Re: fatigue--question about arthritis drugs

[Guest guest]

Terry, interested in your comment that Dr. C thought your daughter's

medications could possibly be contributing to her fatigue. Can I ask

what arthritis drugs she has been on? You mention prednisone, but I

wonder if she has been on any NSAIDs, especially the new ones like

Vioxx, Celebrex or Bextra. If so, did Dr. C think any of those meds

could cause a secondary mito problem?

Thanks.

Barbara

>

>

>

> Hi,

> I have a question. I know this list is for adults with Mito but my

question

> is regarding my 15 y/o. Her symptoms are so much more similar to

those of

> you adults than the children I have read about. She was tested for

mito at

> CC 3 weeks ago. Dr. C believes she has secondary mitochondrial

disease to

> medications and autoimmune disease. She has been on meds for

Crohn's

> Disease, arthritis and many other diagnosis for 6 years. We are

waiting

> test results before we can treat.

>

> My question is this. Is fatigue a big issue for those of you with

> mito(primary or secondary). I suspect her extreme fatigue could be

mito or

> from her neurontin(tremors) or ativan(meniere's). Both these drugs

have been

> added since January. She had fatigue before but not this severe.

The other

> part of the equation is that she decreased her Prednisone dose to

5mg every

> other day at the same time.

>

> We are also awaiting results from a sleep study for suspected

sleep apnea.

> So there are many reasons why she could be tired.

>

> Her neuro was frustrating today since he questioned whether she

could be

> suffering depression (as you know folks wax and wane out of

depressions).

> She is not depressed and has never been diagnosed with depression.

I am

> certain she is not depressed. Fortunately, Dr. C saw she was tired

and

> attritubuted that to either her meds, sleep or mito. I just

needed to vent

> on this. I know the neuro has to consider this but come on, he

just got done

> saying that neurontin can cause tiredness. We even tried taking

her off it

> and couldn't because her tremor was too bad.

>

> Thanks for any input. I do hope you won't mind me posting here.

> Terry

>

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