newbie here, with celiac,crohns,refractory sprue,etc. need advice please...

January 8, 2009

Hi everyone, Im Lynne, a homeschooling mom of 6 kids ages

l8,14,12,10,8 & 6. 6 years ago I was finally diagnosed with Celiac

after being sick for so long. Our youngest suffered the most but has

done wonderfully since putting her on a gluten/cassein free diet and

no potatoes or many other foods shes sensitive to. Ive gotten worse

and have polyps, lots of inflammation in my stomach, lymphnodes and

liver,spleen and pancreas get enlarged often for unknown reasons, Ive

devoloped worsening allergies once I went gf and I am 100%gf, I get

tested and make everything at home with my vitamix, all the kids are

too. Im allergic to eggs and many other foods. I need some help

fixing meals according to SCD and knowing what is best for me. I

have chronic diarrhea, every 20 minutes from 2 am and get dehydrated

a lot, Im on Lomotil right now but it will stop working in a few more

days and I will be back to being sick all over again. We also have

been struggling financially, no income but my disability and food

money is only 600 for the month and no matter how hard I try, I cant

make it last so I also need some economical meals too. Im good with

crockpots and making things taste great without

eggs,dairy,gluten,potato but I do use a combo of rice and sorghum

flours with garbanzo. It doesnt upset any of our stomachs and I dont

eat it often. Ive got some allergic to corn so I try to make

everything safe for all of us. I have gone 2 weeks without eating

and only siping water and still have the constant diarrhea, so it

doesnt make a difference what I eat. Though, I will not go off a gf

diet, also I have steroid induced diabetes too. If anyone has any

suggestions for me, please send them this way. Thank you very much.

I know this is confusing and I hope someone can help me. I just had a

balloon endo the other day that was awful, and have had numerous

colonoscipies,upper endos, capsule endoscopies in the last year. I

do have bleeding lesions, gastric polyps, scalloping in the small

intestines, villi are growing back, nutritional deficiencies galore

and am overweight so its really frustrating to be eating fresh

spinach salads and only water and be this big. I look forward to

hearing from some of you hopefully. Thank you very much. Lynne

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