information about connexin 26

[Guest guest]

I'm looking for general information in plain English (or Spanish, for

that matter) about Connexin 26. I've found several sites that give

descriptions using lots of medical terms. I just want to know what a

parent might need to know, not what a doctor needs to know. You

know?

Thanks in advance,

Gisgie

[Guest guest]

Gisgie-

Harvard's Center for Heriditary Deafness has a booklet written specifically for

families to understand the genetic causes of hearing loss, including Cx26. You

can download a copy at http://hearing.harvard.edu/index.htm or order one online.

The website is full of information, some of it simple, some of it more

technical. You might find some of their links helpful as well. I have found

their office to be very helpful and responsive when I have contacted them

directly with questions as well; Heidi Rehm speaks and presents frequently to

parents, so there may be something she can share with you too.

Kerry

information about connexin 26

I'm looking for general information in plain English (or Spanish, for

that matter) about Connexin 26. I've found several sites that give

descriptions using lots of medical terms. I just want to know what a

parent might need to know, not what a doctor needs to know. You

know?

Thanks in advance,

Gisgie

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

[Guest guest]

Gisgie-

Harvard's Center for Heriditary Deafness has a booklet written specifically for

families to understand the genetic causes of hearing loss, including Cx26. You

can download a copy at http://hearing.harvard.edu/index.htm or order one online.

The website is full of information, some of it simple, some of it more

technical. You might find some of their links helpful as well. I have found

their office to be very helpful and responsive when I have contacted them

directly with questions as well; Heidi Rehm speaks and presents frequently to

parents, so there may be something she can share with you too.

Kerry

information about connexin 26

I'm looking for general information in plain English (or Spanish, for

that matter) about Connexin 26. I've found several sites that give

descriptions using lots of medical terms. I just want to know what a

parent might need to know, not what a doctor needs to know. You

know?

Thanks in advance,

Gisgie

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

[Guest guest]

Gisgie-

Harvard's Center for Heriditary Deafness has a booklet written specifically for

families to understand the genetic causes of hearing loss, including Cx26. You

can download a copy at http://hearing.harvard.edu/index.htm or order one online.

The website is full of information, some of it simple, some of it more

technical. You might find some of their links helpful as well. I have found

their office to be very helpful and responsive when I have contacted them

directly with questions as well; Heidi Rehm speaks and presents frequently to

parents, so there may be something she can share with you too.

Kerry

information about connexin 26

I'm looking for general information in plain English (or Spanish, for

that matter) about Connexin 26. I've found several sites that give

descriptions using lots of medical terms. I just want to know what a

parent might need to know, not what a doctor needs to know. You

know?

Thanks in advance,

Gisgie

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

[Guest guest]

This is a wonderful resource. Many thanks. I'm also looking for

information on what the prognosis is for a person who is found to

have Cx26. This site talks about how to test for it and what it is,

but doesn't give much information about the prognosis. What I'm

looking for is information on what we might expect if our children

are found to have Cx26. Do most people completely lose their hearing,

etc.?

Thanks again,

Gisgie

> Gisgie-

> Harvard's Center for Heriditary Deafness has a booklet written

specifically for families to understand the genetic causes of hearing

loss, including Cx26. You can download a copy at

http://hearing.harvard.edu/index.htm or order one online.