Re: Doctors/Vivian/Nan/Janet

[Guest guest]

a,

There is a wonderful doc in Milwaukee...wendy Peltier, she knows so much about this illness and she has a great patient manner.

Vivian

Doctors/Vivian/Nan/Janet

Hi all, I am trying to find a new doctor that understands something aboutmito. My doctors at the University of Iowa Hospitals and Clinics arevery good, but don't understand mitochondrial disorders, even the MDAdoctors. I would like to have a doctor that I could see and then couldgive my area doctors some advice, as I am just getting passed off fromdoctor to doctor. With all that happened when I was in AZ, my familydoctor sent me to the specialists, who think the other should dosomething, but they can't. (These would be the neurologist andpulmonologist). They won't talk to each other though. I don't want togo back to the pediatric MDA doctor who thought I should not be using thewheelchair and other things, as I do know it is needed and those of youwho met me, would probably agree. So, enough of my venting. Does anyone know of a doctor in theMidwest? Vivian, Nan and Janet, have you guys seen a doctor in Madisonor Milwaukee? I was thinking you had. That would only be a 4 or 5 hourdrive and I could do that once in awhile. Thank you anyone in advancefor any information.Smiles,aMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

Vivian,

I remember you all talking about her. Do you know of anyway I

could contact her? What hospital is she with? Thanks,

Smiles,

a

[Guest guest]

a

Good luck in finding someone.

laurie

>

> Reply-To:

> Date: Sat, 5 Jul 2003 11:48:29 -0500

> To:

> Subject: Doctors/Vivian/Nan/Janet

>

> Hi all,

> I am trying to find a new doctor that understands something about

> mito. My doctors at the University of Iowa Hospitals and Clinics are

> very good, but don't understand mitochondrial disorders, even the MDA

> doctors. I would like to have a doctor that I could see and then could

> give my area doctors some advice, as I am just getting passed off from

> doctor to doctor. With all that happened when I was in AZ, my family

> doctor sent me to the specialists, who think the other should do

> something, but they can't. (These would be the neurologist and

> pulmonologist). They won't talk to each other though. I don't want to

> go back to the pediatric MDA doctor who thought I should not be using the

> wheelchair and other things, as I do know it is needed and those of you

> who met me, would probably agree.

> So, enough of my venting. Does anyone know of a doctor in the

> Midwest? Vivian, Nan and Janet, have you guys seen a doctor in Madison

> or Milwaukee? I was thinking you had. That would only be a 4 or 5 hour

> drive and I could do that once in awhile. Thank you anyone in advance

> for any information.

>

> Smiles,

> a

>

>

[Guest guest]

Laurie,

Thanks! I just feel I need someone who is on my side. Well, my PCP is, but they can't do much anymore. The neurologists I have gone to here, just are not interested in learning about Mito.

Smiles,

a

aGood luck in finding someone.laurie

[Guest guest]

a,

I can't find my book at the moment, but I will today...and you can give her secretary a call on Monday to see about an appointment. I will write back later as soon as I get the number.

Vivian

(I know how important it is to have a doctor who understands mito and difficult medical problems, she is such a doctor).

Doctors/Vivian/Nan/Janet

Hi all, I am trying to find a new doctor that understands something aboutmito. My doctors at the University of Iowa Hospitals and Clinics arevery good, but don't understand mitochondrial disorders, even the MDAdoctors. I would like to have a doctor that I could see and then couldgive my area doctors some advice, as I am just getting passed off fromdoctor to doctor. With all that happened when I was in AZ, my familydoctor sent me to the specialists, who think the other should dosomething, but they can't. (These would be the neurologist andpulmonologist). They won't talk to each other though. I don't want togo back to the pediatric MDA doctor who thought I should not be using thewheelchair and other things, as I do know it is needed and those of youwho met me, would probably agree. So, enough of my venting. Does anyone know of a doctor in theMidwest? Vivian, Nan and Janet, have you guys seen a doctor in Madisonor Milwaukee? I was thinking you had. That would only be a 4 or 5 hourdrive and I could do that once in awhile. Thank you anyone in advancefor any information.Smiles,aMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

a,

Dr. Peltier 1-........her secretary is , she is at Froedtert hospital in Milwaukee...

Good Luck,

Vivian

Doctors/Vivian/Nan/Janet

Hi all, I am trying to find a new doctor that understands something aboutmito. My doctors at the University of Iowa Hospitals and Clinics arevery good, but don't understand mitochondrial disorders, even the MDAdoctors. I would like to have a doctor that I could see and then couldgive my area doctors some advice, as I am just getting passed off fromdoctor to doctor. With all that happened when I was in AZ, my familydoctor sent me to the specialists, who think the other should dosomething, but they can't. (These would be the neurologist andpulmonologist). They won't talk to each other though. I don't want togo back to the pediatric MDA doctor who thought I should not be using thewheelchair and other things, as I do know it is needed and those of youwho met me, would probably agree. So, enough of my venting. Does anyone know of a doctor in theMidwest? Vivian, Nan and Janet, have you guys seen a doctor in Madisonor Milwaukee? I was thinking you had. That would only be a 4 or 5 hourdrive and I could do that once in awhile. Thank you anyone in advancefor any information.Smiles,aMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

Thanks Vivian! I remember that you had good luck with her. Hopefully I can get in to her. Where do you live? Is she far from you?

Smiles,

a

a,

I can't find my book at the moment, but I will today...and you can give her secretary a call on Monday to see about an appointment. I will write back later as soon as I get the number.

Vivian

(I know how important it is to have a doctor who understands mito and difficult medical problems, she is such a doctor).

[Guest guest]

a,

I am looking thru my papers to find the number also. Dr Peltier is with the medical college of WI which is a big hospital off of 894 on the west side of Milwaukee. So, it is easily accessable from Iowa. I will write back. Maybe Vivian will get her number faster as the last time I saw her was in 1997.

Also, there used to be a Mc house a few blocks away. My sister stayed there in 1991 when her son was premature Otherwise, there are quite a few hotels off of the freeway and to the west if I remember right. Priceline should get you won for around $50. Or, when you make an appointment you could ask them for recommendations.

Janet

Janet

Doctors/Vivian/Nan/Janet

Hi all, I am trying to find a new doctor that understands something aboutmito. My doctors at the University of Iowa Hospitals and Clinics arevery good, but don't understand mitochondrial disorders, even the MDAdoctors. I would like to have a doctor that I could see and then couldgive my area doctors some advice, as I am just getting passed off fromdoctor to doctor. With all that happened when I was in AZ, my familydoctor sent me to the specialists, who think the other should dosomething, but they can't. (These would be the neurologist andpulmonologist). They won't talk to each other though. I don't want togo back to the pediatric MDA doctor who thought I should not be using thewheelchair and other things, as I do know it is needed and those of youwho met me, would probably agree. So, enough of my venting. Does anyone know of a doctor in theMidwest? Vivian, Nan and Janet, have you guys seen a doctor in Madisonor Milwaukee? I was thinking you had. That would only be a 4 or 5 hourdrive and I could do that once in awhile. Thank you anyone in advancefor any information.Smiles,aMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

a,

I am looking thru my papers to find the number also. Dr Peltier is with the medical college of WI which is a big hospital off of 894 on the west side of Milwaukee. So, it is easily accessable from Iowa. I will write back. Maybe Vivian will get her number faster as the last time I saw her was in 1997.

Also, there used to be a Mc house a few blocks away. My sister stayed there in 1991 when her son was premature Otherwise, there are quite a few hotels off of the freeway and to the west if I remember right. Priceline should get you won for around $50. Or, when you make an appointment you could ask them for recommendations.

Janet

Janet

Doctors/Vivian/Nan/Janet

Hi all, I am trying to find a new doctor that understands something aboutmito. My doctors at the University of Iowa Hospitals and Clinics arevery good, but don't understand mitochondrial disorders, even the MDAdoctors. I would like to have a doctor that I could see and then couldgive my area doctors some advice, as I am just getting passed off fromdoctor to doctor. With all that happened when I was in AZ, my familydoctor sent me to the specialists, who think the other should dosomething, but they can't. (These would be the neurologist andpulmonologist). They won't talk to each other though. I don't want togo back to the pediatric MDA doctor who thought I should not be using thewheelchair and other things, as I do know it is needed and those of youwho met me, would probably agree. So, enough of my venting. Does anyone know of a doctor in theMidwest? Vivian, Nan and Janet, have you guys seen a doctor in Madisonor Milwaukee? I was thinking you had. That would only be a 4 or 5 hourdrive and I could do that once in awhile. Thank you anyone in advancefor any information.Smiles,aMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

Janet,

Thanks for looking for the number. Vivian did give it to me. The problem I am having now is that I don't think my insurance will pay for me to go to a doctor out of state. Very frustrating! I am going to recheck with the insurance company though.

Smiles,

a

a,

I am looking thru my papers to find the number also. Dr Peltier is with the medical college of WI which is a big hospital off of 894 on the west side of Milwaukee. So, it is easily accessable from Iowa. I will write back. Maybe Vivian will get her number faster as the last time I saw her was in 1997.

Also, there used to be a Mc house a few blocks away. My sister stayed there in 1991 when her son was premature Otherwise, there are quite a few hotels off of the freeway and to the west if I remember right. Priceline should get you won for around $50. Or, when you make an appointment you could ask them for recommendations.

Janet

[Guest guest]

Nan,

Don't worry about not getting back to me with the number. Vivian

gave it to me. It is time to take care of you. I hope that with all

your tests, you find an answer. My sister went through something similar

a couple of years ago. She was then tested on Ritalin and is now on

something else to help her stay awake.

Smiles,

a

[Guest guest]

a,

Maybe check into having someone in Iowa refer you to her. Maybe she has the name of someone. Dr Tick billed thru his office rather than hers because my insurance was funny about paying for a neurologist. defiunitely get the insurance stuff taken care of else you will wind up with a huge bill.

Janet

Re: Doctors/Vivian/Nan/Janet

Janet,

Thanks for looking for the number. Vivian did give it to me. The problem I am having now is that I don't think my insurance will pay for me to go to a doctor out of state. Very frustrating! I am going to recheck with the insurance company though.

Smiles,

a

a,

I am looking thru my papers to find the number also. Dr Peltier is with the medical college of WI which is a big hospital off of 894 on the west side of Milwaukee. So, it is easily accessable from Iowa. I will write back. Maybe Vivian will get her number faster as the last time I saw her was in 1997.

Also, there used to be a Mc house a few blocks away. My sister stayed there in 1991 when her son was premature Otherwise, there are quite a few hotels off of the freeway and to the west if I remember right. Priceline should get you won for around $50. Or, when you make an appointment you could ask them for recommendations.

Janet

Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.