Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 on 2/22/04 12:37 PM, jackyb1956 at jackyb1956@... wrote: > I am currently on 320mg Sotalol a day. I think jellybeans would be > more affective. Can anybody tell me if Tikosyn (Dofetilide) is > available in Canada. I'm not sure, but if you contact CVS ProCare Pharmacy (where mine comes from...) at 1-, they might know... good luck... jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Jack - how do you like the tikosyn? I was just put on it on Friday, and was cardioverted today, after 6 weeks in afib. I've heard good things about it! Stef jack mctamney wrote: on 2/22/04 12:37 PM, jackyb1956 at jackyb1956@... wrote: > I am currently on 320mg Sotalol a day. I think jellybeans would be > more affective. Can anybody tell me if Tikosyn (Dofetilide) is > available in Canada. I'm not sure, but if you contact CVS ProCare Pharmacy (where mine comes from...) at 1-, they might know... good luck... jack Backup web page - http://afibsupport.proboards23.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 on 2/22/04 9:56 PM, Quarter Acre Orchids at quarteracreorchids@... wrote: > Jack - how do you like the tikosyn? I was just put on it on Friday, and was > cardioverted today, after 6 weeks in afib. I've heard good things about it! > > Stef So far so good, Stef... as I wrote in a post a while back, I had been on dogoxin for about ten years and it seemed to work fine for awhile only to find out recently that because my afib is due to a hypervagotonic syndrome (overactive vagus nerve), the digoxin was not only not helping but was making me worse, this was exposed when they tried to switch me to sotalol (betapace) and it put me into first degree heart block and dropped my heart rate to 28... the Tikosyn cured to heart block and is holding me pretty much in sinus... I did have one three hour incident of afib (from the Irish whiskey I'd been drinking the night before?), but I converted back twenty minutes after I took my dose of Tikosyn... so we'll see... I have trust issues when it comes to medicine though : ) jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Pfizer trials indicate that Tikosyn (dofetilide) has a good success rate on chronic Afibbers with structural problems of the lower chambers (mine is dilated left ventricle cardiomyopathy). May I have some feedback from those of you who moved to Tikosyn as to success, side effects, structuaral defects present at initiation and how long you remained in NSR? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 I'm among the missing for a while cause I'm working on a huge project in my Community - a fenced-in area where our dogs can socialize off-leash. However, I popped in this morning for a quick look - and spotted the Tikosyn message. If you visit *that* Board, under *antiarrythmics* - I posted a few Dofetilide messages that might be of interest to you. http://afibsupport.proboards23.com/index.cgi Basically, after a history of permanent Afib - I have been on Dofetilide going into my fourth year. I am in NSR and no side effects; but check our backup board - it's a a really cool site! Wow - lots of new members! Welcome! Ellen (NSR on Dofetilide) ******************* (snip) May I have some feedback from those of you who moved to Tikosyn as to success, side effects, structuaral defects present at initiation and how long you remained in NSR? ******************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 > From: Quarter Acre Orchids > Date: 3/19/04, 10:03 PM -0500 > > The cardio said the weird beats were becuase I was now > " more sensitive " to them, but I think that's hog wash... > I know my heart and I know I didn't have these beats > prior to the Tikosyn. The physicians are less inclined to believe something that is new to them if they hear it first from patients. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Also a second question for those of you on Tikosyn... what side effects if any are you experiencing? Tikosyn Started Tikosyn 4 days ago and cardioverted to NSR 2 days ago. Success so far. My question is what sort of period in days might it take for me to start realizing the benefits of NSR. After day 4 it is hard to tell much improvement. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Buz: One of the benefits of NSR is the absence of risk for stroke that is assoicated with AF. Another is that NSR tends to beget NSR, jsut as AF begets AF. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 I've been on Tikosyn since mid-Feb of this year. Started on 500 x 2 in the hospital, but did not convert on my own (I always had prior to that). I blame this on the fact that my heart rate had been uncontrolled for weeks by that point, and I was actually in the hospital for viral gastroenteritis, which left me horribly dehydrated and made me puke for about 10 days straight.. my own body didn't stand a chance of converting with that triple whammy going on! So I was cardioverted, and sent home on 250 x 2 Tikosyn, and 120 Cardizem (and coumadin, of course). That worked for about a week and a half, during which I passed a stress test with flying colors. During that first week, I was very aware of fast runs, and weird hard heart beats.. I saw another dr in my practice, and he said I was just paranoid about my heart now, which is why I noticed them... that was a crock of you know what! Went on vacation two days after the stress test, and the second day there (Friday), I went into afib in the morning. I was in the Dutch Antilles, where they had never heard of Tikosyn before, so finding something that would control my heart rate was a challenge. [*NOTE: carry the technical details of Tikosyn with you at all times!] We studied the insert and finally decided on a digoxin drip, followed by atenelol (no more cardizem). This worked to slow things down enough that I could somewhat enjoy the rest of the vacation. The following Monday I called back to the states and my own cardio said I could up the Tikosyn to 750 per day, and the Atenelol could go as high as 200 per day. I started 250 x 3 Tikosyn on the Monday and 100 mg Atenelol.. my heart rate started to slow down, and by the following Saturday was sufficiently slow to allow me to convert on my own! That was two weeks ago and I have to say that today I feel GREAT!!! My heart felt a bit iffy for about a week following NSR.. I felt like I had to baby it a bit, take it easy.. and I still had a few fast runs and odd beats... now I got nuthin but a nice slow heart beat! My rate is very low and my bp is rock bottom.. I thought this would make me tired, but it doesn't.. my energy is back to completely normal and I feel wonderful. The only downside is that I am, for the first time in my life, noticing the cold! I used to run " hot " all the time, probably due to higher bp, but now I'm more sensitve to the cold, which I'm not to sure I like! This is likely due to the atenelol and not the Tikosyn at all, though. AND I sleep like a baby now... which is really nice. So, in conclusion, I would say that the side effects of Tikosyn are near zero.. I sometimes notice a strange sort of tugging feeling in my heart, but those are also diminishing. I also can't say if they're from the Tikosyn or the Atenelol. Now, if this combo will keep the afib away, I'll be one happy camper! stef Quote Link to comment Share on other sites More sharing options...
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