Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hello Amy, I'm taking four BP meds at the moment: beta-blocker, diuretic (frusemide), ACE inhibitor and a calcium channel blocker. I found that adding the beta-blocker had the greatest effect on my BP (and slowed my pulse). I sometimes notice skipped beats at night and first thing in the morning. I've always thought it was just one of those things. BTW, my BP varies from 125/75 to 140/85 (depending on time of day, etc.) - I would be surprised if it didn't vary at points during the day. I feel tired all the time (need at least 10-12 hours sleep) and I have very foamy urine. Others have commented about fatigue and heavy proteinuria, though, that said, all the patient information leaflets for my BP meds list fatigue as a side-effect I've been running a constant " battle " with my GP and neph as to why I've been feeling fatigued for the best part of the last two years... All the best, Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi , I see my neph today at 2:30. When he perscribed all these bp meds he told me to take them in the morning. I have been having problems getting my bp under control for a while. My mom also suggested that I might need to spread them out through the day I am going to ask my neph today. But would that make my heart skip? It just scared me more than anything I think. I know you are not a doc but I think you would make a great one because you are so caring. See if all of our nephs were as caring as this group we would not have a problem getting answers to questions that we have. As for labs, not sure if he is gonna order them today or not. I was not due to see my neph until March and I have labs ordered for then. I thought everything was going pretty smoothly with this thing other than the flank pains and spasms I guess I am just gonna have to learn to live with. Then it felt as though things just started going down hill from there. I started feeling as though I could sleep all the time or I just could not go another step and then the heart beat skipping started several months back but would only do it a few times, the other day it lasted for over an hour and that is what scared me so, I just knew I was going to have a heart attack. Thanks for letting me cry (*sniff*) on your shoulder. Amy C. W4JC@... wrote: Hi Amy, That must have been frightening to have your heart skipping beats. I am glad you went and checked it out with your BP. I now take 5 BP pills a day, but that is because I am down to 18% renal function and so my BP is harder to maintain. Do you take your BP meds once a day or twice? I take mine morning and at night so that it keeps my BP consistent. You might ask your Neph about that if you are only taking yours in the morning. It is hard to say without knowing the specifics, and I am not a doctor. I don't even play one on tv :-) I do know that BP meds can contribute to the fatigue so they may be making that worse for you. On the foam, it is hard to tell the amount of protein spilling based on the amount of foam. You can't really tell until your Neph orders more lab tests. Do you have an appointment with him coming up soon? In a message dated 11/8/2004 11:54:09 AM Pacific Standard Time, amyscarlton@... writes: > I have a question. I have been on 3 bp meds up until now. Last Friday I > was awakened by my heart skipping beats and my bp was elevated. I am suppose > to see my neph on Tuesday but in the mean time I went to my GP to make sure I > was not having a heart attack, I wasn't. But what we think is happening is > that my bp meds are wearing off during the night and my bp is going up. I > spoke with my neph office on Friday and he increased my Altace to 10mg and > included Toperol (sp?). So now I am on 4 bp meds? Have any of you had this > problem?? Plus I have noticed more foam and I am so tired all them time. I feel > like I can sleep all the time. Is this getting worse or am I jumping to > conclusions? Truthfully, I am probably overreacting but I am worried and > scared. > > Amy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi , I see my neph today at 2:30. When he perscribed all these bp meds he told me to take them in the morning. I have been having problems getting my bp under control for a while. My mom also suggested that I might need to spread them out through the day I am going to ask my neph today. But would that make my heart skip? It just scared me more than anything I think. I know you are not a doc but I think you would make a great one because you are so caring. See if all of our nephs were as caring as this group we would not have a problem getting answers to questions that we have. As for labs, not sure if he is gonna order them today or not. I was not due to see my neph until March and I have labs ordered for then. I thought everything was going pretty smoothly with this thing other than the flank pains and spasms I guess I am just gonna have to learn to live with. Then it felt as though things just started going down hill from there. I started feeling as though I could sleep all the time or I just could not go another step and then the heart beat skipping started several months back but would only do it a few times, the other day it lasted for over an hour and that is what scared me so, I just knew I was going to have a heart attack. Thanks for letting me cry (*sniff*) on your shoulder. Amy C. W4JC@... wrote: Hi Amy, That must have been frightening to have your heart skipping beats. I am glad you went and checked it out with your BP. I now take 5 BP pills a day, but that is because I am down to 18% renal function and so my BP is harder to maintain. Do you take your BP meds once a day or twice? I take mine morning and at night so that it keeps my BP consistent. You might ask your Neph about that if you are only taking yours in the morning. It is hard to say without knowing the specifics, and I am not a doctor. I don't even play one on tv :-) I do know that BP meds can contribute to the fatigue so they may be making that worse for you. On the foam, it is hard to tell the amount of protein spilling based on the amount of foam. You can't really tell until your Neph orders more lab tests. Do you have an appointment with him coming up soon? In a message dated 11/8/2004 11:54:09 AM Pacific Standard Time, amyscarlton@... writes: > I have a question. I have been on 3 bp meds up until now. Last Friday I > was awakened by my heart skipping beats and my bp was elevated. I am suppose > to see my neph on Tuesday but in the mean time I went to my GP to make sure I > was not having a heart attack, I wasn't. But what we think is happening is > that my bp meds are wearing off during the night and my bp is going up. I > spoke with my neph office on Friday and he increased my Altace to 10mg and > included Toperol (sp?). So now I am on 4 bp meds? Have any of you had this > problem?? Plus I have noticed more foam and I am so tired all them time. I feel > like I can sleep all the time. Is this getting worse or am I jumping to > conclusions? Truthfully, I am probably overreacting but I am worried and > scared. > > Amy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi Amy, I am glad you are going in today. Please do let us know what your Neph has to say. I hope they have some answers for you. In a message dated 11/9/2004 6:57:46 AM Pacific Standard Time, amyscarlton@... writes: > Hi , > I see my neph today at 2:30. When he perscribed all these bp meds he told > me to take them in the morning. I have been having problems getting my bp > under control for a while. My mom also suggested that I might need to spread > them out through the day I am going to ask my neph today. But would that make > my heart skip? It just scared me more than anything I think. I know you are > not a doc but I think you would make a great one because you are so caring. > See if all of our nephs were as caring as this group we would not have a > problem getting answers to questions that we have. As for labs, not sure if he > is gonna order them today or not. I was not due to see my neph until March > and I have labs ordered for then. I thought everything was going pretty > smoothly with this thing other than the flank pains and spasms I guess I am just > gonna have to learn to live with. Then it felt as though things just started > going down hill from there. I started feeling as though I could sleep all > the time or I just could not go another step and then the heart beat > skipping started several months back but would only do it a few times, the other day > it lasted for over an hour and that is what scared me so, I just knew I was > going to have a heart attack. Thanks for letting me cry (*sniff*) on your > shoulder. > > Amy C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 , Sounds like a tough crowd to me too! ;-). I think when my lab work came back things were a little on the low side. I plan on finding out more Tuesday when I return back to my neph. I would just love to feel normal for one day but I don't know what normal is anymore. :0) Amy C. Cohen wrote: Amy: I was on MagOx post tx, but my magnesium level had not returned to " normal " , so now I am on Maginex, which still has not brought it where they want it. I have been at 1.4 or 1.46 for months, and they want me at 1.5 or 1.6. Did I mention to you that my neph can be really " backside retentive " ? I said that 1.46 rounds to 1.5 - no laugh. Ugh...tough crowd. Other than that and my bicarbonate level, everything else is normal. I'll take that. Amy Carlton wrote: Pierre, My neph has taken precautions and sent me for an echocardiogram and I am wearing a heart monitor for 24 hours. He also took me off of Ziac and put me on Lasix 40 mg. Can you tell me what Magnesium Oxide is for? He put me on that 3 times a day for a week. He increased my Altace to 10mg. I know all will be ok I just probably overreacted. But thanks for informing me. Amy C. Pierre Lachaine wrote: Hi Amy Glad to help. You know, a BP of 151/103 occasionally, such as when waking up at night suddenly, is really not that high. It's only high if it's always around that level. Our BP goes up and down all the time. Pierre Re: Help > > Hi Pierre, > > Thank you for telling me that. You are so knowledgeable that sometimes I forget that you are not a doctor but you sure have a way of making me feel better and putting it in terms I can understand. My bp was 151/103 when my heart was skipping and that scared me even more so it went up a little higher after that but it was because I worked myself up. I am not on a diurectic at this time. I am on Ziac, Altace, Norvasc and Toprol. I think the Ziac has a little diurectic in it. I appreciate you telling me this. I will ask my neph today about that. I wondered that myself. I am swelling during the day and maybe a diurectic is what I need to help that. I let you know what he says this afternoon. > > Thanks > Amy C. > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 , Sounds like a tough crowd to me too! ;-). I think when my lab work came back things were a little on the low side. I plan on finding out more Tuesday when I return back to my neph. I would just love to feel normal for one day but I don't know what normal is anymore. :0) Amy C. Cohen wrote: Amy: I was on MagOx post tx, but my magnesium level had not returned to " normal " , so now I am on Maginex, which still has not brought it where they want it. I have been at 1.4 or 1.46 for months, and they want me at 1.5 or 1.6. Did I mention to you that my neph can be really " backside retentive " ? I said that 1.46 rounds to 1.5 - no laugh. Ugh...tough crowd. Other than that and my bicarbonate level, everything else is normal. I'll take that. Amy Carlton wrote: Pierre, My neph has taken precautions and sent me for an echocardiogram and I am wearing a heart monitor for 24 hours. He also took me off of Ziac and put me on Lasix 40 mg. Can you tell me what Magnesium Oxide is for? He put me on that 3 times a day for a week. He increased my Altace to 10mg. I know all will be ok I just probably overreacted. But thanks for informing me. Amy C. Pierre Lachaine wrote: Hi Amy Glad to help. You know, a BP of 151/103 occasionally, such as when waking up at night suddenly, is really not that high. It's only high if it's always around that level. Our BP goes up and down all the time. Pierre Re: Help > > Hi Pierre, > > Thank you for telling me that. You are so knowledgeable that sometimes I forget that you are not a doctor but you sure have a way of making me feel better and putting it in terms I can understand. My bp was 151/103 when my heart was skipping and that scared me even more so it went up a little higher after that but it was because I worked myself up. I am not on a diurectic at this time. I am on Ziac, Altace, Norvasc and Toprol. I think the Ziac has a little diurectic in it. I appreciate you telling me this. I will ask my neph today about that. I wondered that myself. I am swelling during the day and maybe a diurectic is what I need to help that. I let you know what he says this afternoon. > > Thanks > Amy C. > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 > I have two recipes that are really good, And I think are SBD > compliant. Is there a place on line where I can get a nutrition > break down on a recipe? Can anyone help? Post them to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 > I have two recipes that are really good, And I think are SBD > compliant. Is there a place on line where I can get a nutrition > break down on a recipe? Can anyone help? Post them to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 > I have two recipes that are really good, And I think are SBD > compliant. Is there a place on line where I can get a nutrition > break down on a recipe? Can anyone help? Post them to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 HI Robin.. I would be more than happy to run it through my Master Cook for you... if you cannot find a link to a site that will do it.. --- Skweezeme@... wrote: > I have two recipes that are really good, And I think > are SBD compliant. Is > there a place on line where I can get a nutrition > break down on a recipe? Can > anyone help? > > Robin > Just hanging out at the beach and playing in the sandbox...http://www3.sympatico.ca/kdworkin/mycover.jpg __________________________________ Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. http://mobile.yahoo.com/learn/mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 HI Robin.. I would be more than happy to run it through my Master Cook for you... if you cannot find a link to a site that will do it.. --- Skweezeme@... wrote: > I have two recipes that are really good, And I think > are SBD compliant. Is > there a place on line where I can get a nutrition > break down on a recipe? Can > anyone help? > > Robin > Just hanging out at the beach and playing in the sandbox...http://www3.sympatico.ca/kdworkin/mycover.jpg __________________________________ Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. http://mobile.yahoo.com/learn/mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 HI Robin.. I would be more than happy to run it through my Master Cook for you... if you cannot find a link to a site that will do it.. --- Skweezeme@... wrote: > I have two recipes that are really good, And I think > are SBD compliant. Is > there a place on line where I can get a nutrition > break down on a recipe? Can > anyone help? > > Robin > Just hanging out at the beach and playing in the sandbox...http://www3.sympatico.ca/kdworkin/mycover.jpg __________________________________ Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. http://mobile.yahoo.com/learn/mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Does anyone in here know the CD9 Procedure code for a wig (cranial prosthesis?) My insurance company won't reimburse me without the code and I can't find anyone who knows the code... Not even my onc office!!!!!!!!!!! Trisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Oh wow I have no idea. How about asking the social worker at the hospital. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com HELP Does anyone in here know the CD9 Procedure code for a wig (cranial prosthesis?) My insurance company won't reimburse me without the code and I can't find anyone who knows the code... Not even my onc office!!!!!!!!!!! Trisha Quote Link to comment Share on other sites More sharing options...
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