Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 > > We are having many difficulties with sleep. Liam usually goes to > bed around 7:00 or so, but is up anywhere between 12:00a.m. and 2:30 > a.m. for two to five hours. How long have you been using the diet? Carol F. Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 > > We are having many difficulties with sleep. Liam usually goes to > bed around 7:00 or so, but is up anywhere between 12:00a.m. and 2:30 > a.m. for two to five hours. How long have you been using the diet? Carol F. Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Hi Carol, We have been on it for four weeks. My original posting has the breakdown of his diet as well, if that helps. > > > > We are having many difficulties with sleep. Liam usually goes to > > bed around 7:00 or so, but is up anywhere between 12:00a.m. and 2:30 > > a.m. for two to five hours. > > How long have you been using the diet? > > Carol F. > Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Hi Carol, We have been on it for four weeks. My original posting has the breakdown of his diet as well, if that helps. > > > > We are having many difficulties with sleep. Liam usually goes to > > bed around 7:00 or so, but is up anywhere between 12:00a.m. and 2:30 > > a.m. for two to five hours. > > How long have you been using the diet? > > Carol F. > Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Hi , > ...he is getting around 8 hours of sleep. He is only going to be > three years old at the end of December. > > , Mom to Liam, age almost 3, SCD 4 weeks Since you've just started the diet recently you are still likely going through die-off. Some epsom salt baths (or activated charcoal) may help with this. Has there been any change in his stools? Sheila 45 mos SCD, 20 yrs UC mom of SCD 30 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Hi , > ...he is getting around 8 hours of sleep. He is only going to be > three years old at the end of December. > > , Mom to Liam, age almost 3, SCD 4 weeks Since you've just started the diet recently you are still likely going through die-off. Some epsom salt baths (or activated charcoal) may help with this. Has there been any change in his stools? Sheila 45 mos SCD, 20 yrs UC mom of SCD 30 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Hi , > ...he is getting around 8 hours of sleep. He is only going to be > three years old at the end of December. > > , Mom to Liam, age almost 3, SCD 4 weeks Since you've just started the diet recently you are still likely going through die-off. Some epsom salt baths (or activated charcoal) may help with this. Has there been any change in his stools? Sheila 45 mos SCD, 20 yrs UC mom of SCD 30 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 > > Hi Carol, > > We have been on it for four weeks. My original posting has the > breakdown of his diet as well, if that helps. > > > It could be die off. The body experiences stress as the bad bacteria fight to keep the upper hand on the lower bowel. It also could be from hunger. Some children act almost starved at the beginning. Why not limit put a short time limit on this before being more concerned and try your best to get in a nap for yourself? Carol F. Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 I'll put a link to a thread about studies on sleep and vitamin deficiencies. Hopefully something here will be helpful. Some doctors are just not aware of the impact vitamins have. It may be helpful to take these abstracts with you to your doctor to decide on what dosages to start with... if it will be thought to be helpful at all. Timing of vitamin B ingestion can also be a factor. Here's the thread (there are links to continuing threads). If you have questions about the abstracts and having them broken down for you, they are very kind there and will help you through step by step if need be (be warned it's a fair bit of reading but lots of ideas to ponder): http://brain.hastypastry.net/forums/showthread.php?t=45134 & highlight=sleep+b12 ========================================= When dealing with a B12 deficiency, some people need injections some do fine with methylcobalamin (already broken down) and other fare well with cyanocobalamin (not yet broken down). Altern Med Rev. 1998 Dec;3(6):461-3. Related Articles, <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Display & dopt=pubmed\ _pubmed & from_uid=9855571> Links <javascript:PopUpMenu2_Set(Menu9855571);> Erratum in: * Altern Med Rev 1999 Feb;4(1):9. Click here to read <http://www.ncbi.nlm.nih.gov/entrez/utils/lofref.fcgi?PrId=3045 & uid=9855571 & db=p\ ubmed & url=http://www.thorne.com/altmedrev/.fulltext/3/6/461.pdf> Methylcobalamin. [No authors listed] Methylcobalamin is one of the two coenzyme forms of vitamin B12. Evidence indicates this form of vitamin B12, in addition to having a theoretical advantage over cyanocobalamin, actually has some metabolic and therapeutic applications not shared by the other forms of vitamin B12. This monograph provides an overview of the pharmacokinetics of methylcobalamin, and will highlight the potential therapeutic relevance for Bell's palsy, cancer, diabetic neuropathy, eye function, heart rate variability, HIV, homocysteinemia, male impotence, and sleep disorders. ================= KimS scd nov 2002 celiac family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 > I'll put a link to a thread about studies on sleep and vitamin > deficiencies. Hopefully something here will be helpful. S BTVC addresses daily vitamin requirements. page 64 last paragraph and continues.. Carol F. Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Consider an issue with salicylates, phenols and amines. Hudson has had that sleeping pattern for years, it started being awake betweeen 3-5am, a few nights each week and it seems cyclical, every 6 weeks or so he'll have a bad trot where he may be awake for longer hours 4-5 nights in a row. Sometimes he doesn't go back to sleep, so his day starts at 2am, and it's not like he sleeps in to compensate if he does go back to sleep. I don't know that I have the answer but I do see a connection with his behaviour and sleep now we're SCD. I'm trying to figure out his food reaction, he definately has them, jusy not sure whether it's sal or amines or both. http://www.zipworld.com.au/~ataraxy/amines.txt http://www.zip.com.au/~ataraxy/Salic_03.txt He's also in the low normla range for B12 so that may be what it's about, haven't found a legal suppliment yet- we're in New Zealand so it's expensive to buy the ones you can in the US. and Hudson (6, CP) SCD three months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Consider an issue with salicylates, phenols and amines. Hudson has had that sleeping pattern for years, it started being awake betweeen 3-5am, a few nights each week and it seems cyclical, every 6 weeks or so he'll have a bad trot where he may be awake for longer hours 4-5 nights in a row. Sometimes he doesn't go back to sleep, so his day starts at 2am, and it's not like he sleeps in to compensate if he does go back to sleep. I don't know that I have the answer but I do see a connection with his behaviour and sleep now we're SCD. I'm trying to figure out his food reaction, he definately has them, jusy not sure whether it's sal or amines or both. http://www.zipworld.com.au/~ataraxy/amines.txt http://www.zip.com.au/~ataraxy/Salic_03.txt He's also in the low normla range for B12 so that may be what it's about, haven't found a legal suppliment yet- we're in New Zealand so it's expensive to buy the ones you can in the US. and Hudson (6, CP) SCD three months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Consider an issue with salicylates, phenols and amines. Hudson has had that sleeping pattern for years, it started being awake betweeen 3-5am, a few nights each week and it seems cyclical, every 6 weeks or so he'll have a bad trot where he may be awake for longer hours 4-5 nights in a row. Sometimes he doesn't go back to sleep, so his day starts at 2am, and it's not like he sleeps in to compensate if he does go back to sleep. I don't know that I have the answer but I do see a connection with his behaviour and sleep now we're SCD. I'm trying to figure out his food reaction, he definately has them, jusy not sure whether it's sal or amines or both. http://www.zipworld.com.au/~ataraxy/amines.txt http://www.zip.com.au/~ataraxy/Salic_03.txt He's also in the low normla range for B12 so that may be what it's about, haven't found a legal suppliment yet- we're in New Zealand so it's expensive to buy the ones you can in the US. and Hudson (6, CP) SCD three months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 > > I'll put a link to a thread about studies on sleep and vitamin > > deficiencies. Hopefully something here will be helpful. S > Carol noted: > BTVC addresses daily vitamin requirements. page 64 last paragraph and continues.. Elaine writes: " Re vitamins. Having studied this biochemistry for over 40 years (including 3 years of biochemistry which is all about vitamins, nutrients, and energy),I still believe that BTVC has most pertinent information that parents need. The SCD diet, IN MOST CASES, heals the gut and allows the absorption of nutrients from the most nutritious diet possible. Until the gut is healed and absorption is returned to normal, one can push supplements until the " cows come home " and they will be of little consequence. The lack of these essential nutrients (vitamins, minerals, fatty acids, etc.) can cause an endless list of symptoms - without end! There are some parents who want to know more and ALL I WOULD ASK is that they are able to distinguish between marketing and science. " posted by: Carol F. Toronto, Celiac, SCD 4 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 , Read info on salicylate/amine sensitive kids. My son has been on scd for 11 months now, yet his sensitive to salicylates to this day causes the exact pattern you described. The use of no fenol from Hustoni helps a little bit. However for us not with all salicylates I see the help. Honey is something that my son cannot tolerate. With no fenol or without the reaction is always apparent. I usually cut the receipts in 1/4 of the honey required and still if he has more than a certain amount a see a reaction and it lasts for days. With the sleepless being the first sign and of course, behaviour kicks in right after. Tomato is another major culprit. So take a look, and you may see the pattern. Hope this helps. " is up anywhere between 12:00a.m. and 2:30 a.m. for two to five hours. He just lays in bed, but my husband or I have to be with him. This has been going on since we started the diet. Once he goes back to sleep, he only sleeps in until around 8:00 a.m. and does not sleep during the day at all. So, all added up, he is getting around 8 hours of sleep. He is only going to be three years old at the end of December. " A typical day of diet would be: B - Beef/chicken pancake, " applesauce " (could have a lot of sals) and 1/4 tsp yogurt S - beef/chicken pancake, or beef/chicken muffins (beef/chicken, green beans/squash (salycilate), banana(amine), eggs and baking soda) L - Same as B or S, or pizza(if you are using tomato sauce, high salicylates as well) casserole (no cheese) S - muffins or pancakes D - pizza( sals)casserole or meatloaf or pancakes or muffins He only drinks water. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 , Read info on salicylate/amine sensitive kids. My son has been on scd for 11 months now, yet his sensitive to salicylates to this day causes the exact pattern you described. The use of no fenol from Hustoni helps a little bit. However for us not with all salicylates I see the help. Honey is something that my son cannot tolerate. With no fenol or without the reaction is always apparent. I usually cut the receipts in 1/4 of the honey required and still if he has more than a certain amount a see a reaction and it lasts for days. With the sleepless being the first sign and of course, behaviour kicks in right after. Tomato is another major culprit. So take a look, and you may see the pattern. Hope this helps. " is up anywhere between 12:00a.m. and 2:30 a.m. for two to five hours. He just lays in bed, but my husband or I have to be with him. This has been going on since we started the diet. Once he goes back to sleep, he only sleeps in until around 8:00 a.m. and does not sleep during the day at all. So, all added up, he is getting around 8 hours of sleep. He is only going to be three years old at the end of December. " A typical day of diet would be: B - Beef/chicken pancake, " applesauce " (could have a lot of sals) and 1/4 tsp yogurt S - beef/chicken pancake, or beef/chicken muffins (beef/chicken, green beans/squash (salycilate), banana(amine), eggs and baking soda) L - Same as B or S, or pizza(if you are using tomato sauce, high salicylates as well) casserole (no cheese) S - muffins or pancakes D - pizza( sals)casserole or meatloaf or pancakes or muffins He only drinks water. Quote Link to comment Share on other sites More sharing options...
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