Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Hildreth, Thanks for the update. Glad to hear things went pretty well for you, today. Probably wise to hold off on the stent as long as possible, since it's in the development stage for use in the colon. That's what my friend thinks, too. Clare > Thanks so much for that link Clare. Makes me feel much better about a stent. Seems they are still working on the colon one so will give me reason to put surgeon off and do balloon stretch for now:) I still am not sure if this is not a spastic colon when they try to do sig or colonscopy it just closes up. I had that suspicion because I have had spastic colon in past and never could have a scope done when they tried some years back The colon would just close up. My bowel movements have seemed normal that is till this morning and for some reason I was very nervous and not looking forward to this needle biopsy. The bowel movements this morning were not normal and pencil thin. > The cat scan needle biopsy was a piece fo cake just like Joe had said. Only a couple problems and one I hope turns out nothing serious. > First I am allergic to dye in cat scan so have to take predisone and benadryl before having one if they are going to use contrast. My surgeon said they would so I got prepared with the meds. Got there to find out they were not going to use contrast. > This is the fourth Dr that has seen this mass from the Pet scan and the first one to tell me where it exactly was! I assumed since a colonscopy was advised it was in the colon. It is not! It is right outside of colon and more hidden by a bone. This Dr also said it could be scar tissue along with all the other things it can be. Guess it will be Monday before I find out but going to see if I can make a phone call Friday and get results of what it is. To get to this he had to insert needle in my back and do it. What upset me was the nurse came out during scan and asked if I had heart problems before. That I did not need to hear. Made me more nervous and they called for more sedation which does not work very well on me. I am sleepy and going to nap but that also could be because of lack of sleep last night. She did say the heart had stopped jumping and was ok but when I went up to recover they asked again. Guess I need to get that checked out. I had a nuke stress and heart test last June but know things can change. > I am so glad your friend's mass is not cancer. I guess I can handle anything but that recurring again. Of course if it is I will handle that to. > It does not sound like the Dr just wants to try balloon or stent because he does not have insurance. I have insurance coverage but it seems a much less invasive way then my surgeon explained it would be major surgery. > I had also had them put down a CEA on the blood work I had done Friday but they would not tell me today what that was. Said they only got what lab results pertained to the test and they were all ok. I imagine my surgeon may be surprised when he gets CEA results as he did not tell his nurse to order one. I asked her about it and she said no harm in me marking it:) I had one about 2 months ago but since I was going to lab again I figured they may as well check it. > > Hildreth > Re: Colon Stent > > > http://www.biobn.com/index.cfm?Page=viewnews & NewsID=0002121010 > > In the link above, is an article about the progress that has been > made in stents, that is hot off the press. I guess they now have > expandable, removable ones that are super! > > Good luck, tomorrow, Hildreth. > > Clare > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Hildreth, Thanks for the update. Glad to hear things went pretty well for you, today. Probably wise to hold off on the stent as long as possible, since it's in the development stage for use in the colon. That's what my friend thinks, too. Clare > Thanks so much for that link Clare. Makes me feel much better about a stent. Seems they are still working on the colon one so will give me reason to put surgeon off and do balloon stretch for now:) I still am not sure if this is not a spastic colon when they try to do sig or colonscopy it just closes up. I had that suspicion because I have had spastic colon in past and never could have a scope done when they tried some years back The colon would just close up. My bowel movements have seemed normal that is till this morning and for some reason I was very nervous and not looking forward to this needle biopsy. The bowel movements this morning were not normal and pencil thin. > The cat scan needle biopsy was a piece fo cake just like Joe had said. Only a couple problems and one I hope turns out nothing serious. > First I am allergic to dye in cat scan so have to take predisone and benadryl before having one if they are going to use contrast. My surgeon said they would so I got prepared with the meds. Got there to find out they were not going to use contrast. > This is the fourth Dr that has seen this mass from the Pet scan and the first one to tell me where it exactly was! I assumed since a colonscopy was advised it was in the colon. It is not! It is right outside of colon and more hidden by a bone. This Dr also said it could be scar tissue along with all the other things it can be. Guess it will be Monday before I find out but going to see if I can make a phone call Friday and get results of what it is. To get to this he had to insert needle in my back and do it. What upset me was the nurse came out during scan and asked if I had heart problems before. That I did not need to hear. Made me more nervous and they called for more sedation which does not work very well on me. I am sleepy and going to nap but that also could be because of lack of sleep last night. She did say the heart had stopped jumping and was ok but when I went up to recover they asked again. Guess I need to get that checked out. I had a nuke stress and heart test last June but know things can change. > I am so glad your friend's mass is not cancer. I guess I can handle anything but that recurring again. Of course if it is I will handle that to. > It does not sound like the Dr just wants to try balloon or stent because he does not have insurance. I have insurance coverage but it seems a much less invasive way then my surgeon explained it would be major surgery. > I had also had them put down a CEA on the blood work I had done Friday but they would not tell me today what that was. Said they only got what lab results pertained to the test and they were all ok. I imagine my surgeon may be surprised when he gets CEA results as he did not tell his nurse to order one. I asked her about it and she said no harm in me marking it:) I had one about 2 months ago but since I was going to lab again I figured they may as well check it. > > Hildreth > Re: Colon Stent > > > http://www.biobn.com/index.cfm?Page=viewnews & NewsID=0002121010 > > In the link above, is an article about the progress that has been > made in stents, that is hot off the press. I guess they now have > expandable, removable ones that are super! > > Good luck, tomorrow, Hildreth. > > Clare > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Hildreth, Thanks for the update. Glad to hear things went pretty well for you, today. Probably wise to hold off on the stent as long as possible, since it's in the development stage for use in the colon. That's what my friend thinks, too. Clare > Thanks so much for that link Clare. Makes me feel much better about a stent. Seems they are still working on the colon one so will give me reason to put surgeon off and do balloon stretch for now:) I still am not sure if this is not a spastic colon when they try to do sig or colonscopy it just closes up. I had that suspicion because I have had spastic colon in past and never could have a scope done when they tried some years back The colon would just close up. My bowel movements have seemed normal that is till this morning and for some reason I was very nervous and not looking forward to this needle biopsy. The bowel movements this morning were not normal and pencil thin. > The cat scan needle biopsy was a piece fo cake just like Joe had said. Only a couple problems and one I hope turns out nothing serious. > First I am allergic to dye in cat scan so have to take predisone and benadryl before having one if they are going to use contrast. My surgeon said they would so I got prepared with the meds. Got there to find out they were not going to use contrast. > This is the fourth Dr that has seen this mass from the Pet scan and the first one to tell me where it exactly was! I assumed since a colonscopy was advised it was in the colon. It is not! It is right outside of colon and more hidden by a bone. This Dr also said it could be scar tissue along with all the other things it can be. Guess it will be Monday before I find out but going to see if I can make a phone call Friday and get results of what it is. To get to this he had to insert needle in my back and do it. What upset me was the nurse came out during scan and asked if I had heart problems before. That I did not need to hear. Made me more nervous and they called for more sedation which does not work very well on me. I am sleepy and going to nap but that also could be because of lack of sleep last night. She did say the heart had stopped jumping and was ok but when I went up to recover they asked again. Guess I need to get that checked out. I had a nuke stress and heart test last June but know things can change. > I am so glad your friend's mass is not cancer. I guess I can handle anything but that recurring again. Of course if it is I will handle that to. > It does not sound like the Dr just wants to try balloon or stent because he does not have insurance. I have insurance coverage but it seems a much less invasive way then my surgeon explained it would be major surgery. > I had also had them put down a CEA on the blood work I had done Friday but they would not tell me today what that was. Said they only got what lab results pertained to the test and they were all ok. I imagine my surgeon may be surprised when he gets CEA results as he did not tell his nurse to order one. I asked her about it and she said no harm in me marking it:) I had one about 2 months ago but since I was going to lab again I figured they may as well check it. > > Hildreth > Re: Colon Stent > > > http://www.biobn.com/index.cfm?Page=viewnews & NewsID=0002121010 > > In the link above, is an article about the progress that has been > made in stents, that is hot off the press. I guess they now have > expandable, removable ones that are super! > > Good luck, tomorrow, Hildreth. > > Clare > > > > Quote Link to comment Share on other sites More sharing options...
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