Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hello, there! Welcome home from the hospital! If you look in the archives, I am sure there are a ton of experiences, but I will give you a few comments from my experience. I had a TT in July, of this year. Didn't really hurt, at all. They gave me a shot of morphine in the recovery room, and the only thing I took after that were a few tylenol, throughout the following week. I took a total of about 2 1/2 weeks off work, or something around there, and I started back full time after that. The best thing that someone (don't remember who) on this list told me for right after surgery was, anytime you are laying back or relaxing back and you want to get up, take one hand and put it on the back of your neck, and help pull your neck up with your body. That way, there won't be so much pressure and pulling on your neck, and it won't hurt to stand or sit up. Anyhow, did your doctor say what your next plans are, as far as a LID, RAI, or scans? Hope you're feeling back to normal soon, Northeast Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 -- I went in on a wed at 10am, i was discharged on a thursday by 8am, and was in a little pain... ( only took advil) then by about noon i took the pain killers with codine, that night i had a hard time sleeping and then the next day i was at the grocery store for a few days i slept very proped up, and didn't take any pain meds after the second day. i showered as normal, and changed the bandage daily. I was not given ANY meds till after my RAI and that happened about 3 weeks after the surgery. So being with no thyroid and watching my THS levels go up, i was a bit tired by the end of the day, but really nothing too bad. ( i am a very energetic person normally) and i was just a little lsy bubbly... but 2 days after my RAI i was put on cyotmel for 30 days and synthroid, and now i stopped the cytomel and am doing great on the synthroid ( 35 days on so far) hope that helps jo - In Thyca , " BurningCandle_91 <plnelligan@f...> " <plnelligan@f...> wrote: > I'm joining this group since I just had a thyroid cancer removed. I > haven't received the pathology report yet, so I don't know exactly > what type or how large. There was no lymph node involvement, and the > doc " thinks " they got it all. I just got home from the hospital > yesterday. Can anyone tell me about their experience with thyroid > surgery, and how long did it take to recover? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Burning Candle--- Welcome to the group. You will find this group to be incredibly knowledgeable and supportive. You have come to the right place! I have had three thyroidectomies--so I feel like an expert, at least as far as my body is concerned. Which is an important concept that you will hear often: YMMV - your mileage may vary. Every body is different and reacts differently. In my case, I have found thyroid surgery to be quite easy--I was driving and back at work in a week both the second and third times. (the first time, I took two weeks off and went to Palm Springs to " recover " ) But that's just me--I have a high pain tolerance (and I don't call what I experienced with the thyroidectomies pain--more discomfort, if anything). I did not have any voice involvement, mild scratchy throat from the tube (the third time--which was 13 days after the second time), and of course, some muscle soreness from the incision. In my case, there wasn't much to recover from. I am the kind of person that someone on this list described as the " person we love to hate " because I have been blessed to be able to sail through most of my thyca experiences. That said, please feel free to share with us what you are experiencing and we will try to give you some perspective on what you can expect. Also, you did not mention what followup is planned for you (you may not know yet). Just be aware that follow up is essential. Please check out the thyca website--it contains a great source of information. Because our cancer is so rare, most of us feel that we must learn as much as possible about it so that we can ensure that we are getting the proper care. Hope this helps! Colly On 12 Dec 2002 at 18:07, BurningCandle_91 plnelligan@... wrote: To: Thyca " Date sent: Thu, 12 Dec 2002 18:07:16 -0000 Subject: Newly Diagnosed Send reply to: Thyca > I'm joining this group since I just had a thyroid cancer removed. I > haven't received the pathology report yet, so I don't know exactly > what type or how large. There was no lymph node involvement, and the > doc " thinks " they got it all. I just got home from the hospital > yesterday. Can anyone tell me about their experience with thyroid > surgery, and how long did it take to recover? Thanks. > > > For more information regarding thyroid cancer visit www.thyca.org. If > you do not wish to belong to this group, you may UNSUBSCRIBE by > sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi all, I am starting to get a little nervous, I am scheduled for my WBS on Monday. What exactly happens at this? I took two weeks off beginning Monday but my endo was very vague as to how the whole procedure works and what happens at this point. I have been off Cytomel since 11/30/02 and go for bloodwork and pregnancy test (that's a laugh ) tomorrow. I know you guys went through this with me before but I am so hypo-foggy now... TT -11/4 Papillary in both lobes (.9cm encapsulated follicular adenoma) nodule in left lobe .7cm in right lobe) and 3 lymph nodes Florid Hashimoto's no vascular invasion [balogh, L] Message----- From: Colly Tettelbach Sent: Thursday, December 12, 2002 1:33 PM To: Thyca Subject: Re: Newly Diagnosed Hi Burning Candle--- Welcome to the group. You will find this group to be incredibly knowledgeable and supportive. You have come to the right place! I have had three thyroidectomies--so I feel like an expert, at least as far as my body is concerned. Which is an important concept that you will hear often: YMMV - your mileage may vary. Every body is different and reacts differently. In my case, I have found thyroid surgery to be quite easy--I was driving and back at work in a week both the second and third times. (the first time, I took two weeks off and went to Palm Springs to " recover " ) But that's just me--I have a high pain tolerance (and I don't call what I experienced with the thyroidectomies pain--more discomfort, if anything). I did not have any voice involvement, mild scratchy throat from the tube (the third time--which was 13 days after the second time), and of course, some muscle soreness from the incision. In my case, there wasn't much to recover from. I am the kind of person that someone on this list described as the " person we love to hate " because I have been blessed to be able to sail through most of my thyca experiences. That said, please feel free to share with us what you are experiencing and we will try to give you some perspective on what you can expect. Also, you did not mention what followup is planned for you (you may not know yet). Just be aware that follow up is essential. Please check out the thyca website--it contains a great source of information. Because our cancer is so rare, most of us feel that we must learn as much as possible about it so that we can ensure that we are getting the proper care. Hope this helps! Colly On 12 Dec 2002 at 18:07, BurningCandle_91 plnelligan@... wrote: To: Thyca " Date sent: Thu, 12 Dec 2002 18:07:16 -0000 Subject: Newly Diagnosed Send reply to: Thyca > I'm joining this group since I just had a thyroid cancer removed. I > haven't received the pathology report yet, so I don't know exactly > what type or how large. There was no lymph node involvement, and the > doc " thinks " they got it all. I just got home from the hospital > yesterday. Can anyone tell me about their experience with thyroid > surgery, and how long did it take to recover? Thanks. > > > For more information regarding thyroid cancer visit www.thyca.org. If > you do not wish to belong to this group, you may UNSUBSCRIBE by > sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Hello, Hope you are feeling better. My thyroid was removed this past NOv 18. I was very surprised that I felt pretty good my 3 rd day and my 4th day was much much better then the day before. Now I am getting ready to meet with my Endo for the first time and hopefully find out where I am in this hypo stage and when I must go Iodine free diet and date of scheduled RAI scan. Would like to go foward as soon as possible and start taking synthetic hormone. My thyroid cancer was a complete suprise and I think I was in shock until after the surgery! Good luck to you and the thyca.org website has lots of good info. caio alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi Tasha, Welcome! I have UD (uterus didelphys-2 uteri, 2 cervices, 1 vaginal septum). My recommendation would be to find out exactly which MA you have...there are quite a few different kinds, and each has their own intricacies and " treatments " . Then learn what you can from the great ladies here and find an informed dr (sometimes difficult!) that can take care of your special needs. I'm not sure if you are ttc (trying to conceive) or not, but the rates for having children are good here. We just have to be a little extra attentive! Good luck! Let us know how your u/s goes! C. 28, UD 2 m/c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi Tasha, Welcome! I have UD (uterus didelphys-2 uteri, 2 cervices, 1 vaginal septum). My recommendation would be to find out exactly which MA you have...there are quite a few different kinds, and each has their own intricacies and " treatments " . Then learn what you can from the great ladies here and find an informed dr (sometimes difficult!) that can take care of your special needs. I'm not sure if you are ttc (trying to conceive) or not, but the rates for having children are good here. We just have to be a little extra attentive! Good luck! Let us know how your u/s goes! C. 28, UD 2 m/c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi Tasha, Welcome! I have UD (uterus didelphys-2 uteri, 2 cervices, 1 vaginal septum). My recommendation would be to find out exactly which MA you have...there are quite a few different kinds, and each has their own intricacies and " treatments " . Then learn what you can from the great ladies here and find an informed dr (sometimes difficult!) that can take care of your special needs. I'm not sure if you are ttc (trying to conceive) or not, but the rates for having children are good here. We just have to be a little extra attentive! Good luck! Let us know how your u/s goes! C. 28, UD 2 m/c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Hi Jodee, How long it takes for your body to adjust to the meds depends upon a lot of factors, none of which are within our control. It will take a few weeks for the levothyroxine to be absorbed into your body and begin to level off. for some its 6 to 8 weeks...once the 8 weeks are past most doctors will have the tests rerun and adjust the meds levels up or down, depending upon the test results. This tuning and them fine tuning may take only a few months or quite a long time...This also depends upon what is causing your body to have a high TSH... Did the doc test for the Free T3 and Free T4 's ? Did the doc mention what his diagnosis might be? Gossimer > > I have gained about 80 pounds over the past 15 months and have been so tired. I have also had a lot of cramps in all over my body. My doctor finally tested my thyroid and my tsh is 5.83. He started me on 50mg of levothyroxine (synthroid). I hope that these meds will help me feel better. I was wondering how long it normally takes to feel a difference. > > thanks > > Jodee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Hi, No he didn't test the other values, only my TSH. Re: newly diagnosed > Hi Jodee, How long it takes for your body to adjust to the meds depends > upon a lot of factors, none of which are within our control. > It will take a few weeks for the levothyroxine to be absorbed into your > body and begin to level off. for some its 6 to 8 weeks...once the 8 > weeks are past most doctors will have the tests rerun and adjust the > meds levels up or down, depending upon the test results. This tuning > and them fine tuning may take only a few months or quite a long > time...This also depends upon what is causing your body to have a high > TSH... > > Did the doc test for the Free T3 and Free T4 's ? > > Did the doc mention what his diagnosis might be? > > Gossimer > > > >> >> I have gained about 80 pounds over the past 15 months and have been > so tired. I have also had a lot of cramps in all over my body. My > doctor finally tested my thyroid and my tsh is 5.83. He started me on > 50mg of levothyroxine (synthroid). I hope that these meds will help me > feel better. I was wondering how long it normally takes to feel a > difference. >> >> thanks >> >> Jodee >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Hi Jodee, So did the doc mention what he thought he might be treating? or what he thought the diagnosis might be? Gossimer > >> > >> I have gained about 80 pounds over the past 15 months and have been > > so tired. I have also had a lot of cramps in all over my body. My > > doctor finally tested my thyroid and my tsh is 5.83. He started me on > > 50mg of levothyroxine (synthroid). I hope that these meds will help me > > feel better. I was wondering how long it normally takes to feel a > > difference. > >> > >> thanks > >> > >> Jodee > >> > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Hi Jodee, So did the doc mention what he thought he might be treating? or what he thought the diagnosis might be? Gossimer > >> > >> I have gained about 80 pounds over the past 15 months and have been > > so tired. I have also had a lot of cramps in all over my body. My > > doctor finally tested my thyroid and my tsh is 5.83. He started me on > > 50mg of levothyroxine (synthroid). I hope that these meds will help me > > feel better. I was wondering how long it normally takes to feel a > > difference. > >> > >> thanks > >> > >> Jodee > >> > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 I got my labs in the mail, he tested my A1c to see where my blood sugar was at, to see if I have diabetes, and he tested my TSH to see where my thyroid was at because I complained about being so tired that I could crash at 7pm every night. I used to exercise 7 days a week and was very active, now I can barely stay awake so he knows this is a huge change in my behavior. Plus I have gained 80 pounds over the past 15 months. This is what my results in the mail said, I see him next month so we can discuss everything then: A1c was 5.8 which is within the normal range. TSH Thyroid: 5.83 with a lab reference range of .35-5.83 His comment: Thyroid is a little off enclosed is a script for Synthroid, 50mcg per day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 I got my labs in the mail, he tested my A1c to see where my blood sugar was at, to see if I have diabetes, and he tested my TSH to see where my thyroid was at because I complained about being so tired that I could crash at 7pm every night. I used to exercise 7 days a week and was very active, now I can barely stay awake so he knows this is a huge change in my behavior. Plus I have gained 80 pounds over the past 15 months. This is what my results in the mail said, I see him next month so we can discuss everything then: A1c was 5.8 which is within the normal range. TSH Thyroid: 5.83 with a lab reference range of .35-5.83 His comment: Thyroid is a little off enclosed is a script for Synthroid, 50mcg per day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Sorry made a mistake the lab reference range was .35-5.50. Obviously I am hypo so he gave me the script. I see him next month so we can discuss more in detail then. Re: Re: newly diagnosed >I got my labs in the mail, he tested my A1c to see where my blood sugar was > at, to see if I have diabetes, and he tested my TSH to see where my > thyroid > was at because I complained about being so tired that I could crash at 7pm > every night. I used to exercise 7 days a week and was very active, now I > can barely stay awake so he knows this is a huge change in my behavior. > Plus I have gained 80 pounds over the past 15 months. This is what my > results in the mail said, I see him next month so we can discuss > everything > then: > > A1c was 5.8 which is within the normal range. > > TSH Thyroid: 5.83 with a lab reference range of .35-5.83 > > His comment: Thyroid is a little off enclosed is a script for Synthroid, > 50mcg per day. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Sorry made a mistake the lab reference range was .35-5.50. Obviously I am hypo so he gave me the script. I see him next month so we can discuss more in detail then. Re: Re: newly diagnosed >I got my labs in the mail, he tested my A1c to see where my blood sugar was > at, to see if I have diabetes, and he tested my TSH to see where my > thyroid > was at because I complained about being so tired that I could crash at 7pm > every night. I used to exercise 7 days a week and was very active, now I > can barely stay awake so he knows this is a huge change in my behavior. > Plus I have gained 80 pounds over the past 15 months. This is what my > results in the mail said, I see him next month so we can discuss > everything > then: > > A1c was 5.8 which is within the normal range. > > TSH Thyroid: 5.83 with a lab reference range of .35-5.83 > > His comment: Thyroid is a little off enclosed is a script for Synthroid, > 50mcg per day. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Ah, okay....So he really hasn't done much investagative work yet to figure out what is causing the TSH to be high... 50mcg is a good level to start with... Gossimer > > I got my labs in the mail, he tested my A1c to see where my blood sugar was > at, to see if I have diabetes, and he tested my TSH to see where my thyroid > was at because I complained about being so tired that I could crash at 7pm > every night. I used to exercise 7 days a week and was very active, now I > can barely stay awake so he knows this is a huge change in my behavior. > Plus I have gained 80 pounds over the past 15 months. This is what my > results in the mail said, I see him next month so we can discuss everything > then: > > A1c was 5.8 which is within the normal range. > > TSH Thyroid: 5.83 with a lab reference range of .35-5.83 > > His comment: Thyroid is a little off enclosed is a script for Synthroid, > 50mcg per day. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 I was diagnosed with infiltrating ductal carcinoma almost 16 yrs ago and I am doing fine. You have a great attitude and thats a good part of the battle. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Newly diagnosed Hi,I had my first mammo on March 14 because I turned 40.Basically my birthday saved my life.I was just diagnosed last thursday with breast cancer of the right breast. 2 lumps were found and biopsied.The words that I can recall right now are "ductal carcinoma"Surgery is scheduled for April 27.Right now they say they are going to do a duo lumpectomey with a sentinal node biopsy. If they find stuff in the biopsy, then they will probably have to take the breast.That will be followed by radiation.I know this is very treatable.Am I nervous? A little...Am I scared? A little...Am I strong? Most certainly!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Hello and welcome to the group, Sandy! I too was diagnosed with " invasive ductal carcinoma, " but I only had it in one breast. I am thinking since your surgery wasn't scheduled immediately, that that is a good sign, meaning the tumors are small. Mine was 1.1 cm and my husband and I found out right before our vacation. The doc said to go ahead and go, and we could do surgery afterwards. The lump was found on Oct. 3rd, removed on Oct. 14th and had more surgery to check margins(area around where lump was) Nov. 29th. They also took out 7 sentinal lymph nodes, which is common practice now, and thank God they were negeative. They will send lymph nodes away for checking. Actually they can do some kind of check on the sentinal nodes while you are still in surgery, and if they are negative, they will end the surgery. If they find positive sentinal nodes, they sometimes go ahead, while you are stiil " under " and remove all the lymph nodes. So much depends on so many factors. As you can see from our group, there are many different types of breast cancer. When you get your results, one of the first things thye will tell you is if the tumors are estrogen receptor positive or negative. That determines a lot about the kind of chemo needed, the need for radiation, and the need for a regimine after treatment, like tamoxifen. I hope I haven't confused you, but just remember ask away here on this group! We are all here to help one another! Best of luck with the surgery! Carol from eastern Ohio > > Hi, > I had my first mammo on March 14 because I turned 40. > Basically my birthday saved my life. > > I was just diagnosed last thursday with breast cancer of the right > breast. 2 lumps were found and biopsied. > > The words that I can recall right now are " ductal carcinoma " > > Surgery is scheduled for April 27. > Right now they say they are going to do a duo lumpectomey with a > sentinal node biopsy. If they find stuff in the biopsy, then they > will probably have to take the breast. > > That will be followed by radiation. > > I know this is very treatable. > Am I nervous? A little... > Am I scared? A little... > > Am I strong? Most certainly!!! > Quote Link to comment Share on other sites More sharing options...
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