Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, I wanted to mention , when I was goig through treatment before my surgery I couldn't eat, my DH would get really annoyed with me but the adation gave me such stomach spasms I just couldn't. I lost 45lbs from Jan. to now as my appetite still isn't normal. I know this is so hard for you and I will continue to pray for both of you, but I also knows how your dh feels. Hugs joan Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, I wanted to mention , when I was goig through treatment before my surgery I couldn't eat, my DH would get really annoyed with me but the adation gave me such stomach spasms I just couldn't. I lost 45lbs from Jan. to now as my appetite still isn't normal. I know this is so hard for you and I will continue to pray for both of you, but I also knows how your dh feels. Hugs joan Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, I wanted to mention , when I was goig through treatment before my surgery I couldn't eat, my DH would get really annoyed with me but the adation gave me such stomach spasms I just couldn't. I lost 45lbs from Jan. to now as my appetite still isn't normal. I know this is so hard for you and I will continue to pray for both of you, but I also knows how your dh feels. Hugs joan Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Oh Jane, My heart bleeds for you and Nick. You just brought back memories of what we went thru last November. I know how helpless you feel and you have my total sympathy. All you can do is put your trust is God and hope for the best. Give Nick a big hug and kiss and tell him we are all praying that he will feel better soon. As impossible as it may seem, try to sneak a few minutes rest yourself. Thank God your children live in Miami and are there to help. Best wishes to you and Nick Joyce > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky(he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 I pray for everyone on this board but I will say an extra one for Nick. I hope everything works out. Please hang in there. God bless. Judy > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky (he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 I pray for everyone on this board but I will say an extra one for Nick. I hope everything works out. Please hang in there. God bless. Judy > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky (he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Dear Nick & Jane, Just a whole lot of love and prayers for you both today.Jane don't let him lose hope.I'm sure he is so tired of fighting,but it's probably something simple. You've both given us all such words of encouragment.Know we are thinking of you and hoping Nick is on the mend. Peace, Mark's Wife Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Dear Nick & Jane, Just a whole lot of love and prayers for you both today.Jane don't let him lose hope.I'm sure he is so tired of fighting,but it's probably something simple. You've both given us all such words of encouragment.Know we are thinking of you and hoping Nick is on the mend. Peace, Mark's Wife Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Dear Nick & Jane, Just a whole lot of love and prayers for you both today.Jane don't let him lose hope.I'm sure he is so tired of fighting,but it's probably something simple. You've both given us all such words of encouragment.Know we are thinking of you and hoping Nick is on the mend. Peace, Mark's Wife Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi Jane, I hope by now Nick is starting to feel a little better. All these prayers and good wishes have got to be helping Kathy L. Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi Jane, I hope by now Nick is starting to feel a little better. All these prayers and good wishes have got to be helping Kathy L. Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi Jane, I hope by now Nick is starting to feel a little better. All these prayers and good wishes have got to be helping Kathy L. Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Kathy: Thank you..yes they are like gas in the tank of the automobile. Better even. Quote Link to comment Share on other sites More sharing options...
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