Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 -Narice, It's great to have you back feeling chipper. I would give my right arm if I could do the same. I have not had a break for 4 years and it does get tough to deal with sometimes. was given the option of taking the Avastin alone or with the Xeloda. He chose the combo for as long as he can stand it. On the mouth sore issue, he only had them once and that was when he was given chemo and radiation before his first surgery to remove the colorectal tumor. The day the Onc saw the first sore he took him off the chemo until they resolved themselves. He told to rinse his mouth with salt and baking soda in warm water. Hope this helps a little and glad to have you back. Joyce-- In colon_cancer_support , flipper759@a... wrote: > Phil's mouth sores are getting pretty bad. They are all around the edge of > his tongue and making it painful to eat. He DOES use the lidocaine (magic > mouthwash) but I know some of you know other little tricks to ease the pain. any > suggestions are welcomed. > God bless > Narice > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Thanks Narice, It's really not as bad as I probably made it sound. It's just that I was used to taking off to Las Vegas with friends and now I just feel almost guilty for even thinking about it. At my doctors advise I finally started getting my hair or nails done once a week. Lunch afterwards with my friends helps a bunch and my cell phone is always at my side. is not at the point of needing respite care yet. It's just that ever since he blacked out and cut his eyebrow, I get paranoid about leaving him alone. My friends say I have him spoiled and I say I am glad to have him here to spoil. Many, many years ago, when I was in my early 20's and a friend and I were bitching about the mess the men make in the bathroom, out popped a sales clerk. She said, ladies pardon me but I could not help but overhear your conversation. She said she had lost her husband and would give anything to have that mess there to clean. I have never forgotten that story. Best Wishes, Joyce > Thanks Joyce > it was a Godsend that Phil was well enough for me to do this. For yourself is > there respite care available? Getting away does help put things back in > perspective. they also increased my Paxil from 40-60mg. Only complaint is the > drowsiness is pretty bad but I certainly feel a lot better. > > There are good caregiver tips in one of the current Newsweek articles on > Reagan. That is one remarkable lady! > > <<<Hugs>>> to all > Narice > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Thanks Narice, It's really not as bad as I probably made it sound. It's just that I was used to taking off to Las Vegas with friends and now I just feel almost guilty for even thinking about it. At my doctors advise I finally started getting my hair or nails done once a week. Lunch afterwards with my friends helps a bunch and my cell phone is always at my side. is not at the point of needing respite care yet. It's just that ever since he blacked out and cut his eyebrow, I get paranoid about leaving him alone. My friends say I have him spoiled and I say I am glad to have him here to spoil. Many, many years ago, when I was in my early 20's and a friend and I were bitching about the mess the men make in the bathroom, out popped a sales clerk. She said, ladies pardon me but I could not help but overhear your conversation. She said she had lost her husband and would give anything to have that mess there to clean. I have never forgotten that story. Best Wishes, Joyce > Thanks Joyce > it was a Godsend that Phil was well enough for me to do this. For yourself is > there respite care available? Getting away does help put things back in > perspective. they also increased my Paxil from 40-60mg. Only complaint is the > drowsiness is pretty bad but I certainly feel a lot better. > > There are good caregiver tips in one of the current Newsweek articles on > Reagan. That is one remarkable lady! > > <<<Hugs>>> to all > Narice > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Thanks Narice, It's really not as bad as I probably made it sound. It's just that I was used to taking off to Las Vegas with friends and now I just feel almost guilty for even thinking about it. At my doctors advise I finally started getting my hair or nails done once a week. Lunch afterwards with my friends helps a bunch and my cell phone is always at my side. is not at the point of needing respite care yet. It's just that ever since he blacked out and cut his eyebrow, I get paranoid about leaving him alone. My friends say I have him spoiled and I say I am glad to have him here to spoil. Many, many years ago, when I was in my early 20's and a friend and I were bitching about the mess the men make in the bathroom, out popped a sales clerk. She said, ladies pardon me but I could not help but overhear your conversation. She said she had lost her husband and would give anything to have that mess there to clean. I have never forgotten that story. Best Wishes, Joyce > Thanks Joyce > it was a Godsend that Phil was well enough for me to do this. For yourself is > there respite care available? Getting away does help put things back in > perspective. they also increased my Paxil from 40-60mg. Only complaint is the > drowsiness is pretty bad but I certainly feel a lot better. > > There are good caregiver tips in one of the current Newsweek articles on > Reagan. That is one remarkable lady! > > <<<Hugs>>> to all > Narice > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 my dad had to have a mouth wash and we got it from hospice, it is called MD mouth wash, it was made by doctors at one of the leading cancer treatment centers in the states, ask your doctors or hospice if you are at that point either way it works very well. good luck mary b. Joyce wrote: -Narice, It's great to have you back feeling chipper. I would give my right arm if I could do the same. I have not had a break for 4 years and it does get tough to deal with sometimes. was given the option of taking the Avastin alone or with the Xeloda. He chose the combo for as long as he can stand it. On the mouth sore issue, he only had them once and that was when he was given chemo and radiation before his first surgery to remove the colorectal tumor. The day the Onc saw the first sore he took him off the chemo until they resolved themselves. He told to rinse his mouth with salt and baking soda in warm water. Hope this helps a little and glad to have you back. Joyce-- In colon_cancer_support , flipper759@a... wrote: > Phil's mouth sores are getting pretty bad. They are all around the edge of > his tongue and making it painful to eat. He DOES use the lidocaine (magic > mouthwash) but I know some of you know other little tricks to ease the pain. any > suggestions are welcomed. > God bless > Narice > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.