Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 CONGRATULATIONS on the NORMAL results! I hope any continued testing shows no sign of Fabrys.....what a load off your mind that would be. I'm sitting here smiling from ear to ear for you. :oD Amy G. Re: Genetic studies, constipation and swelling Marcia > > Hey , just a couple more hours, then I'll head home. Hey, I wasn't gonna share this tonight, but since your on line, GUESSS WHAT???? I got the results back from Mount Sinai! NORMAL ALPHAGALACTOSIDASE!!!! But the other side of it is, with women (as I mentioned before) they can have normal alphagal. levels and still have the disease, so he wanted me to see a specialist in Fabry's disease in Denver. So.... I said, well I already have a nephrologist at Mayo, (and one in my home town here in Colorado), so can't I just see someone there..... He wants to talk to my neph at Mayo. So back to the drawing board again. But counting my blessings NORMAL IS STILL NORMAL, and I have the faxed copy, so it really and truely is NORMAL. Right smack in the middle of normal, not low normal this time YYYEEEAAAHHHH !!!!!!!!!! HEHEHEHEHEHEHHEHEHEHEHEH Keep crossing them fingers.... Bonnie > > W4JC@... wrote:Bonnie!!!! Seventeen hours on your feet if such a LONG day! > > Please be careful and take extra good care of yourself. > > > > In a message dated 11/8/2004 7:53:34 PM Pacific Standard Time, > bd4679@... writes: > > > > > Hey Marcia, > > That massage sounds great! Too bad, my husband won't come near my stinky > > feet though. (I have the stinkiest feet ever, despite taking scrupulous showers > > all the time, using the best footspray AND foot powder. I change my socks > > twice a day to boot). > > But I did break down this weekend and bought some of those support hose from > > Futura, (the kind you get at Walgreen's). I didn't want to feel old and > > decrepit, and I had high hopes that eventually this would subside so had refused > > to buy them before. However, of course the swelling is not subsiding. > > Anyway the socks feel GREAT, even though I've been on my feet for 17 hours so far > > today, but actually I don't notice any difference in the leg swelling yet. > > Might need to give it a couple of days, or maybe the compression is not high > > enough to decrease swelling. If it works maybe I could buy one for my > > gut....... Hehehe Take care....Back to work.....Bonnie > > > > > > Quote Link to comment Share on other sites More sharing options...
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