Re: poll re: having more kids after CF

[Guest guest]

Tia,

It didn't prevent us from having more children, but had we had

another child with clubfoot, I could have dealt with that fine.

We did have another child and she doesn't have CF.

I have heard some people are reluctant to go through the experience

again. I have a hard time understanding that position, but obviously

it's all personal choice.

Yes, I did meet a family with more than 1 CF child and I believe

there are a couple of parents at the Parents Place Board who have

more than 1 child with CF. So, it certainly is possible. However, I

think that the odds are definatly in favor of having a child without

CF the next time around. If you or your husband had CF that

increases the odds you would have another CF child.

If you wanted, you could set up a poll here at the site under

the " Polls " section and ask a few questions there.

I think you should go for it!! The odds are you won't have another

child with CF. If you did...well, my personal opinion is that it's

still WELL worth any effort on us as parents and barely a hinderance

in the lifespan of that child.

Just my opinion.

Lori and Annika

> our son is almost 7 months old and we are wanting to have one more

> baby. Dr. Ponseti said the odds of having another baby with CF is

1

> in 30. have these odds kept anyone from wanting more children or

do

> you think that it is highly unlikely that it would happen again, do

> you know of anyone with more than one CF child? just curious....

> thanks!

>

> Tia & Kelby

> 8-3-01 bilateral

[Guest guest]

Tia,

It didn't prevent us from having more children, but had we had

another child with clubfoot, I could have dealt with that fine.

We did have another child and she doesn't have CF.

I have heard some people are reluctant to go through the experience

again. I have a hard time understanding that position, but obviously

it's all personal choice.

Yes, I did meet a family with more than 1 CF child and I believe

there are a couple of parents at the Parents Place Board who have

more than 1 child with CF. So, it certainly is possible. However, I

think that the odds are definatly in favor of having a child without

CF the next time around. If you or your husband had CF that

increases the odds you would have another CF child.

If you wanted, you could set up a poll here at the site under

the " Polls " section and ask a few questions there.

I think you should go for it!! The odds are you won't have another

child with CF. If you did...well, my personal opinion is that it's

still WELL worth any effort on us as parents and barely a hinderance

in the lifespan of that child.

Just my opinion.

Lori and Annika

> our son is almost 7 months old and we are wanting to have one more

> baby. Dr. Ponseti said the odds of having another baby with CF is

1

> in 30. have these odds kept anyone from wanting more children or

do

> you think that it is highly unlikely that it would happen again, do

> you know of anyone with more than one CF child? just curious....

> thanks!

>

> Tia & Kelby

> 8-3-01 bilateral

[Guest guest]

Tia:

Having a son with unilateral cf did not deter us one bit in terms of

having another child. I am now due in 3 weeks with my 3rd child and

found out via a level II ultrasound that this baby will have

bilateral cf. I am sad for her to an extent, but know that she will

be fine because she will have the best care possible (and because we

have a very positive attitude here).

I think for each couple, it's just a personal choice. Some people

find cf traumatic, while others realize it's really not a big deal in

the grand scheme of things.

Best of luck in whatever you decide.

Lorna

[Guest guest]

Tia:

Having a son with unilateral cf did not deter us one bit in terms of

having another child. I am now due in 3 weeks with my 3rd child and

found out via a level II ultrasound that this baby will have

bilateral cf. I am sad for her to an extent, but know that she will

be fine because she will have the best care possible (and because we

have a very positive attitude here).

I think for each couple, it's just a personal choice. Some people

find cf traumatic, while others realize it's really not a big deal in

the grand scheme of things.

Best of luck in whatever you decide.

Lorna

[Guest guest]

Tia:

Having a son with unilateral cf did not deter us one bit in terms of

having another child. I am now due in 3 weeks with my 3rd child and

found out via a level II ultrasound that this baby will have

bilateral cf. I am sad for her to an extent, but know that she will

be fine because she will have the best care possible (and because we

have a very positive attitude here).

I think for each couple, it's just a personal choice. Some people

find cf traumatic, while others realize it's really not a big deal in

the grand scheme of things.

Best of luck in whatever you decide.

Lorna

[Guest guest]

Tia,

It hasn't stopped me from having more!! As of now, I only have two

children, Rose being my first and only with clubfoot. I hope to have at

least 3 or 4 children, and I really don't think clubfoot will occur for

us again.

I know of a couple of people who have had 2 children with clubfoot on

the net. I think it's quite rare, though.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Tia,

It hasn't stopped me from having more!! As of now, I only have two

children, Rose being my first and only with clubfoot. I hope to have at

least 3 or 4 children, and I really don't think clubfoot will occur for

us again.

I know of a couple of people who have had 2 children with clubfoot on

the net. I think it's quite rare, though.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Tia,

It hasn't stopped me from having more!! As of now, I only have two

children, Rose being my first and only with clubfoot. I hope to have at

least 3 or 4 children, and I really don't think clubfoot will occur for

us again.

I know of a couple of people who have had 2 children with clubfoot on

the net. I think it's quite rare, though.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Hi Tia,

I have thought about this often. My dd Eden is our first child and

she is also 7 months old. While my husband and I would very much

like to have another baby, I have to admit that I am scared.

Personally, I could handle having another baby born with clubfoot.

At least we would know what to expect, and we would take him/her to

Dr. Ponseti right away instead of wasting precious time like we did

with Eden (she was casted for 8 weeks by a local ortho. surgeon

before we found out about Dr. P). For me, it is the fact that we

have already had one child born with a " birth defect " that scares me,

because it has made me realize how easy it is for something to go

wrong during the process of fetal development. I know that if I were

to get pregnant again I would worry constantly that instead of only

being born with clubfoot, the next baby might be born with a much

more serious and devastating birth defect. We had several

ultrasounds while I was pregnant with Eden that failed to detect her

clubfeet, and I truely think that we lost some of our innocense when

she was born and she and was not " perfect " as we assumed she would

be. Having said that, however, if I could go back now and change the

fact that she was born with clubfeet, I don't think I would do it.

We have met so many wonderful people in the process of dealing with

this, and clubfoot has become such a big part of our lives. In fact,

right now I can't imagine what it would be like to have a new baby

and NOT have to deal with casts and braces and weekly trips to the

orthopaedic surgeon- LOL!

For what it's worth, I think it is normal to worry about the next

baby!

& Eden

> our son is almost 7 months old and we are wanting to have one more

> baby. Dr. Ponseti said the odds of having another baby with CF is

1

> in 30. have these odds kept anyone from wanting more children or

do

> you think that it is highly unlikely that it would happen again, do

> you know of anyone with more than one CF child? just curious....

> thanks!

>

> Tia & Kelby

> 8-3-01 bilateral

[Guest guest]

Hi Tia,

I have thought about this often. My dd Eden is our first child and

she is also 7 months old. While my husband and I would very much

like to have another baby, I have to admit that I am scared.

Personally, I could handle having another baby born with clubfoot.

At least we would know what to expect, and we would take him/her to

Dr. Ponseti right away instead of wasting precious time like we did

with Eden (she was casted for 8 weeks by a local ortho. surgeon

before we found out about Dr. P). For me, it is the fact that we

have already had one child born with a " birth defect " that scares me,

because it has made me realize how easy it is for something to go

wrong during the process of fetal development. I know that if I were

to get pregnant again I would worry constantly that instead of only

being born with clubfoot, the next baby might be born with a much

more serious and devastating birth defect. We had several

ultrasounds while I was pregnant with Eden that failed to detect her

clubfeet, and I truely think that we lost some of our innocense when

she was born and she and was not " perfect " as we assumed she would

be. Having said that, however, if I could go back now and change the

fact that she was born with clubfeet, I don't think I would do it.

We have met so many wonderful people in the process of dealing with

this, and clubfoot has become such a big part of our lives. In fact,

right now I can't imagine what it would be like to have a new baby

and NOT have to deal with casts and braces and weekly trips to the

orthopaedic surgeon- LOL!

For what it's worth, I think it is normal to worry about the next

baby!

& Eden

> our son is almost 7 months old and we are wanting to have one more

> baby. Dr. Ponseti said the odds of having another baby with CF is

1

> in 30. have these odds kept anyone from wanting more children or

do

> you think that it is highly unlikely that it would happen again, do

> you know of anyone with more than one CF child? just curious....

> thanks!

>

> Tia & Kelby

> 8-3-01 bilateral

[Guest guest]

Hi Tia,

I have thought about this often. My dd Eden is our first child and

she is also 7 months old. While my husband and I would very much

like to have another baby, I have to admit that I am scared.

Personally, I could handle having another baby born with clubfoot.

At least we would know what to expect, and we would take him/her to

Dr. Ponseti right away instead of wasting precious time like we did

with Eden (she was casted for 8 weeks by a local ortho. surgeon

before we found out about Dr. P). For me, it is the fact that we

have already had one child born with a " birth defect " that scares me,

because it has made me realize how easy it is for something to go

wrong during the process of fetal development. I know that if I were

to get pregnant again I would worry constantly that instead of only

being born with clubfoot, the next baby might be born with a much

more serious and devastating birth defect. We had several

ultrasounds while I was pregnant with Eden that failed to detect her

clubfeet, and I truely think that we lost some of our innocense when

she was born and she and was not " perfect " as we assumed she would

be. Having said that, however, if I could go back now and change the

fact that she was born with clubfeet, I don't think I would do it.

We have met so many wonderful people in the process of dealing with

this, and clubfoot has become such a big part of our lives. In fact,

right now I can't imagine what it would be like to have a new baby

and NOT have to deal with casts and braces and weekly trips to the

orthopaedic surgeon- LOL!

For what it's worth, I think it is normal to worry about the next

baby!

& Eden

> our son is almost 7 months old and we are wanting to have one more

> baby. Dr. Ponseti said the odds of having another baby with CF is

1

> in 30. have these odds kept anyone from wanting more children or

do

> you think that it is highly unlikely that it would happen again, do

> you know of anyone with more than one CF child? just curious....

> thanks!

>

> Tia & Kelby

> 8-3-01 bilateral

[Guest guest]

,

i remember having some of those same worries when I was pregnant with my

second (she turned ONE today!). I was particularily worried about spina

bifida or arthrogyposis. I think it's because I heard a lot of those

terms used with clubfoot, so that's what my preggo brain focused on for

awhile. After the ultrasound where they checked the spine, etc, I

reallized it was out of my hands and worry wasn't going to change

anything. Iris arrived birth defect-free. I understand how you

feel, but for me, I didn't want it to stop me from having another baby.

I think now that my second was born with no birth defects, I will worry

less when I have another child.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

,

i remember having some of those same worries when I was pregnant with my

second (she turned ONE today!). I was particularily worried about spina

bifida or arthrogyposis. I think it's because I heard a lot of those

terms used with clubfoot, so that's what my preggo brain focused on for

awhile. After the ultrasound where they checked the spine, etc, I

reallized it was out of my hands and worry wasn't going to change

anything. Iris arrived birth defect-free. I understand how you

feel, but for me, I didn't want it to stop me from having another baby.

I think now that my second was born with no birth defects, I will worry

less when I have another child.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

,

i remember having some of those same worries when I was pregnant with my

second (she turned ONE today!). I was particularily worried about spina

bifida or arthrogyposis. I think it's because I heard a lot of those

terms used with clubfoot, so that's what my preggo brain focused on for

awhile. After the ultrasound where they checked the spine, etc, I

reallized it was out of my hands and worry wasn't going to change

anything. Iris arrived birth defect-free. I understand how you

feel, but for me, I didn't want it to stop me from having another baby.

I think now that my second was born with no birth defects, I will worry

less when I have another child.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Thanks Joy,

I do worry a LOT about the possibility of our next child having spina

bifida, or arthrogyposis, or dwarfism, because, like you said, they

are often associated with clubfoot. And since Eden is our first

child, we do not have the reassurance of knowing that we CAN create a

child without a birth defect. When I voiced my fears to my OB

shortly after Eden was born, he told me about a family he knows with

four children. The first child was born with clubfoot, the second

one was born with a heart defect, the third one was born missing the

lower part of one arm, and then the fourth one was born completely

healthy. I guess he told me this because he wanted to reassure me

that a couple can create a " normal " child after having one (or

several) born with birth defects, but honestly, that story has made

me worry all the more. If it were me, I don't think I would have the

strength to try for another child after the second one (and certainly

not after the third one). I am a BIG worry wart anyway, and I had

all the tests and worried about all the normal things when I was

pregnant with Eden (although it didn't even occur to me to worry

about clubfoot-LOL!), so I know that worrying does no good, but

unfortunately I guess it's just in my nature!

Were you eligible for more frequent or more in depth ultrasounds when

you were pregnant with your second child due to the fact that your

first was born with a birth defect? I do think I would feel better

if I was able to see with my own eyes that everything was alright!

> ,

> i remember having some of those same worries when I was pregnant

with my

> second (she turned ONE today!). I was particularily worried about

spina

> bifida or arthrogyposis. I think it's because I heard a lot of

those

> terms used with clubfoot, so that's what my preggo brain focused on

for

> awhile. After the ultrasound where they checked the spine, etc, I

> reallized it was out of my hands and worry wasn't going to change

> anything. Iris arrived birth defect-free. I understand how you

> feel, but for me, I didn't want it to stop me from having another

baby.

> I think now that my second was born with no birth defects, I will

worry

> less when I have another child.

>

> Joy

>

>

> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Thanks Joy,

I do worry a LOT about the possibility of our next child having spina

bifida, or arthrogyposis, or dwarfism, because, like you said, they

are often associated with clubfoot. And since Eden is our first

child, we do not have the reassurance of knowing that we CAN create a

child without a birth defect. When I voiced my fears to my OB

shortly after Eden was born, he told me about a family he knows with

four children. The first child was born with clubfoot, the second

one was born with a heart defect, the third one was born missing the

lower part of one arm, and then the fourth one was born completely

healthy. I guess he told me this because he wanted to reassure me

that a couple can create a " normal " child after having one (or

several) born with birth defects, but honestly, that story has made

me worry all the more. If it were me, I don't think I would have the

strength to try for another child after the second one (and certainly

not after the third one). I am a BIG worry wart anyway, and I had

all the tests and worried about all the normal things when I was

pregnant with Eden (although it didn't even occur to me to worry

about clubfoot-LOL!), so I know that worrying does no good, but

unfortunately I guess it's just in my nature!

Were you eligible for more frequent or more in depth ultrasounds when

you were pregnant with your second child due to the fact that your

first was born with a birth defect? I do think I would feel better

if I was able to see with my own eyes that everything was alright!

> ,

> i remember having some of those same worries when I was pregnant

with my

> second (she turned ONE today!). I was particularily worried about

spina

> bifida or arthrogyposis. I think it's because I heard a lot of

those

> terms used with clubfoot, so that's what my preggo brain focused on

for

> awhile. After the ultrasound where they checked the spine, etc, I

> reallized it was out of my hands and worry wasn't going to change

> anything. Iris arrived birth defect-free. I understand how you

> feel, but for me, I didn't want it to stop me from having another

baby.

> I think now that my second was born with no birth defects, I will

worry

> less when I have another child.

>

> Joy

>

>

> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Hi, I am usually just a lurker here but I have felt as if I have had

a lot to say lately. I am actually going through this whole thing

right now. But I have a weird situation. I have 20 month old

twins. One with severe bilateral club feet, one with no problems at

all. Now I am pregnant with our third child and I am scared to death

that he will be born with club feet. Maybe not scared to death but

my pregnant mind focuses on the issue a lot. We had a breeze of a

time correcting Bobby's clubfeet and the prospect of having to go

through it all again doesn't bother me at all. But I still have all

these thoughts about how I sit, how I lay, what I eat etc. We get so

many conflicting stories on whether Bobby's club feet

was " positional " that I am scared everytime I feel (the new

baby) kick down low. I make sure I stretch and give him lots of room

to move his legs around.

So sorry to babble but as you can tell I am having a lot of thoughts

on this subject right now, but that said...we never considered not

having another child. We want a large family and we will be glad to

deal with any thing or any one God throws our way.

Thanks for listening.

Kathleen

Bobby 6/21/00 Biliateral club feet corrected with Ponsetti method in

Florida

> > ,

> > i remember having some of those same worries when I was pregnant

> with my

> > second (she turned ONE today!). I was particularily worried

about

> spina

> > bifida or arthrogyposis. I think it's because I heard a lot of

> those

> > terms used with clubfoot, so that's what my preggo brain focused

on

> for

> > awhile. After the ultrasound where they checked the spine, etc, I

> > reallized it was out of my hands and worry wasn't going to change

> > anything. Iris arrived birth defect-free. I understand how

you

> > feel, but for me, I didn't want it to stop me from having another

> baby.

> > I think now that my second was born with no birth defects, I will

> worry

> > less when I have another child.

> >

> > Joy

> >

> >

> > http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Hi, I am usually just a lurker here but I have felt as if I have had

a lot to say lately. I am actually going through this whole thing

right now. But I have a weird situation. I have 20 month old

twins. One with severe bilateral club feet, one with no problems at

all. Now I am pregnant with our third child and I am scared to death

that he will be born with club feet. Maybe not scared to death but

my pregnant mind focuses on the issue a lot. We had a breeze of a

time correcting Bobby's clubfeet and the prospect of having to go

through it all again doesn't bother me at all. But I still have all

these thoughts about how I sit, how I lay, what I eat etc. We get so

many conflicting stories on whether Bobby's club feet

was " positional " that I am scared everytime I feel (the new

baby) kick down low. I make sure I stretch and give him lots of room

to move his legs around.

So sorry to babble but as you can tell I am having a lot of thoughts

on this subject right now, but that said...we never considered not

having another child. We want a large family and we will be glad to

deal with any thing or any one God throws our way.

Thanks for listening.

Kathleen

Bobby 6/21/00 Biliateral club feet corrected with Ponsetti method in

Florida

> > ,

> > i remember having some of those same worries when I was pregnant

> with my

> > second (she turned ONE today!). I was particularily worried

about

> spina

> > bifida or arthrogyposis. I think it's because I heard a lot of

> those

> > terms used with clubfoot, so that's what my preggo brain focused

on

> for

> > awhile. After the ultrasound where they checked the spine, etc, I

> > reallized it was out of my hands and worry wasn't going to change

> > anything. Iris arrived birth defect-free. I understand how

you

> > feel, but for me, I didn't want it to stop me from having another

> baby.

> > I think now that my second was born with no birth defects, I will

> worry

> > less when I have another child.

> >

> > Joy

> >

> >

> > http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Hi ,

Your definitely not alone in the " worry " department! I'm there myself. I

have had the same questions on my mind since the moment was born. Our

first daughter was born without any problems except she did have a lot of

intoeing in both feet that she eventually did grow out of. Our second,

was then born with moderately severe bilateral clubfoot. We had a big scare

though when we went to our first appointment with the orthopedic surgeon

when she was just 5 days old. They sent us to radiology for an ultrasound of

her spine. She has a small dimple on her lower back right above her bottom

and they wanted to make doubly sure that she did'nt have a spinal deformity.

All the doctors beforehand had noticed the dimple but they all cleared it

because they could see it was not a hole, just a dimple. My first orthopedic

surgeon has a daughter with the same thing and just thought it best to check

and be sure. Thank god, everything was fine and 's spine is great.

But................that left me with a huge worry that to this day hangs

over my head and might keep me from having any furthur children. I know

there are some that may not be able to understand that but for me the fear

is very hard for to overcome and sometimes I wonder if I just need to count

my lucky stars for the two wonderful children I already have. I have already

been so blessed with them.

I wonder what I would have thought or done if my first would have been born

with the same as . We definitely did'nt want to just have one child if

possible, I think I may have felt a little braver than maybe I do now

already having two children.

We also did'nt have any of the " optional " tests when I was pregnant so if I

was pregnant again I wonder...............would I this time around? Or would

it just make an already worry wort mom a basket case!?!?

Anyway, I'd be interested in the question about the level two ultrasounds

that you asked Joy also. What exactly can and do those ultrasounds detect?

Holly and

Re: poll re: having more kids after CF

>Thanks Joy,

>I do worry a LOT about the possibility of our next child having spina

>bifida, or arthrogyposis, or dwarfism, because, like you said, they

>are often associated with clubfoot. And since Eden is our first

>child, we do not have the reassurance of knowing that we CAN create a

>child without a birth defect. When I voiced my fears to my OB

>shortly after Eden was born, he told me about a family he knows with

>four children. The first child was born with clubfoot, the second

>one was born with a heart defect, the third one was born missing the

>lower part of one arm, and then the fourth one was born completely

>healthy. I guess he told me this because he wanted to reassure me

>that a couple can create a " normal " child after having one (or

>several) born with birth defects, but honestly, that story has made

>me worry all the more. If it were me, I don't think I would have the

>strength to try for another child after the second one (and certainly

>not after the third one). I am a BIG worry wart anyway, and I had

>all the tests and worried about all the normal things when I was

>pregnant with Eden (although it didn't even occur to me to worry

>about clubfoot-LOL!), so I know that worrying does no good, but

>unfortunately I guess it's just in my nature!

>Were you eligible for more frequent or more in depth ultrasounds when

>you were pregnant with your second child due to the fact that your

>first was born with a birth defect? I do think I would feel better

>if I was able to see with my own eyes that everything was alright!

>

>

>

>

>

>> ,

>> i remember having some of those same worries when I was pregnant

>with my

>> second (she turned ONE today!). I was particularily worried about

>spina

>> bifida or arthrogyposis. I think it's because I heard a lot of

>those

>> terms used with clubfoot, so that's what my preggo brain focused on

>for

>> awhile. After the ultrasound where they checked the spine, etc, I

>> reallized it was out of my hands and worry wasn't going to change

>> anything. Iris arrived birth defect-free. I understand how you

>> feel, but for me, I didn't want it to stop me from having another

>baby.

>> I think now that my second was born with no birth defects, I will

>worry

>> less when I have another child.

>>

>> Joy

>>

>>

>> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

>

>

>

>

[Guest guest]

Hi Holly,

I wonder about the level II ultrasounds also. I had three regular

ultrasounds when I was pregnant with Eden (the last one at 20 weeks)

that failed to detect her clubfeet. I go back and forth with my

feelings on this. Most of the time I think it was probably a good

thing that we didn't find out, because I KNOW I would have spent the

rest of my pregnancy worrying and obsessing about it. In my

situation ignorance truely was bliss- I got to fully enjoy my

pregnancy. However, if we had known ahead of time, at least I could

have better prepared myself. For weeks after Eden was born, just the

sight of all the tiny little shoes that I had bought for her when I

was pregnant sitting unused in her closet would make me cry. I had

so much guilt over the fact she was born with clubfeet- wondering

what I had done wrong to cause this to happen. I guess that is what

worries me the most about having another child. I think the guilt

would be unbearable if something were to go wrong again- especially

if it were something devastating like spina bifida. Our friends just

had twins, and she had weekly level II ultrasounds throughout her

entire pregnancy (she was considered high risk). There were

absolutely NO surprises when the babies were born. I don't think I

could ever go back to being the happily ignorant and blissfull person

I was when I was pregnant with Eden. That's why I wonder if having a

child born with a birth defect is enough to put you in that " high

risk " category.

This is all so difficult sometimes. It's nice to have someplace to

share.

Thank you,

> >> ,

> >> i remember having some of those same worries when I was pregnant

> >with my

> >> second (she turned ONE today!). I was particularily worried

about

> >spina

> >> bifida or arthrogyposis. I think it's because I heard a lot of

> >those

> >> terms used with clubfoot, so that's what my preggo brain focused

on

> >for

> >> awhile. After the ultrasound where they checked the spine, etc,

I

> >> reallized it was out of my hands and worry wasn't going to change

> >> anything. Iris arrived birth defect-free. I understand how

you

> >> feel, but for me, I didn't want it to stop me from having another

> >baby.

> >> I think now that my second was born with no birth defects, I will

> >worry

> >> less when I have another child.

> >>

> >> Joy

> >>

> >>

> >> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

> >

> >

> >

> >

[Guest guest]

Hi Holly,

I wonder about the level II ultrasounds also. I had three regular

ultrasounds when I was pregnant with Eden (the last one at 20 weeks)

that failed to detect her clubfeet. I go back and forth with my

feelings on this. Most of the time I think it was probably a good

thing that we didn't find out, because I KNOW I would have spent the

rest of my pregnancy worrying and obsessing about it. In my

situation ignorance truely was bliss- I got to fully enjoy my

pregnancy. However, if we had known ahead of time, at least I could

have better prepared myself. For weeks after Eden was born, just the

sight of all the tiny little shoes that I had bought for her when I

was pregnant sitting unused in her closet would make me cry. I had

so much guilt over the fact she was born with clubfeet- wondering

what I had done wrong to cause this to happen. I guess that is what

worries me the most about having another child. I think the guilt

would be unbearable if something were to go wrong again- especially

if it were something devastating like spina bifida. Our friends just

had twins, and she had weekly level II ultrasounds throughout her

entire pregnancy (she was considered high risk). There were

absolutely NO surprises when the babies were born. I don't think I

could ever go back to being the happily ignorant and blissfull person

I was when I was pregnant with Eden. That's why I wonder if having a

child born with a birth defect is enough to put you in that " high

risk " category.

This is all so difficult sometimes. It's nice to have someplace to

share.

Thank you,

> >> ,

> >> i remember having some of those same worries when I was pregnant

> >with my

> >> second (she turned ONE today!). I was particularily worried

about

> >spina

> >> bifida or arthrogyposis. I think it's because I heard a lot of

> >those

> >> terms used with clubfoot, so that's what my preggo brain focused

on

> >for

> >> awhile. After the ultrasound where they checked the spine, etc,

I

> >> reallized it was out of my hands and worry wasn't going to change

> >> anything. Iris arrived birth defect-free. I understand how

you

> >> feel, but for me, I didn't want it to stop me from having another

> >baby.

> >> I think now that my second was born with no birth defects, I will

> >worry

> >> less when I have another child.

> >>

> >> Joy

> >>

> >>

> >> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

> >

> >

> >

> >

[Guest guest]

I'm just going to jump in here about level II ultrasounds. When I was

pregnant this past fall (we lost the baby) we sat down and had a long talk

with my OB-GYN at the first appt. We all agreed to have a level III

ultrasound just to make sure everything was okay. (it actually was the Dr.'s

idea) Of course, we never got that far, but it was reassuring that we at

least could have. When I was pregnant with Sam, I had five ultrasounds and

nothing was detected about his feet.

Having another baby with clubfeet now doesn't scare me as much because I know

we would go directly to Iowa within the first week or so and get things

corrected ASAP. Some might disagree with me, but I've never considered

clubfeet to be along the same caliber as other " birth defects. " In fact, I

have a hard time calling it a birth defect. I've never considered Sam

disabled or " deformed " (in fact, I cringe at the sound at that word -- for

anyone, not just my son). I think what scares me now is the fact that I've

had one baby with clubfeet and one miscarriage. I wonder if the miscarriage

was caused by a more intense birth defect. Even though we had a pathology

done on the miscarriage and nothing abnormal was found, you just wonder. So,

I'm like a lot of you, I worry about worse problems than clubfeet, not just

clubfeet.

I could go on and on, but I won't. I understand your concern. We just want

to be responsible parents...

In Him,

Suzanne and San Holton 4-19-00 (left cf)

[Guest guest]

Jenn,

I do have a question for you How old is your child with the speech problem

Apraxia? My daughter ( Speech delay) who was born two years before Zachary(

Born with a right clubfoot) the doctors told us they did not think Bethany

would ever talk but now she is stating to put three - four words together.

She is now almost five years old. I do wonder if the there is any

connections with the two.. I do have five children the oldest 20, twins (

boys) 6 almost 7 and Bethany who will be five soon and Zachary who is two. I

do not plan on having more children but would not give any away they all are

special to us. When I was pregnant for Zachary the doctors said the Ultra

sound showed a healthy baby boy and we never questioned it after that but

then he was born with the right clubfoot I looked up and saw the doctors face

and he said it happens rarely that a child is born with a clubfoot and

Zachary was cast an hour later with a plaster cast by an orthopedic doctor

that told us a week later that he was unable to treat Zachary further due to

the severity of the clubfoot. We have since gone with the Ponseti method and

have had wonderful results to date we are using the DBB and a AFO to bring up

the dorseflection of the foot. If I was younger and had only one child I

might consider having other children since I love children but am happy with

my family as it is now. Kathy

[Guest guest]

Kathleen,

I hope your pregnancy goes well and all is well with your new son. You will

definately need patience with three small children so close in age too. I

have twins that are now six boys and Bethany was born almost two years after

them and then two years after Zachary was born. I big family is nice but

there are times when you do not have time for yourself which is important for

sanity. In alll I have five children a 20 year old son, twin (fraternal)

boys age 6, a daughter age 4, and Zachary who was born with clubfoot who is

two. I think taht a large family is nice to have but alot of work too. If

Zachary was the first child I would of had another child afterwards. You

take the same risks when you have one set of twins you can have other

multiple births that follow. If you have identical twins your chances of

multipules are not as great as fraternal twins in reoccurances of multipule

births your age is also a factor. Did you want to have another set of

twins? Best of luck with your family, Kathy

[Guest guest]

I have 3 kids. I had my first one at a very young age. Luckily for

me, whe was born very healthy. My second one was a nightmare. She

had an extended hospital stay because she was having " blue spells "

after she ate. It ended up being acid reflux, and she couldnt come

home till she had a week of no spells. Then she was on a heart and

breathing monitor. It was such a mess, and during all this, we

bought a car and I had to make sure it didnt have a passanger air

bag because she had to ride next to me up front. It was the only

way to monitor her on the way to the doctors office. Then all was

fine with that, but she wasnt talking. At 2 she still couldnt

string even simple sentences together. We called Early

Intervention, they examined her, and not only did she have Verbal

Aproxia (she drops the last syllable of all words) but she had foot

problems. We took her to a few doctors and it was determined that

her rotation was reversed. What she should be doing outward she was

doing inward and vice versa. Her diagnosis is, from the report in

front of me: Demonstrates diffusely diminished muscle tone and

increased passive rangge of motion. Metatarsus adductus, increased

passive internal rotation of the hips, hyptonita and femoral

anteversion. Then I got pregnant with Mikey. I was a basket case.

We did 2 ultrasounds, a regular and a level 2. Then I went the

extra step to pay for a 3D ultrasound. I made them scan the feet so

we knew what we were dealing with. Unfortunately they didnt come out

well cause he wouldnt hold his foot still. At least I knew and had

time to prepare. For a little while, I blamed my husband. I mean,

if I was able to produce my first daughter without all these

problems, then why are my children with him " messed up " ? Then I

realized it wasnt anyones fault. It was just what was to be. I

really became confused about my life and the life of my kids. When

I began to reflect and talk to our family friend/minister, I

realized that what was happening to me is not a punishment, but a

test. God will never give us more than we can handle.

I guess the point I am trying to get to is this. After 3 kids, and

Mikey having the problems he has, I decided enough is enough. I had

my tubes tied in January. My doctor gave me a hard time, being I am

25. However, most people have their first at my age, have a few and

then get them tied. I have been having children for 9 years. I

feel I am done physically and emotionally. It is very hard to go

through this, and with both of my children with my husband having

foot problems, the onlything really left to have happen is to be

without the limbs, and I do not want that. I do not want to have

another child knowing there might be problems. I feel I would be

selfish to have another child, knowing that my wants may result in

what happens to him.

Hope I didnt scare anyone with this opinion, but its just my own.

Jenn