RE: Triple Screen Results - not the greatest news

[Guest guest]

Dana, I will keep you and and your little belly bean in my thoughts and prayers. I know you said you thought you were prepared but it is hard to really prepare for something like that. I am sure like you said, alot has to do with your age. You little one will be just fine and we will be here for you. I wish I could do more for you. Please try to take care. 13wkd ep 12-00 Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Dana, I will keep you and and your little belly bean in my thoughts and prayers. I know you said you thought you were prepared but it is hard to really prepare for something like that. I am sure like you said, alot has to do with your age. You little one will be just fine and we will be here for you. I wish I could do more for you. Please try to take care. 13wkd ep 12-00 Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Dana, I will keep you and and your little belly bean in my thoughts and prayers. I know you said you thought you were prepared but it is hard to really prepare for something like that. I am sure like you said, alot has to do with your age. You little one will be just fine and we will be here for you. I wish I could do more for you. Please try to take care. 13wkd ep 12-00 Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Dana,

I am so sorry! Remember that those tests often come back with false

results. A friend of mine had 2 tests run, both came back with

elevated risks, so she went ahead and had the Amnio. Everything

proved to be just fine! If you change your mind and decide to have

the Amnio, I am here if you have any questions at all. I can tell you

that the Amnio was not as bad as I had myself worked up for, but it is

still a very big decision. I know that you need some peace of mind or

you'll drive yourself crazy and not be able relaz and enjoy your pg.

Please know that you, and bellybean are in my thoughts and

prayers! We're all for you!!!!!!!

elle

> Hey all,

>

> OK for the first time since I found out we were pg I am completely

bummed. I

> have been crying for about the last 3 hours and I am not sure how to

get

> through this. OK, let me start at the beginning. I had my Triple

Screen Test

> last Wednesday, and my doctor called me today to say that the test

was

> negative for neural tube defects, but did show an elevated risk for

Down's

> Syndrome. Now I know he told me before I took the test that since I

was 36,

> that the equation used to figure my results would skew it, and I was

prepared

> (or so I thought) to handle this. Now I am not so sure. I was dead

set

> against Amnio before the test, and even this morning when my OB

offered it I

> still said no.

>

> I wasn't prepared at all for this possibility and I am afraid that

now I am

> going to be completely obsessed with the idea the baby has Down's

and not be

> able to enjoy this pg anymore. I can't believe this has thrown my

whole world

> upside down. Please pray our little one will be healthy.

>

> Dana

> 16 weeks 6 days

[Guest guest]

Dana,

I am so sorry! Remember that those tests often come back with false

results. A friend of mine had 2 tests run, both came back with

elevated risks, so she went ahead and had the Amnio. Everything

proved to be just fine! If you change your mind and decide to have

the Amnio, I am here if you have any questions at all. I can tell you

that the Amnio was not as bad as I had myself worked up for, but it is

still a very big decision. I know that you need some peace of mind or

you'll drive yourself crazy and not be able relaz and enjoy your pg.

Please know that you, and bellybean are in my thoughts and

prayers! We're all for you!!!!!!!

elle

> Hey all,

>

> OK for the first time since I found out we were pg I am completely

bummed. I

> have been crying for about the last 3 hours and I am not sure how to

get

> through this. OK, let me start at the beginning. I had my Triple

Screen Test

> last Wednesday, and my doctor called me today to say that the test

was

> negative for neural tube defects, but did show an elevated risk for

Down's

> Syndrome. Now I know he told me before I took the test that since I

was 36,

> that the equation used to figure my results would skew it, and I was

prepared

> (or so I thought) to handle this. Now I am not so sure. I was dead

set

> against Amnio before the test, and even this morning when my OB

offered it I

> still said no.

>

> I wasn't prepared at all for this possibility and I am afraid that

now I am

> going to be completely obsessed with the idea the baby has Down's

and not be

> able to enjoy this pg anymore. I can't believe this has thrown my

whole world

> upside down. Please pray our little one will be healthy.

>

> Dana

> 16 weeks 6 days

[Guest guest]

Dana,

I am so sorry! Remember that those tests often come back with false

results. A friend of mine had 2 tests run, both came back with

elevated risks, so she went ahead and had the Amnio. Everything

proved to be just fine! If you change your mind and decide to have

the Amnio, I am here if you have any questions at all. I can tell you

that the Amnio was not as bad as I had myself worked up for, but it is

still a very big decision. I know that you need some peace of mind or

you'll drive yourself crazy and not be able relaz and enjoy your pg.

Please know that you, and bellybean are in my thoughts and

prayers! We're all for you!!!!!!!

elle

> Hey all,

>

> OK for the first time since I found out we were pg I am completely

bummed. I

> have been crying for about the last 3 hours and I am not sure how to

get

> through this. OK, let me start at the beginning. I had my Triple

Screen Test

> last Wednesday, and my doctor called me today to say that the test

was

> negative for neural tube defects, but did show an elevated risk for

Down's

> Syndrome. Now I know he told me before I took the test that since I

was 36,

> that the equation used to figure my results would skew it, and I was

prepared

> (or so I thought) to handle this. Now I am not so sure. I was dead

set

> against Amnio before the test, and even this morning when my OB

offered it I

> still said no.

>

> I wasn't prepared at all for this possibility and I am afraid that

now I am

> going to be completely obsessed with the idea the baby has Down's

and not be

> able to enjoy this pg anymore. I can't believe this has thrown my

whole world

> upside down. Please pray our little one will be healthy.

>

> Dana

> 16 weeks 6 days

[Guest guest]

Dear Dana,

I am sorry to hear about the news. I will keep you in my prayers!!

I have a dear friend who is going through the same thing right now.

She opted not to do the amnio. She has met with a genetics conselor

and is doing a high level u/s tomorrow. She told me the afp/triple

screen can have false positives and her dr and the genetic counselor

told her not to worry.

Hugs and Prayers,

32 Weeks

[Guest guest]

Dear Dana,

I am sorry to hear about the news. I will keep you in my prayers!!

I have a dear friend who is going through the same thing right now.

She opted not to do the amnio. She has met with a genetics conselor

and is doing a high level u/s tomorrow. She told me the afp/triple

screen can have false positives and her dr and the genetic counselor

told her not to worry.

Hugs and Prayers,

32 Weeks

[Guest guest]

Dana,

I wanted to second what JoAnn said about the painfulness of an amnio. My friend was scared to death of it and afterwards was so surprised about how different it was than from what she expected. If you have to know and decide to do it, we'll be here to support you!

{{{HUGS}}}

[Guest guest]

Dana,

I wanted to second what JoAnn said about the painfulness of an amnio. My friend was scared to death of it and afterwards was so surprised about how different it was than from what she expected. If you have to know and decide to do it, we'll be here to support you!

{{{HUGS}}}

[Guest guest]

Dana,

I wanted to second what JoAnn said about the painfulness of an amnio. My friend was scared to death of it and afterwards was so surprised about how different it was than from what she expected. If you have to know and decide to do it, we'll be here to support you!

{{{HUGS}}}

[Guest guest]

Dana -

I am sorry AFP results weren't perfect, but you really have no reason

to be bummed out. First, as I heard it, they should not even offer AFP

to women over 35 b/c it is less accurate. Secondly, do you know what

your risk was? In CA, risk greated than 1:190 is considered a

positive. Think about it, it means there is a 189:190 chance of

everything being ok. Moreover, your doctor should do a Level II anyway

around 18 weeks. If there are no markers for Downs during the U/S,

your risk is cut in half. In the expecting club I am in, there are so

many women getting positives, which turn out to be false, it's not

funny. AFP is a really evil test designed to torture mothers I think.

Take heart, sweetie, many women were in your situation, and everything

turned out fine. I think you should ask for an U/S (as high resolution

as you can get) and then go for amnio based on results.

Hugs,

a

[Guest guest]

Dana!! I'm so sorry that the test came back the way it did. Take heart

though, you are not the only one that has had test results that were

completely wrong!! My sister who conceived with IVF had the same exact

results, she did go ahead and do the amnio and said it wasn't that bad,

and Madison is of course, absolutely perfect in every way!! I agree too

that the level II ultrasound should help alleviate some of your fears. I

really want you to enjoy the rest of this pregnancy!!! I'll keep you all

in my prayers! Try to relax ok? Take care,

Vicki

gradstu12@... wrote:

>

> Hey all,

>

> OK for the first time since I found out we were pg I am completely

> bummed. I

> have been crying for about the last 3 hours and I am not sure how to

> get

> through this. OK, let me start at the beginning. I had my Triple

> Screen Test

> last Wednesday, and my doctor called me today to say that the test was

>

> negative for neural tube defects, but did show an elevated risk for

> Down's

> Syndrome. Now I know he told me before I took the test that since I

> was 36,

> that the equation used to figure my results would skew it, and I was

> prepared

> (or so I thought) to handle this. Now I am not so sure. I was dead set

>

> against Amnio before the test, and even this morning when my OB

> offered it I

> still said no.

>

> I wasn't prepared at all for this possibility and I am afraid that now

> I am

> going to be completely obsessed with the idea the baby has Down's and

> not be

> able to enjoy this pg anymore. I can't believe this has thrown my

> whole world

> upside down. Please pray our little one will be healthy.

>

> Dana

> 16 weeks 6 days

>

>

[Guest guest]

Dana!! I'm so sorry that the test came back the way it did. Take heart

though, you are not the only one that has had test results that were

completely wrong!! My sister who conceived with IVF had the same exact

results, she did go ahead and do the amnio and said it wasn't that bad,

and Madison is of course, absolutely perfect in every way!! I agree too

that the level II ultrasound should help alleviate some of your fears. I

really want you to enjoy the rest of this pregnancy!!! I'll keep you all

in my prayers! Try to relax ok? Take care,

Vicki

gradstu12@... wrote:

>

> Hey all,

>

> OK for the first time since I found out we were pg I am completely

> bummed. I

> have been crying for about the last 3 hours and I am not sure how to

> get

> through this. OK, let me start at the beginning. I had my Triple

> Screen Test

> last Wednesday, and my doctor called me today to say that the test was

>

> negative for neural tube defects, but did show an elevated risk for

> Down's

> Syndrome. Now I know he told me before I took the test that since I

> was 36,

> that the equation used to figure my results would skew it, and I was

> prepared

> (or so I thought) to handle this. Now I am not so sure. I was dead set

>

> against Amnio before the test, and even this morning when my OB

> offered it I

> still said no.

>

> I wasn't prepared at all for this possibility and I am afraid that now

> I am

> going to be completely obsessed with the idea the baby has Down's and

> not be

> able to enjoy this pg anymore. I can't believe this has thrown my

> whole world

> upside down. Please pray our little one will be healthy.

>

> Dana

> 16 weeks 6 days

>

>

[Guest guest]

Dana!! I'm so sorry that the test came back the way it did. Take heart

though, you are not the only one that has had test results that were

completely wrong!! My sister who conceived with IVF had the same exact

results, she did go ahead and do the amnio and said it wasn't that bad,

and Madison is of course, absolutely perfect in every way!! I agree too

that the level II ultrasound should help alleviate some of your fears. I

really want you to enjoy the rest of this pregnancy!!! I'll keep you all

in my prayers! Try to relax ok? Take care,

Vicki

gradstu12@... wrote:

>

> Hey all,

>

> OK for the first time since I found out we were pg I am completely

> bummed. I

> have been crying for about the last 3 hours and I am not sure how to

> get

> through this. OK, let me start at the beginning. I had my Triple

> Screen Test

> last Wednesday, and my doctor called me today to say that the test was

>

> negative for neural tube defects, but did show an elevated risk for

> Down's

> Syndrome. Now I know he told me before I took the test that since I

> was 36,

> that the equation used to figure my results would skew it, and I was

> prepared

> (or so I thought) to handle this. Now I am not so sure. I was dead set

>

> against Amnio before the test, and even this morning when my OB

> offered it I

> still said no.

>

> I wasn't prepared at all for this possibility and I am afraid that now

> I am

> going to be completely obsessed with the idea the baby has Down's and

> not be

> able to enjoy this pg anymore. I can't believe this has thrown my

> whole world

> upside down. Please pray our little one will be healthy.

>

> Dana

> 16 weeks 6 days

>

>

[Guest guest]

Dana,

I will be

praying for you. As this may be your only pg, you do want to enjoy it. Maybe

the amnio wouldn’t be such a bad idea. Maybe it is a false negative like Jo-Ann

was saying. Can they tell more at your 20 week appt when you can find out the

gender?

Janice

[Guest guest]

Amy,

Although he had told me prior to the test that it might come back abnormal due to my age (something to do with the mathematical equation using my age). I don't have any more details other than he said that it showed low risk for neural tube defect and high risk for Down's. I am surprised how tremendously this has rocked my world. I can't stop worrying and at this point and unsure about what to do. My OB is very against amnio, so if I go that way he won't be very happy with me, but I am not sure I can live with the uncertainty. Right now I am just trying to get back on my feet.

Dana

17 weeks 1 day

[Guest guest]

Amy,

Although he had told me prior to the test that it might come back abnormal due to my age (something to do with the mathematical equation using my age). I don't have any more details other than he said that it showed low risk for neural tube defect and high risk for Down's. I am surprised how tremendously this has rocked my world. I can't stop worrying and at this point and unsure about what to do. My OB is very against amnio, so if I go that way he won't be very happy with me, but I am not sure I can live with the uncertainty. Right now I am just trying to get back on my feet.

Dana

17 weeks 1 day

[Guest guest]

Amy,

Although he had told me prior to the test that it might come back abnormal due to my age (something to do with the mathematical equation using my age). I don't have any more details other than he said that it showed low risk for neural tube defect and high risk for Down's. I am surprised how tremendously this has rocked my world. I can't stop worrying and at this point and unsure about what to do. My OB is very against amnio, so if I go that way he won't be very happy with me, but I am not sure I can live with the uncertainty. Right now I am just trying to get back on my feet.

Dana

17 weeks 1 day

[Guest guest]

Jo-Ann,

You know I always considered myself able to handle whatever God throws my way, and if this baby does indeed have Down's I know we will love it and cherish it just the same, but the worry factor is in the red zone and I can't stop crying. When my OB called and gave me the results, I just said OK, well you told me they would probably come back abnormal. And that was that, but then throughout the day it began to sink in as did the fear. I need to be prepared. I need to deal with the fallout before the baby is born. I just don't know what to do. I talked at length before we did this frigging test, and was wholeheartedly against amnio, and now it seems I have made a 180 degree turn. However, is against amnio and feels that we shouldn't risk the life of our baby for peace of mind and that everything will be fine however it turns out. I could just scream. Suddenly I have gone from 'Look what we made:)" to "What have we done " I mean I was warned by my family I was too old, and then there's the whole "unnatural" part of the conception that I won't even go into what will be said if something is wrong. I don't know what to do.

Dana

[Guest guest]

Jo-Ann,

You know I always considered myself able to handle whatever God throws my way, and if this baby does indeed have Down's I know we will love it and cherish it just the same, but the worry factor is in the red zone and I can't stop crying. When my OB called and gave me the results, I just said OK, well you told me they would probably come back abnormal. And that was that, but then throughout the day it began to sink in as did the fear. I need to be prepared. I need to deal with the fallout before the baby is born. I just don't know what to do. I talked at length before we did this frigging test, and was wholeheartedly against amnio, and now it seems I have made a 180 degree turn. However, is against amnio and feels that we shouldn't risk the life of our baby for peace of mind and that everything will be fine however it turns out. I could just scream. Suddenly I have gone from 'Look what we made:)" to "What have we done " I mean I was warned by my family I was too old, and then there's the whole "unnatural" part of the conception that I won't even go into what will be said if something is wrong. I don't know what to do.

Dana

[Guest guest]

Jo-Ann,

You know I always considered myself able to handle whatever God throws my way, and if this baby does indeed have Down's I know we will love it and cherish it just the same, but the worry factor is in the red zone and I can't stop crying. When my OB called and gave me the results, I just said OK, well you told me they would probably come back abnormal. And that was that, but then throughout the day it began to sink in as did the fear. I need to be prepared. I need to deal with the fallout before the baby is born. I just don't know what to do. I talked at length before we did this frigging test, and was wholeheartedly against amnio, and now it seems I have made a 180 degree turn. However, is against amnio and feels that we shouldn't risk the life of our baby for peace of mind and that everything will be fine however it turns out. I could just scream. Suddenly I have gone from 'Look what we made:)" to "What have we done " I mean I was warned by my family I was too old, and then there's the whole "unnatural" part of the conception that I won't even go into what will be said if something is wrong. I don't know what to do.

Dana

[Guest guest]

,

Thanks, I am just wondering if I should have had the stupid test to begin with. When he told me it would probably come back abnormal I thought OK, at least I know. But now, I think why did I ever agree to that test. I was pretty much against amnio and thought I'd never consider it, but now I am not so sure. But then if something happened to the baby I don't know if I could live with that. It's a terribly confusing and scary time and it seems very unfair there are not other tests available.

Dana

[Guest guest]

AmyR,

Thanks for your support and I know we will love this baby regardless.

Dana

[Guest guest]

Elle,

I know you were able to make the decision and honestly if were more supportive of the decision I would already be signed up for one. I don't think I can make it through the next 4 1/2 months not knowing. But the whole risk of losing the baby is all she can focus on and so she is very opposed to the test. It's a terrrible time to be honest. We are going up to the lake this weekend and hopefully we will be able to talk more about it (calmly) instead of fighting about it. Who knew that perfect bliss could be so quickly shattered??

Dana