Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Deidra, It saddens me to read of Mark's passing ........... and my heart goes out to you. You have both been such inspirational and informational leaders to all of us on the board. I hope his transition was peaceful .......... and that you were able to be there with him. You were, and will always be, a wonderful team. I am entering into that time of transition with Rick as well ......... although we don't know when ........ we both feel it coming. We must take stock in the fact that our journey's have somehow contributed to the chance that, one day, there will be a way to avoid this disease ............ that the knowledge we pass on here might help to save someone from the advancing disease by taking early, aggressive approaches and early detection practices. I pray that God's strength and mercy will be poured down on you and that he will carry you through this difficult time. As you said .......Mark is at peace ................ now I pray that you may find peace too. Fondly, Donna Sisco S/O Rick, 50, Arkansas 09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and 60%+ Tumor Burden in Liver 09/24/02 - 10cm Tumor removed from Colon 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7 months 06/11/03 - Appt at MD - Suggested changing chemo – failing current treatment 07/25/03 - Began Oxaliplatin/Xeloda Chemo 10/20/03 - Increased Xeloda – Still failing treatment 11/12/03 - Added Celebrex - continued failure 01/15/04 - Switched to FOLFOX4 chemo 02/23/04 - CEA drops 80 points 02/25/04 - First Symptoms of Brain Problem 03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Left Parietal Lobe 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron 03/15/04 - Last WBR Treatment 03/18/04 – Took last Decadron - extremely fast weaning process 03/22/04 - First Grand Mal Seizure (5 day hospital stay) 03/22/04 - Back on Decadron, added Dilantin & Insulin 04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux 04/20/04 - Switched to CPT-11 with Erbitux 04/23/04 - Brain MRI shows only slight decrease in swelling and in tumor size > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Deidra, all the words have already been said but I would like to add that thanks to and your wonderful husband Mark, I've been able to make my own husbands journey on this road more bareable and hopeful with all the useful information that has been shared...and by the courage and strength to know to stage iv's who didn't throw in the towel right away. I'm sure Mark has met and maybe they'll lead the crowd with putting in a few good words to the " man upstairs " for the rest of us still down here. God Bless you and your family and may he give you the strength for the days ahead. Hugs and Love, Monika > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Deidra, all the words have already been said but I would like to add that thanks to and your wonderful husband Mark, I've been able to make my own husbands journey on this road more bareable and hopeful with all the useful information that has been shared...and by the courage and strength to know to stage iv's who didn't throw in the towel right away. I'm sure Mark has met and maybe they'll lead the crowd with putting in a few good words to the " man upstairs " for the rest of us still down here. God Bless you and your family and may he give you the strength for the days ahead. Hugs and Love, Monika > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 I am so sorry for your loss, Deidra. You and your son are in my thoughts. With love, Jodi > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Deidra, I am so sorry for your loss. Words fail to come that I may express how much sorrow I feel for you and your son in this time of loss. I have felt so close to you both during your struggle with all that this disease brings(both of our husbands are so young to have this accursed disease and having young boys) You and your family are in my prayers and I hope that you are finding comfort in that Mark is at peace now. I pray for God's arms to enfold you both and hold you close with a peace that surpasses all that you have gone through and are going through now. My heart breaks for you both. Becky Beach caregiver to Jeff diag 8/01 recurred 5/03 with liver and abd mets Oct 03 - cpt11/5fu/leu 5 treatments Nov 03-present decided to not take any more chemo and just enjoy life > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Deidra, I am so sorry for your loss. He has found the ultimate peace. May you find peace as well. Maeve > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Deidra, I am so sorry for your loss. He has found the ultimate peace. May you find peace as well. Maeve > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Deidra, I am so sorry for your loss. He has found the ultimate peace. May you find peace as well. Maeve > My Dear Friends, > It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. > > Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. > > With great Sadness, > Mark's Wife (Deidra) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 I am so sorry to hear of your loss...please accept my sympathies. I lost my husband on April 12th and it is really tough. But something my minister said to me kind of helped me to feel a bit better (but not much!). He said if you can only look at this as Jerry had not really died, he has started a new life in a better place. I know he was happy to get the ordeal overwith because he died with a smile on his face as if to say " Thank God it is finally over " . If there is anything at all I can do to help you get through this, please do not hesitate to answer this e-mail. You are really fortunate you have a son..I have no children and only a brother about 2600 miles away. But I will get through it, it is just that the grieving part is really hard, but necessary. It is part of the healing process. My prayers are with you. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 I am so sorry to hear of your loss...please accept my sympathies. I lost my husband on April 12th and it is really tough. But something my minister said to me kind of helped me to feel a bit better (but not much!). He said if you can only look at this as Jerry had not really died, he has started a new life in a better place. I know he was happy to get the ordeal overwith because he died with a smile on his face as if to say " Thank God it is finally over " . If there is anything at all I can do to help you get through this, please do not hesitate to answer this e-mail. You are really fortunate you have a son..I have no children and only a brother about 2600 miles away. But I will get through it, it is just that the grieving part is really hard, but necessary. It is part of the healing process. My prayers are with you. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 I am so sorry to hear of your loss...please accept my sympathies. I lost my husband on April 12th and it is really tough. But something my minister said to me kind of helped me to feel a bit better (but not much!). He said if you can only look at this as Jerry had not really died, he has started a new life in a better place. I know he was happy to get the ordeal overwith because he died with a smile on his face as if to say " Thank God it is finally over " . If there is anything at all I can do to help you get through this, please do not hesitate to answer this e-mail. You are really fortunate you have a son..I have no children and only a brother about 2600 miles away. But I will get through it, it is just that the grieving part is really hard, but necessary. It is part of the healing process. My prayers are with you. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Hello Barb: I am sorry you lost your Jerry,but at least you were there to the end and your minister is right,life is a temporay gift and when we leave it,I think we simply go on to another plane. It must be terribly hard to be alone,buy surely you have someone,lots of someones,because everybody here will read this and think of you and offer two prayers,one for you to help your bear the loss and one for Jerry so he can look down upon you and let you know he is ok. Spring is a time of new beginnings and now you have to take stalk and take care of yourself. Someone has a need for you and somehow you will fit that need. It's good to cry,it's ok to wonder why me,there are no easy answers,you just have to gather your strength and go on one day at a time. Take care of yourself and know that lots of love and strength is here just for you. Nick & jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Hello Barb: I am sorry you lost your Jerry,but at least you were there to the end and your minister is right,life is a temporay gift and when we leave it,I think we simply go on to another plane. It must be terribly hard to be alone,buy surely you have someone,lots of someones,because everybody here will read this and think of you and offer two prayers,one for you to help your bear the loss and one for Jerry so he can look down upon you and let you know he is ok. Spring is a time of new beginnings and now you have to take stalk and take care of yourself. Someone has a need for you and somehow you will fit that need. It's good to cry,it's ok to wonder why me,there are no easy answers,you just have to gather your strength and go on one day at a time. Take care of yourself and know that lots of love and strength is here just for you. Nick & jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Hello Barb: I am sorry you lost your Jerry,but at least you were there to the end and your minister is right,life is a temporay gift and when we leave it,I think we simply go on to another plane. It must be terribly hard to be alone,buy surely you have someone,lots of someones,because everybody here will read this and think of you and offer two prayers,one for you to help your bear the loss and one for Jerry so he can look down upon you and let you know he is ok. Spring is a time of new beginnings and now you have to take stalk and take care of yourself. Someone has a need for you and somehow you will fit that need. It's good to cry,it's ok to wonder why me,there are no easy answers,you just have to gather your strength and go on one day at a time. Take care of yourself and know that lots of love and strength is here just for you. Nick & jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hello All, I thought I'd try to take a moment to let you all know what happened with Mark.I will try to be brief.Some of it I hope to share in the future as people need my experience.I will probably become more of a lurker here for a while because my grief is still so raw.In alot of ways it still hasn't hit me.I.m trying to concentrate on my son and creating a new " normal " for him.It is difficult for me to sort things out because our lives have been driven by the cancer for so long.As normal as we tried to keep our lives you all know it wasn't.I not only have the giant void of losing my husband and best friend but also my purpose...For four years it was all about treatments,research,doctor appointments,insurance,etc. Now when I get home from dropping my son at school I truly don't know what to do with myself. About six weeks before Mark passed away he was having considerable increase in pain.He tried some radiation for the spine tumors but it only seemed to get worse.He started to lose his appetite and began sleeping alot and dropping weight like crazy.He was confused at times and we found out that his blood ammonia was high(a sign that his liver was failing and perhaps making him encephalopathic)He started megace for appetite and lactalose to rid some of the ammonia from his system. Our new Onc. allowed him to start the Erbitux as a single agent.The first treatment he could barely walk. By the fourth treatment he was doing much better eating,walking the dog,ready to start back at work a few hours a week.(he had been out of work for the first time since he was dx'ed. For the last four weeks) The morning he was getting ready for work he came out of the bathroom and collapsed on his chair gasping for breath.I called 911 right away.He could still talk when they got here but they couldn't get a pulse ox #.He stopped breathing in the ambulance,at the E.R. they told me he wouldn't make it,they thought it was a stroke or heart attack,which didn't make sense.The EMT asked me if he had been sedentary and at the same moment I said " You think it's a blood clot right " The E.R. team immediatly changed gears and asked me if he had brain tumors.I told them we had never done a brain scan because it would have made him ineligible for some teatments.They wanted to give him the " clot busters " but when they scanned him they found he had four brain tumors,so they could not. They kept him on the heparin because without it they told me his chance was zero.All of that info could be helpful to someone out there.Apparently blood clots are common in cancer patients not only if they are somewhat sedentary but also if they have abdominal tumors.We didn't know that.I had been keeping him up and moving.They could have tried operating on him to remove the clot but it had broken up into alot of peices.I spoke to two surgeons and both of them thought his chances of coming through the operation were about 20%.Pulmonary embolism operations apparently don't have a high success rate I will share the rest of the story another time.He came off the respirator two days later and died peacefully with myself,his Mom and Dad and brother by his side.I had a tape recording of our son singing to him there also.I know he is at peace and in this I try to take comfort but my son and I are so sad. Thanks to all of you who have helped us on our journey and peace to you and your families. Love, Deidra(Mark's Wife) Mark is at Peace My Dear Friends, It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. With great Sadness, Mark's Wife (Deidra) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hello All, I thought I'd try to take a moment to let you all know what happened with Mark.I will try to be brief.Some of it I hope to share in the future as people need my experience.I will probably become more of a lurker here for a while because my grief is still so raw.In alot of ways it still hasn't hit me.I.m trying to concentrate on my son and creating a new " normal " for him.It is difficult for me to sort things out because our lives have been driven by the cancer for so long.As normal as we tried to keep our lives you all know it wasn't.I not only have the giant void of losing my husband and best friend but also my purpose...For four years it was all about treatments,research,doctor appointments,insurance,etc. Now when I get home from dropping my son at school I truly don't know what to do with myself. About six weeks before Mark passed away he was having considerable increase in pain.He tried some radiation for the spine tumors but it only seemed to get worse.He started to lose his appetite and began sleeping alot and dropping weight like crazy.He was confused at times and we found out that his blood ammonia was high(a sign that his liver was failing and perhaps making him encephalopathic)He started megace for appetite and lactalose to rid some of the ammonia from his system. Our new Onc. allowed him to start the Erbitux as a single agent.The first treatment he could barely walk. By the fourth treatment he was doing much better eating,walking the dog,ready to start back at work a few hours a week.(he had been out of work for the first time since he was dx'ed. For the last four weeks) The morning he was getting ready for work he came out of the bathroom and collapsed on his chair gasping for breath.I called 911 right away.He could still talk when they got here but they couldn't get a pulse ox #.He stopped breathing in the ambulance,at the E.R. they told me he wouldn't make it,they thought it was a stroke or heart attack,which didn't make sense.The EMT asked me if he had been sedentary and at the same moment I said " You think it's a blood clot right " The E.R. team immediatly changed gears and asked me if he had brain tumors.I told them we had never done a brain scan because it would have made him ineligible for some teatments.They wanted to give him the " clot busters " but when they scanned him they found he had four brain tumors,so they could not. They kept him on the heparin because without it they told me his chance was zero.All of that info could be helpful to someone out there.Apparently blood clots are common in cancer patients not only if they are somewhat sedentary but also if they have abdominal tumors.We didn't know that.I had been keeping him up and moving.They could have tried operating on him to remove the clot but it had broken up into alot of peices.I spoke to two surgeons and both of them thought his chances of coming through the operation were about 20%.Pulmonary embolism operations apparently don't have a high success rate I will share the rest of the story another time.He came off the respirator two days later and died peacefully with myself,his Mom and Dad and brother by his side.I had a tape recording of our son singing to him there also.I know he is at peace and in this I try to take comfort but my son and I are so sad. Thanks to all of you who have helped us on our journey and peace to you and your families. Love, Deidra(Mark's Wife) Mark is at Peace My Dear Friends, It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. With great Sadness, Mark's Wife (Deidra) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hello All, I thought I'd try to take a moment to let you all know what happened with Mark.I will try to be brief.Some of it I hope to share in the future as people need my experience.I will probably become more of a lurker here for a while because my grief is still so raw.In alot of ways it still hasn't hit me.I.m trying to concentrate on my son and creating a new " normal " for him.It is difficult for me to sort things out because our lives have been driven by the cancer for so long.As normal as we tried to keep our lives you all know it wasn't.I not only have the giant void of losing my husband and best friend but also my purpose...For four years it was all about treatments,research,doctor appointments,insurance,etc. Now when I get home from dropping my son at school I truly don't know what to do with myself. About six weeks before Mark passed away he was having considerable increase in pain.He tried some radiation for the spine tumors but it only seemed to get worse.He started to lose his appetite and began sleeping alot and dropping weight like crazy.He was confused at times and we found out that his blood ammonia was high(a sign that his liver was failing and perhaps making him encephalopathic)He started megace for appetite and lactalose to rid some of the ammonia from his system. Our new Onc. allowed him to start the Erbitux as a single agent.The first treatment he could barely walk. By the fourth treatment he was doing much better eating,walking the dog,ready to start back at work a few hours a week.(he had been out of work for the first time since he was dx'ed. For the last four weeks) The morning he was getting ready for work he came out of the bathroom and collapsed on his chair gasping for breath.I called 911 right away.He could still talk when they got here but they couldn't get a pulse ox #.He stopped breathing in the ambulance,at the E.R. they told me he wouldn't make it,they thought it was a stroke or heart attack,which didn't make sense.The EMT asked me if he had been sedentary and at the same moment I said " You think it's a blood clot right " The E.R. team immediatly changed gears and asked me if he had brain tumors.I told them we had never done a brain scan because it would have made him ineligible for some teatments.They wanted to give him the " clot busters " but when they scanned him they found he had four brain tumors,so they could not. They kept him on the heparin because without it they told me his chance was zero.All of that info could be helpful to someone out there.Apparently blood clots are common in cancer patients not only if they are somewhat sedentary but also if they have abdominal tumors.We didn't know that.I had been keeping him up and moving.They could have tried operating on him to remove the clot but it had broken up into alot of peices.I spoke to two surgeons and both of them thought his chances of coming through the operation were about 20%.Pulmonary embolism operations apparently don't have a high success rate I will share the rest of the story another time.He came off the respirator two days later and died peacefully with myself,his Mom and Dad and brother by his side.I had a tape recording of our son singing to him there also.I know he is at peace and in this I try to take comfort but my son and I are so sad. Thanks to all of you who have helped us on our journey and peace to you and your families. Love, Deidra(Mark's Wife) Mark is at Peace My Dear Friends, It is with great pain that I report that my wonderful husband has passed away.To say it was sudden may sound silly to some but I know you all understand that.I will soon share the details with you all and try to get back on the board to help others beat this beast.For now my son and I are trying to get from day to day.The memorial service is tomorrow and I have listed the Colon Cancer Alliance in lieu of flowers.The obituary can be found at www.sun-sentinel.com Sunday April 25th. Thanks to all of you for your constant support and I hope he and can finally meet,because we owe the last two years to him and this board. I know Mark is at peace. With great Sadness, Mark's Wife (Deidra) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Thank you for sharing this. It is good to have the information. I will keep you and your son in my prayers. God Bless Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Thank you for sharing this. It is good to have the information. I will keep you and your son in my prayers. God Bless Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Thank you for sharing this. It is good to have the information. I will keep you and your son in my prayers. God Bless Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Please accept my condolences on the loss of your husband. I have no words of wisdom. All I can say is that you and your family are in my thoughts and prayers. Cliff H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Please accept my condolences on the loss of your husband. I have no words of wisdom. All I can say is that you and your family are in my thoughts and prayers. Cliff H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Please accept my condolences on the loss of your husband. I have no words of wisdom. All I can say is that you and your family are in my thoughts and prayers. Cliff H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Deidra: You are fortunate you have a fine son and that he was involved and here at the end. I am glad you wrote. WE(nick & I) went to his onc. today. They had reread the feb 27 scan,compared it to a dec. P.E.T. & SSCAN and there was little change. his markes are up. His mets to the liver are not resectable accoring to the surgeon. he has four small sopts on the lung,a peritoneal mass in the abdominal region and a large mass on the pancreas. Right now he is on Xeloda,today his onc says after he gets the results of the blood tests he may put him on the Erbitux. he had been on Avastin. he has done the camptosar,5FU,Lecovorin,Oxi bit in tandem and solo. he has a Bared port (his third) He takes a pain pill sometimes one and a half twice a day. megace may have helped because for the first time he did not lose weight. His hair thinned,but did not fall out. He does have a rash,but thats a common side effect. he is 73,drives,short distances,can't walk more then 15 minues without resting. Lately he has begun sweating at night. He has no fever,he stays on the sofa but gets up,walks,goes out for a few minutes and putters around. One of the tests that was ordered oday was taking a sample of he orignal tissue from the first operation and doing the blood work that may tell his onc.,whether or not the chemo will be effective. Today we had read in our local newspaper(Miami Herald) an article about the progress made in laproscopic surgery for colon cancer. It has improved with use and time and as more surgeons get certified. One of the original grou of surgeons who did his initial operation,a Dr. Gustavo Plasencia says he and a partner assocated with the Cleveland clinic have had good success and the results are about the same but with much less hospital time and pain to the patient. His oncologist has seen all the things we write about,and investigated the procedures and I guess we will have to be satisfied with that. I think by keeping busy,and being involved there is more chance for success. I knw some very qualified sources say attitude is not that important,but I disagree with that. Today we me a husband and wife,briefly,the husband had been operated on about two weeks ago for breast cancer,and his wife was a three year survivor. very time we think we have a problem we find out that ours are small in comparisom and we thank God daily for his blessings(even though we intercede for a miracle-I don't find that strange,just part of the natural process) We are always amazed that so many people have been through so much and.like you,still want to ease the burden but still bear your own. Thanks for being you,for caring and for sharing..You will never know how good it feels to know that you arenot alone. Thanks and God Bless you all Nick & jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Deidra: You are fortunate you have a fine son and that he was involved and here at the end. I am glad you wrote. WE(nick & I) went to his onc. today. They had reread the feb 27 scan,compared it to a dec. P.E.T. & SSCAN and there was little change. his markes are up. His mets to the liver are not resectable accoring to the surgeon. he has four small sopts on the lung,a peritoneal mass in the abdominal region and a large mass on the pancreas. Right now he is on Xeloda,today his onc says after he gets the results of the blood tests he may put him on the Erbitux. he had been on Avastin. he has done the camptosar,5FU,Lecovorin,Oxi bit in tandem and solo. he has a Bared port (his third) He takes a pain pill sometimes one and a half twice a day. megace may have helped because for the first time he did not lose weight. His hair thinned,but did not fall out. He does have a rash,but thats a common side effect. he is 73,drives,short distances,can't walk more then 15 minues without resting. Lately he has begun sweating at night. He has no fever,he stays on the sofa but gets up,walks,goes out for a few minutes and putters around. One of the tests that was ordered oday was taking a sample of he orignal tissue from the first operation and doing the blood work that may tell his onc.,whether or not the chemo will be effective. Today we had read in our local newspaper(Miami Herald) an article about the progress made in laproscopic surgery for colon cancer. It has improved with use and time and as more surgeons get certified. One of the original grou of surgeons who did his initial operation,a Dr. Gustavo Plasencia says he and a partner assocated with the Cleveland clinic have had good success and the results are about the same but with much less hospital time and pain to the patient. His oncologist has seen all the things we write about,and investigated the procedures and I guess we will have to be satisfied with that. I think by keeping busy,and being involved there is more chance for success. I knw some very qualified sources say attitude is not that important,but I disagree with that. Today we me a husband and wife,briefly,the husband had been operated on about two weeks ago for breast cancer,and his wife was a three year survivor. very time we think we have a problem we find out that ours are small in comparisom and we thank God daily for his blessings(even though we intercede for a miracle-I don't find that strange,just part of the natural process) We are always amazed that so many people have been through so much and.like you,still want to ease the burden but still bear your own. Thanks for being you,for caring and for sharing..You will never know how good it feels to know that you arenot alone. Thanks and God Bless you all Nick & jane Quote Link to comment Share on other sites More sharing options...
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