Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Hi Everyone, If we are counting, I also have descending PLS – my speech was first thing affected. Janet from Oz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Thanks Lavon i havent found anybody that the speech was first yet .And most so far are starting on the left GEO Re: Positive Attitude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 I have descending PLS also. Donna -- In PLS-FRIENDS , " Ann Hill " <ahill103@n...> wrote: > I AM ONE OF THE FEW DESCENDINGS WITH YOU > CAN YOU TELL ME HOW MUCH YOUR SPEECH WAS AFFECTED AND WHAT OTHER SYMPTOMS > YOU HAVE > ANNIE FROM NY > Re: Descending PLS > > > > Hi Everyone, > If we are counting, I also have descending PLS - my speech was first thing > affected. > Janet from Oz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 I have the same descending pattern, Gordon. But Dr. Pioro (Clev Clinic) still calls it " probable ALS " I've heard he has a hard time giving the PLS Dx. I will have had symptoms 5 years this June. My speech, swallowing and chewing all GREATLY improved in the past 18 months. However my hopes were squashed as my left leg stiffened, foot spasms in and under intermittently, and toes curl under. Most of the time I walk very slowly and with a slight limb...no assistance. Thank the Lord my CPK is normal so NO muscle degeneration to this point. I'm planning a vacation south and am packing my last clinic notes in the glove compartment. With my slur and lack of balance even though slight, I don't want a speeding ticket to turn into jail time. lol Eva > Ann, > I have descending PLS. Mine started with what I described to my doctor as a surplus of saliva. After many trips to ENT's, which produced nothing, I started having a speech problem and started seeing neuros,.who would say " somethings wrong but I don't know what " . All this took about 4 years and finally a neuro at the Cleveland clinic diagnosed it as PLS in November 2001, I was 71 at the time. > Gordon > > > Quote Link to comment Share on other sites More sharing options...
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