fatigue

May 15, 2003

Hi,

I have a question. I know this list is for adults with Mito but my question

is regarding my 15 y/o. Her symptoms are so much more similar to those of

you adults than the children I have read about. She was tested for mito at

CC 3 weeks ago. Dr. C believes she has secondary mitochondrial disease to

medications and autoimmune disease. She has been on meds for Crohn's

Disease, arthritis and many other diagnosis for 6 years. We are waiting

test results before we can treat.

My question is this. Is fatigue a big issue for those of you with

mito(primary or secondary). I suspect her extreme fatigue could be mito or

from her neurontin(tremors) or ativan(meniere's). Both these drugs have been

added since January. She had fatigue before but not this severe. The other

part of the equation is that she decreased her Prednisone dose to 5mg every

other day at the same time.

We are also awaiting results from a sleep study for suspected sleep apnea.

So there are many reasons why she could be tired.

Her neuro was frustrating today since he questioned whether she could be

suffering depression (as you know folks wax and wane out of depressions).

She is not depressed and has never been diagnosed with depression. I am

certain she is not depressed. Fortunately, Dr. C saw she was tired and

attritubuted that to either her meds, sleep or mito. I just needed to vent

on this. I know the neuro has to consider this but come on, he just got done

saying that neurontin can cause tiredness. We even tried taking her off it

and couldn't because her tremor was too bad.

Thanks for any input. I do hope you won't mind me posting here.

Terry

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