Re: Re: Right side-Left side/good side/bad side-To Sandy

[Guest guest]

Hi Maureen,

You just use tennis shoes, I had to by mine a little bigger for the AFO to fit

right. I had the foot drag in the beggining and often tripped. When I was still

working one time a tripped and fell face first, yes it hurt but the embarresment

was the worst. Thats when I decided to get the AFO. it really does help. Sandy

Re: Right side-Left side/good side/bad side-To Sandy

Hi Sandy!

I don't use an AFO. I was asking some of the other Friends a while

back about it. I'm not sure if that's for me at this point. I'm

walking pretty good, but slow. It's just my left knee that's

bothering me, and the foot drag too. I just don't want it to get

worse to where I need a knee operation or something. With my leg,

it's less of a pop but more of a snap (without the snap sound). Do

you have to wear special kinds of shoes with the AFO? I saw a

picture of one and I couldn't figure that part out. Thanks for your

info!

Maureen

> > I found these messages extremely interesting as I had just

> mentioned to someone else that I thought there might be more one

> sided PLSers out there than we were aware of. Some PLSers and

most

> of my doctors have been skeptical of my PLS dianosis because it

is

> ALL on the left side with no speech or swallowing problems. I

am

> right handed. I first noticed my left foot dragging but after

> getting a diagnosis and joining this group I started to remember

> things that probably pointed to PLS long before it became

evident.

> >

> > I had always bought and carried the largest purse I could

find. I

> hauled around everything but the kitchen sink. Way before my

foot

> started to drag I had given up the large purse because

it " bothered "

> my shoulder. Made me tired, I think. I was a camper and when

> camping we would walk around the neighborhood. I stopped doing

that

> because I would get so tired and " feel funny " before I got back

to

> the camp ground. I had a few unexplained, outlandishly,

ridiculous

> temper explosions, which embarrassed me and others to death.

There

> were other things that I don't recall right now but when I do I

now

> know it was the PLS working on me because they were things that

were

> totally out of character.

> >

> > I have taken some falls but not nearly as many as most of

you. I

> think it is because one leg works. I miss the use of my left

hand

> more than anything. It's amazing how many things take two hands

to

> accomplish. While I'm thankful to still be walking, albeit slow

and

> short distances, I think, and I'm only thinking, I'd trade my

good

> leg for my bad hand. I'd have to think long and hard, but there

are

> lots of things I could do sitting that I now can't do sitting or

> standing. This is not a wish--just thinking.

> >

> > I got my diagnosis in April of 1990 after feeling there was

> something wrong in March of 1989. First went to doctor in

January

> of 1990 so my diagnosis was a really quick one. Have been to

> University of VA in Charlottsville, s Hopkins with

> Rothstein and am now at town University Hospital in

Washingto,

> DC. Because of the sketicism I went through the same battery of

> tests at each place and still came back to the same diagnosis-

PLS.

> >

> > That's my story and I'm sticking with it.

> >

> > Ronnie, 59 year old female, West Virginia.

> >

> > Maggie...hope my good side doesn't wear out anytime soon. It

does

> have it's aches and pains sometimes, though.

> >

> >

> >

[Guest guest]

Hi Maureen i dont have anything on you for my chart age ancestry occupation

color of hair and eyes LH or RH when was onset Family history of neurological

diseases

Re: Right side-Left side/good side/bad side-To Sandy

Hi Sandy!

I don't use an AFO. I was asking some of the other Friends a while

back about it. I'm not sure if that's for me at this point. I'm

walking pretty good, but slow. It's just my left knee that's

bothering me, and the foot drag too. I just don't want it to get

worse to where I need a knee operation or something. With my leg,

it's less of a pop but more of a snap (without the snap sound). Do

you have to wear special kinds of shoes with the AFO? I saw a

picture of one and I couldn't figure that part out. Thanks for your

info!

Maureen

> > I found these messages extremely interesting as I had just

> mentioned to someone else that I thought there might be more one

> sided PLSers out there than we were aware of. Some PLSers and

most

> of my doctors have been skeptical of my PLS dianosis because it

is

> ALL on the left side with no speech or swallowing problems. I

am

> right handed. I first noticed my left foot dragging but after

> getting a diagnosis and joining this group I started to remember

> things that probably pointed to PLS long before it became

evident.

> >

> > I had always bought and carried the largest purse I could

find. I

> hauled around everything but the kitchen sink. Way before my

foot

> started to drag I had given up the large purse because

it " bothered "

> my shoulder. Made me tired, I think. I was a camper and when

> camping we would walk around the neighborhood. I stopped doing

that

> because I would get so tired and " feel funny " before I got back

to

> the camp ground. I had a few unexplained, outlandishly,

ridiculous

> temper explosions, which embarrassed me and others to death.

There

> were other things that I don't recall right now but when I do I

now

> know it was the PLS working on me because they were things that

were

> totally out of character.

> >

> > I have taken some falls but not nearly as many as most of

you. I

> think it is because one leg works. I miss the use of my left

hand

> more than anything. It's amazing how many things take two hands

to

> accomplish. While I'm thankful to still be walking, albeit slow

and

> short distances, I think, and I'm only thinking, I'd trade my

good

> leg for my bad hand. I'd have to think long and hard, but there

are

> lots of things I could do sitting that I now can't do sitting or

> standing. This is not a wish--just thinking.

> >

> > I got my diagnosis in April of 1990 after feeling there was

> something wrong in March of 1989. First went to doctor in

January

> of 1990 so my diagnosis was a really quick one. Have been to

> University of VA in Charlottsville, s Hopkins with

> Rothstein and am now at town University Hospital in

Washingto,

> DC. Because of the sketicism I went through the same battery of

> tests at each place and still came back to the same diagnosis-

PLS.

> >

> > That's my story and I'm sticking with it.

> >

> > Ronnie, 59 year old female, West Virginia.

> >

> > Maggie...hope my good side doesn't wear out anytime soon. It

does

> have it's aches and pains sometimes, though.

> >

> >

> >

[Guest guest]

Hi Maureen:

I am going to butt in here only because I was also having trouble with my

right knee, where I would get a sharp pain on the outside of the knee. I

had an AFO made and wore it for quite awhile and my knee problem cleared up.

Guess the way I walk was putting more stress on that part of my leg. Have

to admit I don't wear it all the time now as some slacks or pants are too

narrow at the bottom to fit over and yes - I did have to buy shoes a size

larger to fit the AFO. I still do wear it from time to time, especially if

I notice my knee starting to act up again.

Hope this info helps a little.

Take care.

Jo!

Re: Right side-Left side/good side/bad side-To

Sandy

> Hi Sandy!

>

> I don't use an AFO. I was asking some of the other Friends a while

> back about it. I'm not sure if that's for me at this point. I'm

> walking pretty good, but slow. It's just my left knee that's

> bothering me, and the foot drag too. I just don't want it to get

> worse to where I need a knee operation or something. With my leg,

> it's less of a pop but more of a snap (without the snap sound). Do

> you have to wear special kinds of shoes with the AFO? I saw a

> picture of one and I couldn't figure that part out. Thanks for your

> info!

>

> Maureen

>

>

> > > I found these messages extremely interesting as I had just

> > mentioned to someone else that I thought there might be more one

> > sided PLSers out there than we were aware of. Some PLSers and

> most

> > of my doctors have been skeptical of my PLS dianosis because it

> is

> > ALL on the left side with no speech or swallowing problems. I

> am

> > right handed. I first noticed my left foot dragging but after

> > getting a diagnosis and joining this group I started to remember

> > things that probably pointed to PLS long before it became

> evident.

> > >

> > > I had always bought and carried the largest purse I could

> find. I

> > hauled around everything but the kitchen sink. Way before my

> foot

> > started to drag I had given up the large purse because

> it " bothered "

> > my shoulder. Made me tired, I think. I was a camper and when

> > camping we would walk around the neighborhood. I stopped doing

> that

> > because I would get so tired and " feel funny " before I got back

> to

> > the camp ground. I had a few unexplained, outlandishly,

> ridiculous

> > temper explosions, which embarrassed me and others to death.

> There

> > were other things that I don't recall right now but when I do I

> now

> > know it was the PLS working on me because they were things that

> were

> > totally out of character.

> > >

> > > I have taken some falls but not nearly as many as most of

> you. I

> > think it is because one leg works. I miss the use of my left

> hand

> > more than anything. It's amazing how many things take two hands

> to

> > accomplish. While I'm thankful to still be walking, albeit slow

> and

> > short distances, I think, and I'm only thinking, I'd trade my

> good

> > leg for my bad hand. I'd have to think long and hard, but there

> are

> > lots of things I could do sitting that I now can't do sitting or

> > standing. This is not a wish--just thinking.

> > >

> > > I got my diagnosis in April of 1990 after feeling there was

> > something wrong in March of 1989. First went to doctor in

> January

> > of 1990 so my diagnosis was a really quick one. Have been to

> > University of VA in Charlottsville, s Hopkins with

> > Rothstein and am now at town University Hospital in

> Washingto,

> > DC. Because of the sketicism I went through the same battery of

> > tests at each place and still came back to the same diagnosis-

> PLS.

> > >

> > > That's my story and I'm sticking with it.

> > >

> > > Ronnie, 59 year old female, West Virginia.

> > >

> > > Maggie...hope my good side doesn't wear out anytime soon. It

> does

> > have it's aches and pains sometimes, though.

> > >

> > >

> > >