Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Circumstances have prevented me from writing for several days now. I'm glad to be able to catch up on the posts some. Things are not great for my mom. The good news is we've gotten Hospice in and they are absolutely wonderful. My family was reluctant about Hospice at first, but they are grateful. Mom's abdominal pain had worsened but the Duragesic patch provided by Hospice has worked wonders. She vomited a significant amount of bile on Monday (at least 16 oz of brown liquid) and has vomited smaller amounts of green and brown stuff twice since then. She hasn't had a bowel movement since Sunday. The PCP and the hospice nurse both agree that an obstruction is the likely cause of this scenario. If so, the doc says, the end is probably near. Mom is very weak, but she can still walk with help. (Though she needs my dad to pick her up out of her recliner and out of bed.) Mom took Xeloda from Tuesday through Monday morning, then quit after she threw up. The Xeloda made her even weaker and sleepier than she had been. I'm still kind of steamed that the onc agreed to let her " try " it, knowing full well that it would do absolutely no good. The onc is really cryptic with information he provides to us. Fortunately, the PCP gives me every detail I ask for, quite willingly and very clearly. One of the toughest things about this is not knowing what to expect next. It's awful. This has been the longest two-and-a-half of my life! I don't know how so many people in this group have coped with this stuff for so long. I admire you all and pray for you all. I'm trying to hold it together for my mom and the rest of my family, especially my kids, ages 10 and 11, who already lost two grandparents in less than a year. Both my husband's parents died last year: his mom in June and his dad, who then moved in with us, died suddenly at the end of November. My daughters are really taking my mom's illness hard. Well, I'm sorry for going on so long. And for whining and complaining. I know so many of you are in even more difficult circumstances than we are. Thanks for listening and thanks for being there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Oh , I really feel for you! I will be praying for you! I know how hard it HAS to be on your kids! My Mom also has colon cancer and was given less than 2 years a month ago! I hate to say it but, my kids are her FAVORITE and she is their favorite Meme! Also my best friend has terminal breast cancer and was given 18mos-2 years about 2 1/2 years ago. She is really living on borrowed time! My Girls, 10 and 8, are also VERY close to her! In the midst of all this my marriage is on the rocks! I did not intend to VENT, but I guess I am! I intended to try to comfort you! Please know others care and pray for you! Sometimes it makes it easier for me to focus on other people's problems. It seems to make mine look smaller! I know, with my Best friend being terminally ill who is 35 and has a 2 and 5 year old, I am soo thankful my mom lived the full wonderful life she did! She has 11 grandchildren and Zo might not even make it to see her own son go to kindergarten! I care and will keep you and your family in my prayers! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Oh , I really feel for you! I will be praying for you! I know how hard it HAS to be on your kids! My Mom also has colon cancer and was given less than 2 years a month ago! I hate to say it but, my kids are her FAVORITE and she is their favorite Meme! Also my best friend has terminal breast cancer and was given 18mos-2 years about 2 1/2 years ago. She is really living on borrowed time! My Girls, 10 and 8, are also VERY close to her! In the midst of all this my marriage is on the rocks! I did not intend to VENT, but I guess I am! I intended to try to comfort you! Please know others care and pray for you! Sometimes it makes it easier for me to focus on other people's problems. It seems to make mine look smaller! I know, with my Best friend being terminally ill who is 35 and has a 2 and 5 year old, I am soo thankful my mom lived the full wonderful life she did! She has 11 grandchildren and Zo might not even make it to see her own son go to kindergarten! I care and will keep you and your family in my prayers! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Oh , I really feel for you! I will be praying for you! I know how hard it HAS to be on your kids! My Mom also has colon cancer and was given less than 2 years a month ago! I hate to say it but, my kids are her FAVORITE and she is their favorite Meme! Also my best friend has terminal breast cancer and was given 18mos-2 years about 2 1/2 years ago. She is really living on borrowed time! My Girls, 10 and 8, are also VERY close to her! In the midst of all this my marriage is on the rocks! I did not intend to VENT, but I guess I am! I intended to try to comfort you! Please know others care and pray for you! Sometimes it makes it easier for me to focus on other people's problems. It seems to make mine look smaller! I know, with my Best friend being terminally ill who is 35 and has a 2 and 5 year old, I am soo thankful my mom lived the full wonderful life she did! She has 11 grandchildren and Zo might not even make it to see her own son go to kindergarten! I care and will keep you and your family in my prayers! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , It is not whining to express your frustration and sadness. Let it out! My thoughts and prayers are with you and your mother. Sharon > Circumstances have prevented me from writing for several days > now. I'm glad to be able to catch up on the posts some. Things > are not great for my mom. The good news is we've gotten > Hospice in and they are absolutely wonderful. My family was > reluctant about Hospice at first, but they are grateful. > > Mom's abdominal pain had worsened but the Duragesic patch > provided by Hospice has worked wonders. > > She vomited a significant amount of bile on Monday (at least 16 > oz of brown liquid) and has vomited smaller amounts of green > and brown stuff twice since then. She hasn't had a bowel > movement since Sunday. The PCP and the hospice nurse both > agree that an obstruction is the likely cause of this scenario. If > so, the doc says, the end is probably near. > > Mom is very weak, but she can still walk with help. (Though she > needs my dad to pick her up out of her recliner and out of bed.) > > Mom took Xeloda from Tuesday through Monday morning, then > quit after she threw up. The Xeloda made her even weaker and > sleepier than she had been. I'm still kind of steamed that the onc > agreed to let her " try " it, knowing full well that it would do > absolutely no good. The onc is really cryptic with information he > provides to us. Fortunately, the PCP gives me every detail I ask > for, quite willingly and very clearly. > > One of the toughest things about this is not knowing what to > expect next. It's awful. This has been the longest two-and-a-half > of my life! I don't know how so many people in this group have > coped with this stuff for so long. I admire you all and pray for you > all. > > I'm trying to hold it together for my mom and the rest of my family, > especially my kids, ages 10 and 11, who already lost two > grandparents in less than a year. Both my husband's parents > died last year: his mom in June and his dad, who then moved in > with us, died suddenly at the end of November. My daughters are > really taking my mom's illness hard. > > Well, I'm sorry for going on so long. And for whining and > complaining. I know so many of you are in even more difficult > circumstances than we are. Thanks for listening and thanks for > being there. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , It is not whining to express your frustration and sadness. Let it out! My thoughts and prayers are with you and your mother. Sharon > Circumstances have prevented me from writing for several days > now. I'm glad to be able to catch up on the posts some. Things > are not great for my mom. The good news is we've gotten > Hospice in and they are absolutely wonderful. My family was > reluctant about Hospice at first, but they are grateful. > > Mom's abdominal pain had worsened but the Duragesic patch > provided by Hospice has worked wonders. > > She vomited a significant amount of bile on Monday (at least 16 > oz of brown liquid) and has vomited smaller amounts of green > and brown stuff twice since then. She hasn't had a bowel > movement since Sunday. The PCP and the hospice nurse both > agree that an obstruction is the likely cause of this scenario. If > so, the doc says, the end is probably near. > > Mom is very weak, but she can still walk with help. (Though she > needs my dad to pick her up out of her recliner and out of bed.) > > Mom took Xeloda from Tuesday through Monday morning, then > quit after she threw up. The Xeloda made her even weaker and > sleepier than she had been. I'm still kind of steamed that the onc > agreed to let her " try " it, knowing full well that it would do > absolutely no good. The onc is really cryptic with information he > provides to us. Fortunately, the PCP gives me every detail I ask > for, quite willingly and very clearly. > > One of the toughest things about this is not knowing what to > expect next. It's awful. This has been the longest two-and-a-half > of my life! I don't know how so many people in this group have > coped with this stuff for so long. I admire you all and pray for you > all. > > I'm trying to hold it together for my mom and the rest of my family, > especially my kids, ages 10 and 11, who already lost two > grandparents in less than a year. Both my husband's parents > died last year: his mom in June and his dad, who then moved in > with us, died suddenly at the end of November. My daughters are > really taking my mom's illness hard. > > Well, I'm sorry for going on so long. And for whining and > complaining. I know so many of you are in even more difficult > circumstances than we are. Thanks for listening and thanks for > being there. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 , It is not whining to express your frustration and sadness. Let it out! My thoughts and prayers are with you and your mother. Sharon > Circumstances have prevented me from writing for several days > now. I'm glad to be able to catch up on the posts some. Things > are not great for my mom. The good news is we've gotten > Hospice in and they are absolutely wonderful. My family was > reluctant about Hospice at first, but they are grateful. > > Mom's abdominal pain had worsened but the Duragesic patch > provided by Hospice has worked wonders. > > She vomited a significant amount of bile on Monday (at least 16 > oz of brown liquid) and has vomited smaller amounts of green > and brown stuff twice since then. She hasn't had a bowel > movement since Sunday. The PCP and the hospice nurse both > agree that an obstruction is the likely cause of this scenario. If > so, the doc says, the end is probably near. > > Mom is very weak, but she can still walk with help. (Though she > needs my dad to pick her up out of her recliner and out of bed.) > > Mom took Xeloda from Tuesday through Monday morning, then > quit after she threw up. The Xeloda made her even weaker and > sleepier than she had been. I'm still kind of steamed that the onc > agreed to let her " try " it, knowing full well that it would do > absolutely no good. The onc is really cryptic with information he > provides to us. Fortunately, the PCP gives me every detail I ask > for, quite willingly and very clearly. > > One of the toughest things about this is not knowing what to > expect next. It's awful. This has been the longest two-and-a-half > of my life! I don't know how so many people in this group have > coped with this stuff for so long. I admire you all and pray for you > all. > > I'm trying to hold it together for my mom and the rest of my family, > especially my kids, ages 10 and 11, who already lost two > grandparents in less than a year. Both my husband's parents > died last year: his mom in June and his dad, who then moved in > with us, died suddenly at the end of November. My daughters are > really taking my mom's illness hard. > > Well, I'm sorry for going on so long. And for whining and > complaining. I know so many of you are in even more difficult > circumstances than we are. Thanks for listening and thanks for > being there. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 - My gosh, I would never call your notes complaining! You and your family have been through so much, and in such a short time, I am amazed that you sound as together as you do! I am glad that there have been some things that have been done to keep your mother a bit more comfortable, and that she had a bit of good time with the children. My thoughts and prayers are with you. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 - My gosh, I would never call your notes complaining! You and your family have been through so much, and in such a short time, I am amazed that you sound as together as you do! I am glad that there have been some things that have been done to keep your mother a bit more comfortable, and that she had a bit of good time with the children. My thoughts and prayers are with you. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 - My gosh, I would never call your notes complaining! You and your family have been through so much, and in such a short time, I am amazed that you sound as together as you do! I am glad that there have been some things that have been done to keep your mother a bit more comfortable, and that she had a bit of good time with the children. My thoughts and prayers are with you. Kris Quote Link to comment Share on other sites More sharing options...
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