Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi, I have only belonged to the group a few weeks. I got a good giggle out of your email. It sounds like you have a very bright young boy on your hands. Let us know any updates. and Brooklyn bilateral cf 3/21/02 Karydas wrote:Hi Everybody! I just got back onto the site after much too long away and it's nice to see news of old friends and lots of new people benefiting from the info here. First off, thanks to all of you who posted messages and sent private ones wishing Dinos a happy second birthday. Sorry I am so delinquent in replying. Dinos keeps me too busy. If he'd been the first child, he would have been the ONLY child! Nothing his sister ever did prepared me for this. Anyway, an update... from what I've seen in recent postings, it seems Dinos is notorious for getting out of his DBB. Well, he still can get out, and even tho' he knows now how to untie the laces, he makes a point of not bothering with either them or the buckles when he wants out; he just gets out. He mostly humors us by staying in it at night, but we only manage about ten hours per night and not the 14-16 per day that Dr. Ponseti recommended. Dinos just doesn't sleep that much and won't tolerate it for even a minute once he's awake. I envy those parents who write of children who happily sit in their braces to watch a video and eat breakfast. Dinos' first word, every day, upon opening his eyes is " OFF!!! " as he pulls his heels up and out. I'm lucky if I can get one shoe unbuckled before he's out of both of them. And there is no question of putting them on him for naptime. He gave up his morning nap a year ago and only sleeps about an hour in the afternoon. He wakes immediately if I so much as slip a shoe on his foot as he's sleeping. So, we get in as many hours as we can (long car trips he's in it) and we hope it won't affect his progress. We saw Dr. Feldman in NY a couple of months ago and he said Dinos' feet look great and we can probably have him out of the brace after another year. His feet work great, anyway. He never walks, just runs at top speed everywhere. His legs seem amazingly strong; it must have been all that early intensive training, waving his casts in the air. He's broken the clamps on his bar twice, and currently the two pieces are riveted together, courtesy of our local hardware store. From his climbing escapades around the house, I must say he's in training for doing Everest in the near future. We plan to see Dr. Ponseti soon, perhaps in November. Best wishes to all of you. Pamela Karydas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Pamela, How nice to hear from you! So glad Dinos is doing well. He sounds like an adorable bundle of energy! Thanks for stopping in to say hi! and , 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Pamela, How nice to hear from you! So glad Dinos is doing well. He sounds like an adorable bundle of energy! Thanks for stopping in to say hi! and , 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Pamela, It was great to hear from you! I'm glad Dinos is doing well. Still a little Houdini, huh? That's hilarious! I'm glad he's keeping them on at night for you at least! Please let us know when you'll be in Iowa this fall. We are also expecting to go back for 's check-up later in the year. Regards, & (3-16-00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Pamela, It was great to hear from you! I'm glad Dinos is doing well. Still a little Houdini, huh? That's hilarious! I'm glad he's keeping them on at night for you at least! Please let us know when you'll be in Iowa this fall. We are also expecting to go back for 's check-up later in the year. Regards, & (3-16-00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Pam, It is so good to hear from you again. I have been thinking about you and wondering how Dinos was getting along. Are you sure he isn't preparing for a future as a professional escape artist? I'm glad to hear that Dr. Feldman thinks his feet look great and obviously, getting out of the DBB isn't hindering his correction. Let me know when you plan to see Dr. Ponseti. We'd love to see you again. Karydas wrote: > Hi Everybody! > I just got back onto the site after much too long away and it's nice > to see news of old friends and lots of new people benefiting from > the info here. First off, thanks to all of you who posted messages > and sent private ones wishing Dinos a happy second birthday. Sorry I > am so delinquent in replying. Dinos keeps me too busy. If he'd been > the first child, he would have been the ONLY child! Nothing his > sister ever did prepared me for this. Anyway, an update... > from what I've seen in recent postings, it seems Dinos is notorious > for getting out of his DBB. Well, he still can get out, and even > tho' he knows now how to untie the laces, he makes a point of not > bothering with either them or the buckles when he wants out; he just > gets out. He mostly humors us by staying in it at night, but we only > manage about ten hours per night and not the 14-16 per day that Dr. > Ponseti recommended. Dinos just doesn't sleep that much and won't > tolerate it for even a minute once he's awake. I envy those parents > who write of children who happily sit in their braces to watch a > video and eat breakfast. Dinos' first word, every day, upon opening > his eyes is " OFF!!! " as he pulls his heels up and out. I'm lucky if > I can get one shoe unbuckled before he's out of both of them. And > there is no question of putting them on him for naptime. He gave up > his morning nap a year ago and only sleeps about an hour in the > afternoon. He wakes immediately if I so much as slip a shoe on his > foot as he's sleeping. So, we get in as many hours as we can (long > car trips he's in it) and we hope it won't affect his progress. We > saw Dr. Feldman in NY a couple of months ago and he said Dinos' feet > look great and we can probably have him out of the brace after > another year. His feet work great, anyway. He never walks, just > runs at top speed everywhere. His legs seem amazingly strong; it > must have been all that early intensive training, waving his casts in > the air. He's broken the clamps on his bar twice, and currently the > two pieces are riveted together, courtesy of our local hardware > store. From his climbing escapades around the house, I must say he's > in training for doing Everest in the near future. We plan to see Dr. > Ponseti soon, perhaps in November. > Best wishes to all of you. > Pamela Karydas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 , Let me know about when you'll be heading back to Iowa for 's check up. We are holding out as long as possible with this pair of shoes that has. She had some sort of growth spurt in her feet this past two weeks and her toes are now already at the edge. We told Dr. Ponseti we'd see him sometime this fall. As it looks it might be as early as September for us. P.S. She's successfully spent two nights in her big girl bed, and LOVING it! She looks so little in it though! Also...........did you have your level II yet? I've been thinking about you a lot lately! Holly and Re: update on Dinos >Pamela, >It was great to hear from you! I'm glad Dinos is doing well. Still >a little Houdini, huh? That's hilarious! I'm glad he's keeping them >on at night for you at least! >Please let us know when you'll be in Iowa this fall. We are also >expecting to go back for 's check-up later in the year. >Regards, > & (3-16-00) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 , Let me know about when you'll be heading back to Iowa for 's check up. We are holding out as long as possible with this pair of shoes that has. She had some sort of growth spurt in her feet this past two weeks and her toes are now already at the edge. We told Dr. Ponseti we'd see him sometime this fall. As it looks it might be as early as September for us. P.S. She's successfully spent two nights in her big girl bed, and LOVING it! She looks so little in it though! Also...........did you have your level II yet? I've been thinking about you a lot lately! Holly and Re: update on Dinos >Pamela, >It was great to hear from you! I'm glad Dinos is doing well. Still >a little Houdini, huh? That's hilarious! I'm glad he's keeping them >on at night for you at least! >Please let us know when you'll be in Iowa this fall. We are also >expecting to go back for 's check-up later in the year. >Regards, > & (3-16-00) > > > > Quote Link to comment Share on other sites More sharing options...
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