Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 For helping me out with the lab results. It is a bit confusing for me, since I don't have the myoglobinuria or the severe muscle pain, and my primary symptoms are CNS. Also, I have very low cholesterol. Dr. Shields is a great Dr. I can see why he's checking things again, since he stongly believes in not diagnosisng by labs alone, but by using the whole clinical picture. The more I think about it, the more I can see a link between the MCT II and my dysautonomia and CNS, slthough the CNS would be secondary to hypoglycemia or the dysautonomia, since (IIRC) the brain only metabolizes sugar--cannot metabolize fats anyways. Also, I really feel that I suffer from cortisol excess, and it would make sense considering that my body may be desperate for sugar. Oh well, I guess no more chicken wings for me! :-( I was hoping for the mito that allowed me to go on a ketogenic diet. Darn!! Thanks for all your help. We'll see what happens! Thanks, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 I am sorry for your loss. May God comfort you in the days ahead. Sounds to me like He already is! Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 I am sorry for your loss. May God comfort you in the days ahead. Sounds to me like He already is! Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 > I want to thank everyone for their support, but I lost my uncle today this > afternoon while family was in the room with him. He had gotten so sickly in > a month that he went from walking, but with a cane, to completely gone that > quick. I couldn't believe it. The cancer just overtook him, and I couldn't > believe my beloved uncle was leaving, but as he left, I had asked for him to > come to me, and not take the pain anymore, and once he passed, I felt this > surge of peace in my body, can't even explain it. I am not even religious > (agnostic), but this really shook me and felt so real. is a man I will > always love, and I tried everything to save him, mostly because I can't let > him go. I look for your words of comfort for me, because I am numb, and very > sad. Thank you so much > > m m, I am so very sorry for your loss of your uncle ....I am so sick of this disease..a just lost her mom and several others have lost loved ones lately...I found out tonight that my mom,s cea has went up and she did not tell me,so I am so scared...Sweetie you did everything you could, please take comfort in that..This is a very painful disease at times for the patient and caregiver...You have your memories, it sounds like you were very close to him...remember he is not suffering...I do believe in God and you have a very special angel watching over you now and his name is ...God bless you..I will keep you in my prayer,s....(((((((HUGS JANA))))) > > _________________________________________________________________ > Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! > http://toolbar.msn.com/go/onm00200414ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 > I want to thank everyone for their support, but I lost my uncle today this > afternoon while family was in the room with him. He had gotten so sickly in > a month that he went from walking, but with a cane, to completely gone that > quick. I couldn't believe it. The cancer just overtook him, and I couldn't > believe my beloved uncle was leaving, but as he left, I had asked for him to > come to me, and not take the pain anymore, and once he passed, I felt this > surge of peace in my body, can't even explain it. I am not even religious > (agnostic), but this really shook me and felt so real. is a man I will > always love, and I tried everything to save him, mostly because I can't let > him go. I look for your words of comfort for me, because I am numb, and very > sad. Thank you so much > > m m, I am so very sorry for your loss of your uncle ....I am so sick of this disease..a just lost her mom and several others have lost loved ones lately...I found out tonight that my mom,s cea has went up and she did not tell me,so I am so scared...Sweetie you did everything you could, please take comfort in that..This is a very painful disease at times for the patient and caregiver...You have your memories, it sounds like you were very close to him...remember he is not suffering...I do believe in God and you have a very special angel watching over you now and his name is ...God bless you..I will keep you in my prayer,s....(((((((HUGS JANA))))) > > _________________________________________________________________ > Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! > http://toolbar.msn.com/go/onm00200414ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 m...It was time for him to go,but he wanted you to see him before he went and he felt the love and admiration that you had for him. You have a heart,so you felt that when he left,he left behind the pain,the sadness and he knew you would understand. I,personally belive when we leave this world we go onto a new level and there is no pain,no sadness only joy, and peace. Perhaps he felt that and that is the jolt you experienced. I think of the stars as candles or prayers that light our waymof fkowers as joy and beauty and o storms as the firce battles we fight against temptations. A raibow is a victory, a gift,and each sunrise and sunset is a beginning and an end. I hope you can console your grief and in time just be glad he is not suffering and on occassions a wind,a song of nature or a beautiful peaceful pastoral scene will being back good memories. truly I am sorry for your loss ans your pain and even though you may not belive in prayer,I will pray that your soul will find peace. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 m...It was time for him to go,but he wanted you to see him before he went and he felt the love and admiration that you had for him. You have a heart,so you felt that when he left,he left behind the pain,the sadness and he knew you would understand. I,personally belive when we leave this world we go onto a new level and there is no pain,no sadness only joy, and peace. Perhaps he felt that and that is the jolt you experienced. I think of the stars as candles or prayers that light our waymof fkowers as joy and beauty and o storms as the firce battles we fight against temptations. A raibow is a victory, a gift,and each sunrise and sunset is a beginning and an end. I hope you can console your grief and in time just be glad he is not suffering and on occassions a wind,a song of nature or a beautiful peaceful pastoral scene will being back good memories. truly I am sorry for your loss ans your pain and even though you may not belive in prayer,I will pray that your soul will find peace. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 m, I am so very sorry to hear the news about your Uncle. I send you love, peace and comfort. > I want to thank everyone for their support, but I lost my uncle today this > afternoon while family was in the room with him. He had gotten so sickly in > a month that he went from walking, but with a cane, to completely gone that > quick. I couldn't believe it. The cancer just overtook him, and I couldn't > believe my beloved uncle was leaving, but as he left, I had asked for him to > come to me, and not take the pain anymore, and once he passed, I felt this > surge of peace in my body, can't even explain it. I am not even religious > (agnostic), but this really shook me and felt so real. is a man I will > always love, and I tried everything to save him, mostly because I can't let > him go. I look for your words of comfort for me, because I am numb, and very > sad. Thank you so much > > m > > _________________________________________________________________ > Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! > http://toolbar.msn.com/go/onm00200414ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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