Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Yes , it makes perfect sense. While my husband is still undergoing chemo for stage III diagnosis back in July 2003, my biggest fear is recurrence...although I am told, if it's contained in the colon itself (recurrence) or to the liver, this can be some of the " best " (if there is such a thing LOL) recurrences as they are still considered curable. My mom was diagnosed with inoperable lung cancer September 2002 and went into remission April 2003. It's back and back with a vengence so while I have not cruised at 75 mph on a level highway for a year and half now, a big mountain has definitely been thrown in my path and I will do the best that I can to climb it. Talk about being mad at the whole world....and a few other things too...I certain hear you on that. Don't give up...you've come this far and both of you will continue to go further. Welcome to our board and please keep us posted. Monika, caregiver to Bert diagnosed stage III with 4 lymph nodes involved 7/03 On 5fu/leucavorin through 12/03...switched oncologists and; put on 5fu/leucavorin/oxaliplatin as considered high risk. To date, still on chemo...all scans continue to remain clean...including latest colonoscopy (4/04) > Hello everyone. I'm new and would like to say a few words. My > husband was diagnosed with stage III colorectal cancer 2 years ago > this month. After surgery and chemotherapy/radiation, we kept our > fingers crossed. Follow-up tests have been performed regularly and > yesterday we found out that he has mets to the liver. His oncologist > is scheduling surgery in Houston in the next couple of weeks. Wow. I > went to bed mad at the entire world. My mood this morning is > somewhat better, not much. I plan on looking through the archives > this afternoon and getting familiar with some of your stories. I feel > as though I've been riding on an interstate, at a smooth 75mph and > all of the sudden, I'm traveling on some pig trail, going at the same > rate of speed. Does that make sense? Here we go again... Thanks for > letting me vent my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Monika is right ........... although this is a " trail " you didn't want to take ..... if they have caught it early in his liver, there are so many things they can do now, that wasn't available a few years ago. We all wish you had been able to continue cruising down that smoother highway, but we are here for support and information as you take this " TEMPORARY " pigtrail bypass! ) Keep the faith,............you have every reason to expect that they can jump on this and gain some control over the situation. Best Wishes! Donna Sisco S/O Rick, 50, Arkansas 09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and 60%+ Tumor Burden in Liver 09/24/02 - 10cm Tumor removed from Colon 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7 months 06/11/03 - Appt at MD - Suggested changing chemo – failing current treatment 07/25/03 - Began Oxaliplatin/Xeloda Chemo 10/20/03 - Increased Xeloda – Still failing treatment 11/12/03 - Added Celebrex - continued failure 01/15/04 - Switched to FOLFOX4 chemo 02/23/04 - CEA drops 80 points 02/25/04 - First Symptoms of Brain Problem 03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Left Parietal Lobe 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron 03/15/04 - Last WBR Treatment 03/18/04 – Took last Decadron - extremely fast weaning process 03/22/04 - First Grand Mal Seizure (5 day hospital stay) 03/22/04 - Back on Decadron, added Dilantin & Insulin 04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux 04/20/04 - Switched to CPT-11 with Erbitux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Ladies, Sorry to hear about your husbands and tumors in the liver. Its ok to be mad, but get over it quickly because they need you to be hopeful, not mad. You and the others are why they drag themselves in for all of the crap they have to go through. I got chemo today, FOLFOX, and it was the first day so I got oxaliplatin. Last night I was pissed about this whole thing, which I usually am the day before chemo starts because the five days prior are ones which I feel really good overall. I really did not want to go for chemo. But I did. Afterward, I didn't feel that bad, so I dragged myself out to the track with my wife and the three younger ones to watch the oldest run the best she's ever run - 5:46 for the 1500 as a 12 year old ain't bad. After I was there for a couple of hours, I felt really bad - it hurt to try to press the buttons on the car keyless entree remote because of cold sensisitivity, I had a headache, my stomach felt bad, and it was an effort to take steps because I was fatigued. But I did it, got home, forced myself to eat dinner and drink a lot, took a snooze, and now I feel pretty good, although again I really would prefer not to sit in the barcolounger for three hours tomorrow. In hindsight, though, it was an incredible day, perhaps the best one I've ever had. For all of us, many are still to come. If they don't, that's okay too. There are many, many good things that come out of disease. For example, I am willing to be that most people in this group have children, and many had parents, siblings, cousins, or grandparents that had the disease. Our children and anybody we can effect won't - our survivors know now about screening and prevention. Any of us would make the sacrifice of having it instead of our children - maybe, if you think about it, we will. There is an accomplishment to be proud of, not mad at. So remember, its okay to be mad, but just for a little while. Best of luck and prayers Joe > > Hello everyone. I'm new and would like to say a few words. My > > husband was diagnosed with stage III colorectal cancer 2 years ago > > this month. After surgery and chemotherapy/radiation, we kept our > > fingers crossed. Follow-up tests have been performed regularly and > > yesterday we found out that he has mets to the liver. His > oncologist > > is scheduling surgery in Houston in the next couple of weeks. Wow. > I > > went to bed mad at the entire world. My mood this morning is > > somewhat better, not much. I plan on looking through the archives > > this afternoon and getting familiar with some of your stories. I > feel > > as though I've been riding on an interstate, at a smooth 75mph and > > all of the sudden, I'm traveling on some pig trail, going at the > same > > rate of speed. Does that make sense? Here we go again... Thanks > for > > letting me vent my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Ladies, Sorry to hear about your husbands and tumors in the liver. Its ok to be mad, but get over it quickly because they need you to be hopeful, not mad. You and the others are why they drag themselves in for all of the crap they have to go through. I got chemo today, FOLFOX, and it was the first day so I got oxaliplatin. Last night I was pissed about this whole thing, which I usually am the day before chemo starts because the five days prior are ones which I feel really good overall. I really did not want to go for chemo. But I did. Afterward, I didn't feel that bad, so I dragged myself out to the track with my wife and the three younger ones to watch the oldest run the best she's ever run - 5:46 for the 1500 as a 12 year old ain't bad. After I was there for a couple of hours, I felt really bad - it hurt to try to press the buttons on the car keyless entree remote because of cold sensisitivity, I had a headache, my stomach felt bad, and it was an effort to take steps because I was fatigued. But I did it, got home, forced myself to eat dinner and drink a lot, took a snooze, and now I feel pretty good, although again I really would prefer not to sit in the barcolounger for three hours tomorrow. In hindsight, though, it was an incredible day, perhaps the best one I've ever had. For all of us, many are still to come. If they don't, that's okay too. There are many, many good things that come out of disease. For example, I am willing to be that most people in this group have children, and many had parents, siblings, cousins, or grandparents that had the disease. Our children and anybody we can effect won't - our survivors know now about screening and prevention. Any of us would make the sacrifice of having it instead of our children - maybe, if you think about it, we will. There is an accomplishment to be proud of, not mad at. So remember, its okay to be mad, but just for a little while. Best of luck and prayers Joe > > Hello everyone. I'm new and would like to say a few words. My > > husband was diagnosed with stage III colorectal cancer 2 years ago > > this month. After surgery and chemotherapy/radiation, we kept our > > fingers crossed. Follow-up tests have been performed regularly and > > yesterday we found out that he has mets to the liver. His > oncologist > > is scheduling surgery in Houston in the next couple of weeks. Wow. > I > > went to bed mad at the entire world. My mood this morning is > > somewhat better, not much. I plan on looking through the archives > > this afternoon and getting familiar with some of your stories. I > feel > > as though I've been riding on an interstate, at a smooth 75mph and > > all of the sudden, I'm traveling on some pig trail, going at the > same > > rate of speed. Does that make sense? Here we go again... Thanks > for > > letting me vent my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 : Why shouldn't you fee angry. It happens to all of us. This hideous disease goes,sneaks back and with a vengance. You have to be very direct(something we were not) and list all the options,the why's and wherefores. How big,both lobes or one. Surgery? Radiation(what kind) Weigh the options,then do what has to be done. best of luck, hugs and prayers Nick & Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Joe, I'm glad you are here--I really like your emails because they are so informative. I however, do so hate the fact that you are here because you have cancer. Betty Younger brother in KY. age-62 10/01 CC; resection; TMN stage: pT3N2MX (Stage III) 5FU/Lev-6 months 9/03 PET showed recurrent met (left para-aortic malignant lymph nodes); Xeloda/Oxiplatin infusions and 25 radiation treatments Hospitalized 2/04--8 days severe hand/foot syndrome & diahrrea- 30 lb weight loss; colonscopy-clear. Infection. Finished treatment after hospitalization. On cancer Vacation @ present; Waiting one month before another PET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Joe, I'm glad you are here--I really like your emails because they are so informative. I however, do so hate the fact that you are here because you have cancer. Betty Younger brother in KY. age-62 10/01 CC; resection; TMN stage: pT3N2MX (Stage III) 5FU/Lev-6 months 9/03 PET showed recurrent met (left para-aortic malignant lymph nodes); Xeloda/Oxiplatin infusions and 25 radiation treatments Hospitalized 2/04--8 days severe hand/foot syndrome & diahrrea- 30 lb weight loss; colonscopy-clear. Infection. Finished treatment after hospitalization. On cancer Vacation @ present; Waiting one month before another PET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Joe, I'm glad you are here--I really like your emails because they are so informative. I however, do so hate the fact that you are here because you have cancer. Betty Younger brother in KY. age-62 10/01 CC; resection; TMN stage: pT3N2MX (Stage III) 5FU/Lev-6 months 9/03 PET showed recurrent met (left para-aortic malignant lymph nodes); Xeloda/Oxiplatin infusions and 25 radiation treatments Hospitalized 2/04--8 days severe hand/foot syndrome & diahrrea- 30 lb weight loss; colonscopy-clear. Infection. Finished treatment after hospitalization. On cancer Vacation @ present; Waiting one month before another PET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Jane, the radiation, according to the doctor, is what put my brother in the hospital. He first had a number of what they called " bursts " to radiate the whole trunk cavity--I think about 16 or 18 (I live 500 miles away, in suburban Chicago area and he went to Lexington, KY for treatment). Along with these daily (5 days a week) radiation treatments, once a week he got an Oxilplatin infusion (don't know quantity), plus he was taking 4000 mg total Xeloda per day. In my opinion, no one was " watching " him. He just kept on getting treatments, eventhough he finally had hand/foot syndrome so severe, he couldn't open the car door, handly walk, etc., that he landed in hospital. Colonsocpy showed blisters inside colon, according to doctor, caused by radiation. After hospitalization, he did continue 11 additional radiation treatments which were " pinpointed " directly to lymph node " mass. " He had no problem, other than getting tired easily. He is doing wonderfully now. Betty Younger brother in KY. age-62 10/01 CC; resection; TMN stage: pT3N2MX (Stage III) 5FU/Lev-6 months 9/03 PET showed recurrent met (left para-aortic malignant lymph nodes); Xeloda/Oxiplatin infusions and 25 radiation treatments Hospitalized 2/04--8 days severe hand/foot syndrome & diahrrea- 30 lb weight loss; colonscopy-clear. Infection. Finished treatment after hospitalization. On cancer Vacation @ present; Waiting one month before another PET Quote Link to comment Share on other sites More sharing options...
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