some of you when you're flaring develop > pelvic pain? Since I have gone off of metho, I'm in the flare of all > flares and even the bones in my butt hurt! When I bend over to pick > up something, it's excruciating in those bones or if I sit on a hard > chair - impossible. I get that sometimes too. ( and had the pubic symphisis pain in the past too, Jean) Hurt on the tailbone, the lower edge of the pelvic bone (the " sitting bone " ) and on the side of the hip also. I had a a lot of flaring there when I tried doxy for several months. The arthritis seems to keep skipping around in my body over time. Sometimes it is neck, hands and feet, sometimes back and pelvic area, and right now it is primarily tendons. I had a lot of pelvic pain after a miscarriage once, which I am now sure was the arthritis. My hip was gelling and giving out on me at the same time and I had the awful fatigue I have come to know is part of RA, GI troubles and the low fevers. But I did not get a diagnosis at that time, instead they ruled it as possibly related to the miscarriage--some elusive low-grade infection--and was treated with antibiotics, some I don't recall, and eventually flagyl. After a month of that I got quite a bit better, well enough to go back to work. They did some pretty comprehensive STD screens at the time, which all came back negative, so if it was ReA I don't think it was any of the usual pathogens they say cause ReA. And in any case you would expect to have a flare after a pregnancy if it was RA. But sometimes I wonder as I seem to have symptoms of both. Boy do I wish sometimes I had the means to go to someone like Dr. Franco who could sort this all out....then at other times I just feel like it doesn't matter what they call it, since I feel I am on the right track with the treatment and have a lot of my energy back. I haven't had much time to think about it anyway because we are still struggling with the flu virus from hell here. Didn't mean to get so off track here but just to say that it is not always so clear cut. I think my diagnossi was made as RA because back when we were puzzling it out I had +RF and hands and feet were the targets. But it really is more widespread. My doc (GP) has always said that RA can cause inflammation in virtually any part of the body once it gets rolling. Liz G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 on 10/27/01 12:19 PM, Liz G. wrote: > Didn't mean to get so off track here but just to say that it is not always > so clear cut. I think my diagnossi was made as RA because back when we were > puzzling it out I had +RF and hands and feet were the targets. But it really > is more widespread. My doc (GP) has always said that RA can cause > inflammation in virtually any part of the body once it gets rolling. I think a lot of our situations are not so clear-cut as the docs would like to make them: to me this just means they don't understand these diseases as well as they would like to think they do. I started with swollen ankles and knees and positive ANA, they thought it would turn out to be lupus, but didn't develop that way. When I started to develop heel, hip and pelvic pain, they tested for HLA B27, but it was negative. I had diarrhea troubles, but not the recognition of an infectious cause, but later did develop iritis. Most docs I've asked said the iritis is more specific than HLA B27 for the group of spondylarthropathies as a whole, thus my diagnosis of ReA. Actually, the information you sent on microscopic colitis is closer to my presentation than anything else, but I don't really want to go through all the diagnostics just to find out if that is a better diagnosis, as long as my treatment is working. I just don't think they know enough about the gray areas of the rheumatic diseases to really determine my true diagnosis at this juncture. I don't appreciate going through expensive, maybe invasive diagnostic procedures just to get wildly varying opinions on what the results mean. Fortunately, minocycline has helped me a good bit, even though I haven't achieved remission. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 In a message dated 10/27/2001 7:36:07 AM Pacific Standard Time, mholmes@... writes: > I've just never had these bones hurt in a flare before, so was > curious as to whether this was normal or abnormal. I have my bones hurt in this last flare, I have a Herman erogonamic chair and even though it is top of the line there is no cusion just a webbing and it makes my butt hurt. My hips also hurt when I sleep so I feel I am just going through another area being effected and it will go away. Do think about selling the chair and buying one for several hundred dollars cheaper that has a padded bottom cusion on it to see if that will help. I think part of it also is since moving my walking has been cut way down. Fedlencrist exercises also help . :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Speaking of chairs, also make sure you have your chair seat adjusted so that the seat is a little higher than you knees. I set my chair higher when I was having bad trouble with knee tendons, and it helped the lower back and hip area too, as the muscles are not so stretched across the back and hip area if it is a couple of inches higher than the knee. Liz G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 > Date: Sat, 27 Oct 2001 14:08:08 EDT > From: HPUMOM1@... > Subject: Re: Unusual flare or not? > > I hurt in the butt bone Newly discovered skeletal extension? Couldn't resist! Geoff Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.