Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Vivian, I was just thinking of you this morning. I'm glad that you have a diagnosis now. Hopefully that will help with treatment. Thanks for the update. I will keep praying for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Vivian, I'm know this is probably not the diagnosis you want, but like you said, it does explain why you didn't respond to all the MS treatments. I will be keeping you in my thoughts and prayers. Smiles, a Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Vivian I'm glad you are finally getting some answers. I am glad the doctors are talking to each other to come up with a treatment plan. laurie > > Reply-To: > Date: Mon, 21 Jul 2003 20:11:00 -0500 > To: < > > Subject: news from doctors > > Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both > Multiple sclerosis and mitochondrial. > > was a little freaked, but I told him that it does not make a difference > in the way I felt for a year or will feel in the coming year. > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > But in many ways this is good news, good news to know why I did not respond to > the MS treatment as expected, (like getting dehydrated on the IV steroids that > caused a big problem). > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > on a treatment plan for both and to discuss about Jack getting a muscle > biopsy. > > Thanks for listening. > > Vivian > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Vivian, hope you can figure out a treatment. Having two diseases adds to the problem. I have high cholesteral and diabetes. The endrocronologist (who I am no longer going to see) wanted me to start on some of the satin drugs that are bad for melas. With the diabetes my blood sugar goes up when I exercise (the MELAS exercise intolerant) instead of responding like other diabetics. My GP is very good about learning about the MELAS. Janet Sample news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Janet My blood sugar level is like yours. I took statins for a year or so and it lowered my cholesteral some. I stopped it and starting taking Borage Seed Oil and it went down about 50 points. I think the other supplements have also helped. laurie > > Reply-To: > Date: Tue, 22 Jul 2003 15:44:00 -0500 > To: < > > Subject: Re: news from doctors > > Vivian, > > hope you can figure out a treatment. Having two diseases adds to the problem. > I have high cholesteral and diabetes. The endrocronologist (who I am no > longer going to see) wanted me to start on some of the satin drugs that are > bad for melas. > > With the diabetes my blood sugar goes up when I exercise (the MELAS exercise > intolerant) instead of responding like other diabetics. > > My GP is very good about learning about the MELAS. > Janet Sample > news from doctors > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both > Multiple sclerosis and mitochondrial. > > was a little freaked, but I told him that it does not make a difference > in the way I felt for a year or will feel in the coming year. > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > But in many ways this is good news, good news to know why I did not respond to > the MS treatment as expected, (like getting dehydrated on the IV steroids that > caused a big problem). > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > on a treatment plan for both and to discuss about Jack getting a muscle > biopsy. > > Thanks for listening. > > Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Laurie, I read one of your other posts about the Borage Seed Oil. I was going to get some and forgot what it was called. I will have to print this. Thanks, Janet news from doctors > > > > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > > > I heard from the doctor...she thinks based on the tests that I have both > > Multiple sclerosis and mitochondrial. > > > > was a little freaked, but I told him that it does not make a difference > > in the way I felt for a year or will feel in the coming year. > > > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > > > But in many ways this is good news, good news to know why I did not respond to > > the MS treatment as expected, (like getting dehydrated on the IV steroids that > > caused a big problem). > > > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > > on a treatment plan for both and to discuss about Jack getting a muscle > > biopsy. > > > > Thanks for listening. > > > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Laurie, I read one of your other posts about the Borage Seed Oil. I was going to get some and forgot what it was called. I will have to print this. Thanks, Janet news from doctors > > > > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > > > I heard from the doctor...she thinks based on the tests that I have both > > Multiple sclerosis and mitochondrial. > > > > was a little freaked, but I told him that it does not make a difference > > in the way I felt for a year or will feel in the coming year. > > > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > > > But in many ways this is good news, good news to know why I did not respond to > > the MS treatment as expected, (like getting dehydrated on the IV steroids that > > caused a big problem). > > > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > > on a treatment plan for both and to discuss about Jack getting a muscle > > biopsy. > > > > Thanks for listening. > > > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 I keep getting my mail sent back to me when I try to post at mitobelievers, ever since my mail changed from attbi to comcast.net. Does any one have an idea what might be wrong. I thought I was having a problem with both sites but it seem to post here. I have some friends at the other site I would like to check in on. Thanks for the help. vivian news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 I keep getting my mail sent back to me when I try to post at mitobelievers, ever since my mail changed from attbi to comcast.net. Does any one have an idea what might be wrong. I thought I was having a problem with both sites but it seem to post here. I have some friends at the other site I would like to check in on. Thanks for the help. vivian news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Janet, I also hope that they can work together. I have a MS neurologist who is the head of MS, but MS is clearly his specialty, and a Mito neurologitst who clearly knows the mito aspect...I pray they will listen to one another. I don't thinkg that they have encountered someone exactly like me before. Vivian news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Janet, I also hope that they can work together. I have a MS neurologist who is the head of MS, but MS is clearly his specialty, and a Mito neurologitst who clearly knows the mito aspect...I pray they will listen to one another. I don't thinkg that they have encountered someone exactly like me before. Vivian news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Dear , Laurie, a, and Janet, Thank you for your prayers. I do feel more peaceful. Now it is just a matter of deciding how to treat me. It is being considered to treat both. But it makes sense that given the last time I was treated for the MS that because of the mito, hating the added stress on my body that I seemed to get worse. We also need to decide with the doctors about testing Jack and when. Thanks for caring, Re: news from doctors Vivian, I was just thinking of you this morning. I'm glad that you have a diagnosis now. Hopefully that will help with treatment. Thanks for the update. I will keep praying for you. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Dear , Laurie, a, and Janet, Thank you for your prayers. I do feel more peaceful. Now it is just a matter of deciding how to treat me. It is being considered to treat both. But it makes sense that given the last time I was treated for the MS that because of the mito, hating the added stress on my body that I seemed to get worse. We also need to decide with the doctors about testing Jack and when. Thanks for caring, Re: news from doctors Vivian, I was just thinking of you this morning. I'm glad that you have a diagnosis now. Hopefully that will help with treatment. Thanks for the update. I will keep praying for you. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Dear Vivian, I'm glad you have had some news from your docs and hope that now they can develope a treatment plan for you. How do you feel about the joint diagnoses? Take care, Celia > Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. > > was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. > > Thanks for listening. > > Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Dear Vivian, I'm glad you have had some news from your docs and hope that now they can develope a treatment plan for you. How do you feel about the joint diagnoses? Take care, Celia > Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. > > was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. > > Thanks for listening. > > Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Vivian That list is owned and moderated by someone else, so we can't help you there. Hopefully someone on this list can help you with the information you need. laurie > > Reply-To: > Date: Wed, 23 Jul 2003 07:03:15 -0500 > To: < > > Subject: Re: news from doctors > > I keep getting my mail sent back to me when I try to post at mitobelievers, > ever since my mail changed from attbi to comcast.net. > > Does any one have an idea what might be wrong. I thought I was having a > problem with both sites but it seem to post here. > > I have some friends at the other site I would like to check in on. > > Thanks for the help. > > vivian > news from doctors > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both > Multiple sclerosis and mitochondrial. > > was a little freaked, but I told him that it does not make a difference > in the way I felt for a year or will feel in the coming year. > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > But in many ways this is good news, good news to know why I did not respond to > the MS treatment as expected, (like getting dehydrated on the IV steroids that > caused a big problem). > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > on a treatment plan for both and to discuss about Jack getting a muscle > biopsy. > > Thanks for listening. > > Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Vivian That list is owned and moderated by someone else, so we can't help you there. Hopefully someone on this list can help you with the information you need. laurie > > Reply-To: > Date: Wed, 23 Jul 2003 07:03:15 -0500 > To: < > > Subject: Re: news from doctors > > I keep getting my mail sent back to me when I try to post at mitobelievers, > ever since my mail changed from attbi to comcast.net. > > Does any one have an idea what might be wrong. I thought I was having a > problem with both sites but it seem to post here. > > I have some friends at the other site I would like to check in on. > > Thanks for the help. > > vivian > news from doctors > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both > Multiple sclerosis and mitochondrial. > > was a little freaked, but I told him that it does not make a difference > in the way I felt for a year or will feel in the coming year. > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > But in many ways this is good news, good news to know why I did not respond to > the MS treatment as expected, (like getting dehydrated on the IV steroids that > caused a big problem). > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > on a treatment plan for both and to discuss about Jack getting a muscle > biopsy. > > Thanks for listening. > > Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Vivian-- I kept getting my messages sent back to me when I changed my email also for another list. Try going to yahoogroups.com and then get to the part where it lists the groups you are on. Then find the group and see what you have as email addresses. Your old address may still be in there as belonging to the group so it will not accept mail from your new address. I am no expert on this but I had a similiar problem and found out I was still registered under my old email on the list. Janet Sample news from doctors > > > > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > > > I heard from the doctor...she thinks based on the tests that I have both > > Multiple sclerosis and mitochondrial. > > > > was a little freaked, but I told him that it does not make a difference > > in the way I felt for a year or will feel in the coming year. > > > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > > > But in many ways this is good news, good news to know why I did not respond to > > the MS treatment as expected, (like getting dehydrated on the IV steroids that > > caused a big problem). > > > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > > on a treatment plan for both and to discuss about Jack getting a muscle > > biopsy. > > > > Thanks for listening. > > > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Vivian-- I kept getting my messages sent back to me when I changed my email also for another list. Try going to yahoogroups.com and then get to the part where it lists the groups you are on. Then find the group and see what you have as email addresses. Your old address may still be in there as belonging to the group so it will not accept mail from your new address. I am no expert on this but I had a similiar problem and found out I was still registered under my old email on the list. Janet Sample news from doctors > > > > > > Sorry that I have been quiet. I have kept you guys in my prayers. > > > > I heard from the doctor...she thinks based on the tests that I have both > > Multiple sclerosis and mitochondrial. > > > > was a little freaked, but I told him that it does not make a difference > > in the way I felt for a year or will feel in the coming year. > > > > I need to go have a cardiopulmonary test to evaluate the lung problem... > > > > But in many ways this is good news, good news to know why I did not respond to > > the MS treatment as expected, (like getting dehydrated on the IV steroids that > > caused a big problem). > > > > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide > > on a treatment plan for both and to discuss about Jack getting a muscle > > biopsy. > > > > Thanks for listening. > > > > Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Janet, Thanks! Vivian news from doctors> >> >> > Sorry that I have been quiet. I have kept you guys in my prayers.> >> > I heard from the doctor...she thinks based on the tests that I have both> > Multiple sclerosis and mitochondrial.> >> > was a little freaked, but I told him that it does not make adifference> > in the way I felt for a year or will feel in the coming year.> >> > I need to go have a cardiopulmonary test to evaluate the lung problem...> >> > But in many ways this is good news, good news to know why I did notrespond to> > the MS treatment as expected, (like getting dehydrated on the IVsteroids that> > caused a big problem).> >> > My doctor in Milwaukee is going to talk to the MS expert in Chicago todecide> > on a treatment plan for both and to discuss about Jack getting a muscle> > biopsy.> >> > Thanks for listening.> >> > Vivian> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Janet, Thanks! Vivian news from doctors> >> >> > Sorry that I have been quiet. I have kept you guys in my prayers.> >> > I heard from the doctor...she thinks based on the tests that I have both> > Multiple sclerosis and mitochondrial.> >> > was a little freaked, but I told him that it does not make adifference> > in the way I felt for a year or will feel in the coming year.> >> > I need to go have a cardiopulmonary test to evaluate the lung problem...> >> > But in many ways this is good news, good news to know why I did notrespond to> > the MS treatment as expected, (like getting dehydrated on the IVsteroids that> > caused a big problem).> >> > My doctor in Milwaukee is going to talk to the MS expert in Chicago todecide> > on a treatment plan for both and to discuss about Jack getting a muscle> > biopsy.> >> > Thanks for listening.> >> > Vivian> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Celia, Thanks for asking how I feel about the double diagnosis. I guess my first reaction was surprise. I had thought of many different outcomes, but it never occured to me that I could have both. In many ways I am relieved. (As I told my husband, the double diagnosis does not change the way I have felt or will feel in the future, it just means that I have a name for it). It makes a lot of sense though. In some ways I am classicly MS, but do not respond to the treatment as they expect (probably the mito acting up and hating the chemical I give my body), so it make sense for how I have felt the past year. I hope that knowledge will help them treat me more appropriately, (maybe even a bag of fluid when they do IV steroids would help me from getting dehydrated and feeling terrible instead of better. Sorry it is long winded...it is just so good to put one part of the rollercoaster to rest. Vivian Re: news from doctors Dear Vivian, I'm glad you have had some news from your docs and hope that now they can develope a treatment plan for you. How do you feel about the joint diagnoses? Take care, Celia> Sorry that I have been quiet. I have kept you guys in my prayers. > > I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial.> > was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year.> > I need to go have a cardiopulmonary test to evaluate the lung problem...> > But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem).> > My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy.> > Thanks for listening.> > VivianMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Vivian, good luck on the doctors. With any luck they will listen to each other. I guess you will have to figure out which are your worst symptoms and see if they can treat them. For me I am concentrating on the blood sugar taking insulin along with the Q-gel and Carnitor to try to get the lactic acid under control. I noticed in one of your posts you mentioned Jack--It will be interesting to see which test they think he should have. My son has constipation problems which are the mito. I have more the numbness on the top of my foot and evidence of seizures in addition to the blood sugar problems. Janet news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Hi Vivian you sure have come a long way from those frustrating days of not knowing where to turn and the uncertainly of diagnosis. It gives me a lot of joy to see you reaching out to others who are where you were such a short time ago. May the doctors be able to give you a lot of help, Cheers, Ruth news from doctors Sorry that I have been quiet. I have kept you guys in my prayers. I heard from the doctor...she thinks based on the tests that I have both Multiple sclerosis and mitochondrial. was a little freaked, but I told him that it does not make a difference in the way I felt for a year or will feel in the coming year. I need to go have a cardiopulmonary test to evaluate the lung problem... But in many ways this is good news, good news to know why I did not respond to the MS treatment as expected, (like getting dehydrated on the IV steroids that caused a big problem). My doctor in Milwaukee is going to talk to the MS expert in Chicago to decide on a treatment plan for both and to discuss about Jack getting a muscle biopsy. Thanks for listening. Vivian Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
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