Re: Just an Idea

[Guest guest]

Wow..How do you do it. Just the words scare me. You are so positive and up

beat. Faith is a wonderful thing. You are inspiring others. That is a good

idea beause

it lets people know,course, treatment,results,changes and present progress.

Seems God has you as one of his Chosen Few,hope His Blessings flow to your

spirit and to your core so things just vanish,this is indeed the age of

miracles.You

deserve one. Hugs and praers Nick & Jane

[Guest guest]

Donna,

I think that is a great idea since we do have a lot of new people

showing up here.

Could you please explain how to " store a signature line " .

Now, if I just could figure out how to do the photo section I would

be in great shape. It really helps to put a face to the name.

I was so happy to hear that the visit went well, great looking

family you have.

Donna, don't try to push yourself too hard right now. Sooner or

later we all crash and burn. I am stil not the same as I was before

November. I just can't seem to regain my momentum and find myself

just sitting or laying down during the day. Maybe it is our body's

way of telling us we need to recoup some of the old get up and go

that we had.

Keep us posted on Rick.

Joyce

> Hey ....... you know I'm also a member of an awesome online brain

> tumor support group now, and they have a little habit that is very

> helpful. Some of you have probably seen this, but at the end of

> their posts they have a recap of their situation under their

> signature. Some of us have longer ones than others (Darn it!!)

but

> I have really found it helpful to understand their background when

> reading their responses. I will include the one I use on this

post

> to show you what I mean. Obviously I have this stored as

> a " signature line " so I don't have to type it over, and over, and

> over! ;-) Just a thought .......... it might help the newer board

> members who haven't had time to get to know the stories of each

> person. )

>

> Love and Hugs,

> Donna Sisco

> S/O Rick, 50, Arkansas

> 09/19/02 - Diag. Stage IV Colon Cancer - 6 of 6 Pos. Nodes - 60%+

> Tumor Burden in Liver

> 09/24/02 - 10cm Tumor removed from Colon

> 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

> 05/20/03 - Began to fail treatment

> 06/11/03 - Appt at MD - Suggested change in chemo

> 07/25/03 - Began Oxa./Xeloda Chemo

> 10/20/03 - Incre. Xeloda to 5,000 mgs/day - failing treatment

> 11/12/03 - Added Celebrex - continued failure

> 01/15/04 - Switched to FOLFOX4 chemo

> 02/23/04 - CEA drops 80 points

> 02/25/04 - First Symptoms of Brain Problem

> 03/01/04 - Brain Scan (MRI & CT) reveal 1 " Brain Tumor - Left

> Frontal Lobe

> 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

> 03/15/04 - Last WBR Treatment

> 03/18/04 - Last Decadron (2mg)

> 03/22/04 - First Seizure (followed by 5 days hospital stay)

> 03/22/04 - Back on Decadron, added Dilantin & Insulin

> 04/06/04 - Resumed Chemo with added drug Erbitux

[Guest guest]

Donna,

I think that is a great idea since we do have a lot of new people

showing up here.

Could you please explain how to " store a signature line " .

Now, if I just could figure out how to do the photo section I would

be in great shape. It really helps to put a face to the name.

I was so happy to hear that the visit went well, great looking

family you have.

Donna, don't try to push yourself too hard right now. Sooner or

later we all crash and burn. I am stil not the same as I was before

November. I just can't seem to regain my momentum and find myself

just sitting or laying down during the day. Maybe it is our body's

way of telling us we need to recoup some of the old get up and go

that we had.

Keep us posted on Rick.

Joyce

> Hey ....... you know I'm also a member of an awesome online brain

> tumor support group now, and they have a little habit that is very

> helpful. Some of you have probably seen this, but at the end of

> their posts they have a recap of their situation under their

> signature. Some of us have longer ones than others (Darn it!!)

but

> I have really found it helpful to understand their background when

> reading their responses. I will include the one I use on this

post

> to show you what I mean. Obviously I have this stored as

> a " signature line " so I don't have to type it over, and over, and

> over! ;-) Just a thought .......... it might help the newer board

> members who haven't had time to get to know the stories of each

> person. )

>

> Love and Hugs,

> Donna Sisco

> S/O Rick, 50, Arkansas

> 09/19/02 - Diag. Stage IV Colon Cancer - 6 of 6 Pos. Nodes - 60%+

> Tumor Burden in Liver

> 09/24/02 - 10cm Tumor removed from Colon

> 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

> 05/20/03 - Began to fail treatment

> 06/11/03 - Appt at MD - Suggested change in chemo

> 07/25/03 - Began Oxa./Xeloda Chemo

> 10/20/03 - Incre. Xeloda to 5,000 mgs/day - failing treatment

> 11/12/03 - Added Celebrex - continued failure

> 01/15/04 - Switched to FOLFOX4 chemo

> 02/23/04 - CEA drops 80 points

> 02/25/04 - First Symptoms of Brain Problem

> 03/01/04 - Brain Scan (MRI & CT) reveal 1 " Brain Tumor - Left

> Frontal Lobe

> 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

> 03/15/04 - Last WBR Treatment

> 03/18/04 - Last Decadron (2mg)

> 03/22/04 - First Seizure (followed by 5 days hospital stay)

> 03/22/04 - Back on Decadron, added Dilantin & Insulin

> 04/06/04 - Resumed Chemo with added drug Erbitux

[Guest guest]

I belong to a lung cancer support group on behalf of my mom and they

do the same thing. I think it's a wonderful idea....especially for

newbies as they can get the whole picture, or at least pretty much of

it, in one reading rather than trying to look up past posts. Great

idea Donna and I'm all for it. Now, if I can just remember to do it

when I post next time on my mom (just to keep the group informed)

whose three months scans did not turn out real well and will be going

into clinical trials). Just can't talk about it right now.

Hugs,

Monika

> Hey ....... you know I'm also a member of an awesome online brain

> tumor support group now, and they have a little habit that is very

> helpful. Some of you have probably seen this, but at the end of

> their posts they have a recap of their situation under their

> signature. Some of us have longer ones than others (Darn it!!) but

> I have really found it helpful to understand their background when

> reading their responses. I will include the one I use on this post

> to show you what I mean. Obviously I have this stored as

> a " signature line " so I don't have to type it over, and over, and

> over! ;-) Just a thought .......... it might help the newer board

> members who haven't had time to get to know the stories of each

> person. )

>

> Love and Hugs,

> Donna Sisco

> S/O Rick, 50, Arkansas

> 09/19/02 - Diag. Stage IV Colon Cancer - 6 of 6 Pos. Nodes - 60%+

> Tumor Burden in Liver

> 09/24/02 - 10cm Tumor removed from Colon

> 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

> 05/20/03 - Began to fail treatment

> 06/11/03 - Appt at MD - Suggested change in chemo

> 07/25/03 - Began Oxa./Xeloda Chemo

> 10/20/03 - Incre. Xeloda to 5,000 mgs/day - failing treatment

> 11/12/03 - Added Celebrex - continued failure

> 01/15/04 - Switched to FOLFOX4 chemo

> 02/23/04 - CEA drops 80 points

> 02/25/04 - First Symptoms of Brain Problem

> 03/01/04 - Brain Scan (MRI & CT) reveal 1 " Brain Tumor - Left

> Frontal Lobe

> 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

> 03/15/04 - Last WBR Treatment

> 03/18/04 - Last Decadron (2mg)

> 03/22/04 - First Seizure (followed by 5 days hospital stay)

> 03/22/04 - Back on Decadron, added Dilantin & Insulin

> 04/06/04 - Resumed Chemo with added drug Erbitux