Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Welcome Kari! Hope you will find support and encouragement here. It's wonderful you were able to find out about the situation ahead of time and plan for your baby's treatment. Everything will work out.. I think you'll find many clothes will fit over the casts. Most are roomy enough. I used my older children's clothes with no problem. It's not till you get into the full-time brace stage, after casts, that you have to make adjustments, because then clothes with covered feet won't work. Then you just find footless things .. long johns, sweatpants, etc.. or cut off the feet of pajamas you have and do a rough hem. Our infant car seat worked fine, but I have heard others say that theirs were too narrow in the leg area. The one you have might work fine. Maybe just wait and see. Hope this helps. All the best to you! and 18 months old, treated with Ponseti method running everywhere > Happy 2002! I am new to the nosurgery cite. I learned of this cite > through Lori, Annika's mom, as she has been a guardian angel ever > since I learned my baby would be born with clubfoot back in > September. I am due in approximately three weeks. I've had four > ultrasounds which have all indicated our son will be born with > bilateral clubfoot. I have done a lot of research and am hoping to > seek treatment through the Shriner's Hospital in Minneapolis through > doctors practicing the Ponsetti method. I live in South Dakota. I am > wondering what I need in the way of winter clothes for a baby with > casts, etc? I have one son who is approximately two years old and am > wondering if the baby can use any of his old clothes, pajamas, etc. I > am also wondering if we need to purchase a new car seat for him? I > appreciate everyone's guidance in this. It has been very nice to have > Lori pointing the direction for me as this of course, came as a total > surprise to two very uneducated-clubfoot parents! Thank you for any > advice given! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Kari, Welcome and congratulations on your new baby (to be). As said, most baby clothes should fit while your baby is in the casts. Once the casts come off, the footed infant clothes are not as easy to use. Living in Iowa, our winter should be similar to yours in South Dakota. When my son Jakob was born almost 4 years ago, we had a few footed items that we used while he was in casts. At 8 weeks when he went into the FAB (DBB, brace, shoes with the bar - however it's mentioned to you), we did find the footed clothes to bunch around his feet and make it more difficult to put the brace on. At that point we really tried to steer clear of footed clothes and pajamas. The car seat worked just fine while Jakob was in the casts, but was a little narrow with the brace. We could still use it once we put a rolled up receiving blanket behind his knees (otherwise Jakob could catch his feet at the bottom of the seat and pull his feet out). On the other hand, I was glad I waited to get some baby items. The swing and high chair were items that I had the most trouble with. We looked until we found a high chair and swing that didn't have a fixed bar between the legs. Let us know when the baby is born. kjohnston86 wrote: > Happy 2002! I am new to the nosurgery cite. I learned of this cite > through Lori, Annika's mom, as she has been a guardian angel ever > since I learned my baby would be born with clubfoot back in > September. I am due in approximately three weeks. I've had four > ultrasounds which have all indicated our son will be born with > bilateral clubfoot. I have done a lot of research and am hoping to > seek treatment through the Shriner's Hospital in Minneapolis through > doctors practicing the Ponsetti method. I live in South Dakota. I am > wondering what I need in the way of winter clothes for a baby with > casts, etc? I have one son who is approximately two years old and am > wondering if the baby can use any of his old clothes, pajamas, etc. I > am also wondering if we need to purchase a new car seat for him? I > appreciate everyone's guidance in this. It has been very nice to have > Lori pointing the direction for me as this of course, came as a total > surprise to two very uneducated-clubfoot parents! Thank you for any > advice given! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 HEY! Kari, you made it!!! Glad you came by. Got your emails today, but have been too busy to get back to you yet. Keep us posted on your progress and just keep asking questions as they come up for you. Lori and Annika > Happy 2002! I am new to the nosurgery cite. I learned of this cite > through Lori, Annika's mom, as she has been a guardian angel ever > since I learned my baby would be born with clubfoot back in > September. I am due in approximately three weeks. I've had four > ultrasounds which have all indicated our son will be born with > bilateral clubfoot. I have done a lot of research and am hoping to > seek treatment through the Shriner's Hospital in Minneapolis through > doctors practicing the Ponsetti method. I live in South Dakota. I am > wondering what I need in the way of winter clothes for a baby with > casts, etc? I have one son who is approximately two years old and am > wondering if the baby can use any of his old clothes, pajamas, etc. I > am also wondering if we need to purchase a new car seat for him? I > appreciate everyone's guidance in this. It has been very nice to have > Lori pointing the direction for me as this of course, came as a total > surprise to two very uneducated-clubfoot parents! Thank you for any > advice given! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 > > Hi Kari, Where at from SD are you from? I grew up in Rapid City. I still have much family in Rapid. Congraduations on your pregnacey, and the soon arriveal of your little guy. My daughter had unilateral clubfoot. She had 15 casting that were not by a Ponseti method doctor. With those cast, we were able to put most footed clothing over the cast. It was easier that the outfit would snap all the way down the leg, not have an band at the ankle. When Ivy was in the FAB, PJ's with out feet were needed. This is only my perference, ( I used them with my son too) but the sleeping gowns are nice with the cast. I would use a blaket(or bag) type snowsuit, or be sure that the snowsuit zips down both legs. With the cast, I would also stretch a sock over the cast to keep it clean, to keep the toes warm, and to prevent her from scratching up her other leg. Wishing you all the best, Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Thank you Sara, for your reply! It's always nice to meet a fellow South Dakotan! I actually grew up here in Watertown, but then left for college, taught high school and then worked in Iowa as a counselor before returning here about a year and a half ago. I have a 2 year old son and enjoy being closer to " grandma " who frequently will babysit! Thanks for all the advice on clothes, etc. I am learning so much information about all of this, I am just wanting to get things rolling!! Everyone has been super helpful and so appreciated. I will keep you posted as the birth of our son! Thanks again! Kari > > > > > > Hi Kari, > Where at from SD are you from? I grew up in Rapid City. I still have much > family in Rapid. Congraduations on your pregnacey, and the soon arriveal > of your little guy. > > My daughter had unilateral clubfoot. She had 15 casting that were not by a > Ponseti method doctor. With those cast, we were able to put most footed > clothing over the cast. It was easier that the outfit would snap all the way > down the leg, not have an band at the ankle. When Ivy was in the FAB, > PJ's with out feet were needed. This is only my perference, ( I used them > with my son too) but the sleeping gowns are nice with the cast. I would > use a blaket(or bag) type snowsuit, or be sure that the snowsuit zips down > both legs. With the cast, I would also stretch a sock over the cast to > keep it clean, to keep the toes warm, and to prevent her from scratching > up her other leg. > > Wishing you all the best, > Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Thank you Sara, for your reply! It's always nice to meet a fellow South Dakotan! I actually grew up here in Watertown, but then left for college, taught high school and then worked in Iowa as a counselor before returning here about a year and a half ago. I have a 2 year old son and enjoy being closer to " grandma " who frequently will babysit! Thanks for all the advice on clothes, etc. I am learning so much information about all of this, I am just wanting to get things rolling!! Everyone has been super helpful and so appreciated. I will keep you posted as the birth of our son! Thanks again! Kari > > > > > > Hi Kari, > Where at from SD are you from? I grew up in Rapid City. I still have much > family in Rapid. Congraduations on your pregnacey, and the soon arriveal > of your little guy. > > My daughter had unilateral clubfoot. She had 15 casting that were not by a > Ponseti method doctor. With those cast, we were able to put most footed > clothing over the cast. It was easier that the outfit would snap all the way > down the leg, not have an band at the ankle. When Ivy was in the FAB, > PJ's with out feet were needed. This is only my perference, ( I used them > with my son too) but the sleeping gowns are nice with the cast. I would > use a blaket(or bag) type snowsuit, or be sure that the snowsuit zips down > both legs. With the cast, I would also stretch a sock over the cast to > keep it clean, to keep the toes warm, and to prevent her from scratching > up her other leg. > > Wishing you all the best, > Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Thank you Sara, for your reply! It's always nice to meet a fellow South Dakotan! I actually grew up here in Watertown, but then left for college, taught high school and then worked in Iowa as a counselor before returning here about a year and a half ago. I have a 2 year old son and enjoy being closer to " grandma " who frequently will babysit! Thanks for all the advice on clothes, etc. I am learning so much information about all of this, I am just wanting to get things rolling!! Everyone has been super helpful and so appreciated. I will keep you posted as the birth of our son! Thanks again! Kari > > > > > > Hi Kari, > Where at from SD are you from? I grew up in Rapid City. I still have much > family in Rapid. Congraduations on your pregnacey, and the soon arriveal > of your little guy. > > My daughter had unilateral clubfoot. She had 15 casting that were not by a > Ponseti method doctor. With those cast, we were able to put most footed > clothing over the cast. It was easier that the outfit would snap all the way > down the leg, not have an band at the ankle. When Ivy was in the FAB, > PJ's with out feet were needed. This is only my perference, ( I used them > with my son too) but the sleeping gowns are nice with the cast. I would > use a blaket(or bag) type snowsuit, or be sure that the snowsuit zips down > both legs. With the cast, I would also stretch a sock over the cast to > keep it clean, to keep the toes warm, and to prevent her from scratching > up her other leg. > > Wishing you all the best, > Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Kari- It's great that you have found a doctor who practices the Ponseti method already! We were able to use footed sleepers when our daughter had casts, but gowns were out of the question because the cast would rub on her other leg. The cast tech would cover her cast with a long " sock " because it wasn't quite dry, so we would keep the sock on her cast to prevent chafing when the weather got warmer and she started wearing onesies and shorts. Dresses on babies are not practical from my point of view. Since we got the FAB, though, we have only used outfits wihtout feet that have snaps at the legs which meant that most of the clothes she received could not be used! Also, she is very long and wears cloth diapers, so she is currently wearing 18 to 24 month clothing at 9 months. It's difficult to find outfits with snap legs and no feet! My mom has made some pajamas for her. Luckily, we have a good consignment store nearby, so I can find snap stuff for a good price, although it's often meant for boys. Oh well. Hope this helps. Joanne > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: new to the chat board >Date: Thu, 03 Jan 2002 23:25:06 -0000 > >Happy 2002! I am new to the nosurgery cite. I learned of this cite >through Lori, Annika's mom, as she has been a guardian angel ever >since I learned my baby would be born with clubfoot back in >September. I am due in approximately three weeks. I've had four >ultrasounds which have all indicated our son will be born with >bilateral clubfoot. I have done a lot of research and am hoping to >seek treatment through the Shriner's Hospital in Minneapolis through >doctors practicing the Ponsetti method. I live in South Dakota. I am >wondering what I need in the way of winter clothes for a baby with >casts, etc? I have one son who is approximately two years old and am >wondering if the baby can use any of his old clothes, pajamas, etc. I >am also wondering if we need to purchase a new car seat for him? I >appreciate everyone's guidance in this. It has been very nice to have >Lori pointing the direction for me as this of course, came as a total >surprise to two very uneducated-clubfoot parents! Thank you for any >advice given! Kari > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Kari- It's great that you have found a doctor who practices the Ponseti method already! We were able to use footed sleepers when our daughter had casts, but gowns were out of the question because the cast would rub on her other leg. The cast tech would cover her cast with a long " sock " because it wasn't quite dry, so we would keep the sock on her cast to prevent chafing when the weather got warmer and she started wearing onesies and shorts. Dresses on babies are not practical from my point of view. Since we got the FAB, though, we have only used outfits wihtout feet that have snaps at the legs which meant that most of the clothes she received could not be used! Also, she is very long and wears cloth diapers, so she is currently wearing 18 to 24 month clothing at 9 months. It's difficult to find outfits with snap legs and no feet! My mom has made some pajamas for her. Luckily, we have a good consignment store nearby, so I can find snap stuff for a good price, although it's often meant for boys. Oh well. Hope this helps. Joanne > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: new to the chat board >Date: Thu, 03 Jan 2002 23:25:06 -0000 > >Happy 2002! I am new to the nosurgery cite. I learned of this cite >through Lori, Annika's mom, as she has been a guardian angel ever >since I learned my baby would be born with clubfoot back in >September. I am due in approximately three weeks. I've had four >ultrasounds which have all indicated our son will be born with >bilateral clubfoot. I have done a lot of research and am hoping to >seek treatment through the Shriner's Hospital in Minneapolis through >doctors practicing the Ponsetti method. I live in South Dakota. I am >wondering what I need in the way of winter clothes for a baby with >casts, etc? I have one son who is approximately two years old and am >wondering if the baby can use any of his old clothes, pajamas, etc. I >am also wondering if we need to purchase a new car seat for him? I >appreciate everyone's guidance in this. It has been very nice to have >Lori pointing the direction for me as this of course, came as a total >surprise to two very uneducated-clubfoot parents! Thank you for any >advice given! Kari > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Kari- It's great that you have found a doctor who practices the Ponseti method already! We were able to use footed sleepers when our daughter had casts, but gowns were out of the question because the cast would rub on her other leg. The cast tech would cover her cast with a long " sock " because it wasn't quite dry, so we would keep the sock on her cast to prevent chafing when the weather got warmer and she started wearing onesies and shorts. Dresses on babies are not practical from my point of view. Since we got the FAB, though, we have only used outfits wihtout feet that have snaps at the legs which meant that most of the clothes she received could not be used! Also, she is very long and wears cloth diapers, so she is currently wearing 18 to 24 month clothing at 9 months. It's difficult to find outfits with snap legs and no feet! My mom has made some pajamas for her. Luckily, we have a good consignment store nearby, so I can find snap stuff for a good price, although it's often meant for boys. Oh well. Hope this helps. Joanne > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: new to the chat board >Date: Thu, 03 Jan 2002 23:25:06 -0000 > >Happy 2002! I am new to the nosurgery cite. I learned of this cite >through Lori, Annika's mom, as she has been a guardian angel ever >since I learned my baby would be born with clubfoot back in >September. I am due in approximately three weeks. I've had four >ultrasounds which have all indicated our son will be born with >bilateral clubfoot. I have done a lot of research and am hoping to >seek treatment through the Shriner's Hospital in Minneapolis through >doctors practicing the Ponsetti method. I live in South Dakota. I am >wondering what I need in the way of winter clothes for a baby with >casts, etc? I have one son who is approximately two years old and am >wondering if the baby can use any of his old clothes, pajamas, etc. I >am also wondering if we need to purchase a new car seat for him? I >appreciate everyone's guidance in this. It has been very nice to have >Lori pointing the direction for me as this of course, came as a total >surprise to two very uneducated-clubfoot parents! Thank you for any >advice given! Kari > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Kari, I can relate to wanting to be closer to " grandma. " My mom lives in Colorado Springs, and we will be moving to Longmount, CO this next week. We (I ) am excited about being closer to grandma too. We have dear friends here in IL and it will be sad to move, however being closer to family will be sooo nice. Take care, Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Kari, I can relate to wanting to be closer to " grandma. " My mom lives in Colorado Springs, and we will be moving to Longmount, CO this next week. We (I ) am excited about being closer to grandma too. We have dear friends here in IL and it will be sad to move, however being closer to family will be sooo nice. Take care, Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Kari, I can relate to wanting to be closer to " grandma. " My mom lives in Colorado Springs, and we will be moving to Longmount, CO this next week. We (I ) am excited about being closer to grandma too. We have dear friends here in IL and it will be sad to move, however being closer to family will be sooo nice. Take care, Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 Hi Kari, My sone has bilateral clubfoot also. He wore regular feety pajamas while in the cast when he was small. as he got older and needed to wear the DBB...he needed non-feety pajamas...tough to find...but not impossible. And your regular car seat should be fine. Good luck!! --- kjohnston86 wrote: > Happy 2002! I am new to the nosurgery cite. I > learned of this cite > through Lori, Annika's mom, as she has been a > guardian angel ever > since I learned my baby would be born with clubfoot > back in > September. I am due in approximately three weeks. > I've had four > ultrasounds which have all indicated our son will be > born with > bilateral clubfoot. I have done a lot of research > and am hoping to > seek treatment through the Shriner's Hospital in > Minneapolis through > doctors practicing the Ponsetti method. I live in > South Dakota. I am > wondering what I need in the way of winter clothes > for a baby with > casts, etc? I have one son who is approximately two > years old and am > wondering if the baby can use any of his old > clothes, pajamas, etc. I > am also wondering if we need to purchase a new car > seat for him? I > appreciate everyone's guidance in this. It has been > very nice to have > Lori pointing the direction for me as this of > course, came as a total > surprise to two very uneducated-clubfoot parents! > Thank you for any > advice given! Kari > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 Hi Kari, My sone has bilateral clubfoot also. He wore regular feety pajamas while in the cast when he was small. as he got older and needed to wear the DBB...he needed non-feety pajamas...tough to find...but not impossible. And your regular car seat should be fine. Good luck!! --- kjohnston86 wrote: > Happy 2002! I am new to the nosurgery cite. I > learned of this cite > through Lori, Annika's mom, as she has been a > guardian angel ever > since I learned my baby would be born with clubfoot > back in > September. I am due in approximately three weeks. > I've had four > ultrasounds which have all indicated our son will be > born with > bilateral clubfoot. I have done a lot of research > and am hoping to > seek treatment through the Shriner's Hospital in > Minneapolis through > doctors practicing the Ponsetti method. I live in > South Dakota. I am > wondering what I need in the way of winter clothes > for a baby with > casts, etc? I have one son who is approximately two > years old and am > wondering if the baby can use any of his old > clothes, pajamas, etc. I > am also wondering if we need to purchase a new car > seat for him? I > appreciate everyone's guidance in this. It has been > very nice to have > Lori pointing the direction for me as this of > course, came as a total > surprise to two very uneducated-clubfoot parents! > Thank you for any > advice given! Kari > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 Hi Kari, My sone has bilateral clubfoot also. He wore regular feety pajamas while in the cast when he was small. as he got older and needed to wear the DBB...he needed non-feety pajamas...tough to find...but not impossible. And your regular car seat should be fine. Good luck!! --- kjohnston86 wrote: > Happy 2002! I am new to the nosurgery cite. I > learned of this cite > through Lori, Annika's mom, as she has been a > guardian angel ever > since I learned my baby would be born with clubfoot > back in > September. I am due in approximately three weeks. > I've had four > ultrasounds which have all indicated our son will be > born with > bilateral clubfoot. I have done a lot of research > and am hoping to > seek treatment through the Shriner's Hospital in > Minneapolis through > doctors practicing the Ponsetti method. I live in > South Dakota. I am > wondering what I need in the way of winter clothes > for a baby with > casts, etc? I have one son who is approximately two > years old and am > wondering if the baby can use any of his old > clothes, pajamas, etc. I > am also wondering if we need to purchase a new car > seat for him? I > appreciate everyone's guidance in this. It has been > very nice to have > Lori pointing the direction for me as this of > course, came as a total > surprise to two very uneducated-clubfoot parents! > Thank you for any > advice given! Kari > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi I am new to the chat board. My son was born on the 19th November (7 weeks old) with his left foot being affected by Talipes. He is currently undergoing treatment and is in his eight cast. His foot is now held in the neutral position and has still to have the toes lifted. Everthing is progressing slowly. His ligament I am being told are/were quite tight. The doctor performing the manipulation is using the Ponseti method but I am unsure of her training in the technique. As a parent I have read as much as I can on the internet about the method and I am convinced that it is the best option for my son's foot. My problem is that I have many questions and worries. Who long should I expect the castings to continue? Is the casting a slow process or should I be looking for someone else who practices the method and pushes for a quicker result? Is speed of manipulation an issue? My fear is that my son only gets one chance with his foot and I want to ensure that he is getting the proper manipulation that gives him the best chance for correction. Scarry times! Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Tom, Congratulations on the birth of your son and welcome to the board. Generally Dr. Ponseti manages to correct the foot in 7 or less casts. Perhaps if you gave us the name of your Dr. and where she practices someone here might be able to identify her. You could also have a look at the link below to see if her name comes up. The list shows Drs approved by Dr. Ponseti. http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Physicians.html If it turns out that your Dr is not performing the method correctly don't worry. Many of our children started off with faulty casting methods and managed to have full correction with just a few casts. My daughter Emma was casted for nearly 3 months when we decided to go to Dr. Ponseti. He managed to correct both feet within 3 weeks! Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Tom, Congratulations on the birth of your son and welcome to the board. Generally Dr. Ponseti manages to correct the foot in 7 or less casts. Perhaps if you gave us the name of your Dr. and where she practices someone here might be able to identify her. You could also have a look at the link below to see if her name comes up. The list shows Drs approved by Dr. Ponseti. http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Physicians.html If it turns out that your Dr is not performing the method correctly don't worry. Many of our children started off with faulty casting methods and managed to have full correction with just a few casts. My daughter Emma was casted for nearly 3 months when we decided to go to Dr. Ponseti. He managed to correct both feet within 3 weeks! Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Tom, Congratulations on the birth of your son and welcome to the board. Generally Dr. Ponseti manages to correct the foot in 7 or less casts. Perhaps if you gave us the name of your Dr. and where she practices someone here might be able to identify her. You could also have a look at the link below to see if her name comes up. The list shows Drs approved by Dr. Ponseti. http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Physicians.html If it turns out that your Dr is not performing the method correctly don't worry. Many of our children started off with faulty casting methods and managed to have full correction with just a few casts. My daughter Emma was casted for nearly 3 months when we decided to go to Dr. Ponseti. He managed to correct both feet within 3 weeks! Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Tom, Congraduations on the birth of your little man! Dan gave good advice. I would look at the link that he mentioned to be sure that your Dr. is useing the Ponseti method. We were under the impression that our daughter's doctor was useing the Ponseti method, however he was not. Ivy had 15 cast and at 5 month of age was finally treated by Dr Ponseti. One of the questions that Dr.Ponseti uses to see if other doctors are effieceint in his method of treatment is " How many casting does it take to correct a baby's foot? " Genenerally it take 7 or less cast; for very tight feet, maybe 8. Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Tom, Congraduations on the birth of your little man! Dan gave good advice. I would look at the link that he mentioned to be sure that your Dr. is useing the Ponseti method. We were under the impression that our daughter's doctor was useing the Ponseti method, however he was not. Ivy had 15 cast and at 5 month of age was finally treated by Dr Ponseti. One of the questions that Dr.Ponseti uses to see if other doctors are effieceint in his method of treatment is " How many casting does it take to correct a baby's foot? " Genenerally it take 7 or less cast; for very tight feet, maybe 8. Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hi Tom, Congraduations on the birth of your little man! Dan gave good advice. I would look at the link that he mentioned to be sure that your Dr. is useing the Ponseti method. We were under the impression that our daughter's doctor was useing the Ponseti method, however he was not. Ivy had 15 cast and at 5 month of age was finally treated by Dr Ponseti. One of the questions that Dr.Ponseti uses to see if other doctors are effieceint in his method of treatment is " How many casting does it take to correct a baby's foot? " Genenerally it take 7 or less cast; for very tight feet, maybe 8. Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Greetings Tom and congratulations on the birth of your son! Dan and Sara have given you excellent advice. Unfortunately you can't really take someone claiming to do the Ponseti technique at their word--you have to do a little research first. My son also has unilateral clubfoot and achived correction in 4 casts. The 4th cast was set right after his heel cord tenotomy and was in place for 3 weeks. After this final cast was removed, he wore the straight last shoes and DBB for 23 hours a day for 3 months. After that time period, he went down to wearing the DBB & shoes at night time and nap time, a process that usually continues until the child is 2 to 3 years old. Best of luck in your son's treatment, Lorna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Hello Tom, Congratulations on the birth of your son!!! In addition to all the other advise you've been given here, I would like to add a few things. You can ask your doctor the following questions: 1. Where/How did they learn the Ponseti technique? 2. How long has she been practicing the technique? 3. How many casts does it typically take her before correction is achieved? (This SHOULD be 9 casts or less) 4. Your child will be in casts for approx. 3 weeks following the tenotomy. Does she do additional casting after the tenotomy casts are removed? (The answer to this should be NO) Other questions to consider: Is your childs foot " overcorrected " ? Meaning, do his feet turn way out? They should. With the Ponseti technique, the feet are manipulated in to an overcorrected position, something that is NOT done with traditional casting or surgery. You said your child's foot is in a neutral position, but I don't know if you mean that his foot points straight ahead or if his ankle only dorsiflexes (points up) to the neutral position (90 degrees)? If your childs foot points straight ahead and don't appear to be over-corrected, I would definatley want to know more about your doctors training. Could you provide her name and see if anyone else here has dealt with her before? Many of the parents here have been told by their original non-Ponseti method doctors, that their children's tendons were very tight and would require surgery. That is the reason many parents here sought out a qualified Ponseti method doctor. So, while your doctor is telling you that your child's tendons are particularly tight, that is usually the case with clubfeet. There are however, very few instances where even Dr. Ponseti himself, needed to do 9 sets of casts to achieve full correction; but no more. If you could provide us with your Doc's name and then ask her some of the questions we've suggested, that may help to give us and you a better idea of her qualifications. I'm also going to re-post a message I did a little while ago for all the new parents to read. Lori and Annika Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.