Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hi Narice: Just read your post and I am so glad that you had a good time with your family and to hear that Phil, for the most part, is doing good. You better believe " stable " sure as heck beats the alternative and it appears that Phil will continue to fight his fight with an even stronger Narice at his side. I'll keep praying real hard...the cure is out there, I just know it is, and with God's blessings, sooner than later. Hugs, Monika > > > Hello all > > We saw the oncologist today Phil's platelets dropped again due to the chemo. > He will have 1 more dose and then he wants to take Phil off the chemo for a > while. He is looking into whether Avastin can be taken alone. The rationale is > that the chemo is beating up the blood cells and after being on 5FU > Leucovorin and Oxilaplatin for a year there's a chance that he could become chemo > resistant. > > They will also begin a 10 day round of shots to boost his platelets. > The CT confirmed the PET in that it showed little to no change but it's > stable and after a year of dealing with this stable is better than the alternative. > > I had a wonderful Restful visit with my family which really helped me regroup > and brace myself to stay in the fight with lots of faith and hope. > As always many thanks to all of you for your love and prayers > Narice > caregiver to Phil > diagnosed June 19, 2003 > Stage 4 with multiple liver mets (Initially thought to be pancreatic) > > July 2003-Severe swelling, Some Jaundice PCP tells us NOT to > seek treatment. > We begin treatment with Dr. Jan Rothman > at Regional Cancer Center Erie, PA > 5FU, Leucovorin, Oxilaplatin > August 2003- Phil's weight drops from 165 to 135 > > September 2003-Phil goes off diuretic (oops) > In late September he has CT showing > significant > reduction of tumor. ;-) > December 2003- Tumor stable side effects so far are minimal some flu > like symptoms with the Oxilaplatin, dry chapped > hands > and occasional nausea > March 2004-Weight gain of 20 lbs (fluctuates between 155-160) > Tumor still stable, (13 cm in colon multiple liver > mets. Largest being 9 cm > April 2004 1 month chemo break YIPEEE!!!!! > April 21.2004- Phil starts on new chemo 5 FU, Leucovorin, Oxaliplatin > AND Avastin via 46 HR pump. Weight 160. > > > > 4/23 Mouth sores develop using *magic mouthwash*. > > CEA 2.5 down from 3.5 before Avastin > Low red & white counts > Dr. states *You could be the poster person for chemo response, when I first > saw you in the hospital last June 2003 I practically had to 'scrape you off > the wall.' " :-> > > 5/17/04 Red & white counts normalized. Platelet count down to 88,000 > (normal 150,000. Chemo postponed for 1st time since diagnosis 5/24 weight 160 > All blood counts at or near normal. Platelets at 122,000 > > June 8 No chemo Low platelets > June 15 chemo platelets back up > June 21-platelets dropping again Medication to build platelets to be > administered for 10 days after chemo. Mouth sores around ridge of tongue. > > God's blessings to all on this journey! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Narice- I am pleased to hear that Phil's disease is stable. I am also so happy to hear that you were able to get away and have a good visit and rest. I have always thought being the caregiver harder in many ways than being the patient. Even as a patient, however, I remember being so sick of having been only to the doctors, the pharmacy and work no more than 5 miles from home that I bought an ice chest at Target 10 minutes before closing, packed my TPN in it and drove 5 hrs to the Adirondacks just to sit and look at Lake Champlain for a few days before surgery. It made a world of difference. My platelets have never been a big problem during my year on oxaliplatin/Xeloda; however, my hemoglobin levels have been sliding despite Procrit/Arnesp. My oncologist would like to switch me to Avastin/Xeloda for a while. Out of curiosity, what are they going to be giving Phil for his platelets? Best wishes for continued sucess. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Narice- I am pleased to hear that Phil's disease is stable. I am also so happy to hear that you were able to get away and have a good visit and rest. I have always thought being the caregiver harder in many ways than being the patient. Even as a patient, however, I remember being so sick of having been only to the doctors, the pharmacy and work no more than 5 miles from home that I bought an ice chest at Target 10 minutes before closing, packed my TPN in it and drove 5 hrs to the Adirondacks just to sit and look at Lake Champlain for a few days before surgery. It made a world of difference. My platelets have never been a big problem during my year on oxaliplatin/Xeloda; however, my hemoglobin levels have been sliding despite Procrit/Arnesp. My oncologist would like to switch me to Avastin/Xeloda for a while. Out of curiosity, what are they going to be giving Phil for his platelets? Best wishes for continued sucess. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Narice- I am pleased to hear that Phil's disease is stable. I am also so happy to hear that you were able to get away and have a good visit and rest. I have always thought being the caregiver harder in many ways than being the patient. Even as a patient, however, I remember being so sick of having been only to the doctors, the pharmacy and work no more than 5 miles from home that I bought an ice chest at Target 10 minutes before closing, packed my TPN in it and drove 5 hrs to the Adirondacks just to sit and look at Lake Champlain for a few days before surgery. It made a world of difference. My platelets have never been a big problem during my year on oxaliplatin/Xeloda; however, my hemoglobin levels have been sliding despite Procrit/Arnesp. My oncologist would like to switch me to Avastin/Xeloda for a while. Out of curiosity, what are they going to be giving Phil for his platelets? Best wishes for continued sucess. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I think it is called Neulasta I didn't write it because I'm unsure of the name. I believe some of the others may have had this at one time or another. The Adirondacks are so beautiful Can't say I blame you. Now that it is actually WARM in Erie I have the lake to go to. I think we all need something beautiful in our lives to take our minds off the ugliness of this disease. Thanks for your reply Take Care and God Bless Narice In a message dated 6/22/2004 1:37:07 AM Eastern Daylight Time, krissdvm@... writes: > Narice- I am pleased to hear that Phil's disease is stable. I am > also so happy to hear that you were able to get away and have a good > visit and rest. I have always thought being the caregiver harder in > many ways than being the patient. Even as a patient, however, I > remember being so sick of having been only to the doctors, the > pharmacy and work no more than 5 miles from home that I bought an ice > chest at Target 10 minutes before closing, packed my TPN in it and > drove 5 hrs to the Adirondacks just to sit and look at Lake Champlain > for a few days before surgery. It made a world of difference. > > My platelets have never been a big problem during my year on > oxaliplatin/Xeloda; however, my hemoglobin levels have been sliding > despite Procrit/Arnesp. My oncologist would like to switch me to > Avastin/Xeloda for a while. > > Out of curiosity, what are they going to be giving Phil for his > platelets? > > Best wishes for continued success. > > Kris > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I think it is called Neulasta I didn't write it because I'm unsure of the name. I believe some of the others may have had this at one time or another. The Adirondacks are so beautiful Can't say I blame you. Now that it is actually WARM in Erie I have the lake to go to. I think we all need something beautiful in our lives to take our minds off the ugliness of this disease. Thanks for your reply Take Care and God Bless Narice In a message dated 6/22/2004 1:37:07 AM Eastern Daylight Time, krissdvm@... writes: > Narice- I am pleased to hear that Phil's disease is stable. I am > also so happy to hear that you were able to get away and have a good > visit and rest. I have always thought being the caregiver harder in > many ways than being the patient. Even as a patient, however, I > remember being so sick of having been only to the doctors, the > pharmacy and work no more than 5 miles from home that I bought an ice > chest at Target 10 minutes before closing, packed my TPN in it and > drove 5 hrs to the Adirondacks just to sit and look at Lake Champlain > for a few days before surgery. It made a world of difference. > > My platelets have never been a big problem during my year on > oxaliplatin/Xeloda; however, my hemoglobin levels have been sliding > despite Procrit/Arnesp. My oncologist would like to switch me to > Avastin/Xeloda for a while. > > Out of curiosity, what are they going to be giving Phil for his > platelets? > > Best wishes for continued success. > > Kris > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I think it is called Neulasta I didn't write it because I'm unsure of the name. I believe some of the others may have had this at one time or another. The Adirondacks are so beautiful Can't say I blame you. Now that it is actually WARM in Erie I have the lake to go to. I think we all need something beautiful in our lives to take our minds off the ugliness of this disease. Thanks for your reply Take Care and God Bless Narice In a message dated 6/22/2004 1:37:07 AM Eastern Daylight Time, krissdvm@... writes: > Narice- I am pleased to hear that Phil's disease is stable. I am > also so happy to hear that you were able to get away and have a good > visit and rest. I have always thought being the caregiver harder in > many ways than being the patient. Even as a patient, however, I > remember being so sick of having been only to the doctors, the > pharmacy and work no more than 5 miles from home that I bought an ice > chest at Target 10 minutes before closing, packed my TPN in it and > drove 5 hrs to the Adirondacks just to sit and look at Lake Champlain > for a few days before surgery. It made a world of difference. > > My platelets have never been a big problem during my year on > oxaliplatin/Xeloda; however, my hemoglobin levels have been sliding > despite Procrit/Arnesp. My oncologist would like to switch me to > Avastin/Xeloda for a while. > > Out of curiosity, what are they going to be giving Phil for his > platelets? > > Best wishes for continued success. > > Kris > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Amen!!!!,,,,,,,,,,,,HUGS,,,,,,,, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Amen!!!!,,,,,,,,,,,,HUGS,,,,,,,, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Amen!!!!,,,,,,,,,,,,HUGS,,,,,,,, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 I understand how your husband feels, goin through the treatment is no fun nd only one who has can understand. My cancer is stae 2 with no lynph involved hd adation, chemo before surgery, now am ufferig with a abscess at te surgery site and the ain has been hell. I will pray for yur husband, butI do undertand his feeling. Go luck to him joan Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 I understand how your husband feels, goin through the treatment is no fun nd only one who has can understand. My cancer is stae 2 with no lynph involved hd adation, chemo before surgery, now am ufferig with a abscess at te surgery site and the ain has been hell. I will pray for yur husband, butI do undertand his feeling. Go luck to him joan Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 I understand how your husband feels, goin through the treatment is no fun nd only one who has can understand. My cancer is stae 2 with no lynph involved hd adation, chemo before surgery, now am ufferig with a abscess at te surgery site and the ain has been hell. I will pray for yur husband, butI do undertand his feeling. Go luck to him joan Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, All I can say is, God is good and he will see you through this. I am saying a prayer for you as I type this. Take some time for yourself. Take a walk, scream, cry, or just sit quietly and talk to God. He will hear your prayer even if he seems far away at times. I hurt for you and wish you the best. Donna M. Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, All I can say is, God is good and he will see you through this. I am saying a prayer for you as I type this. Take some time for yourself. Take a walk, scream, cry, or just sit quietly and talk to God. He will hear your prayer even if he seems far away at times. I hurt for you and wish you the best. Donna M. Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, All I can say is, God is good and he will see you through this. I am saying a prayer for you as I type this. Take some time for yourself. Take a walk, scream, cry, or just sit quietly and talk to God. He will hear your prayer even if he seems far away at times. I hurt for you and wish you the best. Donna M. Re: More on Phil Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he doesn't want to go. The last ten days he has had no appetitie,finds it difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a potage, and brought salmon. He sat at the table on the Sat.,before Father's day and that was it. The next day he kind of had a meltdown. he had a fever 100.8 and since the Mito- mycin can have an effect on your immune system,I called the onc. group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets once a day for five days. he walked from sofa to toilet,showered and took a sleeping pill and eventually went to sleep. Monday he felt very bad,was shaky(he is sometimes) and all day I had to coax him to drink water or anything. That night watching T.V. he sort of tumble over,and whopped up what little he had eaten and had to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to office. He was in pain and the Dr. told him counts were screwed up but basically ok. I don't drive. Our daughter who still lives at home had the day off. We got him home,esconced on the sofa,went to pick up a prescription and were back in less then fifteen. Every day is worse,he seems to feel like the world is picking on him,and the Dr. had given him five Zofrans(which cost a fortune) and they controlled the vommitting. He was dizzy,then slept about three hours,he could not stand to take a shower so he used the tub,hard to get in and out of. I know the side effects sometimes can be scary but he was never like this. Kind of a funk. Now today,another daughter and her husband are driving us to his appt. He says he can't go because it pains him to sit up straight. When the clock strikes 9 i will call the oncology nurse from AvMed and ask her what to do. Hid regular PCP had back surgery and his son is a part of the pracise but I will call and try to get him to see Nick. We are blessed that all four of our kids(adult) live here in miami. They think this sudden change is scary. Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive in the initial operation. It wnet to liver, then it seemed the Avastin caused those tumors to shrink. Six months later,they came back with a vengance. back to chemo,5FU, Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ C.A.T showed now both lobes involved,plus a mass in two other areas plus 2 small spots on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor still there. He tales the generic hydoco apap for the pain,which is constant. He tries not to take them if he can help it. He cannot sit to drive,momentarily he can't walk more than bed to bath and to sofa. He has lost interest these last past few days in everything and that scares me. We belong to a nmber of prayer groups and that has sutained us before so I am asking you to say a special one for us today. Nick has always been an advocate for others. pays their bills for them,shops for them, takes them to Dr.s etc.gets people in touch with those who can help and to see him just lying there,one hand shaking and not even talking to our Beagle or the birds 4 paraketts that always sing for him,is more than I can bare. Sorry to let go but if I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband of 44 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, I'm so sorry Nick is feeling this poorly. My heart goes out to you both. I am sending you love, comfort and hugs. You and Nick are always in my thoughts. I will pray that he pulls through this bad time. As a caretaker, I too know how devastating it is to see your loved ones suffer so. You have all of us here to " let it out. " Don't ever hesitate, you need to let it out and take care of yourself. I wish you both peace and love. Deb > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky(he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, I'm so sorry Nick is feeling this poorly. My heart goes out to you both. I am sending you love, comfort and hugs. You and Nick are always in my thoughts. I will pray that he pulls through this bad time. As a caretaker, I too know how devastating it is to see your loved ones suffer so. You have all of us here to " let it out. " Don't ever hesitate, you need to let it out and take care of yourself. I wish you both peace and love. Deb > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky(he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, I'm so sorry Nick is feeling this poorly. My heart goes out to you both. I am sending you love, comfort and hugs. You and Nick are always in my thoughts. I will pray that he pulls through this bad time. As a caretaker, I too know how devastating it is to see your loved ones suffer so. You have all of us here to " let it out. " Don't ever hesitate, you need to let it out and take care of yourself. I wish you both peace and love. Deb > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky(he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, You certainly have prayers coming from me. It breaks my heart that you and Nick are in such pain. Sharon > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky (he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, You certainly have prayers coming from me. It breaks my heart that you and Nick are in such pain. Sharon > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky (he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Jane, You certainly have prayers coming from me. It breaks my heart that you and Nick are in such pain. Sharon > Today Nick is supposed to have an onc. visit,blood work,get hydrated,and he > doesn't want to go. The last ten days he has had no appetitie,finds it > difficult to swallow ad won't get off the sofa. One daughter made him a liver soup,a > potage, > and brought salmon. He sat at the table on the Sat.,before Father's day and > that was it. The next day he kind of had a meltdown. he had a fever 100.8 and > since the Mito- > mycin can have an effect on your immune system,I called the onc. > group,covering physician responded almost immediately,prescribed Levaquin,5-500 mg tablets > once a day for five days. he walked from sofa to toilet,showered and took a > sleeping > pill and eventually went to sleep. Monday he felt very bad,was shaky (he is > sometimes) and all day I had to coax him to drink water or anything. That night > watching T.V. he sort of tumble over,and whopped up what little he had eaten > and had > to drink. Dr. Visit. He couldn't walk. Got a wheelchair at entrance to > office. He was in > pain and the Dr. told him counts were screwed up but basically ok. I don't > drive. > Our daughter who still lives at home had the day off. We got him > home,esconced > on the sofa,went to pick up a prescription and were back in less then > fifteen. > Every day is worse,he seems to feel like the world is picking on him,and the > Dr. had given him five Zofrans(which cost a fortune) and they controlled the > vommitting. > He was dizzy,then slept about three hours,he could not stand to take a shower > so > he used the tub,hard to get in and out of. I know the side effects sometimes > can > be scary but he was never like this. Kind of a funk. Now today,another > daughter and her husband are driving us to his appt. He says he can't go because it > pains him > to sit up straight. When the clock strikes 9 i will call the oncology nurse > from AvMed > and ask her what to do. Hid regular PCP had back surgery and his son is a > part > of the pracise but I will call and try to get him to see Nick. We are blessed > that all > four of our kids(adult) live here in miami. They think this sudden change is > scary. > Nick is 73, His cancer was stage 3 with 9 of 26 lymph nodes testing positive > in the > initial operation. It wnet to liver, then it seemed the Avastin caused those > tumors > to shrink. Six months later,they came back with a vengance. back to > chemo,5FU, > Lk,+camptosar(cpt 11) plus avastin) seemed to reduce those tumors. P.E.T.+ > C.A.T > showed now both lobes involved,plus a mass in two other areas plus 2 small > spots > on lungs. Now Oxy+ saltz+Avastin. (bolus-bag) terrible nausea,mouth sores,and > diarreha. Stop that,last Thursday started Mitomycin,one of the new HC3 class > of drugs. Had chest x-ray. Dr. says shows some improvement but principal tumor > still there. He tales the generic hydoco apap for the pain,which is constant. > He tries > not to take them if he can help it. He cannot sit to drive,momentarily he > can't walk > more than bed to bath and to sofa. He has lost interest these last past few > days in everything and that scares me. We belong to a nmber of prayer groups > and that has sutained us before so I am asking you to say a special one for us > today. Nick has > always been an advocate for others. pays their bills for them,shops for them, > takes them to Dr.s etc.gets people in touch with those who can help and to > see him just > lying there,one hand shaking and not even talking to our Beagle or the > birds > 4 paraketts that always sing for him,is more than I can bare. Sorry to let go > but if > I let it out,then I can go on. God Bless Jane/cargeiver to Nick my husband > of 44 years > > > Quote Link to comment Share on other sites More sharing options...
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