update

[Guest guest]

Hi guys,

Just wanted to finally thank everyone that had written in response to me not feeling well the past few weeks. I try and keep up with this group (its been so busy lately) and try to respond to all posts i feel i can but lately just havent been able to, but just wanted yall to know i have read them and those of you who arent doing well or having problems with family, etc are in my thoughts and prayers and the ones who have had some improvement im so happy for you. Thought it would be easier to say that then to put in separate posts like i usually do. I just cant do that today- im still having alot of problems with dysmotility and weakness and also seizures and confusion. im trying to take it easy. my mom hasnt been doing well either so have been helping with her too. I saw my rheumatologist yesterday and she still feels i have a chronic infection going on causing most of my symptoms- shes really thinking its either lyme or strep. she really isnt for the mito idea but at least is willing to support me on trying to get it checked into. im telling her i think it might both be mito and a chronic infection. anyways, thats what the appt mainly was about- she also is taking me off some meds since i havent been able to take them anyways cuz of my stomach. i talked to her about my problems with walking lately and she told me best to talk with my new neuro about that. She also mentioned me having something called PANDAS syndrome which ill talk about in another post. anyways, just thought id update yall on this stuff. i have alot of appts next week (neuro, GI, etc) so hopefully something will be done to help me more. im going to go and try and respond to a few posts now. yall are in my thoughts and prayers.

take care,

adrienne